Search results for query: cochlear hydrops

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  1. Ed209

    Frequency Therapeutics — Hearing Loss Regeneration

    I've followed their research for years and understand the various ideas that are out there. Nobody knows for sure what is really going on; there's a lot more to learn. This is true, but in a lot of people, it fades in a matter of hours. It doesn't become chronic universally. We have pieces of...
  2. hydrops sufferer

    For Five Years, I Have Dealt with On and Off Hearing Issues

    ...hearing tests and history. I had a lot of ear infections as a kid and always felt that was important. Anyway, he diagnosed me with cochlear hydrops (basically fluid in the cochlear space in the ear). He has advised me to give up caffeine and alcohol and lower my sodium intake (some of my...
  3. Nathan

    Going to the Audiologist — Tests I Should/Should Not Do?

    I already have old man eyes. Thank goodness I don’t have visual snow.
  4. FGG

    Are There Any Success Stories for Moderate-Severe Dysacusis?

    This is me. Everything sounds mostly normal (except for the tinnitus on top of it) except for music. It's been two years. Music has improved from screeching alien sounds to just "bad." The thing that has helped me the most on that front is bio-identical Aldosterone which I tried as a last ditch...
  5. joconne16

    I'm a Wealth of Knowledge at Your Disposal — You'll Adjust to Your Tinnitus, You'll Get Through This

    ...in the world. Jastreboff, UCLA (Dr Baloh), James Andrews in LA, The House Clinic. No one really can give an answer other that cochlear hydrops but that’s very vague in terms of cause and treatment. I tried everything... Diuretics, TRT, allergy testing, Prednisone, anti-virals, chiropractic...
  6. Samir

    Osmotic Stabilization Prevents Cochlear Synaptopathy After Blast Trauma

    A little something about noise levels and noise protection in the military: I have often seen references to "excitotoxic levels of glutamate" when reading about sensori-neural hearing loss. I don't fully understand how this works to be honest. But are we able to hear this? Are we able to "hear...
  7. I

    I Got Over My Tinnitus, And You Can Too...

    ...had to take me lots of concentration to hear it again. That being said, I was fine for 20 years until I developed what I think is Cochlear Hydrops which killed some of my low frequency hearing. Because of this I got T in that ear which is more like a very quiet river to sometimes a very...
  8. Samir

    Frequency Therapeutics — Hearing Loss Regeneration

    That would mean removing the stapes bone and replacing it with a prosthetic? This seems wasteful to me if the stapes is mobile and functioning normally. It might be an option in case of mixed hearing loss (CHL and SNHL). All these procedures are done by ENT surgeons. But the time it takes is of...
  9. Ian Mac

    Bilateral Tinnitus May Be Hereditary

    ...Foncky, I just thought funky sounded better. How is it possible that permanent damage creates a changing noise? Perhaps you have cochlear hydrops (no not meneiers). How can hurting your ears in the way they were meant to be used, listening to sounds, be worse than straight bacterial damage...
  10. Yvonne langridge

    Cochlear Hydrops — Need Relief

    I have had cochlear hydrops for years and there are posts on this from me. The regime I am on now, and I am quite rigorous with this as I have lost most of the hearing in one ear and accelerated loss in the other. I am on a very strict very low salt diet, this means not only no salt added to...
  11. Zug

    An ENT Doctor with Tinnitus

    I don't know if "Welcome" is the best word here... But anyway, sorry this has happened to you. There's some pretty good information and help in this Forum. Just try not to get too scared about some of the bad stuff. I think my biggest mistake when I first developed Tinnitus a little over a year...
  12. N

    Should I Sign Up for AM-101?

