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Thanks, Frédéric. The app looks quite useful, especially the idea of "measuring one's sound environment and protecting hearing health." Additionally (translated): "It allows for a precise evaluation of hearing health and auditory issues through a hearing test conducted with background noise...

Yes, my situation was quite unusual. I had catastrophic hyperacusis. I kept my storm windows closed in the summertime because I couldn’t handle the noise from distant air conditioners, which sounded as loud as Boeing 747s to me. I even installed heat pumps in my house, but I could only operate...

Lenire’s advertising was somewhat misleading. Upon closer reading, it became clear that Lenire only claimed a certain percentage of users were less bothered by their tinnitus—not that the decibel level was reduced or that the tones shifted to a more bearable pitch. Similar relief might be found...

Ok, I’m no expert, but I would start by determining if a broader range of sound, such as white noise, might work. Perhaps the author includes information on this in the study, or maybe the study’s author could provide insight into whether white, blue, or violet noise would be helpful. If that’s...

My experience was somewhat different from yours. For instance, the sound of bedsheets didn’t bother me. What did help a bit was self-massage with organic sesame oil, as well as sessions with a massage therapist. This seemed to calm my nervous system. I especially focused on massaging my scalp...

Do soothing sounds, like ocean waves or rippling water, provoke an adverse reaction for you? Or perhaps they might be calming. When I had severe hyperacusis and tinnitus, I found there were very few sounds I could tolerate. The sound of flowing water—such as when watering the garden—or using a...

You are still in the early stages, and there is a good chance your situation will improve. It's incredibly difficult to cope with crippling tinnitus and hyperacusis, but improvement is possible. I’ve been there myself (see my previous post). If you can find a soothing sound that doesn’t worsen...

Things may improve. My first year with hyperacusis and tinnitus was absolute hell. I cried a lot and even once sat on the floor, banging my head against the wall. Life was miserable. Thankfully, the hyperacusis eventually resolved. I still have some sensitivity and avoid power equipment, loud...

I’m really sorry to hear about how difficult and oppressive the situation is for you. In my case, about 13 years ago, my catastrophic hyperacusis began to calm down within a year. It sounds like you’re making progress, and it’s great news that your hyperacusis has been improving. I also dealt...

I recommend reading the Lenire thread in Treatments. Quite a few people have reported a worsening of symptoms, sometimes long-term. A few have seen improvement, but I’m personally staying away from Lenire.

If you do get insurance to cover hearing aids, I strongly suggest considering devices that produce pink, white, or brown noise. In my case, pink noise provides a slight sense of comfort. I use these devices when my tinnitus becomes severe. As for audiologists and even ENTs, there is often...

Hello Pierre, I would describe the hyperacusis I experienced as pain hyperacusis. Everyday sounds, like air conditioners, seemed as loud as 747s, and even the sound of crickets was overwhelming. My nervous system was so heightened that when I was exposed to a series of fire truck sirens, I...

Hello Pierre, My situation is quite different from yours, but after an intense exposure to a house alarm lasting over five minutes at a very close distance while I was disengaging it, it took about two years for my symptoms to reduce. I went to India for 10 weeks of Ayurvedic treatment called...

Perhaps it's because I have mild rather than severe tinnitus symptoms today, but I'm positively framing this. Auricle is serious about the FDA submission. The Susan Shore et al. studies show promise, albeit with questions folks have raised about the placebo treatment/washout period affecting the...

I don't remember what the decibel level for the audio was or if this was even described in the study. I wonder if the audio level can be reduced to something that is just audible and still has a beneficial effect. When things first kicked in 13 years ago, I had catastrophic hyperacusis and...

Another possibility is a bacterial or fungal infection, although she likely would have complained that her ear or side of the head hurt. Eczema can also sometimes block up an ear canal. The earwax should be straightforward for an ENT to diagnose, or even a GP, given how difficult it may be to...

Not necessarily a waste of time. The American medical system is a patchwork of for-profit and non-profit institutions, all strangled by an insane insurance system. That being said, you can pretty much make an appointment with an audiologist and pay out of pocket for hearing aids, for example. I...

Good luck with it. I have had reasonable success using Ayurveda, an ancient Indian approach to medicine. There are Ayurvedic hospitals and medical schools in India, plus a fair amount of modern research studies showing benefits. If you would like to read more about that approach, there is a...

Ten days of relief is pretty phenomenal in and of itself. I fully get knowing that there is a way to end things brings relief. I've been there. It can be really tough depending upon how severe my tinnitus is (from 4 to 8). Still, I also attempt and can succeed at engaging in activities that I...

