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  1. Ondine

    @Lurius Thank you <3 How are you doing...?

    @Lurius Thank you <3 How are you doing...?
  2. Ondine

    COVID, 3 years after everybody. Very anxious to be feeling so breathless and dreading my...

    COVID, 3 years after everybody. Very anxious to be feeling so breathless and dreading my tinnitus to spike. Please let me be safe...
  3. Ondine

    @Juliane Time, almost 3 years next february, living in a quiet environment and being supported...

    @Juliane Time, almost 3 years next february, living in a quiet environment and being supported by everyone around me. Sadly I would also say this is sheer luck, as some may have waited just as long and lived in silence without improving as much...
  4. Ondine

    @Strawberryblonde I have 10 physio appointments to come, it's very reassuring and encouraging to...

    @Strawberryblonde I have 10 physio appointments to come, it's very reassuring and encouraging to read they truly could help you. I won't take Prednisolone and wait for the physio in a few days instead. Thank you <3 How are you doing these days..?
  5. Ondine

    (2/2) I'm almost 100% cured from tinnitus and can't risk anything jeopardizing my recovery..

    (2/2) I'm almost 100% cured from tinnitus and can't risk anything jeopardizing my recovery..
  6. Ondine

    (1/2)I have to take Prednisolone 50g for 5 days for sciatica, but I'm so scared of taking it...

    (1/2)I have to take Prednisolone 50g for 5 days for sciatica, but I'm so scared of taking it... Any advice on what I should do ?
  7. Ondine

    My left ear has been acting up. Frequent fleeting tinnitus, burning feeling. I wish I could have...

    My left ear has been acting up. Frequent fleeting tinnitus, burning feeling. I wish I could have a tchat with my body & ask it what's wrong.
  8. Ondine

    The anxiety and trauma this family caused me since birth while blaming me for it is mindblowing...

    The anxiety and trauma this family caused me since birth while blaming me for it is mindblowing. I don't deserve this. Can't sleep.
  9. Ondine

    Head vibrations return. My sister said and did horrible things to me yesterday. She's not even...

    Head vibrations return. My sister said and did horrible things to me yesterday. She's not even sorry and gaslighting me for defending myself
  10. Ondine

    Depression & anxiety are hard to deal with, I'm taking a break from TT. Take care, I love you...

    Depression & anxiety are hard to deal with, I'm taking a break from TT. Take care, I love you all. You're brave in a way only we understand.
  11. Ondine

    @stacey At home, I always kept low music in the background during the day, as I couldn't bear to...

    @stacey At home, I always kept low music in the background during the day, as I couldn't bear to be in complete silence. But I forced myself to go to bed with no masking whatsoever, as I felt my ears needed to rest.
  12. Ondine

    @stacey But I still went out sometimes, plugging my ears when the car door closed, foam earplugs...

    @stacey But I still went out sometimes, plugging my ears when the car door closed, foam earplugs ready anytime I left the house, doing groceries when shops were empty... If it ever got too loud or uncomfortable, we left. I avoided loud events or places like the plague, still do.
  13. Ondine

    @stacey But if I did stay home, I didn't stay in complete silence. My sound tolerance lowered at...

    @stacey But if I did stay home, I didn't stay in complete silence. My sound tolerance lowered at the beginning, as I damaged my ears by masking my T with music at lowest volume in my headphones ; my fiancé was very careful with noises around the house and dealt with the loudest ones (vacuum...
  14. Ondine

    @stacey Immediately after onset, I was on sick leave for 3 months, came bach to work for 2, then...

    @stacey Immediately after onset, I was on sick leave for 3 months, came bach to work for 2, then quit. I stayed home for 9 months before finding a "quiet" job in a museum for 6 months. I've been home since last november and been unable so far to go back to any kind of work.
  15. Ondine

    @ErikaS You're so kind to call me strong, I wish I could believe in these words... Most of the...

    @ErikaS You're so kind to call me strong, I wish I could believe in these words... Most of the time, I just feel like a broken human being. Lifelong depression and anxiety didn't do well with tinnitus trauma. But thank you so much... Anyone surviving this nightmare day after day and still...
  16. Ondine

    @ErikaS But it usually goes away in a few hours, 24h max, and isn't a severe pain. The severe...

    @ErikaS But it usually goes away in a few hours, 24h max, and isn't a severe pain. The severe ear pain I experience comes at night, but I've experienced it for years and years before my onset. Something to do with teeth clenching and tension all around the jaw/neck area...
  17. Ondine

    @ErikaS However, loud environments still cause me discomfort - children screaming, people...

    @ErikaS However, loud environments still cause me discomfort - children screaming, people talking loudly. I had to leave a restaurant once, and usually end up with foam earplugs during family reunions because everyone talks too damn loud. Once back home, I have to ice my ears to ease the burning...
  18. Ondine

    @ErikaS I had/have some kind of sensivity/reactivity. Before joining TT, I masked my T by...

