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  1. Kam75

    Severe Two-Week Tinnitus Spike After Vacuuming Despite Wearing Earmuffs

    @Kerry151, I don’t mean to scare you, but once we have tinnitus, our auditory system seems to be weakened for life. You always need to protect your ears in noisy environments (above 80 dB). I personally use earplugs even when using the hair dryer. Spikes can last a long time. I’ve been...
  2. Kam75

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Do you guys think an improved version of Lenire might be available in the near future? A version that would not only help users adapt to tinnitus but also reduce its intensity, similar to Dr. Shore’s device? Maybe I’m dreaming a bit, but since this device has been on the market for about five...
  3. Kam75

    Hold your head high, dear friend. Consider yourself lucky to have at least a woman in your life...

    Hold your head high, dear friend. Consider yourself lucky to have at least a woman in your life who can support you. Be strong, for yourself, for her, for your future. Do it for your mother too. I would love my parents to see me happy too. I know I'll be depressed for the rest of my life too...
  4. Kam75

    Losing Myself — Considering an Exit Because of Unbearable Tinnitus

    Hi @another_person, I’m so sorry to read your story. The way you describe your tinnitus and how it affects your mood is exactly how I would describe my own experience. I use the same words as you, so yes, everyone here understands your suffering. The first time I had tinnitus, I was 21 years...
  5. Kam75

    How This All Works for Me — My Current Status and How I've Regained a Full and Rich Life Despite Tinnitus

    Thank you for sharing your success story. However, there is still something that does not reassure me at all. Even though you practise long-term mindfulness meditation and daily yoga, there are still nights when you cannot sleep. Personally, I have finally accepted, with great difficulty, that...
  6. Kam75

    I've been taking Mirtazapine for sleep for 4 years now. The 2 first years my sleep was not so...

    I've been taking Mirtazapine for sleep for 4 years now. The 2 first years my sleep was not so bad. So I started to resume a social life 2 years ago but my tinnitus worsen dramatically. I haven't been to any party or loud place for more than one year and a half (and I will never go back to any...
  7. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    I have always wondered what would happen to this device if, unfortunately, Susan Shore were to pass away before it was brought to market. Now that we have learned that more tests need to be carried out, which will take many more years, and given Shore’s advanced age, this is a legitimate...
  8. Kam75

    I want to die, my tinnitus has only gotten worse over the past six years. Now I hear something...

    I want to die, my tinnitus has only gotten worse over the past six years. Now I hear something like the sound of a vacuum cleaner, and my other sounds are more intense (high-pitched sounds, electrical sounds, the sound of a dental drill, Morse code, the sound of pipes). I can't sleep at all :(...
  9. Kam75

    Artificial Intelligence — Assisted Tinnitus Support with ChatGPT-4

    Unfortunately, I agree with the previous answers: no promising treatment is expected in the short term. The only thing I can imagine appearing sooner is an improved version of Lenire. This device has been on the market for five years now. We can hope that Neuromod will use customer feedback to...
  10. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    I have said several times in this thread that the device will not be on the market before 2030 in the US and not before 2035 outside the US. Unfortunately, from what I can see, it seems that my prediction was quite accurate. So many more years of suffering... But I hope it will be worth it and...
  11. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    As a reminder, Susan Shore stated during the interview that she is unsure if the device will be effective for individuals with non-somatic tinnitus, as it was only tested on those with somatic tinnitus. However, I remember that she also said she hopes the device will help millions of tinnitus...
  12. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @trevl, thank you for asking about me. I’d love to say that I feel better, but unfortunately that’s not the case. I’ve been dealing with a terrible spike for two years now. I no longer consider it a spike, but rather a permanent worsening. What frightens me most is that I don’t know the...
  13. Kam75

    Is she the doctor who prescribed you the intravenous drug that gave you tinnitus?

    Is she the doctor who prescribed you the intravenous drug that gave you tinnitus?
  14. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @delta784, we are both terribly unlucky. You developed this cruel disease without EVER having been to a party, and I developed it despite ALWAYS wearing hearing protection, including custom-made earplugs. We lost the lottery. We must be a tiny minority who developed tinnitus undeservedly...
  15. Kam75

    My tinnitus also prevents me from gaining muscle mass at the gym because of the lack of sleep it...

