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There's not enough info. Where is this taking place? Where is the website explaining this?

Update on me, Hotaru. I'm the same Hotaru from before. My last visit to the trial location was May 25th. I could not participate in the open label because I had a mental breakdown and needed to start taking medication. TL;DR, the trial was a waste of time for me. It didn't lower my T at all and...

Some of you may know me as Hotaru. I've had tinnitus for 6.5 months now. Whether it was caused by the ear infection or the coming off anxiety medication has not been confirmed. It hasn't gotten better. It's still there. I tried the AM-101 trial, most likely didn't get the real thing. I tried...

Weekly.

I didn't. It went away on its own.

Two week update: My T is slightly lower than when I first got the AM-101, used to be a 10 and is now 7-8. The ETD is in remission, but I have tons of earwax and my jaw still hurts from time to time. I get these moments of either deafness or the T changing or disappearing (I can't tell because...

Can you make a video?

I can't keep water out of my ears so tubes aren't really a good idea for me. Even with earplugs. I will gladly go under for a procedure. I'm just tired of these short-term maybe it' ll go away for now solutions. I did that with tmj and now it's back. The retainer is not helping anymore. When I...

Already tried steroids, didn't help. Tried valsalva, steaming, tea, all that stuff, and nothing helped. Am-101 made it worse. I am looking for a permanent solution.

I think I've gotten a tympanometry, but I guess they didn't find anything. I always end up going to the doctor when my symptoms aren't acting up.

How exactly can I determine that I have it? And has anyone tried balloon dilation?

It's a clinical trial for a drug that is said to cure tinnitus. They have trials in Europe, but probably not in Africa. You have a sixty percent chance of getting the real drug. I recently participated in the trial. I'm not sure if I got the real drug. You can find out more about it on this site.

Do docs actually still use leeches? Does this work?

Then how do doctors know if you have no ear hair cells?

Can MRIs see if inner ear hair cells are gone?

Signup for AM-101 immediately.

T is worse since getting injections. Tmj kicks in after years of being dormant. Hole in right ear keeps blowing open when I blow my nose, not too hard. Ears feel full, pressured, and I'm still hard of hearing, although maybe not as bad as yesterday. If I could rate my t higher than ten, I would.

Yeah, I could have just been freaking out about that. However, I still feel fullness in my right ear and the ringing is worse than ever.

I think my eardrum ruptured after blowing my nose. How? There was only a small hole in it, and then to tear it open simply from blowing my nose? My mom looked in my ear and saw nothing but darkness. The other ear had the eardrum with a hole in it, as it should be. My mom isn't a doctor.

It doesn't make sense that after I stopped taking Zoloft I get tinnitus. I'm still unsure of the cause, although I'm pretty sure it was because of the upper respiratory infection and ear infection I got.

The dizziness is gone, I think, but the muffled hearing and heavy-ear feeling is still there. How come I didn't have that after the first injection?

Anyone else feel dizzy many hours after getting injection?

I got back from getting the injections. They really weren't bad. I've dealt with worse pain, much worse. Get them if you can, but honestly, I wish the trial was shorter. I had to travel pretty far and still do for my three follow-ups. That's right, one after ten days, one after thirty days, and...

http://tinnitus-study.info/us-en-the-study Here. Hurry and sign up; testing is ending soon.

Second injection didn't go as smoothly as the first. My ears weren't draining the drug like the first time. After the third injection (it's been 6 hours since) my ears are very full and I can't hear well or hear myself speak well, even after driving through mountains and hearing my ears pop...

Got first injections. The numbing hurt a little but the injection didn't. Felt dizzy after injection for a minute. Swallowed a few times but the drug did not drain. Left ear (second ear they injected) still feels full of stuff after an hour. Right ear feels less full, maybe because I was lying...

Both my parents have T but it doesn't bother them, and I don't know how they can live with it.

Injections begin Wednesday.

I just asked them by email and they said they do offer it after the trial is complete.