    @ErikaS I had/have some kind of sensivity/reactivity. Before joining TT, I masked my T by listening to music on lowest volume with headphones, and it damaged my ears even more. I never put headphones again after joining this community. But I went through several loud events (fire alarms, 12...
  19. Ondine

    @ErikaS I did have multiple tones at my worst - pure tones, wine glass, humming, chimes...

    @ErikaS I did have multiple tones at my worst - pure tones, wine glass, humming, chimes, computer/electronic sounds, bilateral. I still have multiples tones, they tend to come back in the evening or when I'm on my period, but remain extremely faint compared to what is was 2 years ago. That's why...
  20. Ondine

    @SarahMLFlemmer I mean actual silence. Most of the time if I plug my ears during the day, I hear...

    @SarahMLFlemmer I mean actual silence. Most of the time if I plug my ears during the day, I hear nothing but a sound so faint I would even hardly qualify it as a noise. I hear it a bit more at night, but I'm not talking about habituation. Loud tones and suicidal T have slowly disappeared these...
  21. Ondine

    @Lurius I can't imagine how cruel the news regarding the machine must have been for you...

    @Lurius I can't imagine how cruel the news regarding the machine must have been for you... You're in my thoughts, healing can't come soon enough. Sending my love to you and anyone reading this.
  22. Ondine

    @Lurius I'm doing well despite a slight setback these last few days, but I'm feeling much better...

    @Lurius I'm doing well despite a slight setback these last few days, but I'm feeling much better today. I have 95% silence most of the time, not a day goes by that I don't wish the same for you and everyone here.
  23. Ondine

    @Lurius Thank you so much for your message and your kind thoughts, I think about you often even...

    @Lurius Thank you so much for your message and your kind thoughts, I think about you often even if I'm always too shy and scared to bother anyone to reach out. I've read your profile posts, I'm so sorry to see how painful and distressing things have been for you lately...
  24. Ondine

    Hang in there, there have been smoother days and they will come again. I know healing feels...

    Hang in there, there have been smoother days and they will come again. I know healing feels desperately slow, but you can and will get better in time. You're not alone in this <3
  25. Ondine

    @SarahMLFlemmer How are you feeling these days ?

    @SarahMLFlemmer How are you feeling these days ?
  26. Ondine

    @SarahMLFlemmer I have already had those "spikes" during the last year and everytime they got...

    @SarahMLFlemmer I have already had those "spikes" during the last year and everytime they got better within days, I hope this one will fade as well... My neck, shoulders and jaw felt very stiff lately, it might be a reason why. I've been icing my left ear and protecting it with a foam ear plug...
  27. Ondine

    @SarahMLFlemmer The last months were so quiet, quieter and quieter in fact, so much that I had...

    @SarahMLFlemmer The last months were so quiet, quieter and quieter in fact, so much that I had complete silence during the day and the faintest sounds at night. I shouldn't even complain for a spike as I know many here have it so much harder than me, but the slightest setback is enough to awaken...
  28. Ondine

    @SarahMLFlemmer Thank you for checking in, this is so kind of you ! The last two days have...

    @SarahMLFlemmer Thank you for checking in, this is so kind of you ! The last two days have actually been a bit challenging as I seem to be spiking, with ear pain, left ear feeling inflamed and very sensitive to sound and getting fleeting tinnitus...
  29. Ondine

    Hi ! Thank you for your kind message, I've actually tried a sip of beer a few days ago with no...

    Hi ! Thank you for your kind message, I've actually tried a sip of beer a few days ago with no side effects whatsoever, it felt great to enjoy the family reunion a bit more :) How are you doing these days ?
  30. Ondine

    Everytime I feel confident enough to come and share my progress and healing with you, I get a...

    Everytime I feel confident enough to come and share my progress and healing with you, I get a random spike the next day. Beyond frustrating.
  31. Ondine

    Icing mine helps when they feel inflamed, have you tried it..?

    Icing mine helps when they feel inflamed, have you tried it..?
  32. Ondine

    Mine was A pair of brown eyes by the Pogues. I never understood why but it worked somehow.

    Mine was A pair of brown eyes by the Pogues. I never understood why but it worked somehow.
  33. Ondine

    Back when I had multiple and constant sounds, I found it so hard to describe it. Pure tones...

    Back when I had multiple and constant sounds, I found it so hard to describe it. Pure tones mixed with computer / modem sounds, wavering vibrations, wine glass... Madness.
  34. Ondine

    Icing my ear helps a lot as well !

    Icing my ear helps a lot as well !
  35. Ondine

    I might have to go back to my old job in high school, but I'm terrified of all the noise. I wish...

    I might have to go back to my old job in high school, but I'm terrified of all the noise. I wish I could find a way to work from home.
  36. Ondine

    This is the wisest thing to do. Since onset 2 1/2 years ago, I've stopped going to loud places...

    This is the wisest thing to do. Since onset 2 1/2 years ago, I've stopped going to loud places entirely. I'm going to a wedding in a few weeks and will just attend the ceremony, I declined staying for the meal and party as I know there's gonna be 200 guests and insanely loud music. My mother...
  37. Ondine

    Dying to drink a beer but far too scared of potential consequences to even dare.

