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Could not have said it better myself...

I hope you do more of these episodes, they do help. I listen to them on my Audible.

I had it done for lower back pain, which it did not help for. I also did not feel it did anything for depression.

I have done the inpatient Ketamine procedure 5 times. It does nothing for tinnitus. Sure wish it did...

Their CEO has plenty of money for himself after he sold his STOCK in the beginning of the year and after he lied his ASS off to get the company to go public to get an IPO. It will never change. It's always about money. Never about the suffering.

Because it's the only thing of value they have; real estate property. Just saying.

Does anyone know when the OTO-313 Phase 2 clinical trial starts? I can't find it on the ClinicalTrials.gov page. Thanks.

I bought a pair of hearing aids which cost $7500. It's time for new ones but I want ones that can be adjusted at the higher frequency ranges. Help please. There are so many. Thank you.

They never had anything in the first place. Just a way to make a few people a couple of bucks. So sad.

All of this has been nothing but smoke and mirrors. Now where is the HOPE? Yesterday people were talking about a third trial starting, where did that come from?

Why can't they start now, after they have released the Phase 2 results? Why always wait, wait, wait.

I know. Thank you for your kind words. I'm just venting because my ears are getting so much worse... I'm just looking for any HOPE to end this nightmare.

I really don't think Frequency Therapeutics gives a damn about anyone that is suffering from this nightmare we live... All they do is stall and stall... It's inhumane... All these years... It's just wrong and inhumane...

I'm so tired of waiting on Frequency Therapeutics. If they have something that will help millions and millions, then they should help us. Sorry for venting. My ears are getting so bad...

Hough Ear Institute is nothing but a scam... Why talk about them...

I got hearing aids which cost close to $9000. They do nothing to the high-pitched noise. I can't take this much longer. Frequency Therapeutics said they would let us know in December. They should keep their word. If it's not effective, then I'm DONE. I can't do it anymore.

It's bullshit. They said they would let us know in December. It's now December. Some of us are hanging on a thread... each day is a day closer to giving up... I have emailed Frequency Therapeutics hundreds of times with no response. I also emailed FDA, no respomse. Nothing nothing. They just...

I would have done anything to be in that trial. I can't do this much longer. Really I can't. I begged them sooo very much. :(

I don't get why no one in the trial can hint or say anything to anyone... We need HOPE... so bad... and they said December. They need to stick to that. Why don't these people care, do they not understand a minute is like an hour, and an hour is like a day, and a day is like a week and so...

I have been crying for four years now :(

They should let the people in the trial talk. Give people some kind of damn HOPE.

I don't know how to cope anymore. I'm so tired of the off balance, the screaming brain. All I do is cry and cry. Each day is nothing but trying to find hope :( :( Sorry for venting. I wish other people knew what this was like. They never understand.

Getting 100,000 people to sign I think would be super easy. People will do anything to stop this nightmare.

See, they're just stringing us along. Was there even any improvement from phase 1? Again it's all about money. Just a con job to string it along for more what little funding they do get. If they had anything that worked, people would be throwing money at them. Yes I'm very mad and tired of...

They already had a phase 1. Why have another? It's all crap. The FDA can be bought like any other government department. The only reason they want FDA to be on board is so the insurance companies can pay for the drug they release if there is ever any released. I'm sorry, I know I'm...

I think they are full of crap and are nowhere even close to anything to help anyone. I think it's a show to get money at the expense of people suffering every second. Yes I know I'm mad, but I'm so out of HOPE. My brain is screaming like a skill saw ripping through glass :( sorry Rick

Thank you for all your words and help Rick

Based on what you are all saying, can it be fixed and if so how? I know you're not doctors but you all know a lot. Can it be fixed? I will say one thing. My left ear drum is very painful to the touch. It has been for a very long time. Always have to be very slow with a Q tip. Just the left...

Yes I have contacted the ENTs office many times. I also have had many CT Scans with all of them saying my bones in the ear look great. I have seen 7 ENTs. I even went out of state. All saying the same thing, there is nothing they can do and they can't see anything wrong in the ear :( :( :(...

