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TRT = Tinnitus Retraining Therapy Well we have to say that @Paul Ramsay it is important that everyone with tinnitus gets it checked out. We speak to a lot of people who haven't yet done so. We're trying to change the attitude of GP's to tinnitus but that is a long journey. Thanks :)

Thanks @wales, good example of working together to achieve more than the sum of our parts!

Hello, A response to some of the main themes in here. Written in haste in between a million and one other things, as ever, so apologies for any typos. UCLH / Mindfulness Research It feels this has been discussed ad-infinitum on here, so not sure there’s anything else I can helpfully add to...

Thank you for all of the feedback! Thanks to @Hazel for answering the questions as they've arisen, doing a better job then I would - thank you. This is a personal opinion rather than a claim I'd say - aware other have different opinions. We're building links with a few of these companies and...

I didn't see any data like this presented. Doesn't mean it wasn't there though - there were 1,000+ posters and over 300 presentations, so only really got to scratch the surface of what was presented.

Happy to try! Although as said, a lot of the information was commercially sensitive or shared in cofndience. The main value was in the networking and building relationships.

I don't manage our website comments. Initial comments were deleted as apparently the contributor said they wouldn't be back to see any reply.

Long message as I’ll try and cover a few things at once. So looking at the statement that tinnitus gets better. Over time it does appear that people’s ability to manage/cope with tinnitus increases. What evidence is there for this? Pretty much every RCT shows improvement in tinnitus through...

I will respond to this but it will be in a while. Currently at ARO, lots of meetings set up with pharma companies, some doing tinnitus work already, others I hope to persuade to get involved. A lot on potential objective measures (which I think will be key) in animal models too.

Sounds like a good idea - could write something that could be sent to media local to you too - it's pretty easy to find the health editor or similar for a few outlets. See if you can get something covered locally, if you both can turn it around quickly enough and link it to Tinnitus Week, then...

Wouldn't have thought so. Just be clear on why you're sharing it and what you'd hope for as an outcome.

It is frustrating me that this thread has become me explaining how these things tend to work and why the story does fit the narrative people here want it to - I can see how this comes across as making excuses. You assume we're not contacting the journalist and team that put this together now...

No, you see nothing, nor do you know when or how it will be used. We thought it was going to run twice at 5 and 6.30, we only knew it wasn't running at 6.30 when we saw the 6.30 slot and it didn't air. Also didn't know @Steve wasn't interviewed until I asked him this morning! Until I saw the...

Nic did make these points, weren't used. People are there then to tell their own personal story, that's why they are chosen, to give their own, unique experience of living with tinnitus. The questions are asked about what happened to them, and the interest of the interviewer is getting their...

Not what I meant, apologies. I was talking in the context of getting stories onto the TV, to do that then, yes, we need people who will be willing to stand (or sit) in front of a camera. There is value in communicating stories through different media such as the written word but I was talking...

Hi - this was a challenge to put together and get the story done. @Steve was lined up to be interviewed, as was I at one point, but both of us got dropped at the last minute, sadly. I thought Isobel did a great job conveying how serious tinnitus can be and is. Remember this was a pre-record...

We're working on it!

Sam speaks and writes very eloquently about her tinnitus experience - Sam was part of our conference networking event last year and spoke about her personal challenges of living with tinnitus. Based on that we thought Sam would be a strong voice. There's a lot of discussion on this board about...

We're looking at it and I'll report back if we amend the page or if not, then with information as to why we didn't. Takes time as with all of these pages we get it written by a medic, edited, then reviewed by other clinicians and also people living with tinnitus.

Hi @lymebite - I don't believe there's a charge or that you need to register for ARO. It is open to the public - the text in italics above is taken from an email ARO sent out. I took it to be a free public dissemination event.

Hi All, as part of the ARO Annual Midwinter meeting in Baltimore, there will be a science cafe meeting on tinnitus. Not sure it will be worth travelling for, but if you're in the area might be worth having a look... Our signature Science Café is back! On Friday Feb 8th at 7 PM, hear Dr...

Hi All, as I said in the video happy to get involved in discussions that lead out of it and thank you for the positive coments so far. To reiterate what @Steve has already said. What I say in here is personal opinion and am sure you'd get a different take if Steve had someone different from the...

So based on your feedback we've revised the page. The page is here; https://www.tinnitus.org.uk/all-about-tinnitus and the version number has been updated to reflect the change.

Yes, the NHS does fund tinnitus research. It does this via the National Institute for Health Research network. It funds basic sience research via the Medical Research Centres and translational research via biomedical research centres. The largest one looking at tinnitus is Nottingham...

We're on it. Please be assured that your point is being seriously considered. As soon as we've made a decision on an amendment or that the evidence supports the statement I'll report it back here (along with the references). We have quite a lengthy process for amendments to some of our pages to...

Thought you may be interested in a feature the BBC is doing today on misophonia. Story here, also heavily featured on the various BBC home pages https://www.bbc.co.uk/news/stories-46193709 You can listen to a piece on BBC World Service (link on the page above), and there’s going to be a...

I said I'd try and answer some of the questions on here relating to the guidelines. As well as the guidelines (not yet published) highlighted above, other countries do have guidelines already in place, the US ones are the most referenced...

I passed it onto Emily who does our Facebook feed (I'm not on FB), so it probably will get used. We're trying to post less then we did previously though (as the feedback we got was we posted too much).

Thanks again @Berik - I've shared this and hope we can use in our prevention work.

