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Hey guys, I haven't been on here for a while but thought I would chime in and just add some more info in case someone in a position to help reads this. First a bit of a background: Got audio based tinnitus a few years ago by spending too many hours in a row recording music. Pulled out my in-ear...

So just to give everyone a heads up, it took about 3 days since it came back last week to get silence again, and as of last Friday it's been basically nonexistent since. Since this took place it's almost as if it's reversed. I have gotten more silence days than T days. And when it did come back...

That's definitely the million dollar question. Yeah, I don't know if it's really like that last example, that's just what it felt like to me. That's why I say, that once T gets going, it seems like it moves into the auditory cortex and some other parts of your brain and then beyond that...

So I want to give you all an update. Today I napped for 3 hours and my T is back to its normal self after the nap, about a 3-4/10 in my left and 1-2/10 in my right. And this is pretty typical T for me, which no longer bothers me. I am only paying attention to it right now, because I had silence...

Yeah I think it very well may. I'm pretty sure that's what happened to me. If I were to upload the whistling sound i was working on, and I won't since even now I think it can do damage, any person would go "yep that would do it". There is a danger in earbuds and noise cancelling headphones...

Well I have had plenty of sessions like this with speakers over the past 2 years, but I also never tried it at a high enough volume with speakers, since I can't. It never happened with speakers. I think the earbuds working may have something to do with them block all outside sound also which...

Yes I know. It was composed by multiple people actually but most people don't know that. Kenny Wayne Shepherd is the name of the band under which the song is released so it's like saying "Nirvana's Smells like Teen Spirit vocals" so I was referring to it in that sense. Great song!

Both of those things can help, since they are all parts leading to the auditory cortex, but I don't know if that will be enough. The auditory cortex is ultimately where I believe a big part of the problem lies but I don't know if it's simply limited to that once tinnitus gets going. And there...

If you look through my history I have many posts and exchanges with other members where we talk about many different types of sound based therapies that work. I don't think there is anything fluky about work or therapy. Sometimes it just takes hard work and in this case we don't fully...

I have stopped trying to treat my tinnitus 2 years ago. I moved on from it a long time ago. It has little effect on my life anymore, except on some rare occurrences when it gets louder or I get overly tired. I'm only here taking about this because it just happened to be loud all last week, and...

At this point I feel you are arguing for the sake of arguing and not even taking the time to read. It's not spontaneous in the least. My silence is regular, and anyone that's taken the time to read through my history will see me document sound based methods from the onset that have always...

Again that's pretty easy to disprove by simply applying stress/relief to one ear only and observing the phenomenon in both. While I agree that nerves may be involved in some ways, like I say, a missing connection, T for most of us, is beyond the ear. And what I describe is an overexposure to...

Well yeah initially I'm sure it was that, as I stated that's how I got it. But while that may explain the final trigger, that doesn't explain Tinnitus or people's experiences. For example at the moment I am experiencing 100% complete silence. If it was as simple as a physical problem, my...

By the way, I suppose I should also tell you what to do in case you want to try and see if it works for you. But do it at your own risk, since this is how I got my tinnitus in the first place. While you can do it at a low volume, most of us with tinnitus learned, volume may not be the only thing...

Hey guys, I haven't logged in an while and there's probably a lot of new members but today I had an interesting revelation and felt the need to share it. To make a long story short I got tinnitus a few years back composing music with earbuds on, playing around with high frequency songs, and...

Right, I know that I am one of the lucky ones whose T was not as severe as others. But irrelevant of the level there was still significant improvement over time.

I came across some bad news of the AM-101 tests as I was interested in investing in it, and I am always looking to invest in companies that try to help this problem. I was a previous participant and posted my updates on here so I thought I would drop by and thank everyone that was so helpful in...

That could be part of it. I would have been ready for my injections 1 week after onset but I had to wait 1 month. But I have a different problem with the study and at least one of the 2 doctors that performed the injections revealed at a visit during my open label round that they at least had...

It definitely makes you think about companies wanting to risk so much time and money to chase a cure when Auris has been at this for such a long time. I imagine investors can't be happy. Hopefully it doesn't dissuade others from trying but I agree that it is a setback. Though knowing what...

