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@Zigs Now I can handle all my children in one room again at normal conversation levels. Took roughly two years! Lots of ups and downs. As for the beach house it definitely helped during my onset! Any place you can find that relaxes you well help the mental aspect (:

@Zigs well during my worst days I couldn’t help my partner with the kids unfortunately as anything above whisper level really bothered my ears it took several months to builds small tolerance and eventually I built more and more.

Also I was 24/7 living in my closet with muffs and eventually my shit calmed down enough for me too tolerate some sounds and I stopped living in my closet worst year of my fukin life

As the loudness H got better so did everything else that’s only thing I can say. The reactive T bullshit goes hand in hand with loudness H. It’s some midsole ear bullshit. I still have it all I just learned what my limits are @Karolina

Yup I had exactly everything you listed god dam it sucked exactly everything ttts, loudness H, Dysacusis palinacousis was hearing out of this world tones (alienated ones) I hated one the most was the wine glass one @Karolina

What you’re describing definitely sounds like a setback cause that’s how mine works also. Barely wake up and it’s already blaring away. Anyways hang in there I don’t get on much but I frequently log in to see how everyone is doing. We will get through this <3

"Before this setback, I was driving all over the city with minimal reactivity. I was also able to tolerate quiet places. The kicker is, I was inside my house when I heard someone honking their loud horn up front. Additionally, the landscaping people didn't give a warning; they just started using...

I Seriously, I hate this condition with a passion. I told my partner that if I just had regular tinnitus, I'd be home free because I could overlap it with music or ambient noise. Reactive tinnitus acts like a brat; if it can't get its way, it throws a fussy tantrum."

"Hi @ErikaS, it's always good hearing from you! I feel like we understand how difficult this condition is, especially reactive tinnitus. I'm also still in a spike. It changes now every millisecond; I can be in one room and walk to another, and the reactivity will instantly change."

Sorry to hear this I’m also in a spike 1 days ago I got hit with 50 seconds of a leaf blower/lawn mower. Then a few minutes after that someone pulled next to my house and honked the car horn 45 seconds. Took 24hrs to notice the reactivity is haywire

Yup I gave myself a botch micro suction and got all that back in 2022

@Thizzle thanks for asking man I appreciate it I’m doing okay for now after being home bound for two years I’m driving daily now and going places there aren’t loud. Healing at a snails pace

Also nervous system plays a big part in reactive tinnitus the more control you have over your nerves the calmer the reactivity will be. Lots of trial and error Cheers

Omg it’s been too long!!! Hope you’re okay!! I’m doing ok I’m back in the world I drive now and go too a few places I’m still dealing with navigation but it’s ups and downs/ how have u been!?!

My best advise is get your mental health in order and give it time cause that’s the only healer @Kiro

Use a fan on low. That’s what I use. As for recovery I’m not fully recovered but I can tolerate more without the reactivity being easily agitated. For example I can drive now with no ear protection and not spike. It takes time

Reactive tinnitus is really hard to navigate it’s really annoying and virtually almost impossible too habituate. Don’t use digital audio that only pisses off the reactivity cause frequency sensitivity if you wanna use white noise

@gameover how have you been? In the beginning I believe I was pushing into nox deep stabbing pains.

Hi @ErikaS! Just wanted to chime in. I’ve experienced that low hum also and also it was reactive. I didn’t hear much outside but inside it definitely acted up. I never figured out what it was but it eventually went away after a few weeks/months

I still have reactive t but it’s not easily triggered anymore unless I hear a lawn mower or leaf blower then I get a flare up for 24-48hrs

Sorry the late reply guys I’m Hardly here @gameover and @Jupiterman. I use the water faucet and things like the fan I started low and gradually built up more over time. The reactivity slowly started adapting to it.

