Search results for query: cochlear hydrops

...I'm pretty sure I have cochlear hydrops like you have @Ian Mac and it drives me crazy. I also wish I had "normal" T, that's how bad it is with always changing T... So all of this is very interesting for me too. And the prices in Germany are much cheaper that US?

...Today I had the husband of my regular ENT due to a scheduling error. But again, he stated my diagnosis is endolymphatic hydrops or cochlear hydrops. He stated it is impossible to test for certain and there is no treatment other than diuretics and diet. He did state that if my hearing drops...

...said that it was due to low frequency hearing loss in my right ear. I have been diagnosed with atypical Menieres disease (cochlear hydrops) and amazingly I have found a way to control it. I am firmly convinced that my case is caused by a herpes virus infection in my inner ear - and all...

...because the same happened to me a lot while sunbathing.. I did notice that the warm weather did trigger those "spikes" a lot :P Cochlear hydrops? Im sure there is a possibility, but I think we can see 10 doctors and have 10 different diagnosis.. I have experienced short lived T a lot in the...

Frequency Therapeutics will document the effects after this trial as tinnitus has been added to their experimental end points after receiving testimonials that it did lower tinnitus in phase 1. I would listen to the Tinnitus Talk Podcast interview with Frequency Therapeutics if you haven't...

...middle ear muscles. What you have sounds exactly like what I had three episodes of now, which I have linked to hormonally driven cochlear Hydrops. I recently gave birth, and in the week prior, my on/off humming (truck idling sound) returned. True to form, it stopped and started and I could...

Yes. You are right. I guess what I meant to say is that in my case I am not really having many migraines. Since I had my daughter, I have had them around my period and some other times but they are certainly not frequent. The ear symptoms are every day. I don't understand why Hydrops seems...

I understand what you explain here but I've never found answers either. For me it's noise damage from the microsuction and then as doctors and audiologists are in total denial about the damage this can cause, they subjected me to loud tests as they claimed that the microsuction couldn't have...

What I have always understood is it is not well taken up by cochlear cells but with very high doses I'm sure it's toxic to everything it touches. It is very highly selective for vestibular cells. You can obliterate the vestibular system (the point of the treatment in Meniere's obviously) and...

No one is saying all tinnitus is from cochlear damage/hearing loss but rather anything that interferes with hearing can cause tinnitus. That can range from ETD, TMJ, Hydrops, ear drum rupture and even inflammatory conditions. It's good news that it's not "stuck in the brain" and that...

I hear the Morse code machine too, yes I hear hissing and ringing too. It's cochlear hydrops.

...news. Yeah, what I've noticed is that my T is quiet during the morning whenever I don't play masking sounds at night. I stopped that but because I have H I need to try and retrain my ears again. So I was diagnosed with cochlear hydrops just based off of my symptoms and I need to lay off the...

I am curious about SSHL. Does it happen out of the blue, like you get up and you suddenly realise that you don't hear well? Or is it something that develops over time, in a matter of days or weeks?

Is number 5 just related to tinnitus? I presume it is. Lucky, my hearing loss is just as big a concern, if not more so, than my tinnitus at present. In relation to 4, would it then be a good idea to lower inflammation as much as possible before trying FX-322, i.e. using Astaxanthin etc?

I’m very sorry to hear that. The not knowing what is happening or going to happen next is horrible. I can relate to the strange bass sound you mentioned. Mine is like hearing a dance party from a distance but it is synced to my pulse. I always thought maybe it was the middle ear muscles humming...

The diagnostics are truly primitive, but you can rule out a lot of potential causes with a really extensive work up: vascular, nutritional, neck/jaw injury, conductive loss, "third window" syndromes, immune-mediated, neoplastic (tumor), genetic hearing loss, hydrops/Meniere's, etc. Though a...

I suppose nothing is a guarantee but if you fix what caused the problem then you will likely get rid of the problem. No every obese person does not get Meniere's. Some get heart disease or diabetes. You got Meniere's...but not yet. I know I sound like I am being harsh, but I want you to...

Jkph75, I appreciate how upset you are, I am upset too. There is no guarantee by losing weight or changing my diet I will get better. There are tonnes of obese people in the world who do not suffer from tinnitus. I would not rush out to look at cochlear implants etc. You have no idea of how...