This pretty much confirms my immediate improvement during my first round injections was from the Lidocaine and also explains why I did not experience the same improvement during the open label round injections. This sucks for everyone involved, including Auris, but I'm going to take the positive...

Hey guys today I had my final appointment of the open label round and I decided against doing a 3rd round, so this will be my last update for the study. Everything checked out good, the doctors and research assistants were great as usual, and I am glad to have participated in this trial. They...

Hey guys I just wanted to give a heads up. I skipped my formal 2 months update because I didn't want to jump the gun, and I'm glad that I did. My 2nd month continued really great. Continued having consecutive days of silence, and barely noticing I had T at all. And then 2 weeks ago it just...

Just wanted to give another unplanned update since my next one isn't due for a month. I mentioned before that after not noticing any difference after this round of injections during the first month, all of a sudden week 4 was my best week again just like during the first round of injections, but...

Trial(Completed): AM-101 initial trial Base T the day/week before AM-101 trial injections: Left ear: 3/10 Right ear: 1/10 1 week update 2 weeks update 1 month update 2 months update Results from AM-101 initial trial: I noticed a significant improvement immediately beginning with week 1. By...

Trial(Completed): AM-101 initial trial Base T the day/week before AM-101 trial injections: Left ear: 3/10 Right ear: 1/10 1 week update 2 weeks update 1 month update 2 months update Results from AM-101 initial trial: I noticed a significant improvement immediately beginning with week 1. By...

Don't worry about the post injection spike, it will go away. The majority of participants here experienced the same thing. Sometimes it takes longer sometimes less, but it should return to at least baseline for you.

I'm glad it's been of use. We'll see how it goes. Even though there are no reported serious side effects, I do have in the back of my mind that overall I have now had someone stick a needle in my ear drum 12 times all together, and knock on wood, everything seems fine. But we're still talking...

Trial: AM-101 initial trial Base T the day/week before AM-101 trial injections: Left ear: 3/10 Right ear: 1/10 1 week update 2 weeks update 1 month update 2 months update Results from AM-101 initial trial: I noticed a significant improvement immediately beginning with week 1. By the end of...

Yeah time could be a bigger factor. I mean I did experience silence immediately during all 3 injections from what I assumed to be Lidocaine and then silence the next day during the trial round at 1.5 months since onset. This time I did not get silence, so at the very least, if it was from...

I didn't experience those spikes, but fluctuations I did. The first time around I got silence immediately beginning with the procedure, then after, one day of silence and one day of loud T above my base, which repeated at least once and then silence and low T from that point on. This time...

Sure, you always have a chance for it to go away, even without taking anything. And the good thing is AM-101 won't lower that chance, but help it. The docs I spoke to at the trial believe fluctuations to be a good sign, in that it can be affected by medication. They seem to believe if it...

Well from my experience and many others on here, it doesn't appear to be a miracle cure, but it can lead to improvements in some people, ranging from little to significant. Others noticed no change. The best you can do is give it a shot like the rest of it, keep your expectations low, and hope...

Overall it's better yes. I didn't have days of silence before the injections and even when I got T overall its lower than before. But it was best my first month after the injections. But even now, yes it's better than before the injections. I'd still rather have 1-2 days of silence a week and...

Yeah, I experienced this. However, before the trial round, mine was already fluctuating, where it would be loudest in the morning, and lower by evening. But after the injections I began getting fluctuating and fleeting T. Some days of silence, some days with low T. That has continued for the...

Back from my third injections. Totally painless today which was surprising, because around 10pm last night my ears were hurting and so were my teeth. It was inflated down from my ear, jaw, to my teeth, and I thought I was getting an infection. I took some Ibuprofen and I woke up fine in the...

Just got back from my 2nd injections. I experienced some pain and soreness overnight, which I didn't during the first trial round. Because of that, I expected it to hurt today, but it ended up being similar to my first round. Slightly worse than the first day, but still overall ok. Felt the...

Oh yeah, I want to give others a quick heads up that have yet to do theirs that may help with numbing. In talking to one of the assistants the conversation came up about the effectiveness of the numbing gel when there was presence of ear wax, basically saying the more ear wax the harder it is to...

I see Alue. I though the pulsating tone was something new this time around. I had my first injection of the Open label round today. My T has been at a either 1-2 for the about the past 4 days or so, having not experienced a day of silence in at least 4 days. So of course since today it was my...

