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  1. Daphne91

    New University of Michigan Tinnitus Discovery — Signal Timing

    Guys, it’s coming home as the Brits would say :) :)
  2. Daphne91

    Well done dear! So happy for you and sure you’ll have longer and longer good stretches! ❤️

    Well done dear! So happy for you and sure you’ll have longer and longer good stretches! ❤️
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  3. Daphne91

    Well done girl! Huge congrats for going back to work, staying busy at work helped me massively...

    Well done girl! Huge congrats for going back to work, staying busy at work helped me massively in the first months! @ErikaS you’ll see, it’ll make a world of difference without you realising!
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  4. Daphne91

    New University of Michigan Tinnitus Discovery — Signal Timing

    Lol. Just going off what’s stated at the end of this announcement from UMich where it was developed.
  5. Daphne91

    New University of Michigan Tinnitus Discovery — Signal Timing

    Well said, @Pixelito! Also, it’s important to understand that a “randomised, double blinded crossover study,” as this was, is pretty much the most rigorous/solid type of study you can conduct. It’s right up there. I had to get my dad who’s a doctor to explain what each of those terms means haha...
  6. Daphne91

    New University of Michigan Tinnitus Discovery — Signal Timing

    Is it the case that around this time next month (end of Q1) we should be able to check the FDA's open database to see if the device has been submitted for approval?
  7. Daphne91

    Sounds good! @ErikaS thank you xx

    Sounds good! @ErikaS thank you xx
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  8. Daphne91

    Not really but I dont drink :) sleep well thankfully since the start even

    Not really but I dont drink :) sleep well thankfully since the start even
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  9. Daphne91

    Yes it’s not linear. There will be good and bad days until the good outnumber the bad :)

    Yes it’s not linear. There will be good and bad days until the good outnumber the bad :)
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  10. Daphne91

    I was scared too but covid didnt affect it when I got it x

    I was scared too but covid didnt affect it when I got it x
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  11. Daphne91

    New University of Michigan Tinnitus Discovery — Signal Timing

    I agree! And I also have to say, isn’t it exciting that we can even say there is SOMETHING that we are waiting on? Back in 2016 when my tinnitus started, there was nothing I was remotely excited about and now we are talking about m o n t h s! :) Yes, I’m trying not to put all my eggs in one...
  12. Daphne91

    Also @ErikaS my T has a somatic element (when I tilt head back) but only for one tone that’s not...

    Also @ErikaS my T has a somatic element (when I tilt head back) but only for one tone that’s not really the most prominent or annoying does it still classify as somatic as a whole/ can benefit from thr SS device I wonder?
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  13. Daphne91

    @ErikaS based on my reading and chats with my father who is also a doctor he seems to think FDA...

    @ErikaS based on my reading and chats with my father who is also a doctor he seems to think FDA approval within 2024 is almost darw I say certain?? Maybe soon I’ll book my flight to the US for beginning of 2025 a year from now :)
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  14. Daphne91

    New University of Michigan Tinnitus Discovery — Signal Timing

    Didn’t Lenire roll out super quickly in the US after they got FDA approval? I assume Auricle will be the same if not faster? (I’m referring to the comments above about how quickly audiologists are likely to embrace it). Do I understand correctly that once something has been submitted to the...
  15. Daphne91

    It does make some of life’s difficult moments feel harder though (always the cherry on top) and...

    It does make some of life’s difficult moments feel harder though (always the cherry on top) and I have had to work massively on my perception of it esp since it flaired up in 2022 from pregnancy.
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  16. Daphne91

    But it did take me 2 years 2016-2018 to get to a place where I no longer felt tinnitus is the...

    But it did take me 2 years 2016-2018 to get to a place where I no longer felt tinnitus is the end of my life! Now ive done enough things with it (started a company, got married, had a child) that I dont feel it has the power to hold me back. That’s why it’s so important to just keep DOING!
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  17. Daphne91

    Being lucky enough to live somewhere sunny def does too..but yeah when it’s bad it’s super loud...

    Being lucky enough to live somewhere sunny def does too..but yeah when it’s bad it’s super loud in one ear, can hear it in the car etc. when it’s not it’s maskabke by even super quiet music. I think as many have said here, if I can get the flairups to be fewer, I’d be very content!
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  18. Daphne91

    and the more I can not get sucked into despair during those days the sooner I get back to...

    and the more I can not get sucked into despair during those days the sooner I get back to baseline :) easier said than done sometimes but meditation, therapy, exercise and my support network have massively helped me.
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  19. Daphne91

    I have large chunks of time when it’s barely there/ I don’t notice it, but since giving birth...