This is what I don't get, though. From what I've read on this forum, I thought after a month of getting the injections, they told you if you got the placebo or not, then you'd set up to get the real drug immediately after. I did not know this would be a 90 day process. I have to travel 5 hours...

The doctor said I won't get the real drug until years from now. I thought during the month- later visit you get the real thing.

Going to screening tomorrow. Wish me luck!

Oh yeah. I applied there, but when I told them I had depression (caused by this) they turned me down.

From where I looked on the internet and on tinnitus-study.info, there is no test site in Philly. If there was one, I'd be going there.

I understand what you're saying. But my sounds aren't necessarily central. The sounds in my right ear are different than the sounds in my left, and both of those are different than the sounds in my head. Basically, I'm bombarded with sound.

No, I mean to get treated better, maybe finding a cause easier. I'm not able to habituate, since my T changes daily, and now it's becoming more in my head. My head and ears also feel hot yet there's no fever.

I don't know if I'm right about this, but I read that when the tinnitus becomes centralized (meaning you hear it in your head more than directly in your ears) it becomes more difficult to treat?

I've taken 3 antibiotics and 2 steroids since getting T and none of them helped. I still have Eustachian tube problems as well. Make your doctor do better tests on you besides just looking in your ears. Get an MRI if you can afford it.

Netipots make my T worse and cause pain in my nose and ears. Steaming just puts more fluid inside my head. Hilariously, when the pressure stops, (every 10 days) the T is worse.

What about urgent care or a hospital? That'll be faster.

So you're saying that not even an MRI can determine this?

But why wouldn't he or the other ENT I saw test me in the first place?

No, none of my doctors have ever ordered any tests to make sure I'm okay, no scans, no blood tests, no tubes, nothing.

After a week of not having any pressure behind the ears and seeing an ENT earlier today who told me I didn't have ETD, I get pressure again. Also, I might be going to an AM-101 screening. This is my third bout of possible ETD in two months. What should I do now? Should I get a scan? An operation?

I'm not just sad. I'm borderline psychotic. T is the absolute worst thing to happen to me.

Great. I need in this. It's my only chance.

Again, no one said anything about having depression and anxiety as being exclusion material. What am I going to do now? Tinnitus CAUSES my depression!

No one said anything about having to gather up all my medical info and send it to the place that's doing it. Now I'm scrambling all that together and it's going to take longer.

My parents have it, but for reasons unrelated to how I got mine. Also, they were old when they got theirs.

There is still cracking and popping, but the inflammation has gone down and the pain/pressure occurs less. But just as I was starting to feel better with the ETD (two weeks ago) I get T in the left ear. That makes no sense at all. I feel like the T is worse after ETD issues go away.

I need to vent, sorry. Honestly, what are the odds of it going away? It doesn't get better. I have T in the left ear now, too. It's lower than the right ear T, but it's not any less intrusive. I've tried Magnesium, B12, yoga, distractions, sleeping quietly, changing my diet, and soon I'll get...

Well, I answered my own question after taking it, and yes, it makes the T sound different and worse. I believe any ear drops would make it worse.

The thread for this drug is too long, so I was wondering if you can taper off Trobalt after taking it till T stops? Also, how long after onset is this drug useful?

I can narrate them for you, when you do. http://voice123.com/darbycroasdale

How did you get your T?

The sound in my left ear is a 6/10 low-tone ring that comes and goes, the sound in my right is a 9/10 cricket sounds, but sometimes it changes to a high-pitched ring. There's throbbing sometimes also. The ringing came become unbearable after exposed to noise or when the doctor screws with it...

Nasonex might keep ETD under control. I experienced no change when I came off it. If you feel both ears are full, then you have it in both ears. You could also have it in one and then, if left unchecked, can travel to the other ear.

My T was not caused by noise, it was caused by URI/ETD. So why does it get louder when I'm exposed to noise? I went to get my hair cut, and I wore earplugs, but T got louder anyway.

New ENT prescribed this ear drop because he sees hard gunk on my eardrum and he tried getting it off but couldn't so he gave me this. Will it make tinnitus worse?