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It’s been a long time since I’ve visited Tinnitus Talk, and I’m happy to say that I’m still doing great. I hardly notice or think about my ears anymore, and I’m living a very normal life, with the exception of still limiting my use of cell phone and tablet speakers. During my early recovery...

Yes, those were some of the facial symptoms I had. Honestly, if I focus on my face now, I can still feel a tiny bit of tingling on the right side of my face which is my hearing loss side. It is much, much, much less than it used to be, and I can go weeks and months without noticing it now...

Hi @ECP, I didn't focus on any specific tones or pitches in music so I'm sorry that I don't have advice for that. I made sure that I was using high quality speakers and the highest quality music that I had available to me. I could be wrong, but I suspect that YouTube music might not be of the...

Hi @MadeleineHope, the first album I really tried to desensitize to was Chris Cornell's live acoustic album. I picked it because it is just vocals and a guitar, and I love that album. I can't remember what music I picked next. For me, the most important thing was to pick music that triggered...

My apologies for not seeing this sooner. I hope you are in a better place now. It has been quite awhile since I desensitized to music, and I don’t remember exactly how long the whole process took. I’ll try to answer your questions as best as I can remember. When I started desensitizing I...

It's been so long now I can't remember exactly, but I do think Klonopin did help temporarily with the tinnitus, but it would ramp back up again when the dose wore off. The tinnitus really started to improve for me when I got out of silence and hearing more and more sounds. I hope your...

@pez, yes, all of those noises have calmed down a lot. I can hear the hissing in my hearing loss ear pretty much over anything if I "look" for it, but I don't expect that to go away because the hearing loss is so severe and I've habituated to it. I can only hear the tinnitus in my "good" ear in...

@Sydney13, it sounds like you have found some good activities, and I did a lot of the same stuff. At first all I could do was color, cross words and puzzles so I did A LOT of that. When I started walking outside I did lots of nature walks and hikes, and I thought of them as physical therapy...

Thank you so much for your kind words! I am very sorry to hear about your reactive tinnitus and hearing loss. To answer your question, I have profound hearing loss in my right ear above 4 kHz, and I can't hear anything above 4 kHz in that ear. I think that's why the tinnitus in that ear is...

Despite everything I can do now, I still avoid those tiny speakers as much as possible, too, because they still cause me the most discomfort.

Aw, thank you @Brian Newman, that means so much. I sincerely wish the same for you. Sending you a big virtual hug...

Since I’m logged in I’ll give a quick update. It has been about a year and four months since I started getting better, and I continue to slowly get better and better. I can vacuum and use the blender. I have driven across the country, flown, ridden a train, and been on a boat. I listen to music...

Talking caused me a whole lot of ear and face pain. I can’t say that it ever caused neck pain. It’s been a while now, but I think it was worse without the earplugs. Even though the earplugs made my voice louder in my head, it dampened the higher frequencies that were excruciating. It still hurt...

I’m 40, so I wouldn’t consider myself one of the younger folk.

Yes, the higher the number, the higher the potency. I don’t know a whole lot about dosing, but I don’t think you should be taking a 200c daily. If you take too much too often it could cause temporary “aggravations” which are new or worse symptoms.

I think dosage depends on the potency of the remedy, the person taking it, and their symptoms. My Pulsatilla is in pellet form. I put three pellets in about 4 oz of water and let it dissolve. Then I only take a teaspoon of the water. When I was taking the 30c potency I took it once every 1-2...

DNRS promotes not focusing on symptoms and instead bringing your attention to other things that make you happy. I think @OnlyUP gave a really good description of how focusing on a negative sensation (tinnitus, pain, etc) tells our brain that it's a threat which fuels our reaction to it.

I did the DNRS program for hyperacusis and pain management... I do think it helped to teach me to not focus on the tinnitus, but tinnitus wasn’t my main concern.

Hello there in Minnesota! I was in California, but I recently moved to Tennessee. I'm loving it here in TN :) So at first I had almost a whole year of getting worse. Then when I started the things I mentioned in my post, I very slowly started getting better. The first couple of months were only...

It would be like a short tune played over and over and over. It was constant, too. Sometimes it was a happy tune, or sometimes it sounded dark like something that belonged in the soundtrack of a horror movie. I can't remember much more detail at this time, but I do remember that it drove me nuts!

