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Don't know where you live in the US, but you can check if you can get into the NORT program, in case you're interested. It seems to help to reduce the severity of VSS, from what I gather. Here's the link: https://www.visualsnowinitiative.org/nort/

@mknature No, VSS is still the same bugger during my Dahlia4 experiment as before haha. But I can live with it.

Anyway, I hope you're doing alright.

@ErikaS Sorry for being a tad late with my reaction. My T is still stable, but remains in the 1-3 /10 categorie. Dahlia is not as effective as I had hoped, but it does help with spikes as something similar like NAD+.

Don't be too hard on yourself @BB23 Autism is a spectrum and that could make it difficult to get the right diagnosis and adequate help, but as of late there's luckily more public awareness about it and that also helps to make society more inclusive for people like us

@BB23 That's a strong statement, but I get it. I'm still happy to be alive though, especially for my family who shared my burden. The thing is that I've become hyper vigilant for loud sounds wherever I go, because I don't want it to become just as bad as a few years ago and let my family...

Another good question:) I'm not entirely sure, but I belief it was for 3 or 4 weeks (2 small bottles).

Good question: I think I was prescribed a dose of 30 IU x 2 daily.

Do you mean the NYU Langone study (2020)? Each patient received different doses (120 vs. 60 vs. 45 IU daily). It was particularly effective for one patient: he got relief (THI score from 96 to 14) when he tried a dose of 60 IU (30 IU x 2 daily).

@Jammer is right. Given the alternatives (or lack thereof), all you can do is accept the new normal. On a side note, we're probably living in a crucial period during which new technologies and treatments are being developed for tinnitus. Perhaps we'll be one of the first people who may receive...

@Fields Ey! Have you managed to get your hands on Oxy?

I'm sorry you're going though so much pain. It's not easy to deal with a break-up, let alone with tinnitus. Stay strong

@Fields Darn, sorry that it didn't give you the much needed relief.

Two other nice bonuses: my visual snow is way less on Dahlia4 and it feels like I have more mental energy. Don't know if this is temporary or permanent, but will try to keep updating you all every now and then.

@Fields, @Note & @DebInAustralia Ok, it's day 3 but I can safely say that Dahlia4 works. My tinnitus is now a 1/10. I have to close my ears to hear the faint noise. This hasn't happened before in all those years.

No, I haven't. First Concerta, now Vyvanse/Elvanse. Both are stimulants. Guanfacine seems to have less side-effects, but it's a non-stimulant, and that is generally less effective for ADHD than aforementioned stimulants. FWIW, I don't have T spikes on Elvanse.

If you're really going all in on this, I'll cross my fingers that you won't belong to the unlucky 3%. Have you managed to get a hold on Oxytocine? Dr. De Ridder was the one who could prescribe it to me. I've tried it a few years ago, but to no avail. Maybe I could've gone for a higher dose...

The article from 2024 shows ok results (decrease in loudness for 35 % of participants), no clear assessment design (e.g. TFI and MML) & no control group. So, even though they are doing interesting work, I think they have not conducted robust research so far.

I'm aware of that clinic and have some reservations about their practice. I've tried contacting them years ago about the specifics concerning pulsed radiofrequency for tinnitus but didn't receive any reply.

There's no harm in trying @Fields. How's your experience so far? I do wish it helps with your tinnitus.

Sorry to hear that. Have you tried it only for a short while? I had an issue with Concerta that it would make my T worse in the first few weeks (which was no longer the case after +/- a month).

No, not yet, but I will update you and others when I start with these supplements.

@Fields I've got a bottle directly from Dahlia4 about 2 months ago, but haven't tried it yet (due to experimenting with ADHD medication). May go for a try in a few weeks or so. Have you already ordered it?

You can find it in this document (chapter 7. Treatment of tinnitus with anti-inflammatory food supplements) on the TinnitusFree Foundation website: https://tinnitusfree.eu/wp-content/uploads/2023/09/WarOnTinnitus-TinnitusFree-280823.pdf

Did you already receive help from your GGZ or other health care professionals? They might help you in this challenging process