    Dying to drink a beer but far too scared of potential consequences to even dare.
  38. Ondine

    That's so great !

    That's so great !
  39. Ondine

    I wish you the very best <3 Take care and thank you for all your kind words.

    I wish you the very best <3 Take care and thank you for all your kind words.
  40. Ondine

    How I wish I could blast my ears to Cradle of Filth again.

    How I wish I could blast my ears to Cradle of Filth again.
  41. Ondine

    I haven't drunk since onset, more than two years ago. I've barely let a drop of wine touch my...

    I haven't drunk since onset, more than two years ago. I've barely let a drop of wine touch my lips once, I'm too scared of getting a spike.. I'm glad it worked out well for you !
  42. Ondine

    A friend developed pulsatile T. Her doctor said "it's all in your head" and sent her home...

    A friend developed pulsatile T. Her doctor said "it's all in your head" and sent her home. There's no end to my hatred for those criminals.
  43. Ondine

    I worked in high school. I took 3 months off, returned for 2 then quit and stayed 10 months home.

    I worked in high school. I took 3 months off, returned for 2 then quit and stayed 10 months home.
  44. Ondine

    What happened that caused the worsening..?

    What happened that caused the worsening..?
  45. Ondine

    Mine felt the same at times, oddly enough I started to put ice on it when it occured and it...

    Mine felt the same at times, oddly enough I started to put ice on it when it occured and it somehow brought some relief to the burning and inflamed sensation.
  46. Ondine

    This vibrating head thing is starting to really affect my sleep. It's also vibrating anytime...

    This vibrating head thing is starting to really affect my sleep. It's also vibrating anytime now, not just when I'm lying down..
  47. Ondine

    Sending all my support and so much love to everyone. It's not much of a comfort, but you are all...

    Sending all my support and so much love to everyone. It's not much of a comfort, but you are all the bravest people I've ever met.
  48. Ondine

    I'm starting to wonder if TMJ could be one the main culprits for all this, I'm meeting with a...

    I'm starting to wonder if TMJ could be one the main culprits for all this, I'm meeting with a physical therapist specializing in TMJ tuesday
  49. Ondine

    T has been virtually silent for the last 6 days. Jaw pain is becoming more present however...

    T has been virtually silent for the last 6 days. Jaw pain is becoming more present however, radiating at times in the teeth, temple, ear..
  50. Ondine

    @Strawberryblonde I never had jaw pain or problems prior to tinnitus, but since the onset 2...

    @Strawberryblonde I never had jaw pain or problems prior to tinnitus, but since the onset 2 years ago I've been experiencing them regularly
  51. Ondine

    @Strawberryblonde My dentist and physical therapist both acknowledged I had a lot of tensions in...

    @Strawberryblonde My dentist and physical therapist both acknowledged I had a lot of tensions in the jaw, but never diagnosed as TMJ
  52. Ondine

    I've been having a lot of jaw and dental pain, and several episodes of ear pain and fleeting...

    I've been having a lot of jaw and dental pain, and several episodes of ear pain and fleeting tinnitus for the last two days..
  53. Ondine

    I stopped improving, but I'm deeply and forever grateful for all the improvements so far. I hope...

    I stopped improving, but I'm deeply and forever grateful for all the improvements so far. I hope there's more to come...
  54. Ondine

    Didn't see any friends since 3 years because of Covid then tinnitus, as train tunnels hurt my...

    Didn't see any friends since 3 years because of Covid then tinnitus, as train tunnels hurt my ears. Had to quit a job I loved.
  55. Ondine

    2 years. Lost faith, trust and respect in doctors and medicine. Lost any sense of safety. T...

    2 years. Lost faith, trust and respect in doctors and medicine. Lost any sense of safety. T makes me feel like a prey chased by a monster.
  56. Ondine

    @ErikaS No, I'm not on any meds and only taking B12 supplements, but I've been taking them...

    @ErikaS No, I'm not on any meds and only taking B12 supplements, but I've been taking them forever and doubt they could have such a side effect on the long term..? Thank you for your answer, I'm glad you could get rid of the vibration !
  57. Ondine

    for a few seconds, several times in a row, then stops ? It's happening more and more frequently...

    for a few seconds, several times in a row, then stops ? It's happening more and more frequently, longer each time & only when I lie down..
  58. Ondine

    Does anyone experience a strange, inner vibration sensation in your head ? Like your entire face...

    Does anyone experience a strange, inner vibration sensation in your head ? Like your entire face is softly vibrating from the inside (1/2)
  59. Ondine

    It happened to me once, not 100% silent mais tinnitus hugely lowered after a long and intense...

    It happened to me once, not 100% silent mais tinnitus hugely lowered after a long and intense crying.
  60. Ondine

    Though evenings usually are louder and the tones become more intrusive, the volume is very low...

    Though evenings usually are louder and the tones become more intrusive, the volume is very low compared to the torture and hell it was when it all started. It's what I keep telling myself on bad days when I'm trying to sleep and listening to this mess - it got better, it got better. It can get...