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Thank you. I'm glad my tinnitus went away too! It's the least I can do, to give back in some way.

I don't mind answering questions but there's a limit to what I know. I know there were different groups where the device was set up differently but I don't know what group I was in. I do know there was no placebo. We were not supposed to know what group we were in. I think someone posted a link...

I'm not in touch with anyone else who was part of the trial. I only got to chat for a few minutes with some of them in the waiting room once and we weren't supposed to talk about the trial! I did bump into one older guy that was on the trial at the train station (I guess he had to travel across...

That's okay! : ) It's not impossible that it had run its course but it's also not impossible that the device helped either. It's just impossible to know for sure, until we know the results of others on the trial (if that ever happens) or like you said some people who are really suffering get to...

Yes, the hyperacusis went away with my tinnitus, thankfully!

It wasn't intermittent (as in coming and going) it was there all the time. Mild compared to others here yes.

Yes, I had tinnitus for one and a half years before the trial. It was exactly the same that whole time, there all the time, the tone was always the same, loudness could vary for a few days when I was stressed etc. I had zero quiet days. I had no improvement at all before using the device. I used...

My tinnitus was non-somatic. Neck or jaw movements had zero effect on it. A physiotherapist tested that with a range of movements on one of the visits during the trial.

Sorry, didn't mean to confuse you. I presumed because they tested the loudness and tone of my tinnitus (my tinnitus was in my right ear and they were playing a matching tone in my left ear) in the hearing test booth that they would have used that information when setting up the device for me. I...

I hope for other people's sake it wasn't a coincidence but I guess that's not an impossibility!

I was only ever at St. James's Hospital in Dublin for all of my visits.

That's no problem! Happy to share my experience and give any info I can.

They followed my progress for just the 12 month period, that was the length of the trial. My tinnitus had completely gone by that last check up at 12 months. They are not contacting me now for outcome data or for anything else. The last time they contacted me was last November to invite me to a...

Yes, silence SILENCE. All I can hear is the ticking clock right now!

Just one more thing before I head off. I'm not sure if I said already but the device played a whole range of tones, not just the one that matched my tinnitus sound. It didn't play them in a sequence either (as in low to high), it was very varied, high one second, low the next. It wasn't...

No problem. Yes, I agree, I do think it's interesting I did not have any hearing loss. I keep reading that most tinnitus is linked with hearing loss or damage. I really don't know. Okay, so they set the device up by matching the tone of my tinnitus as closely as possible to a tone they played...

Wow, I guess I'm pretty naive, that never even entered my head that companies would do that. Nope, definitely not an employee, in the past or present (or future)! I have to say though, everyone I came into contact with during the trial (all the employees etc) were very professional and kind...

Thank you so much, what a lovely thing to say. I really hope it works for others too. It would be wonderful!

It's no problem at all. It doesn't take too long and if it helps a single person in any way it's definitely worth it.

Ha yeah, you might think that. I really don't want to make anyone any money. I really just want this to work for other people too and that I'm not just some kind of weird anomaly. I'd definitely be knocking on their door pronto if it ever came back!

I don't know about the frequencies. I only remember being in the booth with the one set of headphones, they didn't ask me to change them at any point. I had a button to push when I heard the sounds. They also got me to match the tone and loudness of the tinnitus with the tones they played in...

I honestly don't know if they did a hearing test beyond 8000 Hz, they didn't go into detail like that. The audiologist just said my hearing was perfect and I was consistent in my test results. The required duration for using the device was two 30 minute sessions. I used it early in the morning...

I really don't know where everyone else is but I did search out somewhere to connect with people who could relate to what I was going through at the time. I'm also making the assumption that maybe many of the other participants were older and possibly not online as much! Also we were told...

I didn't have the pain at the same time, no. Just the noise was so unbearable, it was actually quite strange at the time thinking back on it. It doesn't bother me at all now.

I did occasionally have warm ears but nothing really out of the ordinary. I didn't have any major discomfort or numb ears. I did have some pain in that ear every now and then but not all the time and it wasn't that bad. My sensitiveness to some noises (in particular dishes hitting off each...

I don't know about a rest period. As you know my tinnitus hasn't come back after a year but the audiologist from the trial told me to contact her if it ever did come back and she would help me. I found the treatment pretty gentle so I can't see why you couldn't redo the treatment. I don't know...

When you click on the link the page comes up, you just need to scroll down the page to find the information to sign up, simply fill in the boxes. I just tested it. Worked ok.

That's no problem, it doesn't take too long to answer questions. I did not have visual snow or floaters with my tinnitus. I hadn't heard of the connection with tinnitus before actually. I don't remember being asked about anything visual when I was on the trial and they asked us a lot of...

It was near the end of the treatment I noticed the improvement. The tinnitus was quieter. It continued to improve until I had my first quiet day and then came and went for a few weeks. The quiet days became more frequent and then it was completely gone! The full treatment was for 12 weeks. We...

Man I really wish there were others from the trial talking about their experience on here too. I'd really like to know what kind of the results they got. I really can't be the only one. If I was the only one surely they'd want to study me more. The fact that I was completely cured. Surely if I...

Maybe they just don't want you to get your hopes up and be disappointed if it didn't work. I kept my expectations very low after my experience with doctors and ENT consultants. But hey, look it worked for me! Now I realise how lucky I was to get on the trial. I would say definitely have hope...

