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  1. greenpointer

    Using Minoxidil / Rogaine for Hair Loss — Impact on Tinnitus?

    @Bobby B Thanks for the info! Giving it a go. I’m sure its totally fine, but if I do notice any effects i’ll be sure to report them here.
  2. greenpointer

    Using Minoxidil / Rogaine for Hair Loss — Impact on Tinnitus?

    Hey all, I'm about to start using Minoxidil, but I read a few mentions (across the internet) of it increasing or causing tinnitus. I'm a little suspect of random posts because their tinnitus could have started from something other than the Minoxidil, but have any of you experienced anything...
  3. greenpointer

    What Would Be the Ideal Place for a Tinnitus Sufferer to Live?

    I was thinking the other day about what the perfect living situation would be for a tinnitus sufferer. I was thinking probably somewhere near a flowing stream.. perhaps where it rains frequently for the added white noise. Likely in a rural area.. away from city noises and police sirens... and...
  4. greenpointer

    Mysterious New Noise — 3 Possible Causes

    I've had tinnitus for about a year now, but I've coped quite well as time has gone on. I've been very careful about noise exposure and always use ear protection in loud situations. Last week a new noise hit me, in my right ear only. Its a lower tone, an intermittent beeping that alternates...
  5. greenpointer

    Could an Intratympanic Injection Into the Ear Cause Pulsing Tonal Tinnitus?

    I took part in the AM-101 trial (via injections) and now my high-pitched tinnitus gets slightly louder with my pulse. I do not know if the injections caused it. Its pretty faint, so its possible that I always had it and never noticed, or that I just happened to develop it immediately after the...
  6. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    I'm very close to the end of the study period for my first round of injections. I'd say I've had a slight improvement, but naturally there's no way of knowing if it was the drug, since I may have gotten placebo. I have to decide in the very near future if I'll go for the open-label round. This...
  7. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    @TC426 does the volume actually go up or are you just in a quieter setting? FYI the study is looking for people with volume at a constant level, because they serve as a more reliable way to measure the effect of the drug. So, just saying if you end up wanting to go through with it, you have a...
  8. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    So my ENT isn't exactly sure whats causing it, but thinks my ear might still have some inflammation from the procedure, which might be causing the pulsatile T. She said just give it some time. I'll keep you posted. Regarding the popping and pain due to elevation, she didn't mention anything...
  9. greenpointer

    Loud Tone for a Few Seconds — Fleeting / Transient Spontaneous Tinnitus

    On a handful of occasions I've had these sudden 5 or 10 second moments where my tinnitus becomes way louder, or I hear a loud additional high-pitched sound. This morning I had one when I was just walking down a quiet street.. the other day I had one while eating an apple. I'm happy as hell when...
  10. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    hmm nah, no flying or elevation. my appointment is tomorrow - i'll let you know what my doc says.
  11. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    yeah there might be something we can take to improve circulation.. its weird that this side effect hasn't popped up until now. i also wonder if the placebo alone (gel getting the inner ear soggy?) would be enough to cause it.. or if its the esketamine in action. did you have both ears treated...
  12. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    man, we gotta get to the bottom of this pulsatile thing.. i have a follow up appt this week, going to ask the doc more about it.
  13. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    I do. Its not a huge increase in volume with the pulse, and its not all the time, but its still lingering. I'm at 1 month since injections now. In my experience the volume increase was the first thing to clear up, took maybe a week and a half to get back to baseline for me. You're in primetime...
  14. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    @OddV did you even have the ringing getting louder with pulse? I have that too, and hadn't seen that side effect listed on this thread before. I thought I may have been the only one to experience that.
  15. greenpointer

    Need Help Understanding Pulsatile Tinnitus

    @Pilot @Karen thanks for the replies! If i pay attention to my tinnitus, I can hear the increase in volume with my pulse most of the time, even if i'm just sitting at my desk. I think the volume does increase after physical activity though. Also I notice it more in the morning when i'm laying...
  16. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    I had/still have the clicking sound when I swallow. I think its my eustachian tubes opening and closing - my theory is that they got sticky from the gel and are still getting back to normal. (Although, some people say its normal to hear this, and maybe i just didn't notice it before.)
  17. greenpointer

    Need Help Understanding Pulsatile Tinnitus

    Hi all, I'm a little confused as to what the definition of pulsatile tinnitus is and would appreciate some help. I've had "regular" tinnitus for 3 months, where I jut have a high pitched ringing 24/7, but lately i've noticed it being affected by my pulse. It gets louder at each heart beat. Is...
  18. greenpointer

    Tinnitus Gets Louder with Pulse — Is This Normal?

