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  • Users: dan26
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  1. D

    Tinnitus Research Initiative (TRI) 2024 Conference

    How in the world can you train your brain not to hear crazy loud sounds? TRT? A bunch of BS!
  2. D

    Why Is There No Cure for Tinnitus?

    I do hope I'm still above ground when a cure is found. 42 years of wrecking my life with this horrible condition!
  3. D

    Clonazepam (Klonopin, Rivotril)

    I take either the full 0.5 mg or cut it in half for 0.25 mg. It depends if the noises are super loud or not. Today they are loud so I took the 1/2 pill. If I can't sleep, I take the full pill. How did you develop tinnitus?
  4. D

    Still struggling with the dreaded T. Praying for a cure or cures to come soon!

    Still struggling with the dreaded T. Praying for a cure or cures to come soon!
  5. D

    Frequency Therapeutics — Hearing Loss Regeneration

    I was deafened in a severe motorcycle accident at 21 years old. I had perfect hearing before the accident. 6 months after the accident happened, I started getting crazy sounds in my head. My ENT doctor said,"your hearing might be trying to come back." Is that crazy or what? I pray every single...
  6. D

    Still hanging in there. Reading about lots of companies getting into tinnitus/deafness...

    Still hanging in there. Reading about lots of companies getting into tinnitus/deafness regeneration/stem cells etc. research.
  7. D

    Prof. Thanos Tzounopoulos Receives $2 Million Grant

    If it is, then I'm not going to benefit at all. Almost 40 years of tinnitus... horrible to have it and cope.
  8. D

    hanging in there for almost 40 years.....

    hanging in there for almost 40 years.....
  9. D

    Turmeric with Curcumin Seems to Be Helping

    I currently have Nature's Nutrition Turmeric Curcumin with bioperine 1950mg because it was highly rated for purity from ConsumerLab. I take 1 a day. Maybe have to take 2. It says 3x a day. I will gradually get to that.
  10. D

    Already 6 Hours Tinnitus Free with CBD Oil

    I wonder if this has ever been tested for purity by consumerlab.com.
  11. D

    Frequency Therapeutics — Hearing Loss Regeneration

    it isn't for people such as myself who lost all hearing on account of a head injury.
  12. D

    My Trip to Bangkok: Stem Cell Treatment [Comments]

    Stem cells are way far in the future as far as reducing or eliminating tinnitus! My doctor's words, not mine!
  13. D

    Turmeric with Curcumin Seems to Be Helping

    If you have deafness/hearing loss from a blow to the head I doubt very much this will help you.
  14. D

    Use of Modafinil in the Treatment of Tinnitus

    My tinnitus is super loud recently and can't function. Using CD's to try to mask the crazy insane sounds. :mad:
  15. D

    Operation Regrow by Hearing Health Foundation

    How many years are they talking about in finding a cure for tinnitus/deafness/hearing loss?
  16. D

    Operation Regrow by Hearing Health Foundation

    I used to donate money to the ATA every now and then. Nothing much came of it. Membership is $50/year.
  17. D

    Solsaem Clinic (Dr. Minbo Shim) Experience

    Many vets suffer from tinnitus. I wonder how many actually complain to the VA and their reps in congress to get more money for research and finding a cure.
  18. D

    N-Acetylcysteine (NAC)

    So 500mg a good place to start. I will look for it soon.
  19. D

    Magnesium

    Threonate seems to be the one I should try.
  20. D

    Magnesium

    Stay away from prednisone. Bad stuff. I have a book that says the drugs to avoid. Prednisone is on it.
  21. D

    Clonazepam (Klonopin, Rivotril)

    I have never taken taurine. I have read a lo about different supplements/vitamins and all that jazz but MOST don't do anything. I have been prescribed gabapentin by a neurotologist a long time ago, I took it and got the same results you did. I have even taken 3 Tylenol at times when I can't...
  22. D

    it definitely has done a job on my life!!

    it definitely has done a job on my life!!
  23. D

    Clonazepam (Klonopin, Rivotril)

    Tinnitus since 1981. It's pure hell but I used to take Clonazepam a lot to try to relieve the tinnitus. It can be addictive of course. My doctor said if I take it, you will more than likely need to take it for the rest of your life. Hard to get off it and be normal. So I take it only...
  24. D

