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I have been trying CBD oil that has a percentage of THC in it. I think that together with determined focus on something other than t has helped me a great deal. The only thing is some mornings after taking it I wake up stoned! So if you don't do well being stoned try get the pure CBD non-THC...

Signed

Thanks @monacco. So expensive. Would have to take out a bond to cover that!!!!! An absolute win if it is covered by insurance for t sufferers in the US.

I listened to the video of the ex-infantryman who has had the procedure done... his t reduced by half after a couple of months of therapy using the device. He says his t is way less bothersome and "it literally has given me my life back" ....music to my ears. What any chronic t sufferer wants to...

This is a sad day indeed. Everyone pinning their hopes on AUT. :oops:

Do you believe taking Anti-depressants and Anti-anxiety medication when one has tinnitus is wise? i.e. to treat the associated depression and anxiety caused by tinnitus / loss of sleep? Also, do you think taking any of these meds prevent habituation say with TRT / hypnotherapy? Also, what...

I would be a changed man. I would sleep again and have more energy. I would not wake up every day with fear and depression. The constant worry of how am I going to survive would be a thing of the past. What does my future hold? A life like this is not a life worth living. Negativity would be...

My life is ruined from T. Got it left ear when I was 29. Habituated a year and a half later. Never bothered me up until 43. One night out with loud music (my own stupidity) and whammo - both ears 7/10, ringing, hissing. I too was a part-time muso with aspirations to play more, record more...

There is so much BS to wade through here AUT unrelated... Can anyone say if AUT has had any +ve results yet on any of the posters on the trial?

U think amnesia disappears when u taper off? Just wondering if you can have long term brain damage from taking rtg. @locoyeti - did all your senses come back when you came off or when you stabilised on the golden dosage? Anyone else? Otherwise, i might just taper now. It's not worth becoming a...

Ok no worries. Yes, tx for recommending doing the dosage plan. Doc was keen to get me up as quick as poss to the dosage where t=0. I've gone down this morning after literally tripping balls last night for 2.5hrs. So today took 100mg 9am and 100mg 3pm. Will taper to recommended dosage rather. It...

Initial taper was: first day 3x150 =450 2nd day 3x150 =450 3rd day 3x200 = 600 4th day 3x200 = 600 5th day 3x250=750 But has been too quick. Going with insert taper rather. Side effects VERY alarming, hallucinations, trembling, can't make sense of things. Maybe it worked for you. Diff for...

U got the wrong dosage. Here it is: first day 3x150 =450 2nd day 3x150 =450 3rd day 3x200 = 600 4th day 3x200 = 600 5th day 3x250=750 So whack to the back of your head? Maybe first find out what my actual dosage was if my post was not clear. And FYI: Its the advice of the doc to taper up as...

Have done 2 days of trobalt starting at 150mg. Then 2 days @ 200mg. Then today started 2 days @ 250mg. This might be a bit quick... The first pill really whacked me. The high and insight was amazing (happy up) and harrowing (sad down) at the same time. T dropped from a 7 to a 2 left ear and...

Progress Report Progress Report Date: May 8, 2015 Current Retigabine Dosage: 250mg 3TID Current Side Effects: right kidney pain @ my back and at my front pain under right armpit (might not be associated to RTG) a bit of pain under left armpit (might not be associated to RTG) pain in right...

Hi Viking, I wish you a speedy recovery my friend. Huge courage to attempt something so invasive. You deserve the t to go to 0 and never another hizz, buzz or siren ever again. Steve

I don't agree. This guy in Ireland retuned his brain, so to speak, from Chi Gung. It's an ancient practice of mind, body wellness. Have you tried it? I think to say its non-sensical is a bit narrow minded ...trying it b4 knocking it would be a more open-minded approach. The guy wouldn't be...

He reported: Current Side Effects: amnezia, change of retina color in left eye I do believe this is the first person the experience retina color changes.