You didn't experience that type of change the first time round, right? Maybe that is a good sign. Getting ready to go in for my open label round. Will keep you guys posted.

Good luck John. Let us know how it goes. I'm going in on Wednesday for my first injection of the open label round.

From talking to just a couple of other members that called and asked that question, I don't think so.

Wow talk about a swing of extremes. From 8/10 down to near silence. Huge. I'm sorry you had problems with the procedure and hope it heals up in time back to normal but it's encouraging to hear you are experiencing some good days even if far between.

I wouldn't worry about the switching of the ears just yet. My T was always dominant in my left ear, and nearly inaudible in my right before the injections. After one injection they completely flip flopped. My left ear was completely silent, the entire day, but my right was louder than ever...

I wrote my one month report on the previous page. Overall I'm still doing good, still fluctuating, but not quite as good as the 1st month and certainly not as good as week 4. I had a one week setback week 5 where it was back every day at or below baseline, but after that got better again and...

Really amazing how we all respond so differently to the procedure. I actually liked the suctioning. It was like someone scratching an itch I had for a long time and by the time he finished suctioning it out, I had complete silence. If they used Lidocaine, I really don't get why no one else is...

1 week update 2 weeks update 1 month update 2 months update Trial: AM-101 initial trial Date of initial T Onset: 1/21/2016 Cause: Noise induced. Ear buds. Prolonged session of producing music in FL studio. Base T the day/week before injections: Left ear: 3/10 Right ear: 1/10 Tinnitus...

That's really great news Joe. From a 7 to a 2 is huge man. That's awesome, if not the biggest improvement anyone's ever reported. Crossing my fingers it settles somewhere around this range for you.

We had one member, @OddV reporting an improvement that late. Joe just had his and I believe he's around the 6 month mark so keep an eye on his posts. There doesn't seem to be anything definitive, and not too many members have reported their results that late, but really at this point, if it's...

Excellent Joe. I'll be praying for you buddy. Hope it kicks your T's ass! Look forward to reading your progress.

They didn't prescribe it. I had some and I am pretty familiar with Penicillin so I wasn't afraid of trying ti. I was having some infection like symptoms too and also read a post by LA Engineer that listed a whole bunch of things he took that solved his T. Antibiotics was one of the things he...

They will accept you if you can stop them before the screening and just stay off of them for the 3 month trial. I imagine it's because AD medication affects neuron activity in the brain. They're trying to measure the benefit of AM-101, so they don't allow any other type of treatment or...

Wow now there's a bump :) Yeah I have come a LONG way since that post. I'm doing great. I was on Prednisone after my first week with T. Sound therapy, vitamins, anything I could try really, I tried it. Started with about a 5-6/10 in both ears, left slightly louder than right. By the time I got...

Actually I din't have a problem with the injections. It may sound crazy to some, but I really enjoyed the process of Lidocaine and suctioning. I just had my 1 month follow up today and had a good conversation with my doc. Even with my improvement he doesn't rule out the possibility that my T...

1 week update 2 weeks update 1 month update (Technically, Sunday marks a full month and going in for my one month follow-up on Monday, but this is the 4th week mark, and I'm eager to stop tracking it 4 times a day and enjoy my weekend): Trial: AM-101 initial trial Date of initial T Onset...

I got my T from ear buds, and not necessarily at insane levels either. Just prolonged sessions. Hours and hours of listening and editing music. Be careful. Ear buds will be at much closer proximity to the ear drums, so the sound doesn't get much dampening before it reaches your ear drum.

Strange that out of so many people doing AM-101, I seem to be the only person, at least recently, that's had Lidocaine that reported an immediate decrease and even silence from it. Most people seem to be reporting spikes after their injections. But there are many people that have reported a...

That's great John. Hope you get some relief soon. You're around the 5 month mark right? Please keep us posted. Are they using Lidocaine on you btw? Injected?

That is interesting because that data set seems inconclusive to me as far as tinnitus centralizing in the brain as time passes by. It's all over the place. It seems like an insignificant rise from the acute to post acute, and then after that it just fluctuates from time frame to time frame. Or...

I see. So it more or less arose one day without a specifically known cause. Were you still on medication when it started? Could it have been that? The reason I ask is because I think they will ask you for a cause.

What do you mean with symptoms?