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Just came back to share my experience. I got my Pfizer shot #2 over a week ago and no changes to tinnitus. Considering what COVID-19 can do, I think it’s really important to get vaccinated, as it is well known to increase tinnitus and create tinnitus for some. I know it’s scary, but remember a...

I had my first dose of Pfizer 3 weeks ago. No change in tinnitus, only a sore arm. My thoughts are the chances of COVID-19 spiking your tinnitus are much higher, and lots of people got tinnitus from COVID-19. Stress and fear is a powerful thing, so I recommend just staying calm when you get...

@Hazel we are so lucky to have dedicated people like you doing great work for sufferers. Have a safe flight and a good rest when you get home! I pray for the health of your mother.

So, I do not believe that headphones will make tinnitus worse (it's more how loud you use them), but now that I have gone 6 months without them, I really like being able to hear my environment (noises drown out my tinnitus). I found headphones that play through your cheekbone as opposed to...

Thank you both! Yeah I figured it so because I went through this when my tinnitus started. Tight face muscles and neck pain, and all that jazz. Now that I have a good grasp on my tinnitus, the eye floaters are giving me grief. I will learn to meditate through this, and I already took advantage...

I have actually nearly habituated to my tinnitus as of late, to a stage where it no longer affects me emotionally. It is much more in the background, and life has become normal again for a while. Recently however, I have been stressed, and now I have constant headaches, temple pressure, neck...

Yeah! And I actually visit VBC often (it's about a 6 hour drive from me), so I mean in 2020 I would also most likely be interested since I am usually there anyway for vacation. I'll keep in touch about this in the future!

Hey I also live in Washington! I live in Vancouver (SW WA).

It is. What was said by @ageoflove is incorrect. Tonal tinnitus is a constant streamline sound. I would say static TV buzzing is that. Atonal would be multiple at once. HOWEVER, it was said tonal and atonal are ok. Atonal was just an exclusion at first.

Mixed results? The TENT-A2 trial is showing positive correlation from their initial arms. And what makes you think they have not been upfront? My God, isn't the video enough evidence that they are showing positive results? Do you need Ross O'Neill to come to your house and tell you in person...

I mean, how can you not have restored faith after that video. Even if it doesn't work for you, look at the care, time, and effort put into the science here. The tinnitus research field has exploded recently, and this device could usher in a slew of other companies wanting in on the pie. Hope is...

What podcast? The one with Richard Tyler that isn't out yet?

I would also like to interject and say that, although Neuromod has been relatively quiet as of late, remember that they are hard at work with this technology and we will most likely see something soon. For so many years no one has been open about trying to fix this problem, and now we have...

First off, I am truly thankful for your work as well as @Jack Straw and @Markku. The podcast is so well done, and really is a pleasure to listen to. Given the triumph we had over at STAT, I wonder if you guys have already recorded the Richard Tyler episode? Given the technology relationship...

Really proud of everyone on here, been voting all day, and it's paying off.

63% lead currently, keep it up!

Say what you want about Lipo-Flavonoid, they are at least raising awareness.

I was going to comment on here to vote, but looks like it's still happening. Everyone, please share ON YOUR SOCIAL MEDIA. It's good to spread the word.

The DCN (Dorsal Cochlear Nucleus) is located in the brain stem... which is the brain. All devices in development target this area because so far the science shows the hyperactivity starts in this region of the brain. It does not matter how you got your tinnitus, because it all starts (as...

This keeps getting mixed up. I think we need a change in the terminology. Flexing your jaw or other movements is called somatic tinnitus, and it is not considered a mechanical form of tinnitus. Over 80% of people can modulate their tinnitus with movements. Somatic tinnitus makes no difference...

I just wanted to post this study that helps back up bimodal neuromodulation. https://journals.sagepub.com/doi/10.1177/2331216519835080 This is an INVASIVE study, but backs up the breaking down of neural activity in the DCN.

There were just some extra videos on YouTube. Not added, they all were uploaded at the same time, they are just not the ones on the website.

@Paulmanlike I hear you man, but you're right, we need to weigh it on the EVIDENCE, and right now we have none. Some testimonies. Some, as in 13 from over 500 people who enrolled in the study. All I'm saying is once people saw some videos, everyone is saying "IT DOESN'T WORK, I KNEW IT"...

How does it suggest they wanted to bury these? They are a small company that almost never updates their website. Look at the date. All they did was upload all the videos at the same time. All they did was dump the videos they had right now onto YouTube. This isn't a conspiracy. They aren't...

It's crazy. I understand this website is for sufferers, but I mean we know that bimodal stimulation is promising. Susan Shore proved this. We can't all lose faith because some of the videos aren't that promising. We can't expect them to freak out and say their tinnitus is gone, I'm sure those...

My God, you guys all jump ship so quick on this. Yes, some of these testimonies are not so great, but we still don't know the numbers. Remember these are the people that came forward. Clare B didn't come forward and hers went away completely. 3/4 showed CLINICAL improvement. These video...

LOL

It makes more sense now that I realize that you wouldn't want to push a device without quality evidence and science behind it. Once the paper is published and peer reviewed (probably after the conferences) then I'm sure we will see a lot of activity from Neuromod pushing their device. I have a...

Hubert Lim or Susan Shore. Although both are very busy, I bet Susan Shore is not as busy as Lim, as he is currently touring the conference circuit. An expert on bimodal stimulation would make for a very fun podcast guest.

It was more of a joke that small companies get eaten up by mega corps like them. I actually don't know much about them.

I agree. I'm very curious why the hyperacusis people had such a good rate of success (90% I believe) and the hearing ability makes the most sense. Even if Neuromod isn't a grand slam (although I think this kind of tech will be), their research is going to shed a ton of light on tinnitus and...