    I absolutely think you should sign in and go to the screening. But be mindful that if you have ETD as a result of some sort of infection you might not get in. Here and the inclusion/exlusion criteria: Inclusion Criteria: Persistent subjective peripheral tinnitus (unilateral or bilateral)...
  13. D

    Meniere's Disease

    ...put on steroids, and the hearing returned 2 days later. No dizziness with this attack. Saw neurotologist at Stanford. He thought Cochlear hydrops (atypical menieres) and migraine. He said they are related. My neuro doesn't think Menieres...she thinks atypical migraine and virus attack for...
  14. Danny Boy

    Tinnitus Got Worse and I Can't Sleep

    Amitriptyline is the best drug for sleep!
  15. greeterdan

    Tinnitus Got Worse and I Can't Sleep

    ...My name is Daniel. Quick introduction: In February, 2014, I suddenly developed symptoms of what was diagnosed by my ENT as cochlear hydrops. The main symptom was, of course, tinnitus. Although there were a few days early on where it was really troublesome, I mostly managed fine, and slept...
  16. M

    So My Doctor Thinks I Have Endolymphatic Hydrops...

    Thank you Coyote! they did test my hearing til 20k the doctor actually was like (im the only one in this city to test it til 20k) i do have my reasons to believe i could have "hidden hearing lose" or "endolymphatic hydrops /menieres or secondary) as i said before my hearing hasnt change, and...
  17. dpdx

    Going to the Audiologist — Tests I Should/Should Not Do?

    ...further testing to rule out ear diseases (meniere, cochlear). My ENT made a list of 20 diseases I could have ranging from meneire, cochlear hydrops, acoustic neuroma, thyroid cancer, etc etc. I did a CT scan and MRI, which were normal. My ENT wanted me to do caloric test, ecog, vemp, acoustic...
  18. I

    Anyone Have Cochlear Hydrops?

    ...to good again. The thing is I normally don't eat too much junk food so I was always on a healthy diet more or less even before I got cochlear hydrops. I can imagine the average persons diet may really cause me lots of issues but I eat healthy normally. There is definitely a delay if food...
  19. Joe123

    "Feeling" of Ringing

    Talking about electricity actually kind of sparks (haha) an idea. It kind of feels like a very low voltage shock (kind of like when you lick a 9V) but in my ear canal minus the pain. It kind of feels a little tense and tickles but in an irritating way (kind of like the 9V) but absolutely no pain...
  20. FGG

    Frequency Therapeutics — Hearing Loss Regeneration

    If your audiogram is still improving, you might not need regenerative medicine. Inflammation can take a long time (many months) to resolve. It's possible the lack of clarity is due to IHC loss and Frequency can help but this is not common for most causes of hearing loss without severe OHC...
  21. Ian Mac

    Cochlear Hydrops — Need Relief

    ...around my ear. Ive been in FOUR mental hospitals since I got sick.. Finally saw an OTOLOGIST and got the ECOG which confirmend cochlear hydrops pressure in both ears, worse in my right which is of coarse where the birds swoosh worst. I think about suicide all the time.. Prays for you guys...
  22. R

    Does Anyone Have Low-Frequency Hearing Loss and NOT Have Meniere's Disease?

    ...low pitch hum. After six months I went to ENT where an audiogram showed that I had a severe reverse slope loss. The consultant said "cochlear hydrops" and prescribed betahistine 16mg x 3. I only took it for a few days as it upset my stomach. Six months after the first appointment I returned...
  23. N

    Challenging the Current Terminology of Hyperacusis

    ...it then confuses us on whether or not the patient is experiencing a hearing loss or a hearing gain. And then there are some supposed cochlear hydrops cases yet they were cured by a tetonomoty. I don't think of my problems in terms of hyperacusis anymore because the medical literature is...
  24. kingsfan

    I'm a Wealth of Knowledge at Your Disposal — You'll Adjust to Your Tinnitus, You'll Get Through This

    I live in the same area as you. House Institute was the first place I went, about 5 days after my tinnitus started. They really were not helpful at all. I have not heard of Dr Baloh or James Andrews. I am currently seeing Dr Lin and Dr Djalilian at UC Irvine, and they are beginning to try some...
  25. etn_hopes

    SSHL, Tinnitus, Panic Attacks, Intratympanic Injections, HBOT, Borrelia

    ...Somehow I don't trust any of my docs opinions anymore... I don't have vertigo (thank god) but i think it could be cochlear hydrops. I tried Betahistine for a week, i did not feel a difference. Maybe I try it again for a longer timeframe or in a higher dose, but i don't have high hopes for...
  26. dpdx

    Is My Tinnitus Fading?

