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Keep on keeping at what you love!

Enjoy!

I’m the same. I used to be able to mask now my T harmonises to my masking sound.

Following this with interest. My reactive element has definitely got noticeably worse. My triggers are: my cooker fan, whilst driving, whilst running or walk when it’s a bit windy. Some sounds like grey noise trigger it also. Hateful to say the least

When you can’t control what’s happening - challenge yourself to control the way you respond. This is where your true power is!!!

You are one strong lady! Xx

Shot of whiskey is a great idea. I have to have two glasses of wine before any flight - takes the edge off

@DeanD i don’t think the medication is for the potential pain rather something to settle your nerves so you aren’t so uptight about it. Rescue remedy maybe lol

Standing in coffee shop this morning at work the fire alarm drill went off. I of course had ear plugs in but it was so damn loud. I swear it lasted minutes but probably in reality only lasted 30 seconds. Loud! Hopefully I’ve escaped a further spike

I’m sure u feel delicate today lol

It’s HARD to do normal things it’s also HARD not to do normal things - choose your HARD xx

Is this kingbridge in general or Ballykelly. I take it you’re not coping any better? My right ear is by far my worst would make me want to know why there’s such a difference in the two. I’d say ten times as worse

Hi my MRI is next week too. Again keep putting it off primarily because I know it won’t yield anything and of course the loudness. I might postpone it myself.

Hi Sarah - I feel you are on a rollercoaster where you will have really good days then really bad days. Rinse and repeat. Perhaps make a wee run chart for to chart how many good, middling, bad days you have over 3 months. It might show you that you actually have more good or ok days than bad or...

I am on holiday in Spain at the minute and have taken a week off running ( I usually run 6 days a week) I’ll report back in the forum how I got on

Happens to me briefly too after running. Subsides quickly as well. Although I much prefer the loud hiss after exercise than my baseline solid tones

Sorry to read you are still suffering the pain ( as well as the constant T) I use an Oasis sound machine for sleep if you are ever in a position to lessen your meds you could look into the sound machine xx

I know everybody is different - but it didn’t make mine any worse

Snap! It was the cold did it to me in September 2022. Although I strongly believe the vaccine predisposed it

Hey Dean - all clear! I was nervous as hell getting it done. Going through a shitty spike tonight though was out running today and one of my buddies screamed for no reason right beside me. Doing some self talk here telling myself it will pass shortly.

:-)

Tune!!!

Thanks @DeanD - I am not bad thank you! I’ve a trip in September to Italy, Slovenia and Croatia. All very chilled some cycling, kayaking and wine on a balcony somewhere quiet lol.

I feel bad for you because I know how hard this is xx

I was running with a girl today who was on accutane for six months…. I subtly asked her what side effects she got from it she said dry eyes, dry skin, dry lips, muscle pain …. Nope no Tinnitus! It’s crazy how differently people are affected differently

It’s doesn’t have to be that way or if it is now it won’t always be that way for you .. a lot of us still go about our work and lives (inc family events perhaps not cinema or concerts as much). Give your self time! I still go out for food, go to quieter bars, visit my nieces and nephews, granted...

Sometimes I wonder this also - covid or vac induced

For sure!! I’m on my second glass (8pm here)

Sarah you are doing great! Really think about what works for you to take your mind of T and keep replicating it! For me it’s running. I run everyday apart from Friday!

I’m here for people supporting people! Here for random strangers reaching out and genuinely feeling for others! This is the definition of humanity! Good luck @Sammy0225 - your buddy @ErikaS is on a long break from here too! She knows you are with her.

Yup!

Hey @Strawberryblonde do you know what potentially caused your worsening last year. I had to take 10mg amytrip last night to sleep :-(

Glad to hear it lifted a bit for u. Mines didn’t go down yet. I’ve stopped trying to work out the cause - might have been running yesterday not sure. Yea Grrrr

Same as me last night was the worst I had in a long long time! 1 hour sleep I got. Usually get 7 or even 8. Something spiked me.

Can I ask what antihistamine

Oh this is interesting. I’ve noticed fluid in my R ear. Feeling of wet sand… then if I yawn I notice a blob of fluid expels from tubes into throat. Is your protocol working

Mine has to be Christmas - everyone comes to my house for dinner and drinks. It’s stressful at the time but my family is my everything

Praying it’s temporary for u

It has become a weird obsession of mine all weekend to spot the musicians on stage without ear protection. I want to slap myself every time I think about it .. haha

Actually… I looked it up! He has tinnitus already and hearing loss - in left ear but clearly doesn’t give an F! Rock n Roll!!! Not!!

I hate that there is only a like button on this - when I clearly unlike what you said. I never had pain but I did have fleeting burning sensation but haven’t had it in months. Try some pain relief

Do u have a sound machine - I have and it does make a difference to me. I play it pretty low level on grey noise. I have it on ground beside bed so that it’s not too close to my head xx

Get on the Merlot xx

Gosh you’re brave trying these things… I know you have to I understand completely. I’m over here too worried to try certain supplements. Gosh I do wish we could even get a week off every month xx best of luck mi dear

Take me with you lol. Wishing you the best

Not really but recently I woke in the middle of night to a black figure at my bedroom door. I said to my partner what are you doing and he was actually lying beside me. Next morning we found out an ex GF of his had passed away during the night (of natural causes nothing sinister) but I was...

Considering I just woke (7 am here) I won’t be reaching for a bottle yet. I’m a NZ Sav Blanc kind of girl. You’re so young to like red! I still haven’t got a taste for it

@Ryan Scott I ran and trained hard before T. Now I still run but not as much competing as I used to. I don’t listen to anything and cover my ears as best I can with a buff or headband. Yes it raises after a run but is back down 20 mins later