...regarding her tinnitus, and who is seeing “marked improvements” with all symptoms. This patient presented with intrusive tinnitus, cochlear hydrops, high frequency hearing loss, and hyperacusis. I am micro-progressing every day. The crazy wind/screeching sound in my right ear is gone, and...

...they thought I had damaged my labyrinth. WELL I DIDNT...They also said I might have Acoustic Neuroma, Blood Cancer, Thyorid Cancer, Cochlear Hydrops, etc. My ENT Told me that Noise induced hearing loss happens less than we think it does. Audiologist said that Acoustic Trauma happens on the...

Mine also said "I have not heard of noise damage causing problems a couple days after, only immediately after the event." If you can mask it still in the shower thats good! At least you can get some relief. Can you find specific sounds that help mask it? Like crickets, water running, etc?

I did one recently and was just fine. I brought my own earplugs, the tech even said that was a good idea. If they let you bring your own strong earplugs, do it. My tinnitus was not affected by the MRI.

That seems so lame, sorry to hear that.

Thanks Yvonne. I am sorry you have suffered for so long with Cochlear Hydrops. It has only been four years for me but I recognise what you have gone through. I too thought that my ear problems were down to stress, playing the accordion (!), ETD etc, even though Cochlear Hydrops was diagnosed on...

...a sense of needing to escape, low quality of life, etc. I do have appointment with audiologist as I have long suspected I have cochlear hydrops and/or my TMJ causes tinnitus as all other conditions ruled out by ENTS. I saw my chiropractor yesterday and my C-1 (Atlas) was out. I did notice...

...of Michigan being I have no vertigo. He said you simply cannot have a Meniere's diagnosis without vertigo but he suspected cochlear hydrops or cochlear Meniere's but did not do testing, just referred to psychiatrist and audiologist. This COVID-19 pandemic has shown how witless and utterly...

...the spiked loudness of the T. I have gotten a diagnosis of possibly Meneires Disease, autoimmune disease of the inner ear, and cochlear hydrops (which seems to be the stronger diagnosis at this point because I have not gotten vertigo). My attitude has changed greatly thanks to the work...

...I wake up every morning with it screaming. A highly specialized ENT with the demeanor of a slightly alive corpse diagnosed me with Cochlear Hydrops; an incurable (what else!) vestibular disorder. In my own research (she offered nothing except water pills which make me so ill, I can’t...

I was thinking, are you sure you even have Cochlear hydrops? Did you only get low frequency loss? Did this happen to both ears at the same time or one ear?

...thinks that by trying to improve the NIHL I may not notice the rumbling tinnitus as much. The low frequency loss is probably due to cochlear hydrops but the NIHL I got from playing an accordion. I am hopeful that the hearing aids will help. I've been like this for nearly four years and am...

Has anyone mentioned cochlear hydrops?

...slight angle, but more or less sitting up right? If so, what does that mean as far as conditions... Currently, I may have ETD or cochlear hydrops combined with minor hyperacusis. Anyways, it is interesting how the pressure does not get as bad when in this position. I would say when I am in...

Any chance of an update? What anti virals did you take?

...It could have been neck muscles and a lot of golf I played. Or it could have been the hot weather which affected my whole body's water balance and thus also the inner ear -> cochlear hydrops, which an experienced ENT recently proposed as one potential cause for my T. Oh the mysteries of T... :)

...it comes and goes in a wavering way, as if I have a freaking lightsaber being waved around my right ear. Is this a symptom of cochlear hydrops if it's generally low frequency and electrical buzzing? Just seems less and less like "normal" tinnitus. I noticed it randomly a while ago, but...

...thread with more of my detailed questions. If you don't mind me asking, what was the cause of your SSHL? Are you sure you have/had cochlear hydrops and what caused it if you know? Do you ever have dizzines/off balance feelings? I am not asking because you are a doctor, I am asking because I...

...I have been on Betahistine (Serc) for 10 days as I received an opinion the progressive nature of my condition may possibly be caused by cochlear hydrops. So far there hasn’t been noticeable effect and my tinnitus has continued to worsen all the same so far, but I hope it will benefit me in time.

...that frequent of hearing losses, nor does it fluctuate like this. Instead, he told that he believes it's very likely to be Cochlear Hydrops, or Meniere's without the vertigo. Anyways, I don't know what's really going on, and while I do want to believe my ENT, however the last 3 years I was...