    ...rule out any issues with the ear. My ENT made a list of 20 diseases I could have, she said either I have acoustic neuroma, meniere, cochlear hydrops, thyroid cancer. Acoustic Trauma in her opinion was the least likely thing to occur because my T is only one ear. She insisted I do a CT, MRI...
  27. R

    Hello... I'm the Spouse and Looking for Hope and Support

    ...ringing. Went back to ENT and the PA said he had low frequency hearing loss, reverse slope audiogram, and she thought may be cochlear hydrops. Prescribed diuretics, and low salt diet. My husband is an active runner and usually with long runs, needs to replenish with salt tabs and...
  28. Zach777

    Possible Cochlear Hydrops — Weird Symptoms

    Hi meemil, Well since August 21st 2021 when this all started a lot has happened since my last post and I have learned a lot. I have also seen a number of ENTs and nobody so far really knows what's going on. Essentially most of my issues is in the right ear, I have experienced some odd...
  29. Aaron123

    Audion Therapeutics Trial

    Well, here's the first specific information that I am aware of on Audion's clinical trial: http://www.isrctn.com/ISRCTN59733689 Like the Genvec trial, it is a Phase 1/2 trial which is why they talked about starting Phase 1 and Phase 2 in 2017 (though in one place they say it starts in 2016 and...
  30. Coyotesheaven

    So My Doctor Thinks I Have Endolymphatic Hydrops...

    ...martz I agree with you in that many people, even adolescents, can acquire tinnitus and ear damage from a single concert. It is cochlear hydrops that would be exceedingly unlikely to occur from a one-time exposure, or even multiple exposures. Just think of all the drummers in rock and heavy...
  31. Teri

    Meniere's Disease

    ...understood what is going on in the inner ear of a patient. I have also been told I may have autoimmune disease of the inner ear, or cochlear hydrops. At any rate, something is going on in my inner ear. I take two Triamterene 37 .5mg each morning and stick to a low salt, no alcohol and low...
  32. Pre55ure

    Anyone Been Diagnosed with Cochlear Migraines?

    I don't know if there are any tests that can give a "positive" diagnosis, and I was skeptical at first but my symptoms have responded well to the medication that the doctor prescribed, and after reading the (little) information I have been able to find about it, I think the diagnosis fits. I...
  33. dpdx

    Poll: Was the Advice You Got on Tinnitus Talk More Useful Than Your ENT's Advice?

    ...this forum. My ENT wanted me to do a CT scan, MRI, EcOG, vEMP, Caloric test, etc as she thought I had acoustic neuroma, Meniere's, cochlear hydrops, now that she made it worse by misguiding me and brushing the acoustic trauma as a small possibility the condition worsened. Last time I saw her...
  34. T

    Tinnitus Saga

    ...I regret it about an hour later when they start screaming again. I've read lemons and low salt diets can help people if they have cochlear hydrops. I guess it helps me, but I'm not 100% sure yet. Right now the ringing kinda sucks but I ate something I shouldn't have yesterday so maybe that...
  35. Heathen

    Sudden Inexplicable Tinnitus and Hyperacusis — Now 4 Months In

    ...I also started having random spasms in my face (mostly on the left side, but some on the right). I've received a diagnosis of cochlear hydrops (Meniere's disease without the vertigo, essentially) from a sub-specialist ENT, but I'm a little suspicious of the diagnosis because: It doesn't...
  36. Christiaan

    New Method to Map the Inner Ear Using Artifcial Intelligence (AI)

    I do not have a clear idea that radiologists aren't generally well trained in examining the specific area of the inner ear, but it may seem that it's hard to examine inner ear pathologies using conventional MRI. The authors of this study argue that their AI method allows them to see more...
  37. FGG

