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  1. M

    Dealing with People Who Don't Care About Your Hyperacusis

    Hi. I have been living in an apartment building for just over 3 years. It's relatively quiet most of the time around here, but there are lawnmowers going around and other work on the building regularly. Ordinary, necessary stuff like that. Once in a while, I ask the 2 janitors (a couple) how...
  2. M

    Poll: Do You Have Hyperacusis without Tinnitus?

    To be more precise, I have little to no tinnitus. After my noise trauma, I started with worrisome tinnitus, then the hyperacusis appeared 2 months later. Since then, 24 years, I have never been really bothered by tinnitus luckily! Marco
  3. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    Hi Benzomom: Sorry to hear you are still sufferring. Ear wise I am doing pretty good, and I just moved out of an apartment I was sharing with a psycho. Immensely relieved!! All of you with stable and healthy friends and families, count your blessings! Because I ain't got any support... Marco
  4. M

    Completely Recovered from My Hyperacusis and Chronic Ear Pain

    It is nice to know that a small minority of people with hyperacusis can fully recover like yonkapin has. But that is rare. So any of you that are new to hyperacusis, you can improve but you will probably never recover fully. I have had it for 24 years and expect to die this way. There was a...
  5. M

    Hyperacusis Was Improving — Then a Door Slammed Beside Me and Symptoms Are Now Back Worse

    OK Lionel, please be very careful. This hyperacusis is serious business. Marco
  6. M

    Hyperacusis Was Improving — Then a Door Slammed Beside Me and Symptoms Are Now Back Worse

    BENZOMOM: Let me clarify my suggestion for benzo use for hyperacusis. I only used them when I was in a bad setback, to get a bit of relief. But during the time of the setback, I would use them almost everyday. Then when the setback would go naturally away, which sometimes took months, I would...
  7. M

    Hyperacusis Was Improving — Then a Door Slammed Beside Me and Symptoms Are Now Back Worse

    Here is what Dan Malcore of the Hyperacusis Network has to say about the possible degrees of recovery for those with hyperacusis. He has more than 25 years experience dealing with hundreds of people with hyperacusis: "I think the retraining TRT is the best thing we have right now. It is a...
  8. M

    Hyperacusis Was Improving — Then a Door Slammed Beside Me and Symptoms Are Now Back Worse

    Benzomom: I have to disagree with your recommendation not to tell people that perhaps taking benzos once in a while might alleviate their h. for a few hours.You say that most people get addicted after a while. The person who moderates BenzoBuddies told me that MOST do NOT get addicted, and she...
  9. M

    Hyperacusis Was Improving — Then a Door Slammed Beside Me and Symptoms Are Now Back Worse

    Lionel: Wow I didn't know I was talking to someone in Ireland. BTW I am in Canada. My roomate is Irish . Like my Italian ancestors, his came here a long time ago. Boy, if there is one thing I miss is listening to traditional Irish music. All good music in fact. When I had a better case 10-15...
  10. M

    Hyperacusis Was Improving — Then a Door Slammed Beside Me and Symptoms Are Now Back Worse

    Lionel: There are some that have recovered from far worse than what you are experiencing. Please hang in there. See the "Success Stories" on the Hyperacusis Network website. I have also spent months with severe hyperacusis and I always recovered to a tolerable level, as most do. I know that...
  11. M

    Those with Hyperacusis and Tinnitus, Please I Need Insight

    Bill Bauer: For most people hyperacusis does NOT go away after 6 to 12 months. It normally improves but rare is the person who is cured of hyperacusis completely. I think I would know after having hyperacusis for 24 years and reading hundreds of other people's stories. Marco
  12. M

    Hyperacusis Was Improving — Then a Door Slammed Beside Me and Symptoms Are Now Back Worse