Sorry for the late response. Had a lot of things going on so I was pretty unplugged for a couple of months. I like the Lazarus Naturals CBD/CBG tincture blend. The Magnesium spray I use is actually a body spray and I spray it on my feet. It's Life-Flo Pure Magnesium Oil made with Magnesium...

Oh noooooooooo! I am so so so sorry that you are having a similar reaction to LLLT. You’ll be in my thoughts and I hope that you get some relief soon. My heart breaks for you having to go through this.

The musical tinnitus showed up a few weeks after the LLLT catastrophe. It’s hard to remember exactly when it went away, but I know I had it for several months. Over time it faded into the background and one day I realized it wasn’t there anymore. I’m sorry that you have a lot of the same...

I don’t know the exact model because it belonged to the chiropractor, but I do know that it was not a lamp like device. It was more like the laser devices that are aimed down the ear canals. For a little while I was tempted to try a red light device that would be more of a lamp, but after my...

Thankfully, no. The hardest part was getting to and from the medical facility and waiting in the doctors’ office because I was homebound at the time. Other than that, the procedure wasn’t bad and I didn’t experience any negative side effects.

I just tried LLLT once with a neurological chiropractor who had experience with lasers for ear issues. I don’t specifically remember what laser or wavelength was used. I felt fine during and immediately after the treatment. The first indicator of catastrophe was when I woke up in the middle of...

Thankfully, it’s not reactive anymore, whew!

The tinnitus gradually lessened as the hyperacusis went down so it’s hard to say exactly what helped it. I’m guessing that Pulsatilla and diet helped with inflammation that lead to less tinnitus, but that’s just a guess. If your main concern is tinnitus, there are lots of other homeopathic...

I had heard the same warnings about salt and ear issues. I tried to eat very low salt for a while and I felt horrible! I felt like fainting every morning, had zero energy, and it didn’t seem to help the ear troubles anyway. I feel MUCH better eating a lot of salt. And yeah, sugar really is...

It’s ok! So Arnica is a completely different homeopathic medicine than Pulsatilla. The 200ck value is the potency. I use Pulsatilla 200ck. Arnica is good for bruises, injuries and aching pain caused by traumatic injuries. There are A LOT of different homeopathic remedies for pain. Which one...

Oh sorry! I forgot to specify that I put three pellets in the water at a time. Yes, I think starting slow to see how you tolerate it is a good idea. There is such a thing as too much of a homeopathy remedy, and taking too much can cause a temporary aggravation of symptoms. If that happens, lay...

Yeah, trying to eat low histamine is a huge pain in the butt. Do you think your low energy and mood are from the diet? If so, it could be an electrolyte issue. When I started carnivore I crashed really hard with zero energy. Adding a lot of extra salt to my food helped a lot while I adjusted...

When I started carnivore, I was super strict because I was absolutely miserable and willing to try anything to feel better. So, at first I’d only eat beef, organs, salt, and water. To keep the meat lower in histamines, I kept it frozen until I was ready to cook it, then I defrosted it by soaking...

I’m super sensitive, so I dilute the pellets of the remedy in about 4 ounces of water and then I only take a spoonful of the liquid. I do that about once every two weeks, but I will take it sooner if I feel like the symptoms are backsliding. I know it sounds like I’m taking a minuscule amount...

Thank you, @Freerunner :) I buy the tablets/pellets made by Borion. Let me ask her if she’s ok with me giving you her information, and if she’s ok with it I will get back to you as soon as possible.

I’m sorry I missed that! I started with Pulsatilla 30c, and after about a month my homeopath moved me to the higher potency of 200c. Because I’m super sensitive to pretty much everything, I dissolve three pellets in about 4oz of water, and I only take a spoonful of the water. I do that about...

Hmmmmm, I can’t say that I remember those ear symptoms so probably not. That’s great that the finger burning is getting better! It must be a relief. I have been going to a chiropractor for the last two months and my neck has been feeling better. It still needs more work, though.

@Diego LR, I’m sorry that you are struggling with sleep. I had awful insomnia for at least the first 6 months so I can relate to how rough that is. I could fall asleep initially, but I’d wake up a couple hours later with searing ear pain or in a panic and depressed about my condition. Then I’d...

@Taw, I am more than happy to share if it helps at all. I have a Sonos TV soundbar in the living room for TV and music, and I have another Sonos speaker that is portable that I can use to listen to music from all over the house. I also have a JBL Charge 4 Bluetooth speaker that is tolerable now...

