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My symptoms include severe tinnitus with crackling sounds, electric shocks at the back of my head and in my ears, metal tapping, hissing, and Morse code-like noises. Occasionally, I have mucus that drains from my ears, but I don’t have any other symptoms. They’ve suggested topiramate, but I...

I'm not doing well. They started me on Nortriptyline, but I haven't noticed any improvement. Now, they want to add Gabapentin. I'm unsure if I'll continue with this treatment, given how little progress I've made with the medication and the lack of evidence supporting this protocol's effectiveness.

Does anyone know why/how I would be getting pain sensations when I get jolts of tinnitus? I get these high pitched zaps which hurt… does anyone know what that is? could be muscle spasm?

Hello, I'm looking for advice from those who have had successful outcomes with TRT. I have mild high-frequency hearing loss and want to start using hearing aids with sound therapy to help with healing. However, I don't experience ringing. Instead, I hear crackling, electric shocks in my ears...

Yes, the whole thing. Sound therapy will come later when I am feeling better. I am starting with Nortriptyline.

I will be starting it soon and will report back on my results once the program is complete. If you have any questions, feel free to ask, as I’ve had many in-depth discussions with them.

Bye everyone.

Can people just answer me: can tinnitus reduce in volume and intensity after 1 year? or after 6 months will it stay this way until death?

I have intermittent morse code which doesn’t bother me at all… I wish it would replace my more chronic tones.

Does anyone else have metal banging?

Can TTTs heal?

Nobody understands how bad TTTS is

Is Susan Shore really going to let 20 years of research go to waste? Has it truly been abandoned? If so, why did she host that webinar back in June? It’s hard to believe. She could leave behind a great legacy, but it seems like she doesn’t care—or at least that’s the impression I get.

If only I was smart enough to build a DIY model of the SSD.

I’m in Canada, and they said they would accept me.

Hi, are you trying this protocol? Do you think it’s worth taking the medications? They claim they can reduce tinnitus to a manageable level. I've had several emails and phone calls with John, the intake coordinator.

I am very skeptical about the NeuroMed program, even though I initially wanted to try it. The drugs being offered, such as Topamax and Nortriptyline, seem quite harsh. I've noticed that some people have already tried them, but the reported side effects are concerning. What worries me most is...

There is nothing more that can be done I guess

At least they are taking action and being transparent about it. Dr. Djalilian has conducted clinical trials on his migraine treatment protocol, and in my opinion, his research on middle ear implants is very promising. Electrical stimulation has been around since the 1970s, so it's not exactly a...

Hopefully, Dr. Djalilian will touch upon this during his live Q&A. I’ve helped Tinnitus Quest by compiling a list of questions for him to prepare. Many have wondered if the middle ear implants will help reactive tinnitus, hyperacusis, noxacusis, and multiple tones.

A 20-minute treatment of the electrical stimulation? Yeah, I am worried about this as well, since I cannot tolerate hearing aids. If I can’t tolerate hearing aids, how would I tolerate this implant?

Stop hurting me please

I want to ensure I’m reading this correctly—this sounds like a great result! I'm crossing my fingers that Dr. Djalilian’s work on middle ear implants will likely achieve similar success. Do we know what will be done with these findings? Are they moving forward with a plan to commercialize this...

I spoke with @Hazel earlier today. If anyone has any questions for Dr. Djalilian, please feel free to post them on my profile, as I will be compiling a list so Dr. Djalilian can review them before the Q&A. It’s my understanding that questions can also be asked “live” as well. Thanks all...

I’ve signed up and also posted about it on Reddit.

My post was about middle ear implants that aim not to interfere with residual hearing. Also, my tinnitus is so bad that I would rather be deaf.

Why do you say that?

3 weeks with hearing aids from Dr Darrow and no change.

I agree with you. I was hoping we could speed this process up. Maybe raise enough funds to hire a second ENT to help Dr. Djalilian get as many people implanted as possible (providing we get FDA approval to do so). Is this something Tinnitus Quest can fund? What about getting Dr. Carlson on...

Lucky. Be grateful and enjoy your life!

Let’s get this show on the road.

So another treatment is sitting in a closet somewhere collecting dust while we suffer. If they need money, let’s raise funds. I don’t see this audiologist on the Tinnitus Quest Board.

Hi, can you let me know if your hearing test shows the tinnitus/ear infection ear have worse hearing than the non affected ear? thank you

I really need help

I have worsened since Jan/Feb of this year. I have very scary clicks, crackling and screechy sounds that physically hurt. This is inhumane.

Absolutely, it is within Auricle's right to do as much or as little public relations as they choose. However, waffling like this is very unprofessional. They must not truly understand what suffering and isolation are like. I hope they are never put in such a desperate situation like many of us...

So CI patients get sympathy for their T but we don't?

My husband heard my tinnitus tonight in bed.. he heard it multiple times

Someone on reddit has come after me for suggesting ME implants may be a good treatment for tinnitus.