    Hi Lionel: I am sorry to hear what happened to you. I've had hyperacusis for quite a long time, and I never experienced anything like what happened to you in the first months that I came down with hyperacusis, and never afterwards. A slam like that would only maybe make me worse for a few...
  13. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    OK, BenzoMom, good luck to you. Thanks for being the one who let me know more clearly about the dangers of benzos. Marco
  14. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    Hi Benzomom: I think you read what I told you about BenzoBuddies wrong. The people at BenzoBuddies did NOT encourage to continue taking this clonazepam. The admin merely stated that most people have no trouble. But the admin and a few others, and you, did warn me that nothing has happenned to...
  15. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    Benzomom: I think you are very courageous in putting up with all this hellish discomfort, hoping that you will come out better in the long term. It is probably what an alcoholic has to go through to stop drinking., to overcome those urges to drink when the cravings come for whatever reason. But...
  16. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    Thanks for your reply Benzomom: Your reasoning about your decision to taper off seems good, but I would still go back on them personally. It is funny that, although I had heard of this withdrawal stuff, it never scared me until I read your posts. It is a salutary scare, and I thank you for it...
  17. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    Benzomom: Have you thought maybe of GOING BACK on the benzos? Then maybe your awful symptoms would disappear, just like methadone would help an heroin addict avoid the worst of heroin withdrawal. What have you got to lose to try? Another 2 weeks, let's say, on benzos, and see what happens...
  18. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    Benzomom: I did not think you probably had improved in just a short time, but I had to ask. I have had hyperacusis for almost 24 years, so I have had setbacks of extreme hyperacusis of varying times, but luckily they have never lasted very long. I know what that hell is like. And I fervently...
  19. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    Benzomom: How are you feeling today, september 1st? Did you see the thread started by Adam007 who made a full recovery? While that is improbable for most people, it is definitely a fact that our damaged nerves (and-or whatever else is damaged) have a certain capacity for recovery, especially...
  20. M

    My Hyperacusis Recovery / Success Story

    Dear Adam 007: This is great news. I have had hyperacusis for almost 24 years. Maybe if I could have stuck with TRT, I would have got a lot better. As far as Contrast's comment that peripheral nerves regenerate on their own, mine never completely did after 24 years, and the nerves of most...
  21. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    Thanks for your response, Benzomom. Strange how we react so differently to these drugs. Because I am more concerned now about benzos, I did ask my local pharmacy for their info pamphlet about clonazepam, to read once more. They are not as alarmist and concerned about withdrawal as everyone...
  22. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    BenzoMom: what do you mean by "holding" and then "K withdrawals" Marco?
  23. M

    Recommendation Needed for a Sound Tolerable Smartphone

    Now that I am thinking more seriously about buying a mobile phone, I am realising that I might be putting myself in as much danger in using such phones as I did when I used to listen to TV, or listening to music on cheap computer speakers. Really I have had major setbacks just by listening to...
  24. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    BenzoMom: How are you feeling today? BTW, to anyone who knows about benzos: I understand that even if you taper off, you may get withdrawal symptoms. If you do get these symptoms, how many days after you stop do they kick in generally? Marco
  25. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    HI BENZOMOM, and all others! Wow, all these horror stories about benzos. If I would have known I might not have started on them about 20 years ago. But the fact is that I never have had any problems with withdrawal. You see, up until last October, I only used them when I was in a bad...
  26. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    Hi Benzomom: Sorry to hear about how you are feeling. I did not expect any improvement only after the few days we have been in contact. There were some things that I would like to mention to you in private, so I tried to send you a private message but do not know if it got to you because I am...
  27. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    I hope you are feeling a bit better today. Today I started off with a slightly bad case, but as the day wore on I have been better, which is usually the case when I have a setback. Marco
  28. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    BenzoMom: Thanks for your reply. I take your warnings about clonazepam seriously, even though 20 years on and off of it OCCASIONALLY has never hurt me. I take on the average 30 .5 mg pills every two weeks. Now more for anxiety-depression like you, due to great worry about homelessness and just...
  29. M

    Thanks to a Hyperacusis Friend in Ghent, Belgium

    Hi, friend from Belgium, have you seen my post? Marco
  30. M

    Benzodiazepine Withdrawal — SEVERE Hyperacusis

    Wow, I am really sorry to hear about what you are going through. Your desperation is acute and I really feel for you. I have had moderate hyperacusis almost 24 years now. In that 24 years I have usually used clonazepam when I have severe hyperacusis (after a setback ) which, luckily, is rare...
  31. M

    Recommendation Needed for a Sound Tolerable Smartphone

    Friends: I may need to buy a smartphone, not that I really want to. Problem is that most of those that I have used for a while, borrowed from someone, give off a very tinny kind of sound which is awful to my ears. Any kind of tinny sound from an old TV, a computer speaker etc... wreaks havoc...
  32. M

