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  1. Hazel

    Introducing Tinnitus Quest

    The moment is finally here. We could not have predicted 18 months ago, when a group of tinnitus sufferers frustrated with the lack of progress in research formed Tinnitus Quest, that we would now be able to announce the winners of our first ever research grant. It means so much to us to achieve...
  2. Jammer

    Suicidal

    TIL Vincent Van Gogh cut off his ear 137 years ago. Medical theories suggest the ringing or voices became unbearable, prompting him to try to cut the source of the sound. So there is precedent.
  3. S

    You're taking zopiclone though? They have just as much risk of side effects as something like...

    You're taking zopiclone though? They have just as much risk of side effects as something like Clonazepam and at least it's not something you have to commit to a routine of taking, if you don't like it or it doesn't help, you can just not take it again! Plus, it's used off label for restless legs...
    • Scruffiey
    • Profile post comment
  4. tobyharrixon

    we were all normal once

    we were all normal once
  5. Maruashen

    Loud Noise and Tinnitus Spikes: How Long Do You Rest? Share Your Recovery Experiences

    It's time for me to reply to my own post. A while ago, I was exposed to a random air-raid siren, so I wanted to share the process and outcome. It might help someone in the future. The Incident: I was exposed to an Air-raid siren. They produce approximately 145 dB from 1 meter distance. They're...
  6. LovableGamer

    Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration

    They are in trials for the first group already. Hopefully, we will get some news soon. I am not sure if this will help my hearing loss or anything. It seems more for hidden hearing loss?
  7. 0

    Musical Hallucinations: When Tinnitus Becomes Music — A Lifelong Struggle Intensifies

    I've had tinnitus in my left ear for more than 45 years and had learned to live with it. About 20 years ago, that ear became deaf due to sudden hearing loss. A few months ago, I began hearing music, which is quite annoying. Even worse, my teeth chatter in rhythm with the melodies I hear in my...
  8. Maruashen

    25F New to the Club (Unfortunately): Begging for Advice and Support

    How are you feeling now, @stickynotes?
  9. N

    New University of Michigan Tinnitus Discovery — Signal Timing

    The fact they can't get investment tells of low confidence.
  10. tiniturk

    Wow, I've been on this site for 3 years now. Time flies when you're suffering lmao

    Wow, I've been on this site for 3 years now. Time flies when you're suffering lmao
    • tiniturk
    • Profile post
  11. S

    25F New to the Club (Unfortunately): Begging for Advice and Support

    This message felt like a hug! Thank you kindly for your words and for sharing your story. I really, really appreciate it. I’m really glad to hear you’re doing better, and I hope I will get better too as time goes on. I try to leverage my favourite things (e.g., family time) to get my mind off...
  12. S

    Hey!! I’m okay, happy holidays! Thanks for the message. I’m how I always am - taking it day by...

    Hey!! I’m okay, happy holidays! Thanks for the message. I’m how I always am - taking it day by day and truthfully, haven’t been able to get off edge yet about this. Definitely trying to manage my emotional responses better but I’m really hopeful time will make things better. How are you? Do you...
  13. grate_biff

    Suicidal

    Have you been taking any kind of benzo?
  14. Furetto

    Rosa Canina, Urtica Dioica and Tanacetum Vulgare Herbal Combination in Treatment of Tinnitus

    @Vadimus, did you eventually continue the treatment, or did you abandon it?
  15. Maruashen

    25F New to the Club (Unfortunately): Begging for Advice and Support

    Wow, I’m impressed by your course of action, even though you’ve only had tinnitus for a month, although it’s closer to 3 months now. You’ve really done everything right by giving your ears space to heal properly. My journey’s been a bit longer. I first got tinnitus 13 years ago after a few...
  16. HighleyTall

    Suicidal

    My cochleas feel like they are about to explode at any moment. The pressure, the tinnitus, it both sounds and feels like electricity, and the sensations are unbearable. The constant pain is unbearable. To me, this does not feel like a central, brain-related problem at all. Until recently, I...
  17. slc

    New University of Michigan Tinnitus Discovery — Signal Timing

    $3 million is a pittance compared to some projects. The Gates Foundation could probably skim spare change and support this without noticing it. The VA, before the catastrophic cuts, might’ve been able to fund this as a tiny line item tucked away somewhere. It’s somewhat disheartening that they...
  18. slc

    New University of Michigan Tinnitus Discovery — Signal Timing

    Just in case it hasn't been posted, NIH Auricle funding was for a pretty modest amount. https://reporter.nih.gov/project-details/11183590#description
  19. HighleyTall

    This is becoming unbearable.

    This is becoming unbearable.
  20. HighleyTall

    Neurotec — Rosa Canina: Study-Backed Compound for Tinnitus Relief or a Scam?

    I received a TTR mail today and almost fell for it.
  21. J

    Sudden Ringing After Sinus Infection and Loud Radio

    I had a decent day yesterday and still have some ringing. I have a periodontist appointment tomorrow to look at the abscess on my tooth. Tonight, some anxiety has kicked in, and this is not a fun disease. I went to urgent care yesterday because of the anxiety, and all my vitals checked out...
  22. Tryn2BHopeful

    Hard to believe it's been a year since this got worse. I wish I could say it's gotten better...

