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Another failed attempt to find relief. The Levo system was a bust. Returned it for a refund. Terribly annoying to listen to the sound of your own tinnitus. Also the pitch was set too low and my protests were largely ignored in that regard. Wouldn't recommend this. Thankfully I've reached...

When you first notice your tinnitus even before visiting the doctor read the Wikipedia entry for tinnitus because there are many causes some which can be resolved immediately like ear wax build-up or fluid in the ear. My initial thoughts about it were that my tinnitus was going to be a permanent...

I'm a retired teacher with time on my hands and have been through numerous therapies: Shea Clinic, UST, Sound Therapy International, CBT, acupuncture, and hypnotherapy, although on the last few mentioned I only had one or two sessions. I guess you would say I'm an easy mark. The audiologist I...

I live in Texas where the Levo system is not available yet, but had a nice chat with an audiologist who is both a provider and user. She resides in another state and I don't want to give her name for privacy reasons but she contends that she has had great results with it. The provider checks the...

I sent an email to SciFluor and got a response that said it would be a minimum of two years before they enroll patients like me in any trials. I responded asking if I could be on an email list for updates but was told only that he would save my email. I am feeling a bit more hope and want to...

I've read ten or so pages of this thread and the last page. Having already spent a lot of money on treatments with very little results, I can't afford to fly to Norway or Spain from Texas, USA and wondered whether anyone knows of a practitioner of LLLT in the US?

I bought the Charlotte's Web Hemp Extract in olive oil 100 mL and had to phone them to find the percent of CBD (5%) - apparently the smaller bottles contain a lesser amount of CBD. I've been taking it just over one week, .25mL twice per day. Everyone is different as @amandine said and I do feel...

@amandine, I realize you are saying that re: Rick Simpson oil would be better due to the fact it contains THC, but some of us are drug tested at our jobs and THC products are illegal in Texas so I have opted for the Charlotte's Web Hemp oil. I've been using it for six days and it has helped me...

Endoca.com under the tab that says "products" states it is better to have the combination of CBD and CBDa. I don't know if the product I ordered - Charlotte's Web Hemp Oil has this combination or not but it has a lot of good press and is manufactured from hemp grown in Colorado.

After a week of using 3% CBD, I would have to say that I've had a slight drop in volume and the neuron movement which I could always feel in my head has calmed down. I've been reading a lot online about CBD; there is some good info on the homepage of Bluebird Botanicals and they claim that it...

I received my 3% CBD oil yesterday and took 4 drops 3 different times and 4 this morning. I'm having trouble seeing exactly how many are coming out of the dropper. I had planned to order more today from Endoca in CA to be ready when these run out. Also, they have 10mg capsules of the 3% which I...

From prior information, I guess what I could do is take 7 drops to make it 7% and 4 drops to make it 4%. And I'm glad you said that the higher dose shouldn't be taken in the evening.

@amandine, I appreciate you doing some research on the subject. The Endoca website doesn't have either 4% or 7%, but only the 3%, 15%, 20%, and 30%. So, I'll give the 3% a try. It's too bad we can't find out what percentage the paste is that Charlotte's parents are using for her epilepsy. For...

My CBD oil 3% should be here Monday or Tuesday from the Netherlands. It was released from customs in Chicago on Friday. I was looking at the Endoca website in California (which also has a European branch) and they have the 20% CBD oil in a paste form similar to the Charlotte's Web type that the...

@Drecul, You mentioned water in your ear. Fluid in the middle ear is another cause of tinnitus. The ENT has to have the proper equipment to make a hole in the eardrum and syphon it out. Just a thought.

@Drecul, On the textbook of Tinnitus papers only 2 pages came through. I tried to find more of this chapter by googling but was unable to. Can you find some more pages of this chapter? It was just getting interesting. Thanks.

So, I have acoustic trauma tinnitus and have ordered the CBD oil. Do you know of anyone in the FB group that has been helped using these drops? Now that I know the cause of your tinnitus, I'm happy that you've had yours resolved but now discouraged as to whether it will help me. I'm having a...

@Drecul, I thought you said back in the beginning that 15 drops per day should be the limit. I'm getting the 3% in a 10ml bottle. Now you're talking about doing 12 drops at one time. At that rate my bottle won't last long. I know it's an individual type thing but should I start with 4 drops 3...

@amandine, You asked me a question a while back and I bought some of the 3% raw hemp oil from Golyolicbdoil.com and it was 29.90 EUR but in order to ship it to the United States the total was $62.75 US because of the high cost of the shipping from the Netherlands. I ordered it on Sunday and I'm...