    Magnesium

    I've been taking Nature Made Magnesium (Oxide) 250mg almost every night for a couple years and it does not help tinnitus at all. It does help me sleep a bit better. I bought NOW Magnesium Citrate recently and will try it. It says 3 capsules on label but i will start with one. I'm sensitive to...
  25. D

    My Trip to Bangkok: Stem Cell Treatment [Comments]

    Without scientific proof of stem cells eliminating or suppressing tinnitus, it's very dangerous going that route!! Just my 2 cents!!
  26. D

    Ayurveda / Ayurvedic Herbs — Indian (Asian) Medicine and Tinnitus

    Maybe I will print out the article and bring it to a place that does ayurveda and see if it works or not. Maybe just get a good long massage...
  27. D

    Lidocaine Neck Patch Silences Ear Ringing Agony of Tinnitus (DailyMail / March 30, 2019)

    If I remember correctly this was done by injection long ago and the lessening of the tinnitus didn't last long. Hope this isn't similar and get everyone's hopes up. Plus there were numerous side effects.
  28. D

    Clonazepam (Klonopin, Rivotril)

    I took both for a while. I forget how long but too many side effects. It may be different with other people because everyone reacts differently with meds like these. I read an article in some publication years ago (PubMed?) and asked the neurotologist to try these. Ever since then he says "no...
  29. D

    Frequency Therapeutics — Hearing Loss Regeneration

    I've had a CI for about 29 years so let me tell you it doesn't knock out the tinnitus at all. It might lessen it a bit but as far as eradicating tinnitus, no way! Constant hissing, humming for 38 years...
  30. D

    Tinnitus Masking: MP3s, CDs, YouTube, Other Audio

    Way back in the early 1990's I think it was I wrote to Mike Petroff after reading an article sent to me by someone. He sent me 6 masking CDs to use for my crazy intolerable tinnitus. I still have them and use them almost daily. He never charged me a penny for them and it has helped a bit when...
  31. D

    Use of Modafinil in the Treatment of Tinnitus

    Hi. What is OSA?
  32. D

    Frequency Therapeutics — Hearing Loss Regeneration

    I have a CI so I'm out... and on and on... It goes.
  33. D

    Alcohol Quiets Down My Tinnitus

    in the past i have drank a lot cause the tinnitus was making me go nuts and well as i drank and a little while afterward i can tell the tinnitus was subsiding a bit but if you drink 6 brews its gonna be a hangover more than likely the next day. so i try to keep it to a minimum since i have fatty...
  34. D

    Decibel Therapeutics Partnership with Regeneron

    how i wish i can hear normally again!!! Deafness and tinnitus sucks big time even with a cochlear implant on one side!
  35. D

    Frequency Therapeutics — Hearing Loss Regeneration

    i'm hoping this works!!! been such a long time since i had quiet in my head!! wrote to them and told them add me to their list. keep my informed.
  36. D

    Bill Gates Foundation

    I wrote a while back to the foundation and received no response. Guess they are busy counting their money. If all these super rich billionaires would donate some money, I bet something could be found pretty quick!!
  37. D

    Retigabine (Trobalt, Potiga) — General Discussion

    its very hard on me all these years and well let me say, i do pray a lot and hope there is a cure found soon. 37 years of noise...I cannot believe something hasn't been found to eradicate all these crazy sounds.
  38. D

    Acupuncture for Tinnitus

    it is supposed to help with insomnia and who knows if it might relieve the crazy sounds. I might be trying this soon.
  39. D

    Clonazepam (Klonopin, Rivotril)

    clonazepam is a very strong drug and as explained in my posts somewhere here i took it for many years and started to forget things, very foggy in the head and all that jazz. be very careful with clonazepam.
  40. D

    Already 6 Hours Tinnitus Free with CBD Oil

    will check it out. do you know if it contains any THC? i had a very bad experience with marijuana that was laced with thc when i was a young guy and thought i was gonna die. i was like a zombie and just laid in bed for like a week and was scared to death. went to the doctor and he said stuff has...
  41. D

    Already 6 Hours Tinnitus Free with CBD Oil

    never heard of this helping tinnitus. Will see if i can purchase it somewhere. 36 years of tinnitus. Crazy!
  42. D