What do you mean about a bone gap? I don't understand? I have called the clinic many times leaving my name and number. I keep asking to talk to the ENT doing the trial. But never get to going on, for two months now.

Thats the number I called I sent my hearing tests like they said and have been emailing Sandra all she says is that she gave it to the ENT and if you are picked he will call you

I talked to a Sandra my hearing loss drops at 4000 to 40db and at 6000 at 8000 it drops to 45db thanks Rick

I called them also and sent my hearing test which is the same as deathtotinni I have begged them all she said was if the Dr. wants you he will contact you I have begged and begged :( :( wish they caried

I want a DAM cure please this is no way for a person to live its nothing but pure suffering a suffering that only a person with it knows I sent my hearing tests to these guys months ago they where rude and did not care what I was going through my loss starts at 6000 going down to 40db...

Im the same also. But I now have problems with like the tv shows are moving to fast my whole brain screams like a lazer cutting glass

????? What year will it be when they have a cure

Emmi Hi there do you have any hearing loss? if so whats your numbers. also what does your T sound like. mine is a sizzling in my head with a ring in it. it started 18 months ago, it has detroyed me and everything i ever worked for. thanks Rick

hello brownbear I have been too 6 ENTs all shrugging there shoulders. overing no help at all. mt T and H started May 2015 when my neck was adjusted, i have had some many scans and it shows nothing. My buzzing, sizzling, ringing is so very LOUD I can hear it over anything. what i dont understand...

so why are they still running it if they already said it shows that it does not work I cant believe they cant cure this or at least something to shut it off. I dont know how to deal with this much longer.

I thought AM-101 was stopped because it does not work? does anyone know if VNS is going to help I cant get the video to work on ata.org they just talked about it on Sep. 13th. I called them but just get a recording.

why does my eyes feel off, cant even watch tv. its like things move just a little. or when looking at things they seem fake. like being on cold meds. its been like that every single moment since my ear went full and the noise started. Dr.s cant find anything

was there any good news yesterday about VNS from MicroTransponder talk with the ata.org does anyone know or did they watch the brief?

this is crazy, are they even close to a cure? i'm so tired of my brain sizzling, buzzing, ringing. it's getting way too hard. it's been 17 months. I have lost everything to this nightmare.

guys im so sorry i dont know how to start a new post, would someone copy an paste this to start one. my question is does the AM-101 work. and are they taking people now. my head sounds like fring wires for 16 months now along with H. it started with only ear fullness then i had my neck popped...

can mine be from 35 to 40db in the 4000 6000 8000 range i can hear the tone but only at 40db i ask all the Dr. s and they just say I dont know. I also feel off i can watch fast tv shows anymore. this all started 15 months ago after getting my neck popped. its really destoyed me also the H which...

hi there billie48 I was wondering in you have any hearing loss? thank you Rick

when when when when when?

high pitch fire alarms or frying wires

my T cant be masked at all. what do you do then

yes i have it does not help. my eyes feel so off had everything checked it all is good.

are they still looking for people for this and if so how do you get ahold of them thanks Rick

does T do anything to the eyes? been checked all is good but my eyes dont work like they did before T. i feel off every day like im on cold meds.

Same. Mine is in the head.

When are they going to be able to help us plrase i hope soon please please please

yes they did a cVEMP on me said my left ear was75db and right ear was 90db but they dont say or do much of anything

why does it change day to day gets super loud. but the feeling of being off like my eyes dont work right anymore. can T do this to your eyes?

i got this a year ago. have had every test i could think of. everything is good my hearing test shows mild lose in the higher frequencies. only to 35 and 40db. it started after i got my neck popped. also i feel off like i'm on cold meds.

asking does anyone have the off feeling with there eyes? had mine checked there fine but something is off with them its like being on cold meds. it started when my left ear went full and then the T and H

does anyone know what the off feeling like with eyes is?

are they close to a fix? does there trail show good things?