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I reached out to them using the email address info@cilcare.com.

When can we expect progress in clinical trials for treatments of cochlear synaptopathy? Recent news suggests that scientists have found a way to repair synaptic connections, so what obstacles are still in the way?

Having objective measurements is a great promise. Otonomy and Frequency Therapeutics previously relied solely on audiograms and patient subjective reports.

I can hear the spasms in my TTTS ear when performing valsalva maneuver. Anyone can relate?

“At the time, my life just seemed too complete, and maybe we have to break everything to make something better out of ourselves.”

Is it possible to lose hearing by using silicone airplugs (loops) almost 24/7? I'm afraid of overprotecting but TTTS is so annoying.

Mother developed MEM after cold. Thinks it is correlated with her TMJ but having myself experience with that I don't think it'll disappear.

I often think that resolving all my hearing problems would make me so zen. I'm not sure whether it's true.

Can't seem to resolve my neck pain since developing all my ear issues. Although deep tissue neck massage helps a lot.

How about trying to build awareness on T/H in mainstream media? Or getting in touch with big guys (Musk?) on Twitter?

I've had neck pain for 2 years since developing TTTS and it prevented me from exercising for a long time. It's fantastic to be back at gym.

Even though I am still very far from being absolutely alright, It's good to remind myself how much better I am compared to year ago :)

It would be much easier to live with it knowing when cure will come

Considering AI development going fast, how long until treatment for T, H, Hearing Loss? How long until we get real breakthrough in science?

TTTS and hearing loss makes me mad everyday. Trying to focus on different things though

I don't think you would cease the spams simply by inserting DMSO + Magnesium oil near the eardrum. TTTS is probably caused by muscle tension. This is probably why you had some improvement with chiropractic treatment and @Lane had success with this combo.

This is very interesting.

I have had TTTS for more than a year and it started the same day I noticed issues with my clogged ear and worsened hearing. The blocked sensation lasted for about half a year and it was insanely annoying. Fortunately it resolved itself but the fluttering and clicking in the ear remained just the...

What if only synapses are damaged?

How can we know whether FX-322 would be suitable for our hearing issues? I have no hearing loss on an audiogram but I can definitely say that I hear worse after the trauma. Is there a way to check who would gain something positive out of the drug? Is audiogram the only indicator?

Doesn't synaptopathy precede hair cell damage?

Are we doomed?