    I have tonal tinnitus from acoustic trauma, and it gets slightly louder at every heart beat. It isn't pulsatile tinnitus in that i'm not hearing the actual heartbeat or whooshing sounds - the ringing just gets louder with the pulse. Does anyone else have this? Any opinions would be much...
  19. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    Minor potential side effect here. I had the injections 2 weeks ago, and the volume of my tinnitus seems to get a touch louder with my pulse - did anyone else experience this? Before the injections I didn't notice my T being affected by my pulse at all. I'm thinking maybe I still have some...
  20. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    I recently received my first set of AM-101 (or placebo) injections, at just about 3 months of tinnitus due to acoustic trauma. The procedure has been pretty well documented in this thread so I won't go into it.. but just wanted to add my name to the list. I'll report back on any changes. (No...
  21. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    There's actually a good handful of improvement stories in this thread. Also on reddit.
  22. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    @Carlos Galiano I don't think anyone has that data yet, aside from Auris Medical. I believe the post-acute segment of the trials were only done in phase 3 (which is still ongoing) so the public won't see that data until they publish the results.
  23. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    Yeah but it was temporary.. unless you have data that shows otherwise? From their fact sheet: Safety: AM-101 was well tolerated and had no negative impact on hearing. Adverse events were mostly local and procedure-related, as expected. Following i.t. injections, a number of patients...
  24. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    @papu was the hearing loss only a temporary effect of having the gel in your ears? or was it permanent?
  25. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    Does anyone know if its possible to be allergic to esketamine? Or did anyone's doctors recommend getting tested for an allergy prior to receiving the injections?
  26. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    Hey did anyone have an ENT that recommended getting an MRI or CT scan before enrolling in the trial? Just to make sure there's nothing unexpected going on? Mine did not, but wondering if I should.
  27. greenpointer

    Decibel App on Apple Watch

    FYI I looked into this, and you actually have to run the app on your iPhone as well... you can only "monitor the decibel level remotely" which is lame.
  28. greenpointer

    Questions Regarding AM-101 and TRT

    @Veita by "normally unused," does this mean those NMDA receptors typically have no role? I'm wondering, if a healthy ear with no tinnitus was treated with AM-101, do you know if there would be reason to suspect any notable side effects? Curious because I'm considering the AM-101 trial and I...
  29. greenpointer

    Does Noise-Induced Tinnitus Become Worse Over the Years?

    I'm wondering how often noise-induced tinnitus gets worse.. is it inevitable? I've been wearing ear protection in risky environments and plan on doing so as much as possible. Thanks all!
  30. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    I too am on the fence about participating. My tinnitus is moderate in one ear and only very mild in the other. I have no choice but to treat both, however, because I revealed that my tinnitus was technically in both ears. Does anyone happen to know if treating my "good" ear would lead to any...
  31. greenpointer

    Question for People with Tinnitus in One Ear Only

    @Mark Beehre ah interesting. thanks for the reply. so its possible to have T in one ear and have a completely silent good ear?
  32. greenpointer

    Decibel App on Apple Watch

    Thinking about getting the watch just for this app. Anyone know how accurate these types of apps are? https://itunes.apple.com/us/app/db-meter-lux-decibel-measurement/id733773616?mt=8 It might be neat to have it on your wrist so you always monitor risky decibel situations.
  33. greenpointer

    Question for People with Tinnitus in One Ear Only

    Can you hear any T from your bad ear in your good ear? Like reverberations? Trying to figure out if I have very mild tinnitus in one ear, or if i'm just sensing the T from my bad ear when I plug my ear. Any opinions appreciated!
  34. greenpointer

    AM-101 Clinical Trial — Participants Updates and Discussion

    To anyone who passed the screening: Do you happen to know if you would be disqualified for taking prednisolone/methylprednisolone pills a month prior to the injections?
  35. greenpointer

    How Can You Tell If You Truly Have Tinnitus in Both Ears?

    I have tinnitus from acoustic trauma, but its primarily in my left ear. When I'm in a somewhat quiet room, I hear it from the left side only, however if i plug my right ear or lay down on my pillow on the right side, I can hear the high pitch ringing. Question is: does this mean I really have...