Search results for query: *

Don't do it. As I wrote before, me and several others got severe visual snow syndrome after short treatment. It's worse than my severe tinnitus. You've been warned.

Not much because of that attitude. People complain in forums for tinnitus, floaters, visual snow etc. But very very few want to donate and make a difference. With so many sufferers, there would maybe already be a cure. People are here on Tinnitus Talk but also here very few donate money which is...

Hi man! I'll quickly tell my story. I was very into martial arts and one day I got punched on my right ear really hard. I got the normal ringing for about 5 days and it disappeared. Then a guy hit me on the same ear from behind and I got very severe tinnitus that brought me to the brink of...

Things are happening! Donate to make a difference for yourself and all sufferers. https://www.gofundme.com/floaters/

I heard it has a lot to do with insurance issues. If they say they have tinnitus they maybe won't be allowed to tour.

Yes exactly, directly/square on the ear.

Hi @Elfin ! I'm sorry that happened to you. No just as bad and awful as always.

No not even for two seconds. It's a dream to have it settle to something I can get used to.

Settle, like in that it stabilizes, or becomes lower? My T also changes in number of noises and intensity from day to day but very rarely becomes lower. If it does, it's only for maybe for a couple of hours.

I have several different sounds that are changing every second. High pitch hiss, clicking, humming, crickets etc. I've had it for three years and it hasn't stabilized at all. Habituation will most probably never happen and it's almost like getting tinnitus over and over and over again...

Danny had problems with tinnitus, yes. And even bigger problems in his personal life. But probably the biggest problem he had was his visual snow syndrome. It tormented him far more than his tinnitus. And he got his VS from Trobalt which he took for his tinnitus... And I also got VS from...

It’s been over two years now and my T is just as bad as in the beginning. I haven’t habituated at all because it’s always changing. It’s torture and I’m on my knees but I’m not on my back on the ground. My life, just like most here, is a 24/7 struggle. The most positive is that I found the best...

I have the same thing. Lots of sound that are changing and fluctuating every single second. You're not alone.

I’m glad you haven’t experienced it. Not all side-effects affect everyone. But three people in so small group of people is a lot. One of my neuro doctors said he is convinced it’s Trobalt that messed up my brain and visual center. Talked with GSK and they didn’t deny it and said they were sorry...

We are three from TT that are desperately looking for treatment for our severe visual snow that we got from Trobalt. It's like Russian roulette using this drug.

Thank you for caring :) I got severe visual snow syndrome (static, ghosting, double vision, glare and tons of floaters) after only three days on Trobalt (lowest dose ? 50mg 3/day).

How many times do I have to write it... Keep away from it. It's serously dangerous. At least three people here (including me) have severe permanent visual damage. I know you are desperate but it's still not worth it.

I live a very healthy lifestyle and it doesn't effect my T the slightest. I honestly just think it was coincidence. But good for you :)

That's good @Abe Shouli ! But as so often here. There are various degrees and types of tinnitus. I try to live my life to the fullest but my tinnitus can't be ignored. It's really loud and changing every second with several noises, as for many others here. You can't ignore that but you can work...

There are people here who are suicidal today because of permanent severe vision problems. Worth the risk?

@Mentos have you had the electric stimulation yet?

Yes both were noise induced.

Yes I know two people (one passed away last year) which had their pretty severe tinnitus completely disappear. One after five years (70 years old) and one after three (14 years old)

But it's the electric stimulation that is the treatment that made the difference in the studies, not magnetic? So there is still a good chance you will be better @Mentos . I understand the disappointment but keep up the hope and don't give up

No only in my right ear

I have noise cancelling headphones at work but never have the noise canceling functionality activated. The reason is that there is a thread here somewhere on the forum where a lot of people reporting getting their T after using them. There is no study that confirms this but when you think about...

Some of my T sounds (I have several sounds) is very similar to the audio example you linked to. So you are not alone

I stay away from louds clubs but do go to bars (with custom ear plugs). I don't have T from loud noises but have close friends who do, and they always wear ear plugs. I have bartender friends who don't have T but who also always wear ear plugs. It's just common sense to protect your hearing...

