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  1. C

    Why I’m bullish about cures: the barrier is research + funding. Soon AI will be like having...

    Why I’m bullish about cures: the barrier is research + funding. Soon AI will be like having hundreds of cheap PHDs working 24/7
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  2. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    Auricle agrees to give an update, raises the hopes of severe tinnitus sufferers, and then unilaterally shuts it down, ultimately making things worse than if they’d never agreed to communicate with the community. I’m sorry, but that is amateur. In my line of work, your professional reputation...
  3. C

    Lots of hikes in nearby nature with heavy earplugs, lots of gaming without sound on, browsing on...

    Lots of hikes in nearby nature with heavy earplugs, lots of gaming without sound on, browsing on my phone with sound off, reading books. The worst part was losing my social circle and not being able to eat at restaurants but eventually it all came back. Prioritize recovery over everything.
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  4. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    No, he’s saying that he can’t use the device at all. It could make his condition worse. The last thing you want to do is have loud electronic sounds piped right into your ear if you’re suffering from noxacusis.
  5. C

    Feel like I have my life back from nox and loudness H, now if only they can make progress on...

    Feel like I have my life back from nox and loudness H, now if only they can make progress on that pesky T!
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  6. C

    Yeah I personally keep the plugs in and desensitize in controlled environments.

    Yeah I personally keep the plugs in and desensitize in controlled environments.
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  7. C

    I work from home fortunately. I think that was a big part of my recovery. H almost seems like...

    I work from home fortunately. I think that was a big part of my recovery. H almost seems like tearing an ACL but then having to run on a torn ACL every day. If we could just rest a few months we’d get better but we are bombarded by sound 24/7 so recovery takes forever.
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  8. C

    Yeah I can now go to restaurants without issue as long as I wear hearing protection. I’ve been...

    Yeah I can now go to restaurants without issue as long as I wear hearing protection. I’ve been to many restaurants the past year, it’s awesome. My tolerance is the best it’s been since 2019 when my H went from manageable to catastrophic. It’s back where it was before the major noise injury I...
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  9. C

    Johns Hopkins on Hyperacusis: Damage-Evoked Signals in Cochlear Neurons and Supporting Cells

    Is that actual pain or a stress response to something that never stops? My tinnitus torments me endlessly but it’s not in the same realm as the pain I felt from noxacusis.
  10. C

    optimistic that we will all be cured by 2035. too much money and brainpower being poured into AI...

    optimistic that we will all be cured by 2035. too much money and brainpower being poured into AI to reach any other conclusion. stay strong.
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  11. C

    Case Report: Metformin Treated Long COVID Tinnitus

    My tinnitus was manageable until the vaccine so I’m extremely interested in this. Have you spoken to this friend since they began the cocktail? Any update on whether it’s working?
  12. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    Well Auricle appears to be headquartered in San Francisco. I also like the idea of multiple tinnitus experts linking up in the same department. Just not sure why she had to leave UMich., that does seem a bit odd.
  13. C

    I think we will be cured in a decade. I think we are at the forefront of a golden age of...

    I think we will be cured in a decade. I think we are at the forefront of a golden age of medicine. But it will take a bit of time still.
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  14. C

    Sorry for the late response. Ginger helped my Hyperacusis but never my Tinnitus unfortunately...

    Sorry for the late response. Ginger helped my Hyperacusis but never my Tinnitus unfortunately. Nothing helps that aside from avoiding caffeine and loud sounds.
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  15. C

    Hello Yogesh, typically my ears start to feel “fatigued” and are more sensitive/sharper. That’s...

