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@Roughseas, so just FYI I learned that in Canada when you go to have your test, you ask to file a freedom of information request for the results right there. They will have a form available (at least in BC) and you’ll be mailed the results. In each case I saw mine before the doctor contacted me...

I had a CT with contrast and it came back with SCDS. This is not a vascular cause - just for those who insist that all pulsatile tinnitus is vascular. It is not. For anyone else who is wondering I’ll summarize my symptoms: -high pitched, cardiosynchronous pulsing. -usually audible but...

I don’t understand what you are saying here.

There’s debate over if pulsatile tinnitus can be linked to hearing loss or if it is purely vascular. Likely readers are familiar with this article that can at least provide examples of non vascular sources of pulsatile tinnitus: Somatosensory Pulsatile Tinnitus Syndrome: Somatic Testing...

Mine is as you describe. I have no information for you though. I waited 2.5 months for a phone call with an ENT to determine he wants to see me in person and I get to wait another month and a half for that. Mine comes and goes. I haven’t been able to consistently correlate it to anything. It...

Maybe an indirect link? I drank too much and listened to music too loud. That same night of drinking may have triggered or made worse some vascular problem which surfaced my pulsatile tinnitus in the following weeks (I have completely given up drinking because of pulsatile tinnitus just on the...

Even if it is 100% cardio synchronous? Why not?

@Deepa v I'd take any scan I was able to get but I hear more stories of people being diagnosed with MRA/MRV. @Mister Muso Mine also followed an acoustic insult by about 6 weeks. In theory it shouldn’t be related but I’ve wondered if maybe it caused an inner ear infection that led to...

I did, although it happened within a month or so of initial onset as opposed to years. I am still to see my first specialist so you’re way further along than I am.

...but do they sound like these recordings inside the head (like from the victims perspective)? I’ve listened to these as well but mine sounds NOTHING like any of them. I can’t imagine any real world organically produced sound to be like what I hear inside my head. @tiniturtle - you’ve said...

How long have you had it and how long have you been pregnant? It seems to impact pregnant women more often (as many as 33% of pregnant woman can get it according to this: https://www.helpingmehear.com/tinnitus-articles/help-my-pregnancy-is-giving-me-tinnitus/)

I thought I’d give an update - this aspect of my tinnitus has started to subside. Most of my problem now is my familiar constant tone tinnitus and my pulsatile tinnitus (which is the part that bothers me the most). @Kendra, I hope yours also subsides eventually! I was also getting sound...

@RugbyAdam thanks for sharing your story! I often wonder if mine isn’t posture related. I’ve had tinnitus for years but after a particularly stupid night of loud music in August it got worse. After that I spent the following month staring at my phone reading this very forum, and by October I...

@Frédéric I see your posts so often and they are such no-bullshit, just the facts sorts of posts. I know nothing of your situation but thanks for your contributions. My input here will be the opposite - totally subjective. I live where cannabis is legal and I use it from time to time. In my...

@hans799 for your blood pressure, if you can afford it I’d get a home BP monitor. I regularly get reads in clinical settings that are much higher than at home. I also find that many doctors don’t set up a great condition for a resting read. Ideally you want to be calm, in a quiet room, and just...

Mine is high pitched and the volume is modulated in sync with my heart. It doesn't sound like a heartbeat - it sounds like regular tinnitus but with my pulse controlling the volume knob. Comes and goes.

I posted about my pulsatile tinnitus when it was very new and at that time it was very much in my left ear. Now, about 2 months in, it can manifest in either ear or sound like it’s in the middle back of my head. The intensity has reduced and it isn’t as consistent... but it is highly variable...

I don’t know if it will help you but I have two things that will reliably help remove my PT for a couple of hours: 1. take a long hot bath. I suspect if something like this was going to help you, then you would have discovered it by now, but it helps me quite a bit. I’m left with a sort of high...

@Kendra did this specific symptom ever subside? Where the tinnitus would increase in intensity in response to high pitched sounds? I have this as well and it’s really annoying, especially when combined with the fact my tinnitus is already pulsate so it gets louder and pulses.

Thanks for the advice. So just so people in the US understand how it is here - arranging for all of that is very difficult. Because the state pays for it all, there’s a bias towards not performing these scans unless certain conditions are met. The GP is the gatekeeper to essentially all...

@Greg Sacramento thank you so much for taking the time to read my posts and provide your insight. I’ve read it is normal for systolic BP to rise to 200-220 during intense physical exercise and that this is normal. ...but a hypertensive crisis is systolic over 180 (from memory). ...so...

I was referring to my pulsate tinnitus (I can modulate my normal tinnitus doing various things too bit in that case it only makes it louder). I mean, I'm not in medicine or biology so I might not be pressing all the right spots and I'm not testing with massive force but from reading around I've...

I read this article recently and it made me think mine might fit with somatosensory. I can’t modulate it at all with poking various blood pathways, but neck position and activating various muscles in my neck and jaw can change it or stop it. I also had what is likely acoustic trauma on aug 22...

Sorry! Not Allegra - Aerius (desloratadine).

@Greg Sacramento 43, 180lbs, 5’10”, non smoker (although used to smoke a long time ago - even then was not a lot). No heart meds. Maybe 10 years ago my resting BP was more like 145/95. Reduced with diet and exercise but 2 months of Achilles recovery in a pandemic - I drank more, ate more junk...

Hi Greg - thanks for all your work on this site helping people. It’s a great thing you do. Two questions of you don’t mind - when you were still diagnosing your issue, was your pulsate tinnitus relatively high pitched and in sync with your heartbeat or was it lower, like you’d expect to hear...

Well, got the ENT appointment- 2 months from now. Not even with the ENT I requested and no where near where I live. For a condition that I believe @tiniturtle said should be addressed in days or weeks. This is the Canadian medical system.

Hi @MissM - Did you ever get this resolved? I'm also near Vancouver BC and would be interested in what (if any) path you managed to find to get to the right specialists. Were you able to make any progress with your condition?

Ok spoke too soon. Sprinkler back in left ear. Not as bad but it’s there.

Hopefully. It will likely be quite a while before I am able to see the specialist just due to how it works here. If you have an immediately obvious problem our health system is pretty good, but for this kind of stuff it can be slow. I’ll update after I get my appointment but I expect that to...

@Greg Sacramento Hi Greg - thanks for the message in the conversation you started but for the life of me I haven't been able to find any reply button or any means to add to the conversation. Is there a limitation on new accounts that might prevent me from participating in a two way conversation?

Well, got back from the initial visit with a GP and he thought talk of an MRA and a neurointerventionalist was crazy talk. Was not open to vascular source. Sent to ENT. We will see how that goes and if I can make progress from there.

Hi all - In the last few weeks I developed PT (left ear). @tiniturtle, I have read your thread on getting a proper diagnosis and I will follow your advice. I am in Canada and so access to specialists is gated by GPs but your post is valuable and has helped arm me for my appointment. I'm...