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And then there’s things like this. I feel like I can’t win either way.

I spoke with an audiologist today and found out I can get a pair of Widex Zen maskers covered completely through my insurance. I have no idea what to do. My ringing often worsens with external sounds and makes it difficult to mask. I don’t know if these things are going to help or hurt me. I...

Worried the timeframe here is going to push me into the arms of Lenire.

I just re-read the Q&A with Dr. Shore. I took a second detailed read to realize how little information we got on the distribution progress and process. This is worse than waiting for the trial results to be published. After five years of tinnitus I finally had to break down and start an...

I just can’t get out of fight or flight. Can’t believe this is happening again.

Yeah, I don’t understand the cloak and dagger behavior around the FDA stuff and the Auricle internal process for product launch. I know little about the process, but it makes me think there’s some unknown hurdle here I’m not seeing. Would love to be a fly on the wall at Auricle HQ.

Is there a legitimate concern this device never leaves the lab shelf? It’s come this far. I can’t imagine my disappointment if this dies before hitting the public.

Not sure if you’re still around, but did you ever take the Buspar? I’m considering it myself.

Thank you for breaking this down. I assume the Auricle team would at least carry some of these processes forward while the FDA does their thing? I understand they probably wouldn’t make a large order or train distributors without approval, but at least know where that order would be sent? My...

Taking a break from the site. Focusing too much on the negative. Can’t go much lower. Two hours crying in the shower did me in.

Insanely loud, unmaskable, I’m in trouble here. Scared of what I’m capable of. Simply not compatible with life. I’m not going to make it.

This is exactly my story. I got COVID-19 for the first time in early August. Then 11 days after positive test I had my excellent habituation disappear. Back to loud un-ignorable ringing. It’s been almost 6 weeks and nothing has improved.

Any attempt to mask met with louder tinnitus. WTF, why does this happen? Why would it get louder than the masking source? I’m fading fast

21 hours of therapy a week,all I think about is dying. I habituated very well before. Not sure why it feels impossible to do it again.

4 week spike. It's shaken me to core. Didn't need them before, but probably resorting to drugs. Almost ashamed to admit. Probably Buspar

I was offered Lamotrigine under the explanation it was for my anxiety. There was no mention or talk of any effect on tinnitus. Has anybody experienced any anxiety or tinnitus relief from Lamotrigine? Of what I've been offered, this one sounds the most temperamental and difficult to figure out...

Wife and kids only thing keeping me from suicide.Wondering how long that’s going to last. I’m done. I had this all figured out once, gone.

From level 4 natural habituation(lost overnight) to nearly 4 week spike post COVID, meds being tossed at me by everyone, drowning in sorrow

Yeah, I got COVID-19 for the first time in early August 2023. I'm a nurse so it's amazing it took that long. Eleven days after the positive test and 4 days after symptoms disappeared, I lost my decent habituation overnight. Not sure what to make of this. I will hit 3 week in spike status later...

I haven’t had a setback like this since I first got tinnitus. I don’t know what to do.

I need help. This post COVID spike has driven me to the edge. From habituation to this overnight. I’m so lost and just want to end things.

Somebody in biomedical engineering/business, help me out here. What’s the advantage of having a policy regarding not reporting when something is submitted for FDA approval? What’s the upside for them?

Lost 5 years of progress to habituation due to COVID. I don’t know if I can go through this again. Life was back on track. Gone

Finally got COVID for the first time. Tinnitus is currently worse. Not sure if it’s the COVID or me worrying about it. Scared.

Sometime in late 2019 or early 2020 I donated a modest amount to Hough Ear Institute and several other research organizations (Thanos Tzounopoulos, Susan Shore, Josef Rauschecker). Since then, Hough Ear Institute has been the only one to consistently/constantly ask for more. I bet they’ve...

After years and years of healthy living and the lowest body weight I ever had as an adult (152 lbs), I went on Atorvastatin. It was prescribed by a cardiac disease prevention specialist I had been seeing for five years. He told me diet and exercise can only get you so far. Some people just have...

I’m glad the Accutane conversation came up here. I took a single round back in fall of 1995. Only side effect I remember is an extremely dry face and lips that would bleed. One of the first questions I asked the ENT I saw when tinnitus started was if Accutane could cause this. He barely...

First time I’ve needed antibiotics since tinnitus started. Probably over worried, but fingers crossed.

Not really. I know Dr. Burchiel well, but have not worked in the OR for three years now. I changed nursing jobs within OHSU to work in a quieter environment. Those OR rooms can be quite loud. I already know what he would say. This guy lives and breathes functional neurosurgery for Parkinson’s. I...

OHSU second in the country to perform regenerative brain cell therapy procedure I work at the hospital this procedure will be performed at. I worked as an OR nurse for 18 years with the doctor quoted in this article. For over a decade of that I saw him improve and innovate DBS for Parkinson's...

Thanks for the update. I was wondering if you have managed to stay tinnitus free since stating it was gone after the trial. Now we know. Not sure if I should feel optimistic about this or sick to my stomach. Predominant feeling is jealousy.

Interesting, I only live a few hours from Seattle. I’m not convinced this treatment works though.

Sitting in dentist parking lot. Going in for some overdue work. Terrified since T started 6 days after last time I had work done.

I’d be curious to hear about how the Nortriptyline goes for you. I’ve had it prescribed to me several times and haven’t had the bravery to try it out.

I worked as an OR nurse for 19 years and scrubbed or circulated thousands of craniotomies. The brain makes no audible sounds once the skull flap is removed and the brain is exposed. The closest possibility is old DBS Parkinson’s surgery. A decade ago we would place electrodes in the brain and...