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    Tinnitus is ridiculously complex and multi factorial. I feel like you and everyone on the forum knows this and it is almost akin to a stoner saying "woaaahhh, the universe is deep, man" but anyway bear with me because this is going to be kinda long... It seems to me that T = x + y + z. x is...
  38. I

    New Here. Low-Frequency Hearing Loss and Tinnitus... Please Help

    ...better and worse. When it was worse I heard echoes and more distortion. I think it may be something with the inner ear fluid or cochlear hydrops without the vertigo or dizziness. I thought my low frequency hearing loss was permanent but it improved a lot and just recently the distortions...
  39. soundmachine

    Tinnitus Got Worse and I Can't Sleep

    Ambien is actually ototoxic and similar to a benzo. So like you said, it lost its effect. The withdrawal can be similar to a benzo so stay away from it. I am a big advocate of non pharma stuff but to transition to the less dangerous stuff, try Belsomra (assuming you are in the USA)...
  40. dhenry89

    Thank you Dr. Nagler ... and "Straight Talk"

    ...loss. I was initially diagnosed with Meniere's disease, however after a 4th opinion, Dr. Mattox (Emory) believes that I have Cochlear Hydrops due to the fluctuating fullness, Tinnitus and hearing loss. Thankfully I do not have vertigo. These past 6 months have been the most difficult 6...
  41. FGG

    Anyone Been Diagnosed with Cochlear Migraines?

    Was this at House Ear by any chance? A friend got diagnosed with the same thing after zero diagnostics apart from an audiogram. She had never even had any type of migraine in her history (including vestibular). It didn't make any sense to me. At least yours was episodic so it potentially...
  42. japongus

    DIY Low-Level Laser Therapy for Tinnitus on a Budget — LLLT Under 100,-

    ...people have pain without pulls or thumps. Laser might be curing issues in the middle ear not the inner one. Laser could be targeting cochlear hydrops or something, but with the middle ear in the way and with the above reports I'd find that more improbable. Neuropathic pain, herpes, could be...
  43. japongus

    Myoclonus of the Middle Ear, Stapedius Muscle and Tensor Tympani Surgery

    ...limbo of doubt. But and a big but though, I have high pitched tinnitus and low pitched rumbling. It's possible that the latter is cochlear hydrops, maybe that both are. But it's also possible either or both could be a thumping middle ear muscle that's just vibrating too fast to be perceived...
  44. K

    Tinnitus (And Some Hyperacusis) Since 2007

    ...I get all sorts of crunchy sounds. Other side does not do that. Also, I have the feeling of fullness and water in my right ear, like cochlear hydrops. Right ear is effed up. Have seen all sorts of docs, had MRS, blah, blah. No help yet. I'm okay when I am outdoors, but when I am in a silent...
  45. Darren Knight

    Standing at the gates of tinnitus

    Hi Guys, It's been a while since my last post, so I thought I would give you an update. My ENT has diagnosed me with cochlear hydrops, which is a form of Meniere's disease. My hearing fluctuates from almost completely deaf (for a few hours) to perfect hearing. My other Doctor, the amazing Dr...
  46. H

    The Past 3 Weeks...

    ...he's never seen an MRI showing this cause. The 4 different MRI's my Primary Dr wants me to do are a waste of time. He mentioned Cochlear Hydrops as a possibility, but a standard hearing test won't find it without a number of other hearing tests. Hydrops can last for awhile but then fades...
  47. LadyDi

    Standing at the gates of tinnitus

    Great news Darren. Hearing aids work really well for some people. So glad u r one of them!
  48. K

    Rare Case of TMJ! Hearing Loss. Please Help!

