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  1. tracyNYC

    Lidocaine diagnostic nerve block today (neck).T disappeared for 5 minutes! gradually returned as...

    Lidocaine diagnostic nerve block today (neck).T disappeared for 5 minutes! gradually returned as the block wore off. Now spiked. <sigh>
  2. tracyNYC

    Is Trileptal (Oxcarbazepine) Safe for Someone with Tinnitus?

    Hi @Nick47 - Unfortunately, I had to come off it for other reasons. It was good while it lasted.
  3. tracyNYC

    @yeezysqueezy Thank you - yes I will avoid NASIDs. I hope the H improves for you.

    @yeezysqueezy Thank you - yes I will avoid NASIDs. I hope the H improves for you.
  4. tracyNYC

    @brixenbrixen T originally from noise and age-related hearing loss. Been steadily worsening and...

    @brixenbrixen T originally from noise and age-related hearing loss. Been steadily worsening and wonder if neuralgias and cervical spine issues could be contributing. Took the naproxen for occipital neuralgia headache. Ugh. I should have powered through the headache.
  5. tracyNYC

    Long story - MRI cancelled. Meanwhile, took ONE 375mg naproxen (I know, but pain…) and tinnitus...

    Long story - MRI cancelled. Meanwhile, took ONE 375mg naproxen (I know, but pain…) and tinnitus is at suicide level. Please make this stop!
  6. tracyNYC

    Thank you all for your support. I am going to see if the MRA is necessary - or if the MRI (with...

    Thank you all for your support. I am going to see if the MRA is necessary - or if the MRI (with the proper protocol, CISS) is enough. Or if they could be done separately.
  7. tracyNYC

    @Damocles - Unfortunately I need a 3T and those are only "tubes". I've got foam plugs and...

    @Damocles - Unfortunately I need a 3T and those are only "tubes". I've got foam plugs and silicone putty over that. We can't bring our own ear defenders so am stuck with what they provide. And they put sand bags up against those. LOL
  8. tracyNYC

    @DeanD - yes, it's for the neuralgia. We need a 3T FIESTA or CISS MRI to better see...

    @DeanD - yes, it's for the neuralgia. We need a 3T FIESTA or CISS MRI to better see compressions. All the "MVD" neurosurgeons will want that. I'm sorry you're going through this too. I do now question if the MRA portion is needed. That's 15 minutes of scan. Ugh. I'm sorry you are going...
  9. tracyNYC

    My 3T, 50 min. MRI in 5 days. Petrified. It must be done, I want it done, but can't, even with...

    My 3T, 50 min. MRI in 5 days. Petrified. It must be done, I want it done, but can't, even with plugs. Worsening T rules my life. I'm angry.
  10. tracyNYC

    Is Trileptal (Oxcarbazepine) Safe for Someone with Tinnitus?

    My starting dosage was 300 mg 2x daily for seven days, then increase to 600 mg 2x daily. When I started the 300 mg 2x dose, I had mild drowsiness that resolved after a couple of days. When I increased to 600 mg 2x, I had a constant throbbing headache, lack of appetite, extreme drowsiness...
  11. tracyNYC

    Is Trileptal (Oxcarbazepine) Safe for Someone with Tinnitus?

    Yes, I take it for nerve pain. The reduced tinnitus was an unexpected bonus. Currently I'm on 300 mg twice a day. I need to increase it, and will do it slowly. Too much too soon, and the side effects are rough on me.
  12. tracyNYC

    Is Trileptal (Oxcarbazepine) Safe for Someone with Tinnitus?

    Hi @Nick47. Yes, my tinnitus suddenly ramped up a couple years back. After that, I tried hard to protect my ears with earplugs, etc., even moving to a quieter part of town, but it continues to worsen, and so does my hearing. My tinnitus is a screaming hiss in both ears. I don't consider it...
  13. tracyNYC

    Is Trileptal (Oxcarbazepine) Safe for Someone with Tinnitus?