The response from Jon Pearson seems hopeful and indicates a clear intent to seek approval. It appears that progress is being made towards clinical availability. They are avoiding the release of partial information about the approval process, which could lead to widespread inaccurate speculation...

I'd have to reread the studies, but didn't they fine-tune the treatment for the second study? If so, this might account for the carry-over effect.

Thanks, @RunningMan. Yes, I surmised this was the case from your chart, but I wasn't totally certain. Thanks for clarifying this. I had previously theorized that somehow the sham sounds or the sham nerve stimulation had stopped the crossover group (receiving first sham and then actual...

I should be able to look this up myself, but I’m having trouble locating the link to the first study. So, did the first study also use the same approach of sham treatment and then switch over to the actual treatment? Did they use a different number of weeks (compared to weeks used in the second...

Lenire's advertising (which I carefully read a while back) claims to reduce the bothersomeness of tinnitus, not actually reduce tinnitus. Two different kettles of fish as I see it. Tinnitus, assuming it is mild or moderate, could be made less bothersome by using sound therapy, engaging in...

From my reading of the study, I found the following: "habituated/compensated (below 47 points) and unhabituated/decompensated." This indicates to me that the researchers are using habituation and compensation as equivalent terms. And in contrast, those who have not habituated to tinnitus are...

We can, at least to a limited extent, determine how Tinnitus Talk might have affected researchers and even research. The Q&A with Dr. Shore is one example. It alerted her to concerns within this community. The efforts of @Hazel and @Markku (and others) who have cataloged, collated, and attended...

I also noticed that once the placebo group had become part of the treatment group, the treatment was not effective. Research on why that was the case might add insight into bimodal treatment. It seems that being exposed to, what I’m assuming, tones not calibrated for treatment inhibited the...

Dr. Shore addressed worsening of tinnitus in the Q&A:

I developed catastrophic hyperacusis and tinnitus more than 11 years back. We're talking closed storm windows in the summer without air conditioning because the sound of crickets and other people's air conditioners sounded like Boeing 747s. I'm happy to say that the hyperacusis has pretty much...

I wonder why some acoustic traumas cause a lasting spike and others do not. For me, I seem to recover from lower pitched loud sounds more quickly than I do from high pitched ones. But in addition, if the body is in a calmer state, the parasympathetic nervous system might be better equipped to...

Has the worsening been linked to acoustic trauma (alarms, power tools in the neighborhood...)?

When I first developed hyperacusis (at a catastrophic level along with catastrophic tinnitus), it took many months for the hyperacusis to diminish. I don't know if this was due to the treatments I tried or if it might have diminished on its own. Crossing my fingers that at least the hyperacusis...

Yes, I have been wondering about this as well. They are both bimodal approaches; however, Perhaps this has already been looked out, but if the study followed the participants for a longer time, one would expect most of the placebo group to eventually revert back to baseline, BUT the treatment...

Yes, the alarm exposure was really intense. I think that is why the spike has taken over a year to settle down. In the last 2 months, I have finally gotten to the point where I can go without white noise maskers on certain days, sometimes even for most of the week.

Similar issue, I was exposed to a faulty alarm. I very foolishly dealt with the problem by first removing the batteries (which didn't work) and then unfastening the hardwired alarm. I cannot believe I didn't use my noise-cancelling headphones but it was late and I was tired and sleepy. My head...

Sorry to hear about the panic attacks. Those are tough. Some of the things I have done that might be useful to you are a vata-pacifying diet, massage with vata or sesame oil, hot baths with epsom salts, alternate nostril or just calm breathing, warm milk with spices such as nutmeg, turmeric and...

Let me know how it goes. A good Ayurvedic practitioner can prescribe an herbal formula that includes any number of herbs depending upon the person's symptoms, often a mixture of 10 or so herbs. Ashwagandha has properties that may be particularly useful. I haven't used L-Theanine, but I'll keep...

I am guessing that Auricle will train audiologists to adapt the device to individual users. It seems that setting the frequency, or band of frequencies, will be needed. It would be great if that could be done remotely during an online appointment. I wonder how they will address us folks whose...

I've been dealing with a spike for the past year and I reviewed my Ayurvedic toolbox about a month ago. Karna Purana, oil drops in the ear, is one of two changes I've made; the other is taking Ashwagandha. Since I started doing Karna Purana every evening before bed and adding Ashwagandha to my...

Hopefully we’ll be able to get data from real world treatment. I would hesitate to use it all day until I learned more, lol! But your point is well taken. It would be a very useful follow-up study to assess different lengths of time for treatment, both in terms of daily dose and number of weeks...

I can speak to my experience with hyperacusis which was catastrophic when it first developed along with tinnitus more than a decade ago. The hyperacusis resolved within less than a year. In my view, it makes sense that an ear infection would affect not just your hearing, but your hyperacusis as...