    My tinnitus also prevents me from gaining muscle mass at the gym because of the lack of sleep it causes me. It's so frustrating to work hard for nothing.
  16. Kam75

    Long-Lasting Total Remission of Tinnitus: A Systematic Collection of Cases

    When I say six months, I’m basing this on what I’ve read on Tinnitus Talk and on my own experience. I must be one of the severe cases. I developed tinnitus, with four new sounds, along with hyperacusis at a music festival, even though I was wearing custom hearing protection rated for 25 dB. My...
  17. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Thank you @alwaysmasking, but unfortunately the little "miracle" only lasted one week... I didn't want to talk about it, as I didn't want to spread negativity again, but after one week of using 7.5 mg of Mirtazapine, I had to increase the dose again to 15 mg. And it still doesn't help me sleep...
  18. Kam75

    Long-Lasting Total Remission of Tinnitus: A Systematic Collection of Cases

    I think you’re right. Depending on the cause of your tinnitus, you may have a better or worse chance of recovery. If you have pulsatile tinnitus, surgery can sometimes eliminate it. If your tinnitus is related to jaw problems, physical therapy for TMJ and wearing a mouthguard can help resolve...
  19. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi folks! Just a little update about my situation. I have been taking only 7.5 mg of Mirtazapine to sleep for a week now. Before that, I was taking up to 45 mg (the maximum dose) and then gradually reduced it to the minimum dose. I can clearly see a difference. My sleep is not as catastrophic...
  20. Kam75

    Unfortunately, no. My tinnitus became extremely intense (even though it was already bad) two...

    Unfortunately, no. My tinnitus became extremely intense (even though it was already bad) two years ago, because I tried to resume my social life. Since then, my sleep has been catastrophic. Mirtazapine and melatonin, which used to work quite well, no longer has any effect. It's hopeless... I...
  21. Kam75

    Salut, it must be horrible not to have the support of our parents. I'm also having sleepless...

    Salut, it must be horrible not to have the support of our parents. I'm also having sleepless nights for years because of tinnitus. I know the feeling 😔 Are you taking any medicine to help sleep?
  22. Kam75

    I hope you're not serious?! Don't do something like that. Tinnitus can improve, please be...

    I hope you're not serious?! Don't do something like that. Tinnitus can improve, please be patient. It takes years. You have your whole life ahead of you, don't do anything foolish :(
  23. Kam75

    Hyperacousis does get better over time, if you don't overprotect your ears all the time and if...

    Hyperacousis does get better over time, if you don't overprotect your ears all the time and if you expose your ears little by little to sound which are not supposed to be harmful (<70 db). I wish I could sleep again. I didn't have a restful sleep for like 2 years :(
  24. Kam75

    AdventHealth Research Institute Offers Phase II Clinical Trial of Etanercept for Treatment of Blast-Induced Tinnitus

    The thread was created two months ago. So yes, if there have been so few reactions in two months, that raises questions.
  25. Kam75

    AdventHealth Research Institute Offers Phase II Clinical Trial of Etanercept for Treatment of Blast-Induced Tinnitus

    Hi everyone, Could someone please help me understand, as I’m not sure I have this right. We have a treatment already in phase II trials that is intended to treat tinnitus in patients exposed to an explosion. Since an explosion is a sound, it could also potentially help those who developed...
  26. Kam75

    For some people, spikes subside, while for others, the tinnitus returns to its initial state...

    For some people, spikes subside, while for others, the tinnitus returns to its initial state. Unfortunately, for others, the worsening symptoms seem to be permanent. This is the case for me; my symptoms have worsened since I tried to resume my social life two years ago.
  27. Kam75

    Hi mate, I lost mine at the age of 28. I'm 34 now. I know this horrible feeling. I'm like a...

    Hi mate, I lost mine at the age of 28. I'm 34 now. I know this horrible feeling. I'm like a zombie everyday because of the lack of sleep. I live isolated in my room, doing nothing. It is terrible. Personaly I don't want to kill myslef, but I don't want to live like this for the 40 years to come...
  28. Kam75

    Same for me...

    Same for me...
  29. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    I humbly admit that I tend to be a rather negative person in life, because my motto is, “Expect the worst so you are prepared for anything.” However, when it comes to Auricle, I genuinely want to believe that it will work, even if only to reduce tinnitus and finally allow me to sleep again. I...
  30. Kam75

    Salut, I also have a sort of electric/metallic sound that seems to move around inside my head...

    Salut, I also have a sort of electric/metallic sound that seems to move around inside my head. This is one of the 5 sounds I hear that bothers me the most. Complete silence is not good for hyperacusis. Your hears have to get used little by little to noise. But loud noise is definitely dangerous!
  31. Kam75

    My ENT prescribed me Gabapentine for 2 months after my noise trauma. It did absolutely nothing...