    Hard to believe it's been a year since this got worse. I wish I could say it's gotten better... maybe a little, but it's so hard to tell. Lost alot of what life I had from this. I am still a husband and father, got to keep trying.
  23. S

    Pain

    Pain
  24. Auricle

    Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging

    Seems related: The State of High-Resolution Imaging of the Human Inner Ear: A Look Into the Black Box TL;DR: Getting useful, non-destructive images of the cochlea of a live human being is very difficult.
  25. Maruashen

    Skiing with Hyperacusis and Tinnitus

    I always need some light coating to insert them deep; it's almost impossible if the foam plugs are dry. And @simon225, I can recommend something like 3M E-A-R Soft FX. They are soft and large.
  26. Maruashen

    Worried About Hearing Damage After Brief Chainsaw Exposure at 12 Meters While Passing By

    I’m very confused. I’m guessing you didn’t read my post? I was referring to one standard chart and one chart with a random reduction in dBi, made only to help Michael2025 and prove a point. I was saying that the standard charts seem pretty extreme to me and that I’ve got a feeling my damaged...
  27. rshackleford

    Recovery from Severe Allergy-Induced Tinnitus

    @Omega Ivanovic, I have heard of this, where the gut can contribute to sinus and Eustachian tube dysfunction issues. I certainly believe it, as I have dealt with my fair share of stomach issues for most of my life. Only within the last 5 years have I improved my gut bacteria. I used to eat fast...
  28. kingsfan

    Skiing with Hyperacusis and Tinnitus

    Very deeply inserted foam earplugs are probably the best you'll be able to do. Roll 'em up real tight a put them in as deep as you can. There should only be a tiny sliver that you can grab with your fingernails to remove. You may need something like a very light coating of Oto-Ease if you have...
  29. J

    Temporal bone encephaloceles may be asymptomatic for years but eventually produce conductive...

    Temporal bone encephaloceles may be asymptomatic for years but eventually produce conductive hearing loss, meningitis, cerebrospinal fluid (CSF) leaks, facial nerve weakness or (rarely) seizures.
  30. HighleyTall

    Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging

    The imaging device he is developing and testing is interesting too.
  31. Maruashen

    Is Hitting Earmuff Cups Dangerous to Hearing/Tinnitus?

    I can't look up your link to that page, tho, it seems like it doesn't exist? Did they just remove it or?
  32. Luman

    I Stopped Taking Vitamin D3 and My Tinnitus Got Quieter

    I take 1000 IU (25 mcg) of Vitamin D3 daily. This is 125% of the daily value for most, and does not seem to worsen my tinnitus, which has been fairly mild for the past five or six years after a period of several years of bad symptoms. "The tolerable upper intake level of D3 for adults is...
  33. Maruashen

    Skiing with Hyperacusis and Tinnitus

    It is difficult for me to explain this without being able to draw it, but this is how it works. The occlusion effect is essentially caused by sound waves originating inside the body that bounce within the ear canal. People usually experience it while talking, eating, or, as in your case...
  34. HighleyTall

    Megan Beers Wood Research Updates / Discussion: Cochlear Inflammation & Pain Hyperacusis Mice Model

    Interesting: Hyperacusis in vestibular migraine successfully treated with galcanezumab: A case report CGRP blocking probably only works in specific cases (centrally related) and not when caused by peripheral damage / cochlear inflammation.
  35. PennyCat

    I just came up on my 3 year mark of tinnitus and I’ve fallen out of habituation twice now as...

    I just came up on my 3 year mark of tinnitus and I’ve fallen out of habituation twice now as well, although there were dozens of other smaller setbacks along the way, especially during the first year and a half. Hopefully each time it happens it will be easier to achieve habituation again.
    • PennyCat
    • Profile post comment
  36. PennyCat

    This anxiety is brutal. I miss my dog so much. She was my world and she kept me safe from...

    This anxiety is brutal. I miss my dog so much. She was my world and she kept me safe from myself. Trying to navigate grief while also dealing with horrible anxiety about tinnitus is really hard. Every time I think I’m getting a handle on it, the rug is pulled out from under me. Hopefully the...
    • PennyCat
    • Profile post
  37. S

    So I get tinnitus spikes they usually go away. After 1.5 year with tinnitus I have new tunes idk...

