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  1. Kathleen11

    Anyone Have Cochlear Hydrops?

    So sorry that's it's been so rough! I wonder why the tinnitus got so bad so much later than the hearing loss.
  2. Kathleen11

    Anyone Have Cochlear Hydrops?

    Hi there, I did have deep ear pain, which eventually led me to explore that my problem may be in part related to TMJD. I found a physical therapist who showed me how to release and massage my jaw and neck muscles, and that's when I started getting better. I should also note that I take...
  3. Kathleen11

    Anyone Have Cochlear Hydrops?

    My hearing (via audiogram) showed full recovery 1 year after I experienced the loss. Has stayed stable ever since and I am now getting yearly audiograms. I am back to consuming sodium as well. I massage my face and TMJ area every night.
  4. Kathleen11

    Anyone Have Cochlear Hydrops?

    My audiograms. I used to be at 70-80 dB sensitivity in the low frequencies (severe hearing loss) to now normal (10 dB) in all except the lowest frequency (and I am 25 dB for that one). Tinnitus is also mostly gone, as is the fullness.
  5. Kathleen11

    Anyone Have Cochlear Hydrops?

    My ECOG was normal but my VEMP was abnormal. That combined with my symptoms of low-frequency hearing loss, tinnitus, and fullness led to the cochlear hydrops diagnosis. Now that my hearing is about 90% back to normal, I have added sodium back to my diet. If I have a lot of sodium, the tinnitus...
  6. Kathleen11

    Anyone Have Cochlear Hydrops?

    Amazing story! Yes, glad yours came back too! What a relief, I thought I was on the road to Meniere's disease. Thanks for sharing your story! I took lipoflavanoids for a while as well but didn't notice any difference. Probably multiple causes for hydrops
  7. Kathleen11

    Anyone Have Cochlear Hydrops?

    PT=Physical therapy. Neurotologist wrote the gabapentin prescription
  8. Kathleen11

    Anyone Have Cochlear Hydrops?

    No, I don't believe it was a matter of time. I sought out PT for that side of my face and neck, as I suspected that inflammation around the TMJ was irritating the trigeminal nerve in my face and ear. I also started taking betahistine every day. After I started the PT, my hearing slowly started...
  9. Kathleen11

    Anyone Have Cochlear Hydrops?

    Would love to hear your tips! I am about 80% recovered now, hope it doesn't come back.
  10. Kathleen11

    Anyone Have Cochlear Hydrops?

    Hi everyone, I'm new to the forum. My name is Kathleen and I live in California. In August last year, I abruptly lost the low frequencies in my right ear. Thinking I was congested, I did not seek treatment for 2 months. After many ENT and neurotologist visits, I was diagnosed with cochlear...