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  1. StephAtkings

    For Those with Middle Ear Myoclonus...

    Hi Guys, It has been a while since I have been on. I just want to say from August 2018- June 2019 I was thump free. If I did a burp I would maybe get a little rumble but it would lead to nothing. My doctor managed to pick up the vibrations by doing a long term typanometry test so he is more...
  2. StephAtkings

    Eardrum Pulsing Thumping and Fluttering

    Hi There, Yes I have middle ear myoclonus and this was diagnosed by my ENT by doing a long term Tympanometry test. Basically its a device that goes right to the back of your ear drum and records the movement. You need to be having an attack for this to work. I was offered surgery as soon as it...
  3. StephAtkings

    For Those with Middle Ear Myoclonus...

    Hi Wendy, If you are on Facebook join this really friendly page called tonic tensor tympani syndrome ! Everyone has different symptoms but we are a great support to one another ! X
  4. StephAtkings

    For Those with Middle Ear Myoclonus...

    Thanks MEMory ! I agree with everything you say ! My right ear has not had an attack in 6 months but it does random single thumps ! Sometimes a couple times an hour but I can live with this I have asked my doctor about muscle relaxants... I am waiting for an answer so shall let you know ...
  5. StephAtkings

    For Those with Middle Ear Myoclonus...

    Apologies I have been trying to work out how to reply to certain quotes and I am finding it difficult to do it on my IPhone ! Memory I am exactly the same when you mentioned the stop watch I do this and when it gets to 10 minutes I know I am in a safe zone haha !!! I feel the stop watch helps...
  6. StephAtkings

    For Those with Middle Ear Myoclonus...

    So back from the hospital... ! Do you know what is so frustrating ! My ear was thumping all morning and stopped an hour before my appointment wtf !!!! Anyways my doctor really wants to see my ear having an attack ! But it’s just not happening ! He has agreed that he will proceed with surgery as...
  7. StephAtkings

    For Those with Middle Ear Myoclonus...

    I have never made a connection to diet but I will keep a note of what I eat each day to see to see. If this condition did not affect my sleep I think I could handle it better but the constant waking up is really taking its toll ! Have my doctor appointment tomorrow. Been seeing this guy for...
  8. StephAtkings

    For Those with Middle Ear Myoclonus...

    Thanks for coming back to me MEMory! There is a facebook page called tonic tensor tympani syndrome are you a member of this ? Its really good and has given me alot of support when I have bad episodes. Like you i can deal with the thumps when they are minutes apart ! I have not had the 15 to 20...
  9. StephAtkings

    For Those with Middle Ear Myoclonus...

    Hi Guys, I had to post on here as my symptoms are exactly the same ! My biggest triggers at the moment is burps, if I do a big stretch yawns and hiccups ! In the past I would burp and maybe get a few thumps and that would be it ! Now if I burp I get about 10 to 25 thumps in a row and then an...
  10. StephAtkings

    Middle Ear Myoclonus (Tensor Tympani)

    Hi There, I suffer from middle ear myoclonus and my doctor is trying to sort out tests to see what muscle is going into spasm. I have had this one and off for a few years and its awful. I am so sorry to hear you are also suffering from this. I am on an amazing facebook page called tonic tensor...
  11. StephAtkings

    Middle Ear Myoclonus: A Treatable Cause of Objective Tinnitus

    Hi Sueloe, I am so sorry to hear the surgery did not fix your problem. I also suffer from the ear spasms and I have this in both ears. Surgery has been discussed but he wants to do tests to make sure it is the muscles that are in spasm. How does your ear feel after surgery ? Has there been any...
  12. StephAtkings

    Right Ear Thumping

    Hi There, I have the same problem. It started with random thumps a couple times per day but now it goes into spasms for hours on end and effects both ears. Mine is also set off by a burp or hiccups too ! My ent says it's ear myoclonus. Basically muscle spasm which can be triggered by anxiety...
  13. StephAtkings

    Hi June, I have sent you a private message as it wont let me post any more than 140 characters...