I looked at that website yesterday before I ordered from Golyolicbdoil.com and if you go to the bottom of the home page under information and click on shipping it says there that they ship to all countries in the EU. Maybe they'll make an exception, but that's why I chose a different site. It's...

@grate_biff, Maybe this is off topic, but is Trobalt available through doctor's prescription in Norway or are participating in a study?

@Drecul, You started off early today saying you had a spike. Just curious to know if the CBD helped in bringing that back to the quiet level?

@Robb09, I have trouble converting from Euros to US but the total charged to my VISA was $62.75. I'd say the shipping was about the same amount as the product. I'll let you know later about customs. On the website the instructions were to leave the drops under your tongue for 60 seconds then...

Well, I'm all in. I ordered mine from Goliolicbdoil.com. Thankfully, they ship to the US. I can't thank you enough; just the thought of getting some relief cheers me immensely. They say the shipping from the Netherlands takes 4 to 21 days. I hope I'm on the lower end of that. I appreciate the...

Thanks, Karen. You're a beautiful person and I've read many of your replies to others besides me. You are ever so caring. I decided to order some of that CBD Oil after reading that thread. I'll report back if it works for me. And, yes, I starting to think about looking for another part time job...

I really appreciate the suggestions. I want to try the CBD Oil and the music is a good idea too. I will probably PM you Glynis. Hugs to you!

@Drecul, Thanks for responding to my request for support in another forum. In your opinion which is the best site for someone in the US to order from? You mentioned your are using the 4% CBD Oil, but I only see the 3% on the sites that have been noted. Does that matter? I definitely want to try...

Against the advice of some members I went to the Shea Clinic for their perfusion treatment. It did seem to help only slightly though. They said the noticeable results, if they occur, would come about in several weeks. They are clear that there is only a 60% of success. Since I didn't have...

Well, I just returned from my perfusions treatment at Shea Ear Clinic. Frankly, I only got a small improvement thus far. The tone changed to a more tolerable one and the volume went done slightly. The paperwork I was given on discharge claims that the perfusion only begins the healing process...

@just1morething, Thanks for that info; I will get in touch with them, it's very positive news for all of us. I don't think I'm going to abort my trip to Shea, though as I have a non-refundable plane ticket, some friends to visit in Memphis, and I have found that in all of the clinical trials you...

@just1morething, Since my T is fairly early onset and I've had some relief with injections of Dex , once a week for three weeks, I want to try it. I've had an online conversation with MWM who answered all of my questions. Before the DEX shots I was having brain zaps, sounds of soldiers marching...

@Bertman, This coming Tuesday, I have an appointment at Shea for testing. I've had my acoustic trauma tinnitus for 3.5 months. If according to the tests, I am a good candidate for the perfusion then I'll start on Wed. for 3 days. I'll let you know after I return to Texas what the results are.

If you go to Universal Sound Therapy.com they have lots of CD's on many different disorders. I am not endorsing their usage. All I know is @calin saw improvement in her tinnitus and so did the owner of the company. I might consider returning them @carlover but I know it is a lot of trouble. I'm...

Hi Steve, The therapy is based on frequencies that are attuned to a certain particular malady. Thus, because the body is mostly made of water, the frequencies can pass through without one having to do active listening. When I receive it hopefully on Friday or Saturday, I plan to actively listen...

Hi @Karen, I appreciate your swift reply! I definitely will do one or more updates once I get into it. I am so glad this website exists as it has helped me a lot.

I guess this thread has gotten out of date as no one has responded for over two years so I wonder how the UST turned out for those that used it. In spite of the warnings after reading through all the posts twice, I phoned them and asked Dick a lot of questions. He recommended cheap swivel Sony...

It's been one and a half months since my acoustic trauma induced tinnitus began. I've had one injection of 10mg. dexamethasone and am due for another tomorrow one week after the last injection. The first injection seemed to lower the volume slightly. Has anyone had this specific experience? Do...

As I write this I'm listening to the Sound Cure Serenade; I'm not overly optimistic about its effectiveness. But, I have only had it one month. Oddly enough the audiologist didn't recommend it for me as I have what she thought was too much high frequency hearing loss. I wanted something handy...

I like to hear from OddV, NewGuy and Romain about their progress. I've read though the forum twice and saw several finishing up with the real meds but didn't see updates. My life as taken a downward turn due to this but reading about trying to have a more positive frame of mind has helped. I...

I'm new to this forum and fairly new to T. Hard to get used to. I'm supposed to be screened next week to see if I'm eligible for the 3rd phase of the trials. Has anyone participated in phase 3? What was your experience like? The Auris website has info on the clinical trials. Thanks for any light...

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