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Thanks! I already use Flonase, but I hadn't heard of this XHANCE. The delivery system seems like it could really help my ETD issues. Much appreciated!

Hi Bill - Did the fullness leave all at once, or did it fade gradually over days/weeks toward the end of the 6 months? Anything you did that helped, other than giving it time?

Thanks. Yeah, I know to be careful with how much time I spend around here. I got my original tinnitus back in 2011, which was very severe and intrusive. I used to read here a lot then. Although it was helpful to feel less alone with what I was going through, it was also easy to become super...

Hi Benjaminbb, Did you do anything to help the fullness improve, other than give it time? Did you also have crunching/clicking type ETD sounding issues? I have sudden fullness following a recent unexpected noise event (accidentally had phone on speaker phone at highest volume and placed up to...

I do think both can happen even after 3 years. The first year was the worst for me, but I still got a lot of improvement after that, which happened gradually over time.

Things will level out. The heat will get turned down again.

From experience, I can tell you that time is likely to both reduce the reactivity and severity as well as change how you perceive it/care about it. Luckily, our brains get bored easily, so they can learn to care less and less about things they have become accustomed too. Hang in there!

Jane - Sorry you are still dealing with this, but it is less isolating to hear from someone with the same experience (it is quite odd to try to explain to anyone, obviously). I think the trip I mentioned above also had my senses on high alert, like you mention. Take care!

Hi Marin - Would you be willing to describe what your musical tinnitus was like? Was it constant or intermittent? Glad it went away for you!

Hi Jane, Sorry to hear it has not really improved for you. I have had regular (severe, but the normal "EEEEEEE" type) tinnitus since 2011, but this musical tinnitus/musical hallucinations started after a long 2-day road trip returning from vacation. I wore double hearing protection because the...

Will do. You’ve got this, Travis Henry. One day at a time.

I totally understand. I have been there too. I don’t even like to think about those times because they were so dark and incredibly hurtful. I used to say literal prayers all day long to die, get hit by a truck, etc. - just anything to have it end but without hurting my family by hurting myself...

Hi Leeroy - Hang in there. Been there many times. It will settle down again. The hardest part is, when it is this bad, anything anyone suggests in terms of how to pass the time/divert your focus will seem pointless or impossible (at least that is always how I feel in those times). But...

This is what I ultimately did with my original high frequency, intrusive, reactive tinnitus. I had to come to a place where I just stopped running away from it. I started sitting in the quiet and just reading, etc I know that isn’t the typical advice, and on the worst days I still tried to mask...

Travis - This is my experience too. My tinnitus began in 2011 after a concert (and my ears were vulnerable due to some issues from my autoimmune condition). It was a 10/10, totally unmaskabke, and it consumed my life every waking (and many non-waking) hour. But it did fade over the course of a...

Hi Vukis. I am having this same issue now with these background sounds converting to music. Did yours subside?

Thanks for responding, and glad it went away. I hope the piercing sound has or will quiet for you too. I know that one took a lot of time to begin to lessen for me after my initial onset. But it did eventually, thank goodness.

If you don't mind me asking, did you have a consistent musical tone or did it change/fluctuate with various musical sounds/music? Any recollection of whether it faded or just resolved spontaneously? I have a lot of other neurological things going on, so I am having trouble figuring out...

Thanks, Steph. Unfortunately, mine has expanded to other musical sounds, although it does "revert" back to this repetitive one in between. I think it is likely related to my medication. I just hope it goes away in time, as I am very reluctant to take any of the medicines that would be used to...

So I know this sounds cheesy, and it is so not something I would normally do. But during some of the worst of my situation before, I was told to Google "enjoyable activities" and force myself to do two things from the list every day. Even when they weren't "enjoyable" to me. I totally laughed it...

That is great! I am so happy you have seen improvement.

Hi Daniel - Any change in your musical tinnitus? I also have an autoimmune condition causing inflammation and recently developed musical tinnitus in addition to my longstanding tinnitus. It is pretty disconcerting right now, so I am interested to hear how you are getting along with it. Thanks!

It sounds like you are making great progress. I was a total wreck for the first 6 months to a year after I initially developed tinnitus back in 2011. It was very severe, unmaskable, and terribly reactive to everything. And of course, then there is all of the questioning of every decision, etc...

Hi Jane - Are you still having musical tinnitus? Any improvement or tips for coping?

Thanks for responding, Joe. Unfortunately the musical tinnitus continues and has become more intense. I have a systemic automimmune disease that can cause neurological issues, so I am working through some additional testing on that front. But for now, it is 24/7 music. I am able to stay pretty...

Hi Nate - Do you still have the music issue? Has it faded at all with time?

Hi JayZee. How are you? Do you still have the MES/musical tinnitus?

Hi Celia - Do you still have MES? Any changes?

Hi all, I have had tinnitus since 2011, following a concert. It was originally what I would legitimately call “catastrophic”, but I also had inflammation due to an autoimmune disease contributing. So lots of years of high dose prednisone, and time, brought it down significantly. Thereafter, I...