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Hello Mr. Sir on Ketchup. What did you mean by "very good run" and what do you feel/if you can a little elaborate what's the difference compared to your previous runs (I assume that you had at least one round with Lenire in the past)? Simply said - I am interested in more details about your...

My understanding and own personal conclusion is that Lenire is the first effective treatment method for tinnitus, which can significantly reduce noise level and reactivity in some cases, and goes beyond placebo and cognitive methods that only serve to mentally deal with tinnitus with no real...

Okay, I think I've heard, red and got enough to decide that I won't use Lenire anytime soon. Let's hope that they will be fair with paper publishing/peer reviews and evaluate every single piece of knowledge/respond gained from this "publicly open trial" and utilize every available technology to...

Time for them to reconsider remote video-call assessments (Skype, Microsoft Teams, Facebook video call, or any other from thousands of existing and working communication tools) and remote reprogramming option for device. At the end of the day, It's just electronical device with memory and...

You're most probably already in plane or on the way from the airport at your destination. I'm using normal foam earplugs 32dB SNR and works well, no negative experiences with pressure changes or anything like it. I would say even if I didn't have tinnitus I would use them just for higher...

@hans799, jo napót kívánok - many thanks for the feedback, hope that in the next 3-6 weeks everything will settle back again and you'll experience further improvements over the initial 6 weeks success. Isn't it time for Neuromod to really reconsider and postpone or completely stop deploying...

With all due respect, can you talk a little about your progress prior the deterioration a few days ago? Did your noise just randomly switch from "almost gone" with moments of quiet or low tinnitus to loud? Have you done anything differently regarding the treatment, or have you attended some...

Exactly! The "flop" has in my understanding also completely different meaning, see below attached posts. If I had such results, I would not hesitate to use words like miracle or breakthrough...

We're f##ked.

Congrats!! What do you mean by "moving forward"? I know, not an easy question to answer, but would be thankful even for some pieces/info.

I just couldn't resist and asked him once again how he's doing with Lenire (4 weeks after the message above). I quote his answer: "I’ve stopped using it as I’m at a level where it’s pretty much unnoticed :),, What I think is important is is that he was able to repeat the treatment and had...

Dear friends. I fully understand that there is no one here really able to answer my question, but I'm seriously thinking to call HörSys in Hannover and ask If they would accept me instantly as a person that has been already assesed and accepted by Neuromod (Caroline) in Ireland. I'm wondering...

I'd also like to add something to the section called "hope". I have occasional contact with a person that has taken part in the TENT-A2 trial and his tinnitus got greatly reduced. This guy had had tinnitus for 3 years and was a musician who never protected his hearing. After completing the...

I have been approved for Lenire directly at Neuromod in Ireland = I guess I passed all necessary checks at first visit and I'm good to start using Lenire. There won't be such need to undergo the same checks and pay 1000€?

What about the remaining 4 days, how's the noise like? 3 days in a row or every second day? Thanks!

@Redknight - congrats bud! Thanks for sharing your experience and "story", what awesome news! Enjoy moments of quiet, well deserved. Have you tried to do/experience anything "louder" since you started the treatment? For example travelling by train, walking nearby noisy traffic or stand close...

I'm afraid we all fear the answer for your question. As she said, if there is something positive to report, she will... this was her answer to me. I hope that things didn't get worse...

How does your hearing look like by the way - If you want to keep it for yourself, then don't share it, but am just wondering if we might be part of a similar cohort. Attaching my audiogram and to be honest the 15 dB drop at 8 kHz in my right ear made me anxious that something is going wrong...

Just wanted to share a few sentences about my appointment experience at Neuromod. I was there last Friday, 8th of November between 12:15-14:00. Grace warmly welcomed me, completed a THI questionnaire and asked for a signature that I allow them to process my data via some Apple tablet and then I...

How's your treatment going? Still improving/improved compared to pre-treatment times? No initial worsening, or anything different, or negative to mention? Hyperacusis... etc. My fingers are fully crossed for ya! Greetings from your neighbor Slovakia... or Felvidék :)

It looks like it follows the pattern you mentioned, however a few lucky people experienced even more improvement. I was hoping that this was going to be the case if the duration of the treatment was extended to over 12 weeks, or with more stimulation changes... but we're not that lucky.

I'm there tomorrow and hope the flight won't ruin my ears as this is my first flight with tinnitus (I bought Peltor earmuffs for this occasion). Then I'll most probably visit Jameson or Guinness museum and get myself drunk to wash down all the accumulated stress connected with this trip. I...

Well, If this was the case, then from where do they have such figures used in the PowerPoint?

Just hang in there! ... I'm at 8th month mark and I'm now in a much better place compared to the first 2-4 months. Things could get better in time - that's true for sure. Yesterday I didn't notice my tinnitus for all day... I have those days from time to time and looking into my tinnitus diary...

I woke up in TOTAL quiet, my pre-T onset level. I couldn't believe it, what a relief! Now I can hear quiet low tape hiss, which is pleasant.

I don't think so. If there was something to report, or people were experiencing some meaningful improvement - they would probably be more than happy to spread the great news already. I hope I'm soooo wrong!

Nick Cave and the Bad Seeds :huganimation:

I do understand why @GlennS and @JohnAdams are still fluffing around, not just with this Bluetooth timing/lag thing, but in overall. It's partly Neuromod's fault caused by the lack of communication and with some of the questions not clearly answered, they left us boiling in our own uncertainty...

Alright, the thread is "down" again. Can we please get some recent feedback from people currently doing the treatment who haven't posted to the User Experience thread yet, to see if anything has changed, either in a good or bad way? Anyone heard of @Clearance? As she's not posting anymore...