    Hello Yogesh, typically my ears start to feel “fatigued” and are more sensitive/sharper. That’s when I know I need to be done for the day as far as digital sound exposure. Sometimes that bandwidth can be used up quickly if I am in a loud environment. Sometimes it’s just a slow process of getting...
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  16. C

    My Hyperacusis Recovery Story

    I agree. Loudness hyperacusis seems to respond to more aggressive re-exposure and less protection. There seems to be way more of a support network available for loudness hyperacusis sufferers, I think most clinics that successfully treat hyperacusis are only treating loudness hyperacusis and...
  17. C

    My Hyperacusis Recovery Story

    This is one of the most valuable threads on Tinnitus Talk for those with pain hyperacusis and noxacusis. I am at the same degree of recovery as @windwalker, roughly 90%. I can even do music at low volumes and I play electric guitar pretty regularly. I’ve been able to attend loud sporting events...
  18. C

    Botox, Tenotomy and Tympanic Neurectomy for Noxacusis

    It’s good to see that you’re exploring a lot of cutting edge options. I know it feels like a never-ending hell but try to remember that almost all hyperacusis improves eventually. I was very severe for years and have finally recovered to a functional level where I can do most things I could do...
  19. C

    On Hyperacusis/Noxacusis Setbacks and Recovery

    I double protected at all times except while sleeping.
  20. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    That’s interesting. I have to match the tones to within a few Hz. Unfortunately I have over a dozen tones, so while I’m inhibiting lower frequencies the higher ones come back and vice versa... eventually I’ll make an audio file with all of the tones and enjoy sweet sweet silence for a few...
  21. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    That actually makes total sense now that I think about it. If you can’t hear the device’s tone at all, it probably won’t work properly, regardless of what tinnitus tone you’re hearing. Similar to residual inhibition. Not sure what I was thinking but you’re absolutely right.
  22. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    If you can perceive the tinnitus, you can “hear” your tone, right? It’s not an actual sound so I’m not sure why being deaf in the range of the tone would make a difference. My understanding is they match the device to whatever tone you’re perceiving. So whatever sound you perceive that...
  23. C

    Hyperacusis Cured/Reduced by Clomipramine

    All good and well. I agree that you don’t need to take abuse from people here when you’re just offering your side of things. Enjoy life and hopefully you never have to come back here again unless it’s just dropping by in a year to say you’re still cured. That’d be awesome and I’m sure folks here...
  24. C

    Hyperacusis Cured/Reduced by Clomipramine

    I’m glad you’ve recovered. Keep in mind loudness hyperacusis and pain hyperacusis are quite different conditions and treatment doesn’t always work the same on both. In fact the stuff that makes loudness hyperacusis better can make pain hyperacusis much worse! A lot of people here have had...
  25. C

    Botox, Tenotomy and Tympanic Neurectomy for Noxacusis

    Yeah, it would make sense that painkillers were responsible for some of the alleviation. Even drinking alcohol makes all of my symptoms go away for a few hours. I’m sure legit painkillers would give even more powerful relief.
  26. C

    Botox, Tenotomy and Tympanic Neurectomy for Noxacusis

    Are there any other accounts about these procedures for people with hyperacusis? Any type of surgery worries me but catastrophic hyperacusis has tortured me for almost half a decade now. That said, I’ve also recovered a ton, so I’m not sure if it’s justified unless I have another severe setback...
  27. C

    Botox, Tenotomy and Tympanic Neurectomy for Noxacusis

    Interesting that the person who had a setback had a second successful surgery. Loud noises cause me stabbing pain but also a lingering raw burning feeling that can be 24/7 if I experience major setbacks. If some sort of procedure or combination of procedures can permanently fix me, I’ll be first...
  28. C

    Oral Gabapentin and Intradermal Injection of Lidocaine: A Role for the Treatment of Tinnitus?

    Isn’t this similar to what was happening in Korea a couple years back, where we had members fly over there to try an injection-based treatment? I thought they were getting Lidocaine injected into nerves or something similar...
  29. C

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    I had an MRI a couple months back using this machine. I’ve had severe hyperacusis and noxacusis since 2019 but have slowly recovered to a degree that fluctuates between 80-90%. I used foam earplugs and they didn’t allow me to use over-ear protection. It was still quite loud, and I agree that...
  30. C

    Ginger for Noxacusis

    I still wear them every time I leave the house. It’s not worth the risk to leave them behind imo. I wear musicians’ earplugs so I can hear people without risking too much exposure.
  31. C

    Recommendations for a Combination of Medications to Treat Noxacusis?