The Johnson and Johnson was more of a joke lol, I forgot joking can be tough here. Sometimes laughing helps me cover up the pain.

The other two people that Clare B ran into were also older and much more hard of hearing. I'm seeing a trend here. I have a feeling that your hearing ability plays a big part. People with hyperacusis (like myself) have almost super sonic hearing (exaggerating of course lol), I can hear things...

Let's hope Johnson & Johnson buys them lol.

Your age is most likely the culprit.

Using blood markers to identify noise induced tinnitus? That is exciting! I wonder what process they discovered to give this hypothesis any weight?

Well, that's kind of debatable though isn't it? If this device proves to be a big push forward for tinnitus, then I can imagine many other biotech companies wanting a piece of the pie. So who knows, maybe in the next 5 years we will have a plethora of tinnitus devices. So many companies are...

This. They do not want to undermine the peer review process, and also keep in mind, they are one of the few if not the only company to seek peer review for a tinnitus treatment. Think about it from their perspective; it is not a good idea to just randomly release all your data, your price...

Possibly, but over stimulation would probably be much more likely at that point. Given the limited evidence we have here (rat studies galore, but pretty few human explorations until we get the hard TENT-A data) the best way to do this is simply audio (for DCN) and 1 other site point for...

I am not, I'm in Digital Tech and Communication (currently a senior at university, almost done!) However I am friends with a few neuroscience majors and I tell them about this device often, and I have been looking into this tech since I got tinnitus & hyperacusis and have learned SO MUCH about...

If you really think about what has happened before the loud tinnitus days, I'm sure you will see a pattern. Not to jump off topic, but I believe in Dr. Rauschecker's theory of gating, in that our PFC plays a big part in the appearance of tinnitus. If I already have overactive neural activity...

I'm not sure why Susan Shore made all those headlines last year, but I assume it's because she was the first to grasp bimodal stimulation (from what I can gather). Neuromod lists her studies in rats as a big proponent, as well as Hubert Lim's studies. I'm unsure who truly discovered bimodal...

Your anxiety plays a huge role in your tinnitus perception. I notice that sometimes (and it feels like for no reason) my tones change and get harder to mask, but really I know it's the same all the time. Working with CBT and therapy of any kind will help your perception, so you should really...

While you could be right, there is little chance (from my understanding) that this will be in the same camp. I may not have been around for ACRN, but Dr. Susan Shore is highly respected, and when everyone in the community was shocked by her findings, I think she really did find something...

it makes sense. There are a lot of neuromodulation devices out there. But bimodal, now that is a whole new animal. I assume most audiologists don't know about it because they are just in their normal routine of working with hearing aids and audio tests. It's the few that go to conferences and...

TENT-A2 apparently had similar results. So that's a great sign. Honestly I'm not asking for a cure, I'm just hoping a reduction in either volume or presence. If it can knock off the spikes I get from anxiety, or just quieten them, it will be well worth 2-3K for me.

As stated, this device works on breaking up that overactive synced neural activity. So it does not matter (at least from what we know now) what is driving your tinnitus, as they are solely changing things on the side of the brain (DCN). The reason they excluded those groups is because of...

I was just thinking about Susan Shore's device. I'm curious if Neuromod's release (if it shows great success) will grant her more funding from places like the VA. When she talked to the ATA on their podcast last year, she seemed really positive about it being commercialized in the next 3 years...

Very common. most, if not all, tinnitus people have SOME form of a somatic element. When I clench my jaw, both ears get louder, and when I move the jaw forward, the right ear gets extra loud. I believe it just means we are adding more neural activity in the somatosensory nerve. It makes sense...

Same here. I noticed one week I was constantly anxious and couldn't think and I got fleeting tinnitus twice a day. Thanks for this! I take a small dose of SSRI, but I'm always looking for natural methods to help me.

@kelpiemsp was in the Minnesota trial (USA). Hubert Lim's study.

Do you know if Desyncra got a $22m backing like Neuromod? That backing raised some eyebrows when it came out, so I'm curious if people in the medical finance community saw the numbers and went "oh we have to get behind this". Sorry for the ACRN discussion, I guess I'm just hoping this time...

From my understanding the separate arms are to determine best outcome measures, right? I can only assume the they added the inclusion criteria so they can have more evidence of it working on multiple parameters. From a basic science level, if all we are doing is breaking up the synchronized...

You need a source before you say stuff like that on a forum like this. Nowhere have I found (and I have read everything about this device) evidence of them having made clinical trial patients pay for it. The only people who paid are the 100 who bought the first commercial product 4 years ago...

That's 2 out of the minimum 500 we have not heard from yet. Also, how do we know they aren't just saying it didn't work because it didn't completely zero it out. I know of more people on just this forum having been able to modulate their tinnitus with this kind of tech so I'm sure it's still a...

Ahhhhhh that makes sense. I figured the process was similar regardless of the device. Thanks for clarifying!

Regarding FDA device approval, I found this fun chart that gives a good overview. https://www.emergogroup.com/sites/default/files/emergo-fda-510k-data-analysis-2017.pdf TL;DR: ENT devices from submission take roughly 167 days to get approved. When Dr. Ross O'Neill said he's hoping they get...

Yeah, I guess it's hard because my spikes are clearly related to my anxiety (when I'm stressed or overwhelmed) but everyone on here is telling me Lexapro is very bad. So I'm just confused and wondering if others have taken this class of SSRI and had good results.

Both kind of. I’m thinking that by fixing my mood I can habituate better. But I’m worried going up can make tinnitus worse.

So, I got my tinnitus before taking Lexapro, and then it didn’t change really after I started on 10mg. I was thinking of jumping up to 20mg but I’m worried about the ototoxic affect. Has anyone SUCCESFULLY taken SSRIs to help?