No - Googled him first. I just cut and pasted the subject title from the website, although I did correct the typo in the headline...at least the one I spotted! Thta

Hi All, thought you may be interested in this article that appeared in the Yorkshire Post last week; https://www.yorkshirepost.co.uk/news/opinion/gp-taylor-tinnitus-a-life-sentence-and-a-curse-thta-takes-away-the-joys-of-life-1-9431264 The BTA have been in touch with G. P. Taylor to see if...

As this strand is here and there seems to be some interest, thought I'd add my thoughts on the BAA conference and the relevant presentations. Remember - this conference is for audiologists, it isn't the place for basic science or trials to be reported that don't inform clinical practice, so what...

Not sure. There is a move for a consensus definition of hyperacusis.

Yep. Nothing new to what was discussed at the BTA Conference. Looking at a January launch in Ireland. Rolling out to the UK after that. Applying for FDA approval for the US.

Great, thanks @Berik!

Couldn't agree more and have encouraged the team here to register Tinnitus Talk as a stakeholder in order to be able to respond to the consultation. The BTA will do likewise. Not sure - it is on one of our pages with information standard certification, meaning it has been through an extensive...

One of the first things I did when joining the BTA was to lobby NICE to produce a clinical guideline on the treatment and mangement of tinnitus. AOHL did the same, as well as lobbying for the production on guidelines for hearing loss, which were published earlier this year. The tinnitus...

Thanks all for the feedback.

The advert looks great. @Berik - any idea if there if there's an English translation of it? YouTube's Auto-Translate didn't do a great job!

We don't screen these. Depends on the people who come forward to participate. We include more in our magazine Quiet.

It's tough figuring out who the audience is for this sort of thing. I see the primary audience as the millions of people living with tinnitus who haven't sought treatment, have it but don't know what it is or haven't got past their GP. I want them to know there is the possibility they could find...

This does happen. Example of what's happening on this today; - BTA has a stand at the Royal College of GP's Annual Conference - promoting how GP's can support tinnitus patients (and importantly when to refer on) - BTA launching a campaign across social media called #HearUsOut targetting GP's -...

Hi, I don't really want to get drawn into the same debate again... but here I am! I'm not sure that most of the research money does get spent on CBT, etc. I don't think there are as many CBT trials as is widely perceived and secondly they're cheap, so don't take up a huge amount of funding. In...

No - right now he's spending 1/2 of his time on this, with no other support. Bizarre considering it is at 'epidemic' levels (1 in 10 conservatively). Absolutely agree, he's bringing new exciting ideas and is doing the spadework to (try) and prove them. Good guy all round! My opinion on how...

Pubmed's a good place to start, tends to be what most academics use to base reivews on (from what I can tell); https://www.ncbi.nlm.nih.gov/pubmed/ We (well, David Baguley!) did an analysis of the number of published papers on tinnitus for our Annual Tinnitus Research Review in 2016...

Have to say it's the first time I've seen this sort of complex decision done via a forum, won't be easy to gain consensus and have one coherent direction. I applaud the effort though!

No cost in doing so. I'd give it a couple of months minimum. Maybe to the end of the year, make the decision by a vote in January and announce in Tinnitus Week? If you go for this, happy for the BTA to administer it, can have a page on our website with the details and application form. Folk...

Good luck! Hope the meeting is worthwhile for you.

A PhD costs approx £75k to fully support over 3-5 years.

I've attached a form that we've used for small grants in the past (up to £3-5k dependent) is attached. The conditions we attached were: · 75% of the grant to be paid on the receipt of: a signed copy of this letter (which stipulates the conditions below along with the grant form that...

I'm due to speak with him on Friday. He's currently working on 3 projects to prove his theory and another on a potential biomarker for tinnitus.

Yes it's kind of doing two things at the moment. 1. Is to identify a route. 2. Is to map all research. Would want to heat map it at some point to show where the majority of research happens and where the deficits are. To be clear we're not. I've read some of the papers. Just using it to...

I'm not sure it has stagnated. I've discussed it with Josef Rauschecker before too. I think there's two connected issues. One is there's no overarching strategy (to your second point) and the other is there's no real emphasis to get a product/solution to market. So you see some really...

Aiming for Spring. Need to make sure we've got things aligned and ready to go. So the economic report, 'cure map' are all part of it. Now looking to publish a paper using the academic paper and making our case for what needs to happen next. None of it will surprise people on here, but want to...

Really enjoyed meeting and speaking to those of you I got to talk to, sorry I didn't get to speak to you all. Thank you for getting involved, the day felt like a real success.

Thanks for setting this up @GregCA, will be interesting to see what emerges. I'm pretty strung out for the next few weeks and don't really want to skew the results by getting involved until people have had a chance to vote. @Samantha R I'll get involved in the debate after that.

SOME (the ones that have been sent in on time!) of the posters to be presented at the Annual Conference on Friday are now available to view here; https://www.tinnitus.org.uk/blog/poster-session Great to see @Markku and @Steve as named authors on one, representing a study of data collected via...

Hi All, don't really want to hijack this thread with a discussion about why fundraising for tinnitus is such a challenge (it is). If there's enough interest in discussing it and someone wanted to start that thread, I'd be happy to respond to it - so long as we didn't get into BTA bashing! That...

We are looking to do that, we've discussed and assessed research strategies at a number of other charities to see what we can learn. Scale is an issue for us though. I've been looking at the ME Association (not heard of them before this strand) and seeing if we can set up a meeting to find out...

Yes - we have a 'cure map' that's been posted elsewhere on this site. We list supplements and diuretics within that map, so yes, they do feature. We don't recommend people try things such as these because there is no evidence they work and may do damage. Certainly haven't decided there is no...