    Hi June, I have sent you a private message as it wont let me post any more than 140 characters on here xx
  14. StephAtkings

    New... Thumping Sensation in Ear

    maybe speak to your doc and give it a try ?? I feel your pain xx
  15. StephAtkings

    New... Thumping Sensation in Ear

    Hi There, I suffer from these thumps and yes it is also brought on my burps hiccups yawns etc. I started taking Magnesium supplements from Holland and Barret. After a couple of weeks I noticed the thumps became less. 5-6 week later it stopped completely. I would get the odd flutter if I...
  16. StephAtkings

    Cold/Allergies, Congestion, Ear Pressure

    I get this all the time. I take Sudafed it does not unblock your ears but it really helps with the pressure. The best advice I can say is you need to wait it out. It can take 7-10 days from your ears to recover from a bad cold. Keep doing big yawns and eventually you should notice some...
  17. StephAtkings

    Eardrum Pulsing Thumping and Fluttering

    Hi Folk, I have been on here because I have a really strange pulse/fluttering in my ear drum. I only suffer from this between 2-3 times a week. But when my ear starts to pulse it lasts for the duration of the day. The pulsing gets set off my yawning/stretching/hiccups and burps (Not every...
  18. StephAtkings

    Inner Ear Myoclonus

    Hi There, Welcome to the site :-) I have this...... Mines is brought on my a hiccup, burp or yawn. Which is really strange. I also get it at night when I am lying in bed. It used to really stress me out and would last days. I do not let it bring me down anymore. I probably only suffer from...
  19. StephAtkings

    Fluttering Ear Drum

    Does Magnesium Threonate need to be prescribed ? I take Magnesium Oxide which I bought out a vitamin shop. But I cannot find the Threonate anywhere. x
  20. StephAtkings

    Fluttering Ear Drum

    @deblnAustralia how often do you get this fluttering sensation.... I am at least 3 to 4 times a week. I have had it since September. Driving me banana's. I am going to try this Magnesium Threonat. I think I am taking a different type of Magnesium. Still waiting on ENT.
  21. StephAtkings

    Fluttering Ear Drum

    Thank you ! I will have a read through. I do feel magnesium helps. So i am going to keep going with that. I feel my pulses dont last all day when i take magnesium. Let me know how you get on at the Ent. I am still waiting on my appointment ! Its good to know i am not alone. Thanks for your...
  22. StephAtkings

    Fluttering Ear Drum

    Hey there ! Sorry for the late reply! No Amoxicillin. Just stayed off caffeine and took magnesium. It went away for 5 days but its back again ! Does Amoxicillin help ????
  23. StephAtkings

    Fluttering Ear Drum

    So the doctor had no idea what it was ! Gave me sleeping pills which I refuse to take ! I have limited my caffeine and been taken Magnesium supplements, I did not have the pulsing for 5 whole days !!! I forgot to take my magnesium tablet yesterday and woke up with the pulsing today.....so I am...
  24. StephAtkings

    Fluttering Ear Drum

    Ok ear has started fluttering again....this time after I had a cup of coffee. I do not normally drink coffee,,,but it was a free star bucks ! Could not resist. Very strange. Shall let you know how I get on at Doctors ! x
  25. StephAtkings

    Spasm from Yawns and Burps

    I also get this, it just started one month ago !! It only ever happens during the day if I do not control my burps or if I hiccup. If I let out a burp then my ear can twitch all day long and it drives me crazy. It also happens during the night so I am not sure if this is linked to a burp...
  26. StephAtkings

    Fluttering Ear Drum

    I have had T since I was 16 and it took my years to be able to drown it out. I only hear it now when its silent. I have constant hissing but again I can drown it out. The fluttering I have had on and off. I used to get it years ago but it would only stay for an hoursor two then go away for...
  27. StephAtkings

    Fluttering Ear Drum

    Your kind words have really helped. :-) I am glad I am not the only one with a constant pulse after a burp/yawn. Normally when I go to sleep after having it all day, it goes away for 24 hours so fingers crossed I get a break tomorrow. ! I keep telling myself its only a wee flutter its not...
  28. StephAtkings

    Fluttering Ear Drum

    I could deal with it if it only came for a couple of hours but its when I have it for the full day, it really makes me blue. Its been pulsing today since 3am and no sign of stopping. Every 30 seconds. I hope it finally goes away but I am not feeling hopeful because everything I read online is...
  29. StephAtkings

    Fluttering Ear Drum

    Sorry Guys, I have not been on in a while. So glad someone responded as this has been getting me really down. It started fluttering maybe twice a week but for the full day. Now its appears nearly everyday. Sometimes for 15 minutes, other times 6-8 hours or sometimes the full day! Its brought...
  30. StephAtkings

    Fluttering Ear Drum

    Hi There, I have suffered with ear problems all my life. My tinnitus comes and goes. I have been referred to the ENT as i always get blocked ears. But just the last 3 weeks my ear drum seems to be making a fluttering sound. Has anyone experienced this ? Its brought on by a burp or when i am...
  31. StephAtkings

    Development of Ear Myoclonus

    Hi There, I am new to this form. The reason i joined is because i started to get thumping in my ear ! It started in my left ear and now its happening in my right. I thought i was going crazy as nobody i know has ever heard of this. Does anyone have any tips on how to deal with this ?