    My ENT prescribed me Gabapentine for 2 months after my noise trauma. It did absolutely nothing for my tinnitus. He then made me tried 4 others antiepileptic to no avail.
  32. Kam75

    I first got tinnitus when I was 21 year old, during my Erasmus exchange program (but it was very...

    I first got tinnitus when I was 21 year old, during my Erasmus exchange program (but it was very mild). So I know what it is to have hearing issues during youth. I'm 34 now, and I have been having exremely disabling tinnitus for 6 years.
  33. Kam75

    That's what we call an incurable disease. Nobody can help us unfortuntely :( "Get used to it"...

    That's what we call an incurable disease. Nobody can help us unfortuntely :( "Get used to it" say all doctors. Yeah, get used to suffer your entire life... What a nice way to respond to a patient. I hope Auricle could at least alleviate tinnitus.
  34. Kam75

    It's almost the same for me, my tinnitus keeps getting worse each year :cry: Even the strong...

    It's almost the same for me, my tinnitus keeps getting worse each year :cry: Even the strong combination of drugs I take too sleep no longer works (Mirtazapine, Quetiapine, Alimemazine, Melatonin). I'm stuck in my room, losing my mind and my life. This terrible condition took everything from...
  35. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    I’m aware of this particular use of Mirtazapine. The problem is that every time I’ve tried reducing it to 15 mg, I’ve had to go back up to 22.5 mg after about a week, because my sleep becomes catastrophic again. Salut @Hyperacusis. I already have an RQTH, but I’m recognized as a disabled...
  36. Kam75

    It is often said that anxiety make tinnitus worse, but I'm not so sure whether this is true. I...

    It is often said that anxiety make tinnitus worse, but I'm not so sure whether this is true. I take as an example the fact that two years ago, I stressed enormously and continuously for at least 2 months (for a personal reason that had nothing to do with tinnitus), and this didn't aggravate my...
  37. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Mirtazapine at 22.5 mg helped me get a halfway decent night’s sleep, but that was before I made the mistake of resuming a social life. I recently tried Quetiapine for the first time, but it did not work, so I stopped taking it. Yet on Tinnitus Talk, I was told that the combination of...
  38. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Tinnitus Talk members often mention Dayvigo or Trazodone. Unfortunately, neither of them is available in France. I’ve been taking Mirtazapine for almost five years. On some nights, I add Alimemazine, Quetiapine, or Melatonin, but sadly this combination no longer works for me. My tinnitus is so...
  39. Kam75

    Mirtazapine (Remeron) vs. Trazodone — Which is Gentler for Tinnitus?

    Ah, sorry for that... Did you see a psychiatrist? He might tell you whether you really need an antidepressant or not. I don't know if antidepressants can make visual snow worse. But I remembered some people on Tinnitus Talk claiming that antidepressants gave them visual snow... The best advice...
  40. Kam75

    Mirtazapine (Remeron) vs. Trazodone — Which is Gentler for Tinnitus?

    At the highest dose (45 mg), it is supposed to work for depression. As I mentioned, I have been taking it for more than four years now, and I am still in deep depression. I do not think I will ever get out of it. I was already struggling with depression long before I developed tinnitus, so you...
  41. Kam75

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    What does it mean that I’m “reaching”? Do you mean that I’m exaggerating? If you think I’m exaggerating, I invite you to read @kelpiemsp’s profile. He wrote this himself in 2019: “I am currently experiencing silence for the 1st time in 31 years. No wonder people are so upset. What a strange...
  42. Kam75

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    I remember @kelpiemsp, the “fortunate” person who experienced silence for the first time in 31 years after trying the University of Minnesota device. It is incredibly frustrating to know that a device capable of silencing tinnitus is sitting unused on a university shelf. Dr. Hubert Lim is...
  43. Kam75

    Suicidal Two Months After Tinnitus Onset from a Child's Scream

    Hi @Annina, Sorry to hear about what you’re going through. Two months is really not a long time. Your situation may very well improve in the coming months if you continue to protect your ears when needed. It is important never to expose yourself to loud noise again once you have tinnitus...
  44. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    @trevl, again, what you say sounds very convincing and rational (and I really appreciate you taking the time to share your knowledge on the subject), but there isn’t a single ounce of positivity in it, and that’s what I need most right now, being at rock bottom emotionally. :( What you wrote...
  45. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    @lostb1t, I don’t know if Quetiapine is specifically meant to help you calm down, but according to my psychiatrist and many members of Tinnitus Talk, it’s primarily used to help with sleep. Personally, I don’t notice any difference when I take Quetiapine for sleep, so I’ve stopped using it...
  46. Kam75

    Mirtazapine (Remeron) vs. Trazodone — Which is Gentler for Tinnitus?