    An old post, but I wanted to say that I've been on Oxcarbazepine for only two days for neuralgia, and it drops my tinnitus significantly. It's almost scary, because I'm so used to the noise. I do worry about worsening tinnitus if I ever come off it, but I have no choice. The neuralgia is horrible.
  14. tracyNYC

    @Strawberryblonde I may not be able to provide my own ear muffs -any they provide will be...

    @Strawberryblonde I may not be able to provide my own ear muffs -any they provide will be useless- and I may not be able to wear muffs anyway due to space/face cage. I’m calling MRI facilities this week. Fingers crossed. Thanks!
  15. tracyNYC

    Dx'd with Glossopharyngeal Neuralgia. Need "FIESTA or CISS" MRI of brain to find nerve...

    Dx'd with Glossopharyngeal Neuralgia. Need "FIESTA or CISS" MRI of brain to find nerve compression. Longer and louder scans? I'm screwed.
  16. tracyNYC

    Life is definitely different and I at times I can still get bitter about it. I'm coping and...

    Life is definitely different and I at times I can still get bitter about it. I'm coping and surviving! Hope you are doing well!
  17. tracyNYC

    I have hearing aids but for hearing loss, not masking which is impossible. Tinnitus in NYC means...

    I have hearing aids but for hearing loss, not masking which is impossible. Tinnitus in NYC means wearing ear plugs outdoors 95% of the time and fewer subway trips. Not too bad really. I'm temporarily living in a quieter town (not because of tinnitus), and I can't wait to get back to NYC. I just...
  18. tracyNYC

    Oh no! That's awful. I hope you are doing ok. I too send good vibes your way.

    Oh no! That's awful. I hope you are doing ok. I too send good vibes your way.
  19. tracyNYC

    The 'Love Hormone' (Oxytocin) May Quiet Tinnitus

    Yes, @ploughna did.
  20. tracyNYC

    I used crickets, but when those no longer worked, I turned to lower-pitch "babbling brook"...

    I used crickets, but when those no longer worked, I turned to lower-pitch "babbling brook" sounds. Nothing high pitch to compete, but lower pitch to distract.
  21. tracyNYC

    Hi @BrOKeN_1 - Thank you for reaching out. I've been lurking lately :) My T is still a beast...

    Hi @BrOKeN_1 - Thank you for reaching out. I've been lurking lately :) My T is still a beast, and I try to stay positive. Not always easy, right?! Hope you are doing ok too.
  22. tracyNYC

    Novavax Coronavirus (COVID-19) Vaccination Experiences — Did It Make Your Tinnitus Worse?

    I was waiting, but my tinnitus keeps worsening, so now I have second thoughts about any vaccine.
  23. tracyNYC

    Tinnitus Spikes and Sound Sensitivity — Physiological or All in the Mind?

    Similar situation -- I'm back in the Midwest after 23 years; but I left NYC, and I am scrambling to "get my Docs in a row." (Sorry, ZocDoc.) If you're close, or OK with the travel, the Cleveland Clinic has a Tinnitus Clinic. They are currently booking into 2023 - or so I was told - but I have...
  24. tracyNYC

    Evan Noch MD PhD at Weill Cornell

    Evan Noch MD PhD at Weill Cornell
  25. tracyNYC

    Thank you TracyJS. Wish I had a cat to hug right now :)

    Thank you TracyJS. Wish I had a cat to hug right now :)
  26. tracyNYC

    Thank you for your kind words Leila.

    Thank you for your kind words Leila.
  27. tracyNYC

    Catastrophic. It's the screech-hiss from hell, and could probably break glass.

    Catastrophic. It's the screech-hiss from hell, and could probably break glass.
  28. tracyNYC

    You use film? I haven’t touched my cameras -film or digital-in years. It would do me good to...

    You use film? I haven’t touched my cameras -film or digital-in years. It would do me good to get out and shoot. Thanks for the nudge!
  29. tracyNYC

    I flew recently. Used Earplanes, Peltor Optime III ear muffs, and paid extra for front-row first...