    Can you elaborate on this? I took NAC about a week ago and felt like I was about to die. Had a severely adverse reaction to it. I used to take it almost daily with no real issues other than some restless legs at night. However, lately I’ve been reacting weird to lots of different things in a...
  32. C

    I never tried it, dealing with other health stuff sadly. Seizures, possibly a brain tumor or...

    I never tried it, dealing with other health stuff sadly. Seizures, possibly a brain tumor or just epilepsy. Have to get an MRI tomorrow and praying it doesn’t set me back…
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  33. C

    Natural (Herbal) KCNQ Channel Activators for Pain Hyperacusis?

    Have you tried DAO? I have a ton of health problems and one of them is gut biome issues creating histamine problems. Taking NaturDAO before meals has helped a ton. It gets rid of the constant inflamed feeling. I also unfortunately suspect I have some form of frontal lobe epilepsy as well from a...
  34. C

    Ginger for Noxacusis

    Updating again to say I’ve made huge strides in my recovery. I am now playing electric guitar almost daily at decent volume for several hours, sometimes with distortion on for 10-15 seconds here and there. Always with ear protection of course. This is something I never thought I’d be able to do...
  35. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    Worse than useless; it’s the entire reason I’m on this website. But god forbid we try to fast track a treatment for the damage it has caused thousands of people like myself. What a total joke.
  36. C

    How Do You Cope Mentally with Hyperacusis and Being Homebound?

    That’s a pretty remarkable hyperacusis improvement for 2 weeks! I hope it keeps getting better.
  37. C

    How Do You Cope Mentally with Hyperacusis and Being Homebound?

    Please keep us updated on your progress. If you continue to see improvements I’ll definitely be trying this soon.
  38. C

    Hyperacusis Is Not Always Permanent: After 6 Months of CBT and TRT, I'm Back to My Noisy Job

    We are just trying to look out for people. If you continue to expose when your ears are stabbing and burning, you can get exponentially worse within a matter of days. I had a horrific setback in 2021 that wiped 2 years of recovery progress because I tried to “push through.” I fully believed it...
  39. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    That’s my belief as well. It’s possible that whatever happens when you match your tinnitus tone on your own is just being extended with Dr. Shore’s device somehow. It’s like you’re “feeding” your brain the sound it’s searching for with the tinnitus. There’s an app called TinnitusPlay and it has...
  40. C

    How Rare Is Severe Hyperacusis?

    I dunno, I go back and forth. Severe hyperacusis is more painful obviously and it’s more debilitating, it destroys your life and traps you at home. But when my tinnitus was 10/10 after the Pfizer vaccine, it was a legit struggle to stay alive. I guess it just depends on how bad each condition...
  41. C

    Earplugs Making Hyperacusis Worse?

    I don’t believe it’s just an ear damage thing. I was injured by electric guitars. I can tolerate machines and engines in the same frequencies at high decibel levels. The second someone plays distorted electric guitar I get a setback, even if it’s 1/4th the volume of a motorcycle engine that just...
  42. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    So if you have no hearing loss, you’ll be blasting a 90 dB tone directly into your ears for 30 minutes every day? If so, this will likely not be viable for those of us with noxacusis and minimal hearing loss. I’m also not surprised that some participants in the study got worse if that’s...
  43. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    I appreciate the effort here but this is the equivalent of tearing your ACL, going to physical therapy once, and saying that you feel a little bit better but your knee is still pretty wrecked. We just don't know what happens if you use the device for 12 months rather than 1 month, or for 3...
  44. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    I just don’t see how blasting artificial noise directly into your ears would improve noxacusis. It seems like the exact opposite of what we have learned to do with this condition. When I play tones the same pitch of my tinnitus tones, the tinnitus momentarily subsides. So with tinnitus there is...
  45. C

    Tinnitus and Hyperacusis Worsened After Taking Turmeric for Back Pain

    Were you vaccinated or boosted around this time? It’s hard for me to think turmeric would cause this much damage. The Pfizer vaccine gave me catastrophic tinnitus that has very slowly improved to something manageable, thank god. I have severe noxacusis as well which improves, then sets back...
  46. C

    I'm Going to a Psychiatrist: What Medications May Help Pain Hyperacusis?