You are right that you should protect your ears from now on. But don't think it will be in the way of living a good life and picking up girls. If you think that ear plugs will be in the way of that, then you are completely wrong my friend and you should work on your self image. I have severe T...

And another thing. I have read tons and tons of research, studies and info about T the last 18 months. To summarize there is no single treatment that is even close to solid. There are antidepressant, AM-101, hearing aids, ketamine, MDMA, sound treatments, diets, lifestyle changes, stress...

I understand what you feel and think, as I was there myself. But as far as I know there is zero proof that there is a window of 3 months (or any time frame) before it gets "centralized" in the brain. It's just theories and no one actually knows how it works. That's what you learn when you read...

Pretty much yes. But I think at the same time I was pushing her away because I felt so extremely bad and didn't think I was worthy her love

@bill 112 I understand your position. My ex-girlfriend also left me two months in but I don't blame her at all actually. It's not because their evil or selfish but they actually have to go on with their lives. I'm sure they actually care a lot but it's a very complex moral situation. Especially...

You don't care. You just want to project your hate on others at every chance you get. Do you ever get satisfied with your negativity?

I thought you got a little bit better after the treatment?

Yeah mine is even worse than that but kind of similar (have more noises too). Not a serious movie but good to have at least a bit of awareness for this shit.

This is very interesting. I had it since onset, that my T has any kind of characteristics and loudness no matter how long I sleep. Sometimes I can go to sleep with raging T and wake up with lower T, and the opposite too. A good long sleep can result in absolutely crazy T.

I have contact with many people who got bad VS with mild T, and vice versa. Many has gotten VS from medication like antidepressants. Some had gotten it from anxiety and others from things like child birth. But some also has gotten it from "out of the blue". I know how hard it is and I have...

This is not true sadly. If has nothing to do with being hyperaware. VS is a syndrome, just like T. If you have it mild you can easily ignore it. If you have it bad (like me) you notice it everywhere.

I have exactly the same type of double vision! So damn annoying. It's rare but it is one of the symtoms of VS.

I also have pretty severe VS and tons of floaters. Got it over night after a couple of days on the poison Trobalt. Don't believe what people are saying that it has something to do with perception and that you are supersensitive and because of that are noticing something that has always been...

@Ian Mac man I just want to send you love :) So happy for you!

I understand the point you want to make but it's a very one-sided and ignorant point. I would almost think that you were trolling. What a load of bs. I understand what you are saying to a degree but the rest of it is so ignorant and rude. If I could induce your brain with my T I would love to...

In almost every single case it is, yes.

Kung fu training gave me very severe T after a kick on my right ear.

It gave me pretty severe visual snow too. Very affecting of life quality.

I feel so extrememy bad for you. I don't know what to say... It's so tragic and your story should be lifted so that authorities, medical companies and people around the world can see what this affliction can do. You didn't deserve this and I feel so bad that you're being tortured so hard every...

@Ian Mac how are you doing? Any improvements?

What a robbery! Makes me so upset that they can charge that because they know people are desperate. I agree with previous posters, mail a couple of researchers first and see if there are any options. Best wishes

Please sign all! This is important for all of us.

I have like 10 (maybe more) noises which are all totally unstable. The bane of my existence.

I understand that it must be a great letdown. But you had the courage and hopes and I only wish it gets better. It's not too late yet. Best wishes

It is actually pretty loud and severe what i understand. He uses ear plus to be totally sure there is effect of the treatment. Correct me if I'm wrong Ian.

That's amazing! I think I speak for everyone when I say that I wish that it stays that way :) Keep the spirit up!

We are now 4 people who got permanent eyesight problems, some very severe. Please don't take the risk. You have no idea how it is to live with tinnitus AND eyesight problems. You will pray to the gods to ONLY have tinnitus. Take my word for it.

Good luck Ian! I hope for the best :) Keep us posted!

Good for you :) I work out pretty much and have crazy tinnitus. Workout doesn't help a bit.