    Thanks to a Hyperacusis Friend in Ghent, Belgium

    There was a thread I started about a year ago about all the moves I have had to make starting then, and am STILL making. You all know how hard it is for us to do so many things, like find a quiet and cheap place to live. This is really wearing me out and making me bitter. Anyways, at that...
  33. M

    Delayed Setback After a Noise Blast

    Hi friends: Amongst my own peculiar and as yet inexplicable reactions with my having hyperacusis, one that I have noticed over some time is that I can have a setback after a worrisome noise exposure ONLY THE NEXT MORNING. Some times of course the reaction is relatively immediate. But one gauge...
  34. M

    MRI with Hyperacusis

    Do NOT have the MRI done!! I have heard it is way too loud. Ask whether a CT scan would do if your problem is brain related only. I had a CT scan done for a possible stroke once and it was very quiet and short. Now of course if this a life and death situation, your decision is harder. All I...
  35. M

    Are Venlafaxine and Levothyroxine Ototoxic / Bad for Hyperacusis and Tinnitus?

    Grate Biff: I just talked to my psychiatrist about possible withdrawal symptoms from Venlafaxine. He says there is little danger. Yet you describe your withdrawal as HELL. What did your psychiatrist say about you hellish symptoms after you withdrew from this med? Was he or she surprised? And...
  36. M

    Are Venlafaxine and Levothyroxine Ototoxic / Bad for Hyperacusis and Tinnitus?

    Grate Biff: Hi and greetings to your way out there in Oslo. Thanks for your warning about Venlafaxine. I gather you know about its hellish withdrawal effects from your own experience. As I wrote in my last post, it is also on the ATA list of possibly ototoxic meds. At this point, I am...
  37. M

    Are Venlafaxine and Levothyroxine Ototoxic / Bad for Hyperacusis and Tinnitus?

    OK, I accidentally found the info I needed. So no help needed, but I thought we might leave this thread here as a general warning to everyone with hyperacusis and tinnitus to always check out the possible ototoxicity of meds which could make us worse. In case you are wondering the American...
  38. M

    Are Venlafaxine and Levothyroxine Ototoxic / Bad for Hyperacusis and Tinnitus?

    OK, I figured out I could look up these meds specifically and check out the side effects. I saw nothing regarding hyperacusis and tinnitus for Synthroid. And come to think of it, the pharmacy gave me a list of possible effects. Sorry I am not too swift sometimes when looking up things on the...
  39. M

    Are Venlafaxine and Levothyroxine Ototoxic / Bad for Hyperacusis and Tinnitus?

    Hi again: Just by luck , I saw the thread below about the possible otoxicity of antidepressants, a thread to which I contributed way back last autumn. I am now more inclined NOT to take any antidepressant. But, still, if anyone can easily look up the possible ototoxicity of the meds I cite, I...
  40. M

    Are Venlafaxine and Levothyroxine Ototoxic / Bad for Hyperacusis and Tinnitus?

    Hello folks: I have not been here for a while. It is not because my ears are OK that I have avoided this forum. I just needed a break from hearing about some bad cases. There is just so much misery one can expose oneself to. It does not mean I do not feel for those who are suffering, believe...
  41. M

    Loud Voices Make Me Anxious and Scared

    Dear HanaK: I am sorry to read about your distress. It sounds that you do have hyperacusis, and right after getting your ears syringed. Could that have caused it? Did you have hyperacusis before the cleaning? I just had my ears cleaned of wax, but I never have them syringed; rather I ask the...
  42. M

    Is This Hyperacusis? Ears Pained, Full and Numb After a Car Passed By

    Spikedears: I am not quite clear here: How bad was your hyperacusis to begin with, and how close are you to car traffic? If your h. is bad, and you are constantly exposed to traffic then protecting is a must! If not, it depends on your particular situation. I would say that, in most instances...
  43. M

    Can Antidepressants Cause Hyperacusis?

    Codeflowd and others: 3riOw, thanks for thinking of my father...Poor guy, he's got bad back aches also..all sorts of ailments Codeflowd: Sorry to hear what happenned to you. Agh, there are so many meds on the market , all with these side effects. What ever happenned to NATURAL healing!? You...
  44. M

    Family Member with Tinnitus & Painful Hyperacusis Tried to End Their Life

    Madish: Thanks for the news. Although I am not a therapist,in my lowly humble opinion, I am not a fan of ECT Therapy, having been convinced by an author and therapist that I respect that it does more harm than good. The author is Arthur Janov and the therapeutic clinic he ran (he died last...
  45. M

    Was It Hard for You to Find a Suitable Hyperacusis Friendly Apartment?