    Have you seen any improvement at all in the past 6 months?
  47. C

    AirPods Max Against Road Noise (Severe Tinnitus)

    I’m also looking for any feedback on these for hyperacusis. There’s a ton of incredibly mixed feedback online, hard to even understand what they do.
  48. C

    On Hyperacusis/Noxacusis Setbacks and Recovery

    Two weeks ago I had what I consider to be my most serious hyperacusis and noxacusis setback in about 2 years. As of today I feel about 80% recovered from this setback. I’d like to write a longer post about the steps I took to recover quickly in hopes that others can apply similar approaches to...
  49. C

    I Have Kept Making My Hyperacusis Worse for Years — No More!

    I dunno, every time I try to resume my life I inevitably get a setback and am in agony for 6 months. There seems to be a level that you just can’t bounce back from no matter what. Been severe since 2019, a rollercoaster of setbacks.
  50. C

    Documenting My Journey With Noxacusis (Pain Hyperacusis)

    The least neurotic thread on Tinnitus Talk.
  51. C

    Blocking Notch Pathway Leads to New Route to Hair Cell Regeneration to Restore Hearing

    Absolutely not in my opinion. Too much acceleration in AI to compare the next decade of progress to prior decades.
  52. C

    Ginger for Noxacusis

    I came back to this thread to make sure that people try ginger for a good while before giving up on it. I realized that I had been drinking diet ginger ale for like a month straight before I made the connection. Since then I’ve had ginger every single day. But that initial month might have been...
  53. C

    I Have Kept Making My Hyperacusis Worse for Years — No More!

    I fully agree with this. This is how I got my last truly major setback, back in November 2021. I was convinced that since the sound I was listening to was objectively safe, it wouldn’t hurt me. So I kept right on exposing myself to digital sounds thru phone and laptop speakers. My ears started...
  54. C

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    The pain has gotten much better but not necessarily as a result of CBT alone. I have just protected and avoided major setbacks for about a year and a half and that’s what has likely given me the most recovery. But I’ve noticed that, since introducing “CBT” and visualizing the process of hearing...
  55. C

    'Severe' Tinnitus Sufferer After COVID-19 Infection

    My manageable tinnitus was drastically worsened by the Pfizer vaccine. I now have about 15-20 tones. Fortunately they have slowly decreased in intensity and volume over the past 2 years and my tinnitus, while severe, is no longer life threatening. I hope you get the same relief.
  56. C

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    I’ve had pretty severe noxacusis. Not to Brian’s level, but bad enough that I basically had lava in my ears 24/7 for several months. I’m not sure I’d agree that CBT doesn’t help someone with noxacusis. I think it’s helping me a lot. That said, time and protection from setbacks have helped more...
  57. C

    I Have Kept Making My Hyperacusis Worse for Years — No More!

    This is super dangerous advice. When you’re acutely experiencing pain hyperacusis or noxacusis, you need to protect your ears for a while and then gradually reintroduce sound. Thinking it’s all good and continuing to expose yourself to sound when you’re already hurting can be a one-way ticket to...
  58. C

    New University of Michigan Tinnitus Discovery — Signal Timing

    That’s me (unless someone else also has this many tones). I sometimes wonder if having so many tones actually makes it easier to tune out, like a swarm of insects rather than one annoying insect. Fortunately I can inhibit every single one of them. A couple times a day I’ll get a tinnitus...
  59. C

    Frequency Therapeutics — Hearing Loss Regeneration

    Yeah I’m just getting to the age and progression of the disease where stuff is going numb on me and not coming back. Lots of other symptoms too, the cognitive issues are the most worrisome imo. It’s funny how there’s this huge community around MS and doctors working nonstop with tons of...
  60. C

    Frequency Therapeutics — Hearing Loss Regeneration

    Anyone else here also have MS along with tinnitus or hyperacusis? Is Frequency Therapeutics' remyelination treatment supposed to be a big deal?
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