    ...hospitals in the beginning they thought it was Ménière's disease but since I've never had vertigo I believed in my opinion it was cochlear hydrops. Many of these doctors said it was all in my head and I needed a psychiatric assessment needless to say I got up and left because of there...
  49. Samir

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    It's not too difficult to reach the cochlea if you are violent enough and use an invasive approach. People get cochlear implants every day all around the world. The only way to that is by reaching into the cochlea. There are three ways to implant the electrode. A: Making a hole in the round...
  50. japongus

    (Wallace and) Grommets for Hyperacusis

    ...in H, some positive, some negative, that mention rumbling and roaring, and the debate about whether roaring is the veli palatini or cochlear hydrops. Obviously Hain isn't on the same level as those mysterious audiologists 'curing' obvious Tullio's (including possible fistula) with pink noise...
  51. japongus

    Myoclonus of the Middle Ear, Stapedius Muscle and Tensor Tympani Surgery

    ...be the tensed up stapedial muscle) and low pitched rumbling (wtf that is, anything from the eustachian tube or the veli palatini to cochlear hydrops. The thump that follows sound around with a tiny latency in my case is a different thing to these other two continuous sounds I have. Whether...
  52. T

    Tinnitus Saga

    Thanks for the kind words. I don't know if I have that - its not a diagnosis from a doctor, but it seemed convenient considering how it helped me to watch my salt intake and eat lemons (a diuretic). It was an interesting idea, however, now I'm not sure. I think it's possible fluid pressure could...
  53. Carlo

    Standing at the gates of tinnitus

    Really really nice to hear good news from you, @Darren Knight! I have to say your positive attitude it's a big help for me as for everybody here around. What a pity, due to the light pollution in Rome I'll not watch the meteor shower... Don't forget to keep updated, friend
  54. Ian Mac

    Two Tone Beep in My Left Ear

    ...I've been in four mental hospitals since it started, with no help. However I saw an otologist and her tests revealed I have cochlear hydrops, meaning increased pressure inside the cochlea from fluid causing beeping noises in my ears!! You likely have cochlear hydrops from high blood...
  55. Lauren Morse

    Hearing Loss and Tinnitus from 'Safe' Noises—Over and Over Again... Help?

    ...cause but my extreme vulnerability to noise must have another underlying reason. I have come up with my own ideas such as secondary cochlear hydrops, noise mediated autoimmune inner ear disease, a lingering inner ear virus, vascular damage that has limited circulation, etc. etc. but again...
  56. kaybee11

    Is This Hyperacusis or Something Else

    ...in a quiet room. Now I've been googling like a frickin nut and there so many things it could be I guess. PET, could be ETD maybe, cochlear hydrops. My hearing is really distorted -- we went to the mall yesterday and I felt like an alien. Some sounds were louder and masked the other sounds...
  57. kaybee11

    Not Sure What This Is

    ...a quiet room. Now I've been googling like a frickin nut and there so many things it could be I guess. PET, could be ETD maybe, cochlear hydrops. My hearing is really distorted -- we went to the mall yesterday and I felt like an alien. Some sounds were louder and masked the other sounds...
  58. meemil

    Possible Cochlear Hydrops — Weird Symptoms

    ...the end of an episode as the hearing gets to normal baseline. My speculation is that maybe it could explain why the hearing loss in cochlear hydrops is often temporary, once the fluid balance gets back to normal and residual inflammation goes down, hearing goes to baseline. (Even in cases...
  59. Mr. Cartman

    Tinnitus, TMJ, Headaches, Neck Pain, Facial Pain, etc. — Possible Treatment

    @chronicburn @Sjtof @Sound Wave @just1morething This is one of the most comprehensive articles about Tinnitus I have come across, and I want to share it with you guys. I have bolded out a few lines that I found particular interesting, at least in my case...
  60. dpdx

    1 Year Anniversary Next Month...

    ...away. My ENT told me there is no way this is an acoustic trauma (least likely), and the most likely is acoustic neuroma, meniere, cochlear hydrops, thyroid cancer, etc etc. So she wanted me to do CT, MRI, ECOG, Acoustic Reflex, VEMP, Caloric Test, Tympanometry. etc (Yup she is that retarded)...