    Dear Yo-Han: I just read your post thoroughly. It seems you really understand me and my housing problems. Thank you for giving me your feedback. This has been my recent housing history: - I left an apartment I had been occupying for 25 years with my mother on July 1st last summer, due to...
  46. M

    Was It Hard for You to Find a Suitable Hyperacusis Friendly Apartment?

    Yo-Han: Thanks for your story. I am going to print it out and read it at home carefully. Then I will get back to you with some response. Today I am in my library writing this , and waiting for a 2PM public alarm system to go off. It is a test for an emergency warning system for my city...
  47. M

    Can Antidepressants Cause Hyperacusis?

    3riOw: My father's tinnitus, which he already had, got much worse, and only went down a bit since taking the drug. And he is 93 with all sorts of other ailments. What a drag! Poor guy! Marco
  48. M

    Family Member with Tinnitus & Painful Hyperacusis Tried to End Their Life

    Madish : How is it going there? Many of us are worried. Maybe you can give us some news. Marco
  49. M

    Can Antidepressants Cause Hyperacusis?

    3riOw: Thanks for sending me the specific info about possible hyperacusis side effects of Remeron. God, when I think that it did not even occur to me to check about this when I took this drug earlier this year and just recently! And also to think that my elderly father's tinnitus got so much...
  50. M

    Family Member with Tinnitus & Painful Hyperacusis Tried to End Their Life

    Dear Madish: It is with great sadness that I just read your post about your family member who tried to end their life. I have had hyperacusis for 23 years , and once in a while one hears similar stories. And black thoughts are something unfortunately that will be in the back of our minds when...
  51. M

    Can Antidepressants Cause Hyperacusis?

    I personally took an anti-depressant, Mirtazapine, for 5 weeks recently and nothing happened to my ears. Reading above that this med could cause hyperacusis freaked me out! Thanks for pointing that out, 3riow! To save some time, could anyone please point out where the passage is about...
  52. M

    Was It Hard for You to Find a Suitable Hyperacusis Friendly Apartment?

    Thanks, Another Sean, very fine advice. One question though: your landlord let you sound proof that room? Or do you own the place that you live in? I see you live in L. A., an even bigger city than mine, Montreal. How do you get around? Me, I can only take taxis, not often because of cost. My...
  53. M

    Microdose of Psilocybin Worsened My Hyperacusis

    Sorry to hear about this, Rafa... Those psychedelics are also bad news psychologically for anybody. See the section on LSD in the book ''The Primal Scream'' for case studies of the sucessful psychotherapeutic treatment of acid casualties, and why psychedelics are VERY dangerous. Hey, I had...
  54. M

    Just Got Out of Psych Ward

    I just got out of a psych ward after 5 weeks there. Although worries about local plane noise and local construction contributed, most of the stress that I gather drove me to the hospital in desperation came from confrontations with a roommate I hardly knew. I am feeling better, not much thanks...
  55. M

    Was It Hard for You to Find a Suitable Hyperacusis Friendly Apartment?

    Hi folks: I would like to know if it has ever been hard for you to find a suitable apartment , as a person with hyperacusis? I ask this because I have been having a hard time. I had been living 25 years in a fine place, but we had to leave. Learning to use the websites for apartment searches...
  56. M

    How to Deal with Severe Hyperacusis?

    UAE96: Regarding your question to me: I have never found that earplugs make much of a difference, except to block out some lightly annoying noises, like when my roommate plods around the hallway in his noisy slippers. So any rest that could come from earplugs would be slight in my experience...
  57. M

    How to Deal with Severe Hyperacusis?

    Hi UAE96; First time, I think, that I have exchanged with someone from Dubai.Greetings from Canada. It is the first time I have heard of a case like yours, where low quality sounds are the only ones affecting you (although I would not consider a human voice low quality, but tinny sounds from...
  58. M

    Poll: If Your Hyperacusis Improved; How Long Did It Take Till You Started Noticing Improvement?

    I have never had improvement, and I have had hyperacusis for 23 years. That being said, I did not have a bad case of hyperacusis at first. But I have slowly deteriorated over the years so that now I am just barely into a mostly tolerable level most of the time, which, hey, is better than a lot...