Personally i've just started RTG today 150mg TID. I'm hoping that I can tolerate it for 3 - 4 months and that it helps me somehow to habituate post self-trial. Plus maybe a side benefit baking! A total cure would be great but that's like pulling a rabbit out of a hat... Stranger things have...

Progress Report Progress Report Date: May 4, 2015 Current Retigabine Dosage: 150mg TID Current Side Effects: Slight tingling in left pinky finger and then in right. Slight pain in chest but could all be because I am hyper-aware of taking RTG for the first time. Took 150mg @ 3pm, again same...

New User Information Gender: Male Age: 45 How Long Have You Suffered From Tinnitus? (Date of Onset): Nov 15, 2013 How Did You Get Tinnitus?: Acoustic Trauma Explain How You Got Tinnitus: Is Your Tinnitus in Which of the Following?: Both Ears What Kind of Tinnitus Do You...

Excellent! A campaign should be started making it illegal for ENT's or doctors to take any payment for offering any of the above "usual responses" on t. if they can't do anything to help , then how can they charge ppl? What if you took your car to a mechanic and the mechanic says "there is...

Excellent . Tx man :) I'll start by splitting a 200mg in two. Start on 100mg TID.

Hi Nills, This is the taper-up dosing schedule Day dose 1 dose 2 dose 3 total dose 1 150 150 150 450 2 150 150 150 450 3 200 200 200 600 4 200 200 200 600 5 250 250 250 750 6 250 250 250 750 7 300 300 300 900 8...

They are days I have numbered. So day one and two start on 150mg. Every 2 days go up 50mg. But now i'm worried about splitting the pills as these 200mg ones don't have a line down the middle so could fall into the category "don't split". Anyone on here who has split the pills with success? i.e...

Anyone currently dosing with RTG taking any supplements to minimise side effects? i.e. Something to protect: kidneys heart eyes ? Probably a multivitamin: Vitamin C, 250 mg Vitamin E, 200 mg Beta-carotene, 5,000 IU Zinc, 25 mg Zeaxanthin, 500 mcg Selenium, 100 mcg Lutein, 10 mg Calcium, 500 mg...

Thanks Nills, Unfortunately, I don't have the luxury of 50mg tabs. 200mg ones is all i have. So i will have to cut to get 50mg intervals. I know it says don't cut but guys have been doing it and are still standing :rockingbanana: This was my dosing plan by day. Start on 150 and then 50mg up...

My Trobalt arrived!!! Two boxes 84 x 200mg sitting on the lounge table. 2 more boxes arrive mid-June. Now some input from peeps on supplements they are taking / have taken, to protect your organs during the trial. Before i start taking it... Something for kidneys, eyes and heart? What has...

Got some really good ones made before i left the UK. ACS PRO17 for Musicians. Pricey. Over 150 pounds. But mood so low and depressed at the mo, haven't even bothered to try them out with BIG sound. Waiting on RTG to arrive and then hopefully some relief, some hope and then maybe i'll get back...

As an aside and apologies in advance for off topic but when anyone here has a good t day, can they think a lot straighter? I have found t to effect my cognitive processing. I use lumosity to keep my brain "active" and notice i score much better on the days when my t is good. Anyway. Just another...

Encouraging. Thanks man. 330 pounds so far - awaiting friend to arrive from UK with them. Thanks for the tips on water and diet. I will get urinary check and take Lucertin(sp?) for eyes once i start. And i'll update my progress to thread ;-)

It's waaaay back in the thread somewhere. This monster is pushing 150 pages... But one of the early trialees tried Trobalt and had to stop due to kidney issues. However, if i recall correctly, it was a pre-existing condition that worsened post-trobalt. However, Viking also had to stop due to...

sorry to hear that :-(

That is a heavy concoction of drugs you are taking. But if you are getting 1.5 - 2 days 0/10 relief from it, then what more can you ask from pills? It sounds like the corticosteroids is the one that is sending it to null in your case. Is tha the methyprednisolone? What is the cause of your T? It...

110 Euros

Up to 4 boxes now. She managed to get a 4th.

