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Hi Dave, I needed to read this. Thank you from the bottom of my heart. A huge hug to you!

I have several piercing high pitch sounds that actually hurt my ears. I can hear it as well as physically sense it, if that makes sense? Along with this I have constant head pressure, neck pain, shoulder pain, headaches, nausea, tmj dysfunction (jaw deviation 6mm to the right, which the...

Oh my goodness. I will share this great advice. Glad you are better. Thanks again and warm regards to you!

Hi Mary, thank you so much for responding. I am glad to know you are doing better. Very big scare with the heart attack. Same here, it’s a huge challenge to deal with this constant noise in our heads then develop other health issues on top of that. I wish you all my best in good health.

Dear Vicki, your words exactly describe my experience with this. My heart goes out to all of us.

Hi Marbou, how are you doing? I’m suffering from tinnitus, occipital neuralgia and tmj disorder. My worst is the tinnitus. I keep wondering if they are all related as I never had these 3 things. This all started after ankle surgery for a fall I had in 2017. It’s been a series of symptoms that...

Yes I am constantly exhausted mentally and physically with extreme headaches. Neck pain and the strangest symptoms. I slept great before this. I have to be on meds to sleep now because of this strange malady and I am against using meds but have no choice. I had incredible energy and hardly...

Wow this is wonderful news and very inspirational. Thank you so much for sharing! May you continue to experience silence. My wish is for all of us to experience silence again.

Thank you.

Dr. Ancill, with all due respect, please can you describe the tinnitus sound or sounds you hear? Personally I hear extremely piercing screeching in both my head and ears nonstop. It’s very physical as the screeching hurts my ears and disrupts my sleep. I am slowly deteriorating because it’s...

Thank you Michael, I have read all your advice and I am grateful for that.

I’m not a creative writer by profession however for business I had to write letters, do public presentations, etc... I noticed that I did a long post earlier and I didn’t even use paragraphs. I can’t believe I forgot to use paragraphs on my post earlier. The constant cacophony has affected my...

Very true. This condition has been life changing and the hardest thing is that no one I know has any clue of the suffering. Surrounded by people yet I have never felt so alone since this appeared out of the blue. I share your goal and I will keep the hope and faith that you, me and everyone...

Greetings @Markku and everyone. This fundraiser needs global awareness perhaps from celebrities that have opened up about this drastically life changing condition? Is there anyone who can connect with them to share the fundraiser link on their Twitter, Facebook, Instagram accounts? Then it...

Congratulations Anselmo. I am a severe sufferer. This condition has changed my life to debilitating. I will not go into details to keep this short. Let’s just say I have not had one day that I have not cried since I woke up with this horrible condition. I don’t know what it’s like to feel...

Thank you

Thank you Dave. I appreciate your kind wishes and I wish you the very best too. As for my profile picture, it’s not a self portrait but it’s something I drew for distraction. ❤️

So true. One year ago here and still trying to figure out how to live with it. Thanks for sharing. Hugs!

Thank you.

Thank you Rich.

Hi Crystal, yes I have several sounds/tones intertwined together that makes it hard to describe what in the world I am hearing. I can tell the sounds are going very fast if that makes sense. In addition to these sounds, there is one tone I only hear on my right which sounds like an external...

Happy Birthday! Lovely and perfect gift.

Thanks Anselmo.

Wishing you and your family peace and strength at this most difficult time.

Okay thanks

Hello, where and when in Miami? I am not aware of any Miami support groups. Thanks!

Thank you so much for sharing your success story! All my best wishes to you.

Hi Rich, Heidi provided some great information. May I ask was your angiogram a ct angiogram of the head with iodine which usually takes half an hour or was it a more extensive one that includes more than just the head and with sedation? I agree these tests are very expensive. I don’t know if...

Thank you again Heidi! Truly appreciate all the information. I wish you more of the good days. Hugs!

Hi Heidi, thanks for getting back to me. I know how you feel. I’ve been at this for 11 months. 5 ent, 1 audiologist, 2 pcp, tmj specialist because one of the ent said I had tmj. I am not sure if I have pulsatile tinnitus because the constant sounds I hear are continuous since onset, only about...

Hi Heidi, thanks for sharing this information! By any chance was your Doctor able to hear your pulsatile tinnitus with a stethoscope? Also which type of Doctor did you see? Again thank you so much and best wishes.

Hi Maria, I just joined today and noticed you are in Miami. I am also from Miami and have tinnitus since July. I want to send a private message however I don’t know how. If you know how to private message me, would be great to connect.