    I have large chunks of time when it’s barely there/ I don’t notice it, but since giving birth and the hormone fluctuations/sleep deprivation Ive had flairups much more often. Just got to ride out the “bad” days (and I’ve gotten better at finding joy even in those) …
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  20. Daphne91

    Mine gets bad with congestion or flu (I guess cos mine started from an ear infection/blocked ear...

    Mine gets bad with congestion or flu (I guess cos mine started from an ear infection/blocked ear in the first place).
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  21. Daphne91

    @SharonBell I don’t have hearing loss as far as tests show.

    @SharonBell I don’t have hearing loss as far as tests show.
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  22. Daphne91

    And find small things that give your body and mind comfort, even if the other discomfort is...

    And find small things that give your body and mind comfort, even if the other discomfort is still there.
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  23. Daphne91

    Either way, it sounds like your worsening of ETD is (fairly?) recent? Please give your body and...

    Either way, it sounds like your worsening of ETD is (fairly?) recent? Please give your body and mind time. Please don’t think that because you feel like this now it will be like this forever. Even in people with horrific conditions, our bodies and minds can find amazing ways to adapt if not...
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  24. Daphne91

    @4alien2 on the one hand it’s good that tinnitus is not what’s most bothering for you.I’m sure...

    @4alien2 on the one hand it’s good that tinnitus is not what’s most bothering for you.I’m sure the ETD can get better too! I have bouts when my ears feel pressure and they click when I swallow! Is that what you feel?
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  25. Daphne91

    New University of Michigan Tinnitus Discovery — Signal Timing

    It doesn't really have the hallmarks of a scam though, does it? 20+ years of research, let by a renowned scientist, headquartered in California with an equally solid business and strategy team behind it that seem to be following all legit processes, several promising clinical trials published in...
  26. Daphne91

    Sounds about right! Well done. There’s no reason it wouldn’t settle right back down given time :)

    Sounds about right! Well done. There’s no reason it wouldn’t settle right back down given time :)
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  27. Daphne91

    so there is hope! But even more hope from the number of people who have gotten to a MUCH better...

    so there is hope! But even more hope from the number of people who have gotten to a MUCH better place with the condition that they ever thought they could..you can do it because your brain is wired to if you let it :)
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  28. Daphne91

    And also, when I started on this “journey” in 2016 there was pretty much nothing on the near...

    And also, when I started on this “journey” in 2016 there was pretty much nothing on the near horizon that sounded promising treatment-wise. Don’t go crazy monitoring updates all the time and speculating, but from what I’ve read and heard and discussed I DO feel hopeful about the Auricle...
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  29. Daphne91

    ..and then it won’t be!

    ..and then it won’t be!
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  30. Daphne91

    … a new narrative that only YOU can decide “I’m so strong despite this/ I may have this handicap...

    … a new narrative that only YOU can decide “I’m so strong despite this/ I may have this handicap but it’s made me more empathetic/ I’m going to use the suffering to do something impactful” whatever it may be, the fewer the days we pity ourselves (and I know those days won’t be zero) the sooner...
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  31. Daphne91

    You can do this! I know it’snso hard to accept it as a new reality but I promise once the shock...

    You can do this! I know it’snso hard to accept it as a new reality but I promise once the shock of “is this really what my life is going to be like/ will I keep waking up to this sound/ why me” wears off and you replace with ..
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  32. Daphne91

    Hii! @ErikaS sorry for the delay just saw this :) It nearly always take 10 days - 2 weeks AFTER...

    Hii! @ErikaS sorry for the delay just saw this :) It nearly always take 10 days - 2 weeks AFTER my congestion is nearly gone. With me my ears also click when I swallow / blow my nose when I'm congested so around about the time they start acting normal, the tinnitus goes down too. It's happened...
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  33. Daphne91

    Have joined because I’d like to monitor developments with Auricle, think it will be a...

    Have joined because I’d like to monitor developments with Auricle, think it will be a gamechanger - and doesnt seem to be far off
  34. Daphne91

    Never even considered that there may one day be a treatment (which in part maybe helped me...

    Never even considered that there may one day be a treatment (which in part maybe helped me habituate faster).
  35. Daphne91

    T flaired up end of 2022 when I was nearing end of my pregnancy (thanks hormones like...

    T flaired up end of 2022 when I was nearing end of my pregnancy (thanks hormones like progesterone!) and messed me up dispite immsense joy!
  36. Daphne91

    Hello! I’ve had T since 2016 (as many didnt know it even existed), habituated after the 1-2 most...

    Hello! I’ve had T since 2016 (as many didnt know it even existed), habituated after the 1-2 most difficult years of my life.
  37. Daphne91

    Nothing happened to my T when I got covid, if anything it just made me focus more on those other...

    Nothing happened to my T when I got covid, if anything it just made me focus more on those other symptoms and taking care of those. Though it does spike after every cold/congestion but goes down again, so try not to see this as a setback :) glad you’ve been having a good month or so!
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