This is still cheap compared to some prices...

I am well aware of that.

It is probably the drug that has been most effective from the progress reports of people that have taken it. If you don't try, you're not gonna know. It's a risk that it might not work - yes.

That would be a problem as i only have 200mg. The idea i believe is to start on a lower dose. And i found out now my friend only got 3 boxes, not 5 so it is going to be a quick taper up and down :-(

Thanks JC. Much appreciated.

Yes

So i could be starting soon. A friend of mine bought them in Spain OTC. Had to go to 3 different pharmacies to get 5 boxes but it should be enough to get be going. Now anyone, ideas on starting dosages, ramp up, level, ramp down etc?

Did any of the 4 currently available, report a decrease in t? Only Trobalt to my knowledge is one that actually is having any effect, which is almost imposible to get legally.

All for it to give it a go. Just getting it is the problem.

More info from one of the centers: We shall not know efficacy from ph II until year end. Phase III work can then start to be planned - so not before next year, i’m afraid, and that depends upon results + securing funding.

Latest info in from trial ppl re the hearing loss amendment (might already be old news). Bit from what i read here, it looks like they are battling to recruit with such stringent criteria. Hence the relaxing of the hearing loss component. Hoo boy! Limited information was sent – to ask us to...

Does this work? Has anyone tried it? Notched filtered music has been around for a while. At 539 Euros not cheap. I think anyone with a bit of audio savvy (Steve comes to mind) could actually make this music for free.

Awesome!!!

Latest study results: http://www.thetinnitusclinic.co.uk/patient-study-shows-clinically-significant-improvements-in-tinnitus?field=PE&utm_source=TuneInC&utm_medium=e-newsletter&utm_campaign=TICE12

See this: http://www.thetinnitusclinic.co.uk/patient-study-shows-clinically-significant-improvements-in-tinnitus?field=PE&utm_source=TuneInC&utm_medium=e-newsletter&utm_campaign=TICE12

All the best Dr Nagler. I hope you can habituate and show us the way again through your own efforts. Thanks for openly sharing it on the board.

Yes - that's the guy. His response: Dear Steve Thanks for your enquiry. I am not an expert on tinnitus, though as the person who mentioned my name on the blog has indicated, I did look into the literature quite carefully before prescribing this unlicensed medication. In that patient's case I...

Hi guys, I really need to ask for some help here. I'm in the UK at the moment. I came here from South Africa for the AM101 trial but it has not worked. I can't get on Autifony because of hearing loss criteria. The only option left is Retigabine. It seems to be helping a lot of people, even if...

Was particularly interested in today's TT newsletter re this: "You have probably heard of AM-101. Did you know that there is AM-102 in the works too? We invite you to take part in the Auris Medical Q&A. Check Tinnitus Talk this Friday!" What's happening this Friday? Is there any more news...

Apoogies in advance if this has already been covered.... I applied to get on but knew about the hearing loss requirement. So when I got my ENT to refer me to UCL and so as not to waste my/their time and money (and go through the whole emotional fallout), I sent through my audiogram first. I...

Have you go a telephone number? Number at that link does not work. Not to worry: 020 331 11234 charing cross hospital Sarah (Dr Mark Weatherall secretary for NHS patients - 5 week or more waiting period). Juliette George (Dr Mark Weatherall secretary for private patients) - 079 214 09597 0203...

Has anyone here had success with Laurence McKenna at the RNTN&E? I had a friend saw him in 2001 that helped him. But looking at the waiting times for GP referral of 3 months is long. On the UCLH website it says it can be 18 weeks = 4.5 months! What would it cost to go private? Anyone know?

I tried Mertazipine one night for sleep. Dr said 1 or 2. Took one no effect other than to make me numb, body heavy. Mind still wide awake. So took another. Same effect. Could not function the next day. End of that. Started on Sertraline AD 8 days ago. Anxiety has been through the roof. Started...

Thanks Kenny - I think that about seals the deal for me then. Nothing I am going to pursue as also way out of my price range.