Guys I still have reactive T but I’m slowly getting back out in the world. I’m just careful with my surroundings

Resting my ears in quiet environments and slowly exposing. Sorry late response I hardly visit as often anymore

I also get the electric zaps ⚡️ sometimes when I wake up in the middle of the night I feel them especially. Also have an electric hiss. Very unsettling anyways hang in there hope all the best for you

@ErikaS hi love I popped up to see how y’all are doing I’m glad I helped you And you also helped me. I’m forever grateful for your friendship here on TT. Currently I’m okay. No big changes reactive tinnitus still hanging around I’m taking it day by day. All my best -Sam

@kingsfan same here my friend!! The government did a signal test late night on the tv which unfortunately blasted a loud sound I covered my ears quickly but unfortunately I’m in a setback because of it. My T is really loud right now but as always I’ll fight through it! It’s not going to beat me

@ErikaS my heart is always with you my friend I’m glad to hear you’re making progress with the mental aspect I would say just keep at it and remember we are gonna have good and bad days but we will always take it one day at a time <3

Sorry the late response guys! @Utdmad89 to answer your question yes I’ve had pain where things like the door clicking or utensils hitting each other caused sudden sharp pain in my ear. I still have it but not nearly as bad since onset (thank god)

I noticed that higher-frequency sounds tended to agitate me even more. The sensitivity was so intense that I couldn't even tolerate running a fan on its lowest setting. If you're experiencing any of these symptoms, it's possible that you may be dealing with hyperacusis.

@SharonBell Sure,Hyperacusis is a condition in which the ears become highly sensitive to sound. Personally, I have experienced the onset of hyperacusis, and it has had a significant impact on my daily life. Simple things like the clanking of metal utensils or the sound of coins hitting the floor...

@Joshua Macleod hi bud! So I downloaded a Decibel reader on my phone I reset the highest (reading) to zero and begin quietly saying the word “test” then I say it gradually louder until I usually hit a 88DB reading I’m sure I can hit a 90DB reading but I don’t wanna risk it just yet

So far so good. Running the fan on high running the AC unit 9ft away on low “cool” And the tv at 5 volume. @ErikaS at some point we have to try something love <3

If it sounds like a ultra high pitched dog whistle I’ve had that one

What’s the new tone sound like? I’m sure it will subside stay in side for a few weeks and let you’re ears rest

@cyberspace i just did a test it’s reading at (5-10 decibels) which is compared to lower then a whisper this was at the lowest setting that I started at. It’s worth a try @cyberspace honostly sound therapy has helped me so much

It won’t let me put the link so I’ll just add the info and copy and paste into google Vornado Flippi V10 Compact Oscillating Air Circulator Fan, Ice White @Tryn2BHopeful and @cyberspace honostly I was like fuk it what do I have to lose and it’s helping

@Tryn2BHopeful and @cyberspace here’s the link to the fan I’ve been using again the lowest setting is almost silent it can hardly be heard. If you decide to get the fan setup at about 7ft away in room and run at the lowest setting for 2-3 min then slowly build from there. The lowest setting is...

Anyway, if you're interested, I can share the link to the fan I use. Its lowest setting is really quiet. It has helped tremendously with my Loudness H, and I believe it's also helping with my reactivity @Tryn2BHopeful

@Tryn2BHopeful "Yeah, same here. I was advised to use white noise as well. The thing is, like many of us with reactivity, using white noise from digital outputs really aggravates our tinnitus. I guess using a fan isn't considered true white noise, but I think it mimics it well enough to pass as...

Just documenting progress since writing this my LDL level is sitting about 86DB give or take ( 9 months)

Sounds similar to covid

@ErikaS i read your update. You truly are a warrior. We both started off around the same time here on TT. Hell I even saw your comment on one of the YouTube videos I was looking at a few months back. Keep fighting; some how we will get back some type of normality.

Sitting in silence only got me so far; I think pushing back into sound or some type of stimulation to the ears is warranted for recovery. I know lots people are against sound therapy but I’m fed the f#ck up. And it’s doing something cause I’m slowly getting better

@ErikaS i would say stick with the baseboard heater. I noticed with the fan I’m using I did spike significantly the first few weeks but eventually I broke through a barrier where the reactivity wasn’t so reactive. Even if it takes 2yrs of white noise I’m gonna keep at it.

It doesn’t completely cancel out my tones but it gets my brain enough distraction to re-focus my attention to other things. So the ringing kinda goes to the background like a fridge or AC

@ErikaS i 100% agree. I tested it also I went from white noise to silence and I could actually hear the volume of my tones increase every few minutes until it felt like a spike. Then going back to white noise it decreased. I think the white noise matches my frequency so it counter-reacts it