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@Greg Sacramento, I got blood test results and they are hard to interpret, but the doctor said lupus is possible (though I have no apparent liver/kidney/rash issues) but vasculitis seems most likely due to detection of P-ANCA and C-ANCA. I met with a neuro and they said the MRV shows stenosis...

I had positive ANA so I found a rheumatologist and took another blood test (demanded Lyme PCR) and I'm waiting for results. The rheumatologist mentioned Cogan's which I was aware of. However, steroids did nothing to help hearing loss or the increased screaming. I got a referral to an otologist...

I have severe, unmaskable, fluctuating tinnitus after sudden hearing loss, and I don't know why. So I got the full version of Neosensory, and have no idea how the speech part could ever even work. It does nothing for me. I'm curious if I'm just not comprehending it. When I turn the tinnitus...

@shrimp, would you mind sharing how you knew it was SCDS? I'm not sure if it shows on MRI, but the ENT refuses to do a temporal bone CT because my hearing loss is "nearly all sensorineural". I think I have the symptoms like oscillopsia and sensitivity.

Thank you so much for the info and advice. I actually did have an MRA with contrast and MRV (1.5T) recently, though only of the head. The MRA report mentioned: Tortuosity of distal cervical segments of internal carotid arteries bilaterally. Junctional prominence of the right side of the...

Sorry for the long post, but overall I'm looking for any suggestions on how to sleep with and not think about loud, fluctuating, 24/7 ringing torture that seems impossible to not think about. I'm also curious if anyone else has experience with Chiari malformation. I had bilateral idiopathic...

It is not any better. I feel I'm not allowed to think about anything except the ringing. There is not a sound or environment that masks the piercing, pulsating screaming, beeping and hissing. I feel that if everyone had this, most research funding would be rerouted within the hour.

Hello, I'm 25 and have had tinnitus in both ears for 3 years almost exactly, but I've been sensitive to sound my whole life. I had normal hearing tests. I've never been to concerts, etc.. I stopped all headphone use except to protect my ears during flights. The ringing was miserable and...