...was written in the 80's (I think) that states there could be a link with noise exposure bringing on Menières. I think I may have cochlear hydrops (or something like it) that has been triggered by the acoustic trauma caused by the microsuction procedure last year. My quality of life is...

Thank you @Kolisar. I have already tried several treatments for ETD with no luck. I'm not sure if my problems resemble cochlear hydrops.

...up to 30 to 40 decibels! When my low frequency drops I have a very loud hum in addition to my constant high frequency tinnitus. It's hard to habituate to these changes. I may have cochlear hydrops and started myself on a diuretic today. If my low frequency hearing improves I feel 80% better! Dom

Tinnitus means you can hear a sound that other people cant hear, when there is no sound around you.

I can't remember everything that I was tested for... thyroid disorder, vitamin deficiencies, etc. My neurologist said that there were things that the blood tests couldn't test for, so having a negative result didn't necessarily mean that my condition was not autoimmune in nature. I went on a...

...it a tint bit more. But it feels absolutely impossible to habituate to something that always changing. I suspect it might be cochlear hydrops which gives it a chance to develop to Meneires... And I got pretty severe visual snow, floaters, ghosting and glare on top of that. You can say I'm...

...tests. I know that I can't say for sure at this point but he seemed pretty certain that what I am experiencing is at least a precursor to Cochlear Hydrops or Meniere's. It would be helpful to talk to people who actually have these diseases so I can know what to expect from a personal stand...

Salt is evil for me. If I eat salt laden food Im done the t and H go up to 8-9. You cant eat salt or you will get a spike that lasts for the day. Potassium based food will help ease the spike.

Holy crap. Your tinnitus sounds kinda similar to mine. It’s indescribable. In the last month, it has morphed and changed a lot. Lots of stuff going on. )t’s a waaaahhh waaaahhh waaahh sound. When an ambulance siren comes nearby I swear that ahhh sound gets mixed into it. I get weird vibrating...

Could it be tinnitus sufferers' brains are somehow not as plastic as those who have recovered? Rather than the cochlear recovering and the brain responding to that recovery, it could be the brain was already compromised and therefore the insult from the cochlear triggers it. So the problem...

Sometimes issues like this can be one-off. When I first got tinnitus/hyperacusis I had one day where I had a very brief period of distortions with sound. Music sounded broken. After that day I never had this issue again. This was about 2.5 years ago. After an ear surgery I had a horrible...

Even then most of these potential treatment barriers do not seem as if they are that difficult for people to overcome. For example if you swallowed at the incorrect time, it would just mean that you would require a redose. Or if the area actually needing repair was further in the ear then...

...within a week after I developed this high pitch ringing sound in both ears and hasn't gone away since. Two ENT diagnosed me with Cochlear Hydrops and I've been keeping a Keto diet but I broke it since I didn't really see that much improvement within a month. I was literally eating beef and...

I had a stabbing feeling few days ago...sometimes I get that sensation.

...I had no hyperacusis. My ENT or Audiologist didnt believe I had a acoustic trauma but tumor, blood cancer, thyroid cancer, meniere, cochlear hydrops, so my eNT wanted me to do a ear irrigation and vemp test which was loud as hell. From then my T doubled in volume from a 4 to 8, and I got...

Great. By generally, I assume he means almost always. Well, that's it. I'm officially screwed. I should start picking out my Cochlear implant now. How long do I have left here? Meniere's has different causes. Some can easily be corrected. In your case, if you change your diet and lose...

Have they ruled out cochlear hydrops or Meniere's disease? Just asking with your history of vertigo. If you follow up with ENT or neurologist, you could ask them about medication like Keppra (anti seizure) that others have had help them with hyperacusis. The only other thing I’m thinking you...

I will be seeing the ENT this week. The thing is worrying about nothing is my specialty :) Also how does one get checked for hydrops, as far as I'm aware it's diagnosis by elimination. I'm hoping it's due to inflammation, some benadryl helped a bit but not fully.

I had ear fullness for about a month I think after my worst vestibular attack. I got fullness again after antibiotics destroyed my cochlea and that lasted about 3 months and was even worse in terms of pressure. Ear fullness isn't pathognomic for Meniere's (but it is common with it).

How does focusing on tinnitus help?

...I know that I can't say for sure at this point but he seemed pretty certain that what I am experiencing is at least a precursor to Cochlear Hydrops or Meniere's. Then again, I spoke with a Dr today who said she had no idea and said it could be regular hearing loss. I am hearing distorted...