I just wanted to share a quick update there, as in next 2 weeks I'll be at 6 months mark. In overall, my tinnitus had improved a lot compared to 2-3 months after sudden onset (out of the blue, no medical examinations finding including MRI, Tympanometry, Neurological, Blood tests and much more...

5th month in- my H has sorted, TTTS as well in last 2 months. Many moments of quiet T-wise, but last week aggravated T with no reason :(

As a Slovakian living very close to Austrian, Czech and Hungarian borders I was closely looking for opportunity to undergo the treatment in Regensburg so this very bad news :( ... So who were those German speaking consultants on-site in Ireland at Neuromod Clinic during the assessment sessions...

What?! Are you serious? This after 123 pages in this thread?

This was my best day since my "sound trauma" which I had about 3 months ago. In the morning, I was T free and didn't hear it until 6PM ...

All of this could be easily avoided by providing some updates instead of radio silence. Don't get me wrong, I got what you meant and I think I agree with it, but those changes in mood, pessimism and every emotional change that can be seen in this thread are closely related to lack of...

I just dropped him an email where I said this is about Len.ire by NMD and asked him if he could share if it will become available in Germany in a reasonable timeframe. He answered in very polite way, saying that even though he's closely working with NMD, he can't and couldn't say any estimate...

Last week, I woke up in the middle of night and my T was gone. I plugged earplugs to confirm-no T .The same happened on today morning..

Any idea/insider info/fortune teller story about Lenire launching in Germany? We already know there were German speaking consultants during the assessments/device fitting, we know that they planned and failed hard with opening in both countries from day one. Even Dr. Berthold Langguth didn't...

You're right with the hearing regeneration, but at least low amount of healthy hype should be preserved, here's why > 2 more devices (UMich, UMinn) are on their way, most probably in the next 24-36 months from now. A few members here (Clare B, Clearance, kelpiemsp) and a few people from the...

I searched through some of her posts here and it doesn't appears to me as "worsening at first", but it seems that there were some louder tones/pitch for a few days during the treatment and surprisingly her tinnitus faded mostly after the treatment was over. These are few of snippets that I...

@Clare B, @kelpiemsp and 2 guys from TENT-A2 that I had a chance to talk to reported that their hyperacusis got "somehow sorted". For example painful dog barking reduced to "annoying", kid crying from unbearable to just slightly annoying... As if it has something to do with the overall reduction...

@Clearance comes to my mind as eligible to answer but she's probably busy with life or won't understand why do you ask as it's already written in the manual... :whistle: Keep going Allan. :huganimation:

This is my favorite thread and author :) ... just a good read considering the current situation with Lenire.

They have lots of delays even in answering emails, so don't expect them to review many incoming audiograms from people. They really should hire or at least outsource/lease some PR and marketing people/company to talk to people and share some news or progress such as Frequency Therapeutics does.

From such a small trial with non-publicly released results/outcome? I obviously don't understand what's behind but doesn't make a sense as they completed phase of trial with such a low number of participants. (Of course I hope I'm wrong and they and their investors that might be acknowledged...

I got a little more detailed answer once I did an follow up with them explaining that it's better for me both time-wise and distance-wise to undergo the treatment in Germany, but they just don't care and they think that it's very "funny and appropriate" to fly 4 times back and forth, instead of...

Many thanks for the summary @ChrisBoyMonkey and @tarmaced, I believe it is great summary and will be appreciated by many interested in this!

Could someone summarize the 139 pages of this thread to a few key points, what is FX-322 about? What I understand and please, correct me If I'm wrong: - FX-322 is a hearing restoration/regeneration drug. - They just completed Phase I trial and this will be followed by a Phase II in the fourth...

Yeah, this experience has somewhat drown out the wind from my sail of hope, but I have to say that the mood and professionalism of the staff is not that important to me as of now. We don't know if they're just contractors, or direct Neuromod employees, what is their relationship within Neuromod...

What are you waiting for? PLEASE SHARE all your questions and answers received! :puppykisses:

I've done MRI of head/brain with my own plugs made by "Ohropax"(made in Germany). Had 2 versions, 32dB (Ohropax classics) and 35dB (Ohropax color) - https://www.ohropax.de/en/products , both of them are very comfortable and easy to use, works well as I can't hear a s*it with them while plugged...

Did any of you have had a chance to speculate/discuss with Neuromod or any trial participants if they tried and measured any outcomes of continued and prolonged use of Lenire? In particular, I refer to the snip taken from Lenire website below so they definitely are thinking of this option...

Any mention of promised availability in Germany, and others "not ever going to happen countries," I guess, such as Czech Rep., Slovakia, Poland, Hungary...?

I'm going to take a break from this forum for a while (I also did this for the last month in an attempt to think less about my tinnitus) and when I'll be back let's say at the end of September, I really hope that I will see something like: "Hi everyone, this is Allan. I don't know how to...

One of the quietest morning yet.Might be a miracle considering that I didn't protect much yesterday evening(restaurant, bar, tram, streets).

Well, I hope there won't be any jing-jang stuff and my tinnitus won't spike and kick my ass just because I'm writing this post, but I have to say... Last 2 weeks were certainly quieter compared to months April and May. The worst were first days and week after "motorcycle incident", which was...

By the way, what happened with Germany/Regensburg, regarding Lenire availability? Is Prof. Langguth (member of Neuromod Science Advisory Board from University of Regensburg Hospital) currently on the road riding the truck full of Lenires somewhere close to Belgian-German border with sirens on...

Thanks for the advice Yuri. Luckily it wasn't necessary for this time - I didn't experience any spike so far, rest of the day and yesterday evening was quiet. Today my tinnitus is also very quiet, barely noticeable including now (evening). I'm so thankful,