    I flew recently. Used Earplanes, Peltor Optime III ear muffs, and paid extra for front-row first class seats. All good! My T is severe so I likely took more precautions than most.
  30. tracyNYC

    In Loving Memory of Brian Jordan Pariente (Brian P)

    My condolences to his friends and family. Rest in peace, Brian.
  31. tracyNYC

    I thought this was bad a year ago?! Ha! Mere child's play compared to today.

    I thought this was bad a year ago?! Ha! Mere child's play compared to today.
  32. tracyNYC

    Very nervous of upcoming air travel.Short-hauls so smaller (noisier?) planes; have muffs...

    Very nervous of upcoming air travel.Short-hauls so smaller (noisier?) planes; have muffs, EarPlanes,1st class seats.Train/car not options :(
  33. tracyNYC

    Constipated — What Laxative Is Safe to Take? Worried About Tinnitus Getting Worse

    Plain psyllium husk powder. I use the NOW Foods brand, sold on Amazon. I'll warn you, it's not a pleasant drink, but you can also add it to foods and use in baking.
  34. tracyNYC

    I posted this when I realized I cannot see my favorite artist, who is playing two shows near me...

    I posted this when I realized I cannot see my favorite artist, who is playing two shows near me. I've never missed a show. Recalling his past concerts (and yes, the bass that resounds and transports me...sigh!) brought out anger and frustration.
  35. tracyNYC

    I really *need* to go to a concert--a loud AF concert. To "feel" some noise. I'm tired of...

    I really *need* to go to a concert--a loud AF concert. To "feel" some noise. I'm tired of earplugs and earmuffs and thinking about dB levels
  36. tracyNYC

    I've realized my tinnitus worsens about every three months. Each time I settle in, relax and...

    I've realized my tinnitus worsens about every three months. Each time I settle in, relax and accept it, then BAM. It's exhausting.
  37. tracyNYC

    You're welcome. I hope your surgery goes well.

    You're welcome. I hope your surgery goes well.
  38. tracyNYC

    Hard to say for sure, but I would say it did not. There were other issues later on that I...

    Hard to say for sure, but I would say it did not. There were other issues later on that I believe did have a lasting impact. That said, I hope I don't need anesthesia anytime soon.
  39. tracyNYC

    Loud Tinnitus After Craniotomy — Diagnosed with Grade 4 Glioblastoma Multiforme

    Perhaps the noise from the drilling or sawing of the skull caused your tinnitus? I had a craniotomy in 1991, but that did not cause my tinnitus.
  40. tracyNYC

    Are Custom Earplugs Worth It? Any Other Good Options? Foam Ones Keep Coming Loose

    Yes, those were what I had. I recall my audiologist inserted a bit of cotton in my ear before injecting the “goop”, maybe to protect the eardrum. So they weren’t molded all the way back to the eardrum.
  41. tracyNYC

    Are Custom Earplugs Worth It? Any Other Good Options? Foam Ones Keep Coming Loose

    I recommend the 3M Skull Screws foam earplugs. I use them every time I leave my apartment (I live in a noisy city). They insert quickly and deeply, and for me, provide a good, tight seal. If it helps anyone, they can be used in an MRI. I’ve had custom plugs, and the occlusion effect and hearing...
  42. tracyNYC

    Me too.

    Me too.
  43. tracyNYC

    Frequency Therapeutics — Hearing Loss Regeneration

    There's a virtual R&D Event for investors on November 9. https://frequencytx.gcs-web.com/2021_Virtual_R-D_Event
  44. tracyNYC

    Dirk De Ridder: Dreams Can Unlock Ways to Cure

    Ah, this is Madeleine McCann. We do know of this state-side and when news breaks, we hear about it. Very sad. I too go down murder/mystery rabbit holes and can be completely unaware of my tinnitus. Once back to reality, boom... there it is again.
  45. tracyNYC

    I love animals but am beginning to hate dogs. Barking and T do not get along. I'm screwed.