I have tried listening for it. No it hasn't come back not for even just a little bit. I usually have a listen before I go to sleep at night, not every night just every now and then, I really don't want to hear it again thanks! Now that my tinnitus has gone there are not many noises that annoy...

I'm not about to come on here and mess with people who are dealing with such a serious problem. I really just want to help by answering any questions I can about my personal experience with tinnitus and using the device.

Ha! Yes, I wasn't about to miss an opportunity to get rid of the thing that was driving me nuts! I thought I would have been a fool not to!

That's no problem. No it didn't coincide with pregnancy or delivery, my daughter was born in 2007 and my tinnitus came on a long time after that in 2015.

Oh yes, they allowed us to take it home for the 12 weeks, so we could use it in the comfort of our own home. I lived 200 miles away from their office anyway! We had to use it twice a day for 30 mins, I used it in the morning and evening. We had to bring the device with us when we went back for...

Yes, they did have technology to track compliance. I REALLY wanted it to work so I never missed a session, ever! Yes, there was a sensor that detected proper tongue contact, if I remember correctly, there was an alert or beep and the session was paused until proper contact was made again.

Sorry, I don't know, they never told me a specific frequency. I never really thought to ask that.

One other piece of information. I was invited to go to a presentation of Neuromod Tinnitus Clinical Trial Results in Dublin, it was on the 11th of December 2018. Unfortunately I was unable to go, it was the same day as my mom's birthday and on the other side of the country. Speakers were Mr...

Good analogy, I'm glad I was given a short sentence, about a year and a half. 2018 is my first full year completely free from tinnitus. I've really just tried to forget tinnitus was ever in my life! Coming back here to comment (since I saw the video in my inbox) is the first time I've thought...

Thanks!!

You're right! Thanks for reminding me how lucky I am. You put that perfectly. I really hope this device works for you guys too! So you can all be free!!

Yes. It took me quite a while to believe it. I really was afraid it was going to come back. I think my family were just as happy not hearing me go on about my tinnitus anymore. I became a much happier person and began focussing on other things in my life again. The only thing I'd like to know...

Thank you. I really hope it does help others. I think it is moving in the right direction.

When I went back for the 12 month check up, I asked the woman interviewing me what were the results like for other people. She was cautious in giving me much information, she said that at that stage they hadn't all the results back but she did say that the results were quite promising for...

Absolutely, completely gone. I never tried wearing earplugs in a quiet room.

No, I didn't notice improvements session by session. It wasn't until nearly the end of the treatment and afterwards that it improved.

I know that my tinnitus wasn't as bad as some people's but it was no picnic. It was affecting my ability to concentrate on work and to sleep, which takes its toll on your mental health. It's different for everyone, how much you can tolerate. Your personality and mindset will affect how well you...

I was never given a copy of the audiogram.

The tones that were played on the device varied, they were never loud or unpleasant. They varied in tone, frequency and sequence, they were quite relaxing to listen to. They sounded like a series of different types of beeps. The thing I found hardest to get used to was keeping the tongue tip in...

I don't know the exact range they tested, only that the audiologist said my hearing was very good and that I was a good test subject because my results (in what I was hearing in the tests) were extremely consistent. I don't think I have hearing loss in the higher frequencies, a few weeks ago we...

My tinnitus was moderate but severe enough for me to make me frustrated, desperate, angry, depressed. Hopeless. It was there all the time, worse when I was trying to go asleep at night but it began to disrupt my concentration during the day too. Thanks, I hope it works for some of you and if...

I only came back here (to Tinnitus Talk) because that video interview came into my inbox and I was interested in hearing some of the technical information about the device. We weren't told that much during the trial. I wouldn't want to give anyone false hope but I had no hope back then and...

I'm just taking a few minutes out of my day to comment here because I know what it's like to have tinnitus. I was so frustrated. I faced my fair share of disappointments, including the hope of it being resolved after surgery. I decided to keep my expectations low after that. SO, I would say it...

I don't want to give anyone false hope but it came up as an option for me to do the trial. I was willing to do it because it didn't involve any medication. I had nothing to lose by doing it. I kept my expectations low because I didn't want to be disappointed if it didn't work. Even at the end...

I have no idea what caused it. I never really went to concerts so I had no damage from that. I live in the countryside and it's really quiet, that's probably why it was driving me nuts when I had it, there was little noise to mask it. I just had to have the radio on all the time for background...

Interesting, I don't know, tinnitus is so complex, it may be the length of time they had it for. I had my tinnitus for a year and a half. It was only in my right ear, one constant beep tone, like someone was sending me Morse code messages! It was nearly always the same tone but I did notice it...

There was no known cause of my tinnitus. It came on gradually, it started quite low and became louder over time, it was only in my right ear. I have really good hearing. I had lots of tests done, including an MRI scan, they did discover some small polyps at the back of my nose, they thought...

I don't know about that, I only took part in the second trial. It was advertised on the radio and my mom told me about it. I was lucky to get selected.

Yes, my hearing is perfect. I was really relieved it worked for me, I had zero expectations from it. I had nothing to lose by doing the trial, apart from the time travelling across the country but it was definitely worth it! It's definitely not fake but tinnitus is so complex I don't know if...