    Hi @ErnieRo, I have been taking Mirtazapine for more than four years now, and I have never stopped it. It did not make my tinnitus worse, and I have not experienced any side effects. I have taken it at the maximum dose of 45 mg, but I am currently down to 15 mg. This drug actually works...
  47. Kam75

    Maria's Hyperacusis & Tinnitus Success Story

    I can confirm that tinnitus can improve, but only if you give up your social life completely. Two years ago, I felt almost cured after four years without any exposure to music. Unfortunately, after resuming a social life and exposing myself to music again, my tinnitus became extremely...
  48. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @virginiadoc, it is disheartening to read that even a psychiatrist cannot find a solution to relieve the pain. It almost makes me wonder, what is the point of continuing to see my psychiatrist if he cannot help me anyway? I don't have any other health problems in my life except tinnitus and...
  49. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Among all the therapies I have tried, there were sophrology, hypnosis, and cognitive behavioral therapy for insomnia. None of them helped. I am considering trying cognitive behavioral therapy specifically for tinnitus, or possibly EMDR. I am not sure yet.
  50. Kam75

    Significant Tinnitus Relief Using Vicks VapoInhaler and VapoRub

    Glad to hear you found something that helps. Obviously, this is very unlikely to work for noise-induced tinnitus. How long does the reduction in ringing last?
  51. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    @trevl, I already read the threads you mentioned, and I understood the lesson. I will never, ever go to any bar, pub, club, or party again. As I said in my first message, I now only leave my apartment to go to work, to go to the gym, and to do my shopping. That is all. I have accepted that my...
  52. Kam75

    Same for me, same for nearly all of us here :( Two years ago I started living almost normally...

    Same for me, same for nearly all of us here :( Two years ago I started living almost normally, going to bars and clubs, as I felt better. But now I'm living a nightmare... Tinnitus increased because of that. I have sleepless nights every nights. This conditions always reminds you that your...
  53. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    You may be right about that. I’ve already come across this theory on Tinnitus Talk. It’s neither reassuring nor optimistic to read, because it makes you realize how fragile and damaged our ears really are, and how easily their condition can deteriorate again. I always wonder, how on earth do...
  54. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @trevl, it seems there are no drugs on the market that have the potential to reduce tinnitus volume, except Clonazepam, if I am not mistaken. I was prescribed this drug a long time ago, but I do not take it. It does not have a good reputation. Currently, I am taking Mirtazapine (between 15...
  55. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @Carolan! I’ve been recognized as a disabled worker, but unfortunately, that doesn’t grant me many rights—except for the possibility of retiring early under normal conditions. As far as teleworking is concerned, since I’m a consultant, I am subject to the policies set by the client’s...
  56. Kam75

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    I do not think there is a clear answer to this question, as we all react differently to medication, stimulants, and alcohol. However, it is true that coffee and alcohol are often considered substances that can temporarily increase tinnitus. Personally, that has not been the case for me. Up...
  57. Kam75

    Naproxen made my tinnitus worse. You can find my whole story here. I swiched to Mirtazapine...

    Naproxen made my tinnitus worse. You can find my whole story here. I swiched to Mirtazapine because Amitriptyline no longer worked. Now Mirtazapine no longer works because 2 years ago I resumed a social life and exposed myself to music.
  58. Kam75

    Naproxen made my tinnitus worse. My ENT specialist confirmed afterwards that it was indeed an...

    Naproxen made my tinnitus worse. My ENT specialist confirmed afterwards that it was indeed an ototoxic anti-inflammatory. I started with Amitriptyline and have now been on Mirtazapine for 4 years. Neither of the 2 antidepressants made my tinnitus worse. Going to music evenings has made it much...
  59. Kam75

    Hi @Nocca, as I said in my thread in which you have commented, I'm going to ask my psychiatrist...

    Hi @Nocca, as I said in my thread in which you have commented, I'm going to ask my psychiatrist to add Duloxetine to my current treatment (Mirtazapine) :) My appoitment with him is in July. Best wishes to you too.
  60. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @Knietppe, I’m really sorry for what you’re going through. Yes, I completely understand what you described, and I also feel like a zombie because of the lack of sleep. My eyes are as red as tomatoes every day due to insomnia. I feel weak and unsteady, so much so that I sometimes think if...