I am truly very sorry that you are dealing with such torture. I experienced the exact same symptoms, and they kept getting worse. I can completely understand what a nightmare it all is... it is unreal how awful it can get. I agree 1,000% that no one deserves to deal with this kind of BS, and I...

Thank you :) I am sorry that I don't feel like I can give an accurate estimate because I didn't start practicing DNRS until after I had already started homeopathy and the diet. I can say with 100% certainty that DNRS has helped me very much, and I still use it everyday. Even if I don't have...

I am so sorry to read that you are in a similarly bad condition. I checked my remedy, and it just says Pulsatilla 200ck. It is the Borion brand and I bought it from a local health food store (Sprouts). That’s interesting that you see different versions of Pulsatilla. I’m sorry that I don’t have...

@Taw and @GeorgeLG, sorry for the late response. I did purchase the DNRS program from that link, and you are correct that it’s not cheap. When I bought it they had a 6 month guarantee where you could get your money back if you had no improvements after 6 months. I figured that I’d already spent...

I can relate because I was in the exact same place last year. I spent last Christmas home alone in silence and in pain. I honestly thought that it was my last Christmas, but thankfully things are SOOOOO much better this year. I spent this holiday season with my kids and family, and I’m eternally...

Wow, thank you so much for your kind words! I really hesitated sharing because of how unusual my methods were, and I am still a work in progress myself. I wholeheartedly appreciate your positive feedback. I was stuck at home in hell for almost a whole year so I completely understand what an...

I did have some minor burning and a whole lot of tingling and numbness in my fingertips when touching things like phones and tablets. The weirdest part was touching things with my fingertips would make my ears hurt a lot worse. I am sorry that I don’t remember how long it took to subside. I...

I gradually stopped wearing them while I was still mostly homebound. At first, it was like just the air was way too loud and made my ears burn and itch worse, but wearing earplugs also really irritated and hurt my ear canals. Muffs hurt the nerves in my face and around my ears, too. Talk about...

Yep! I feel like I have every comorbidity possible, lucky me. I have a significant misalignment in my upper neck. Now that I’m not homebound anymore, I’ve started going to a chiropractor to help with my neck. It would be nice if fixing my neck helps me even more, but so far my neck just hurts...

Yeah, I had the exact same problem. Instant pain plus even worse delayed pain that could show up a day or two later. I honestly didn’t have any luck with exposing myself to sounds until I started homeopathy. Before homeopathy, most exposures resulted in what seemed like permanent worsenings...

Thank you :) I hardly ever wear ear protection when I’m out these days. In the last month I have only worn earmuffs while using the electric mixer and earplugs a couple of times while at a noisy amusement park. That’s about it.

I am so sorry you are in a similarly bad position! It’s truly hell on earth. The wild thing about homeopathy is that it’s very individual. What works for me may not work for you because our symptoms could be a little different. What worked best for me (so far) has been Pulsatilla 200c. I only...

I’ve been away from this forum for a little while, and I am happy and relieved to report that I am doing much better. I am still very much a work in progress, but the hyperacusis and pain have reduced by about 75% over the last several months. Here is a summary of what I went through and the...

I have been doing a couple pretty unconventional things that I feel need a bit of explanation. I’ll try to put together a post to share what I’ve been doing in case it helps anyone else.

I have been doing a lot better, thank you. I’m not 100%, but things have improved enough to where I have gotten a lot of my life back.

I consulted with one from UCSD. I am sorry to say it ultimately was a waste of money since he wasn’t able to do anything for me besides write me prescriptions… none of which helped me at all.

Thanks for sharing your experience with sound therapy. Can I ask if you had pain in silence when you first started?

That’s great that you seem to have found some dietary changes that have helped! I hope things continue to improve. I did a two-day water fast and it seemed to temporarily help. I need to circle back and try some longer fasts. I’d love to dry fast, but I also have medical conditions that prevent...

Hey, I noticed that you’ve been absent from Tinnitus Talk lately. I just wanted to say that I hope you’re doing ok.

I agree that LSD and Psilocybin are different, but I thought Psilocybin acted on 5-HT2A? Study Confirms Psilocin Binding to 5-HT2A Causes Psilocybin Psychedelic Experience I’ve also seen at least one report where a man cured his RA with Psilocybin: Case Report: Resolution of Rheumatoid...