    I love animals but am beginning to hate dogs. Barking and T do not get along. I'm screwed.
  46. tracyNYC

    Will You Get Vaccinated for Coronavirus (COVID-19)? Can It Make Tinnitus or Hyperacusis Worse?

    This was the sentence in that article that worried me: The New York Times reported anonymous Biden administration sources saying that it’s not clear whether or when the vaccine will be authorized in the United States, which has funded the company with $1.75 billion to develop and make its...
  47. tracyNYC

    Will You Get Vaccinated for Coronavirus (COVID-19)? Can It Make Tinnitus or Hyperacusis Worse?

    I was, but now hear it's possible it may not be authorized in the US. Dammit. COVID-19 vaccinemaker Novavax faces manufacturing setback
  48. tracyNYC

    Ugh...it's maddening isn't it? I hope the dog didn't bark!

    Ugh...it's maddening isn't it? I hope the dog didn't bark!
  49. tracyNYC

    How to Get Rid of the Fear of Going Outside as a Tinnitus Sufferer?

    My tinnitus is severe (10/10 and 24/7, 365 days a year), and I'll find any excuse to stay inside and not risk a noise incident. I'm thiiiiis close to becoming a hermit. But I force myself out, even though it's not particularly enjoyable. When I'm by myself, I always use foam earplugs (skull...
  50. tracyNYC

    My Tinnitus Has Just Amplified Very Loud and It's Messing with My Head

    I can relate to this. I moved across town a month ago and the hiss immediately increased. Who knows, maybe it's the altitude - this apartment is 13 floors higher than the other. In my experience, anything can set it off. My spikes are permanent, too. I'm careful, but there've been four in the...
  51. tracyNYC

    I agree with @Taw that you should ask about a CT scan. They may need the dye (not sure if it's...

    I agree with @Taw that you should ask about a CT scan. They may need the dye (not sure if it's the same as for an MRI), but at least it's not five sledgehammers firing in your ears. Best of luck to you.
  52. tracyNYC

    Oh man... When was your last one? When this happens to me (and it will b/c of my medical...

    Oh man... When was your last one? When this happens to me (and it will b/c of my medical history), I will push back. Hypothetically, what if I had a metal implant and could not have an MRI? There has to be an alternative for those individuals.
  53. tracyNYC

    Congratulations!

    Congratulations!
  54. tracyNYC

    After a year of Covid quarantine, etc., I'm having difficulty getting used to "normal" noise and...

    After a year of Covid quarantine, etc., I'm having difficulty getting used to "normal" noise and activity levels. It all seems so loud and overwhelming now. Perhaps you are experiencing that, too?
  55. tracyNYC

    Share Your Passions!

    I enjoy street photography. I'm fascinated with old buildings, store fronts, and remnants of "old" NYC, or any other city. When I'm lucky to find them, abandoned buildings. I love urban exploration! Though abandoned hotel swimming pools -- those filled with black-green water -- give me the...
  56. tracyNYC

    Share Your Passions!

    Photography - film and digital. It's been on hold the past several months (thank you, loud/screeching tinnitus), but perhaps one day I'll pick up a camera again and hit the streets.
  57. tracyNYC

    Ear muffs! :)

    Ear muffs! :)
  58. tracyNYC

    Thank you all for your kind words and support. It really means a lot. Sometimes I feel so alone...

    Thank you all for your kind words and support. It really means a lot. Sometimes I feel so alone because nobody else understands.
  59. tracyNYC

    T still spiked and today it was exacerbated by everyday life in NYC. Mentally I'm a wreck. Sleep...

    T still spiked and today it was exacerbated by everyday life in NYC. Mentally I'm a wreck. Sleep s*cks. I'm a shell of my former self.
  60. tracyNYC

    I empathize. Knowing I can never again attend a concert, or a football game, has added to my...

    I empathize. Knowing I can never again attend a concert, or a football game, has added to my depression. I want to cry.