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    did i miss something here? ear nose and throat doctor. he also does a lot of research regarding hearing loss and cochlear implants and all that jazz.
  43. D

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    i went to a well respected and very experienced doctor who is an ENT in NY recently and asked about my heavy head and tinnitus. he said most people who get hit numerous times in the head like i did, 1 very severe and 3 other concussions, will have a heavy head feeling. As for the tinnitus, he...
  44. D

    Clonazepam (Klonopin, Rivotril)

    I can't help you with the mouthguard thing but as you read my bio I have had tinnitus for over 35 years and not one day of quiet! I've been on clonazepam (1/2 of a .5mg) on and off for a long time but stopped it cause side effects too much and making me very cloudy in thinking and memory. No...
  45. D

    Clonazepam (Klonopin, Rivotril)

    really? i used that drug for about 10 years off and on! holy crap!
  46. D

    Acamprosate (Campral)

    so far, no. Will let you know how it goes.
  47. D

    Acamprosate (Campral)

    Doctor prescribed acamprosate and i took it for about a month or so. Study says it must be taken at least 3 months. I will have to try for 3 months then see whats up with the T. Praying for a cure....
  48. D

    I just think about my wife & lil boy. i just try real hard not to think about it. Try to do...

    I just think about my wife & lil boy. i just try real hard not to think about it. Try to do things as much as possible.
  49. D

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    the implant did nothing to quiet the tinnitus. of course i can hear with the implant but its nothing like "normal" hearing like i had for 21 years before being deafened. My neurotologist said to try cognitive behavioral therapy. whats that really gonna do? Tinnitus retraining therapy? I use cd's...
  50. D

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    Hey guys: the tinnitus was definitely from losing all my hearing and like i might have said in the past, the tinnitus started like 6 months after being deafened in the accident. When i went to the ENT way back and told them about the crazy noises they said, "your hearing might be trying to come...
  51. D

    Alcohol Quiets Down My Tinnitus

    now u mention that and well after my tinitus started 35 years ago after losing all my hearing in a bike accident. i started drinking a lot. like 3 times a week or more to see if the tinnitus would subside a bit and i could think what my name is. It did help but then you get the shakes and the...
  52. D

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    been waiting, praying and hoping for a cure going on 36 years!! Its hell at times. where are the big phamaceuticals and big research projects for this crazy affliction? will it stop when i die? have atoddler son who needs me and doesnt understand tinnitus at all. what do i tll him? "Daddys ears...
  53. D

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    been deaf since '81. tinnitus soon started afterwards. 35 years of pure hell at times. Sleeping is very bad. Melatonoin keeps me up. what do i do? Have a toddler son who needs me all the time. and he makes lots of noise......
  54. D

    N-Acetylcysteine (NAC)

    okay got it. but i dont think that will help people either. just my 2cents...
  55. D

    N-Acetylcysteine (NAC)

    i do take acetyl l-carnitine 500MG but haven't gotten any relief from it. take it mainly for good brain activity!(y)
  56. D

    Denver Man Gets Gene Therapy to Restore Hearing

    its all scientific stuff and it does sound pretty good esp for people who suffer from chronic tinnitus and imbalance for the past 35 years. i wish them good luck.
  57. D

    Auris Medical (AM-102)

    Seems like that way. Who know whats going on but im praying every single day for a breakthrough from something that will quiet these insane noises! Up most of the night last night hissing away. No rest. Hard to function next day. on and on and on.....
  58. D

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    these things take so much time and i hope i'm not dead and gone when they do find a cure. Suffering a long time and if i hit the lottery jackpot, which is unlikely, I'd donate lots of money to advance any type of research to restore hearing and/or cure tinnitus! Massachusetts Eye & Ear does a...
  59. D

    AM-101 Clinical Trial — Participants Updates and Discussion

    I emailed the company and they said they know about people who have long term chronic tinnitus such as myself but i guess they are working on things for the short term, then the long term? i dont understand. I've had T for over 30 years!! Need relief!
  60. D

    Bioflavonoid Complex with Hesperidin and Rutin; I Can't Tell What, But it Does Something

    my doctor told me do not waste my money on bioflavonoids or lipoflavanoids. They do not work.