    So I get tinnitus spikes they usually go away. After 1.5 year with tinnitus I have new tunes idk what happened I was talking on speaker phone then woke up with new tunes in so sad.
  38. Jupiterman

    My Tinnitus Makes Me Feel Mentally Incapacitated

    If you press on the "down arrow" below a person's name, it gives information of their tinnitus history.
  39. Jupiterman

    Worried About Hearing Damage After Brief Chainsaw Exposure at 12 Meters While Passing By

    These "number" charts you refer to are for healthy, undamaged ears. If your ears are already damaged, they are less resilient and won't tolerate the same amount.
  40. Jupiterman

    Recent Hearing Distortion and Mild Tinnitus

    Damaged hair cells. Protect your hearing.
  41. streifzug

    I hope I'll live to see it :(

    I hope I'll live to see it :(
    • streifzug
    • Profile post comment
  42. T

    Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging

    At approximately 8:50 into the video, he talks about resting potential. Cells, including hearing cells, have a resting potential. These signals are sent to the brain not in response to sound, but because the cells are healthy and functioning correctly. If the hearing cells are severely damaged...
  43. S

    Hey, how have you been? I hope your T is improving :)

    Hey, how have you been? I hope your T is improving :)
    • stephenz
    • Profile post
  44. J

    I have a left temporal bone encephalocele. I think that's causing my tinnitus. Surgery is the...

    I have a left temporal bone encephalocele. I think that's causing my tinnitus. Surgery is the only way to fix that temporal bone defect.
  45. AfroSnowman

    Ketamine Treatment Clinics & Experiences — Can Ketamine Cure Tinnitus?

    I have to say in retrospect that while low-dose ketamine troches are good for emotional reset, as often as not (though not always), it spikes my tinnitus symptoms afterwards, so I pay a price if I use it.
  46. delta784

    hello do you have loudness h or pain h

    hello do you have loudness h or pain h
    • delta784
    • Profile post
  47. tobyharrixon

    im hoping within 5 years for treatment

    im hoping within 5 years for treatment
  48. EricL

    Experimenting with DMSO for Tinnitus Relief: Personal Protocol and Early Observations

    6 Month Update After 6 months of using DMSO to treat my tinnitus, on a scale of 1-10, the tinnitus in my right ear has gone from an 8 down to a 4. There haven't been as many spikes as there were in the beginning. I am continuing with the 30/30/40 solution, adding niacin powder. I did notice...
  49. ECP

    I always type detailed lists of my symptoms and then print them out before every medical...

    I always type detailed lists of my symptoms and then print them out before every medical appointment. It's become a pointless exercise because the doctors never know how to help me. I may as well put a new header on the top of my list that says, "Dear Santa, here's a list of my symptoms. For...
    • ECP
    • Profile post
  50. kingsfan

    Suicidal

    I'm tired, ya'll
  51. P

    Can Low Oxygen Saturation Spike Tinnitus?

    Yes, of course. Just look at all the things that can help reduce tinnitus. Most of those things either increase oxygen saturation or oxygen transport. Some example are: Iron Vitamin B12 Copper Detoxing mercury Light sport Piracetam Huperzine A
  52. S

    I Stopped Taking Vitamin D3 and My Tinnitus Got Quieter

    Possibly of note, D3 is usually sourced from sheep's wool. I have a bad lanolin allergy, and often found before tinnitus, I'd feel a bit cruddy after taking it. I switched over to a vegan alternative, and that no longer occurred... possibly something to be aware of, as any potential allergens...
  53. Hazel

    New University of Michigan Tinnitus Discovery — Signal Timing

    The final edit of the Auricle Q&A is here! With subtitles corrected by yours truly for accuracy - scientific and otherwise. It was quite a project to pull off this live setting and not sure I'd do it again anytime soon, but hopefully worth it. (Even if you may not have gotten the info you...
  54. B

    New University of Michigan Tinnitus Discovery — Signal Timing

    It is a medical device, not a new iPhone. I'd prefer they spend zero time on making it pretty, as I don't want to show this device off to my friends; I just want the noise in my head to quiet down. They just need to hire some engineers who are looking for work with the slowdown/lay-offs in big...
  55. Sironketchup

    New University of Michigan Tinnitus Discovery — Signal Timing

    Maybe it's our chance to multiply 3 million?
  56. UKBloke

    It's that time of year again :--) Merry Christmas to all my tinni pals, and a special shoutout...

    It's that time of year again :--) Merry Christmas to all my tinni pals, and a special shoutout to @tpj 2026; a new year, new prospects, and we keep moving forward. Much love to you all X
    • UKBloke
    • Profile post
  57. J

    Nudge: Tinnitus Feasibility Study ("The Best Technology for Interfacing with the Brain to Improve People's Lives"

    Well, actually, to be completely open, I was introducing some gentle humor. You know that internet phrase, “If it sounds too good to be true, then it probably is.” Of course, it is possible to have wealthy people with auditory problems approaching the end of their lives, and as the saying goes...
  58. N

    @Cmspgran for sleep I would like to see if I can get Orexin Antagonist medication as they are...

    @Cmspgran for sleep I would like to see if I can get Orexin Antagonist medication as they are supposed to not mess with sleep architecture. They are a new class. I still think the patches help. What's your sleep pattern?
    • Nick47
    • Profile post comment
  59. simon225

    Skiing with Hyperacusis and Tinnitus

    Thanks for your replies. I really appreciate it. Unfortunately, my helmet only blocks a small amount of sound. I used my otoplasties. I am not sure if that is the correct term in English, but I mean custom made hearing protection for my ears. The occlusion was very noticeable, especially when...
  60. streifzug

    same

    same
    • streifzug
    • Profile post comment
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