I just looked up the OAE (otoacoustic emissions) test which... (Source: American Speech Language Hearing Association). I wonder if the OAE test might enable practitioners using Auricle to assess frequencies and to determine the level of response in the cochlea.

My experience is that Clonazepam is not anywhere near as effective as it first was years back. I take a daily dose. My psychopharmacologist insisted I do this, otherwise she was going to cut me off. I was in early days and in crisis so I unfortunately didn't just do my own thing and take as...

Sara, How are you doing? I wanted to share my recent experience and a shift back to basics that seem to be helping. I've had a nasty spike going on for more than a year following exposure to an alarm. I sat down with myself and revisited my entire toolkit. I've made some recent changes to...

I can't remember if mine beep a "power low" alert but they do announce "power on" or some such when first turning them on as well as "power off " when turning them off, so you might want to first turn yours on before wearing them. I would experiment at home to ascertain as many quirks as...

I managed to get disability only after hiring a top notch lawyer that specialized in disability cases. The insurance company fought it tooth and nail. I got explicit letters from my ENT, audiologist, neurologist, acupuncturist, craniosacral therapist, hypnotist, and I think GP as well in which...

In my experience, anxiety, mental stress, and insomnia can definitely exacerbate tinnitus. About 9 months after my father died, I went through a very difficult period where I was offering tons of emotional support to my mother and sister but not really getting enough sleep myself, feeling very...

There are quite a few studies out there on use of electrical stimulation alone to treat tinnitus. Here is one meta-analysis that looks at electrical intensity. It's hard to draw any conclusions about Auricle, but this still may be of interest. The studies analyzed used electrical stimulation...

I'm not aware of the specifics of Auricle's application other that what has already been posted. We do know details of Lenire's application and the FDA response. They were considered as De Novo (anew), and the device/treatment was then categorized as "QVN - Combined Acoustic And Electrical...

If you look back in this thread, you will find the study that included three groups. The group that showed the greatest benefit 6 months following treatment had both Gabapentin and Lidocaine. There was also improvement for the Gabapentin only group. However, that's a pretty large dose of...

I have had two pairs of noise cancelling headphones that were great for continuous loud sound, airplane engines for example, but allowed in other sounds, even people talking. Just wanted to give you a heads up in your search. Best of luck with it. Maybe there are headphones capable of cancelling...

I want to offer a bit of support in saying that things can improve. In my case, the first year was absolutely brutal and I didn't know how I would make it through catastrophic hyperacusis and tinnitus. I lost tons of weight, couldn't eat, couldn't sleep more than a couple of hours at a time...

Many craniosacral therapists are trained to address TMJ and jaw issues. It might also be worth a visit to your dentist to make sure that your bite is even. And of course additional stress (neighbors from hell) could easily aggravate things. Gentle massage, even using massage oil or sesame oil...

It is pretty impressive to see the improvement when measured 6 months following treatment. ORAL GABAPENTIN (2700 MG DAILY) (GROUP I) Before treatment 12 patients (50 %) suffered from severe tinnitus and 12 (50 %) from moderate tinnitus 6 months following treatment 6 patients (25 %) suffered...

I don't at all discount the withdrawal symptoms experienced by folks on benzos. My experience has been somewhat different. I took 1.5 mg Clonazapam (Klonopin) for about three years. I had very little trouble titrating down to zero over two months or so. I think I reduced by 1/4 mg each week. It...

The volume going down seems like a good sign. Any symptoms reducing, whether sound distortion, volume, or fewer tones (I had three at the beginning), seems like a step towards improvement. I also have that high pitch electrical fizz sound which is a bummer. On the couple of days a week the...

Does anyone recall how tinnitus loudness level was measured by Dr. Shore et al? They used TFI scores (indeed subjective) and "tinnitus loudness level." Did they attempt to match frequency and decibel level to make that determination as to loudness level? It's not stated in the Reversing...

I have played a bit with neuromodulation using the TinnitusPlay app on my iPhone. Maybe I'll give it another try. I mostly use the notched audio to play water flowing type sounds. I find that sleep is like a switch. Sometimes after a good night's sleep, the tinnitus is more muted, with two...

Just reviewing the Shore Q&A on the subject of the degree hearing loss. It strikes me that both severity and range of the loss will be key. According to Dr. Shore, in answer to "What if you have bilateral severe to profound hearing loss in the same frequency as your tinnitus? Will it impact the...

Out of the 7 study participants who discontinued participation and whose tinnitus worsened, 4 were first in the control treatment group and 3 were first in the active treatment group. I'm not sure how how many weeks of the auditory-only or active treatment they received before dropping out.