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  • Users: Piper
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  1. Piper

    Hey.

    My mum had it for years, and now I have , I have been told it is genetic unfortunatley
  2. Piper

    Hello All. Just Found Out Mine is Going to be Chronic.

    Hi Jess, just had second MRI so awaiting results, some days I hardly notice it and other days it drives me insane. How are you. Avril
  3. Piper

    Hello All. Just Found Out Mine is Going to be Chronic.

    Hi Alex I have been told mine is perminent too,and similar noises have the same effect on me, especially screaming kids. Mine they say is through playing in band, although my mum had T too and some say its genetic. I am none the wiser since it started 6 months ago. wish you luck with it and hope...
  4. Piper

    Success Stories?? Tell Me It Gets Better PLS!

    Jade your going to have good days and bad days, listen like you I lost my mumthrough tinnitus and it scares the hell out of you, but get some white noise on your mobile it will distract you I promise, as for the panic attacks I am still having them, but making it my priority to try and beat...
  5. Piper

    How Did I Get Tinnitus?

    I just woke up 6 months ago with it,not even worked since because of the depression it put me in, Mine could have been loud music cos of being a musician, but then my mum had it and I have beentold its genetic,I also had an ear infection at the time and had 2 courses of antibiotics, MRI showed a...
  6. Piper

    Hello & Help pls

    There is a lot of research being done on it so fingers crossed
  7. Piper

    Hello & Help pls

    Wow I wish I could look at it that way.
  8. Piper

    Can Permanent Tinnitus Due to Loud Music Be Treated?

    Its definatley worth seeing ENT, they may do an MRI scan , they did with me and it showed a benign tumour leaning on a nerve to the ear, although they do say that the tinnitus was probably due to playing in bands for years.
  9. Piper

    Hello & Help pls

    I have beenm told its genetic, that worries me that one of my kids will get it, lets all hope for a cure.
  10. Piper

    Hello & Help pls

  11. Piper

    Does Sound Therapy Help?

    I found it helps me to get to sleep,but taking sleeping tab too, but dont find it does much during the day.
  12. Piper

    Medical Professional With Tinnitus

    Then put your knowledge on here on how to get rid of it.
  13. Piper

    Hello & Help pls

    How you feeling Jade, you will have up days and down days like all of us,I had a bad day yesterday as it would have been my mums birthday and I kept thinking how she suffered with this too, but I didnt really understand it till I got it,the stress yesterday sent the tinnitus sky high, we must...
  14. Piper

    Hello, Musician with Tinnitus

    A lot of us are paying the price of it I think, I just wish I had used ear plugs when I was giging for years
  15. Piper

    MRI (Magnetic Resonance Imaging) Discussion & Experiences & Questions

    Definitely have an MRI. I did and it showed a benign tumor which is causing it.
  16. Piper

    Hello & Help pls

    Hi Jade, I too have ad this It nearly drove me to despair, antidepressants etc. I haven't worked since I had it start, but had tinnitus coucncelling a couple of weeks back and come to terms with it as much as possible, I am now stuck with panic attacks, my mum also had it for many years and...
  17. Piper

    Hello & Help pls

  18. Piper

    Acoustic CR® Neuromodulation: a New Treatment for Tinnitus

    Has anybody tried the acoustic C.R neuromodulation treatment at the Tinnitus Clinic? £5000 its a lot of money, but does it work!
  19. Piper

    Gone Again

    Hi this is Avril, that happened to me Saturday morning when I woke up, I thought I had gone deaf cos I coudn't hear anything, it stayed away for a few hours, I really thought it had gone for good, but yesterday back again, so annoyed with this T .
  20. Piper

    Feedback Suggestion, MP3 Archive

    I downloaded it onto my phone and leave it playing
  21. Piper

    Anniversary

    I have downloaded white noise on to an app, and play it through my phone all night, last night was the first night and I actually slept all night which is very unusual since I had this. Avril
  22. Piper

    Anniversary

    Hi Louise its strange how significant the date is when it started, I too remember, still trying to "live with it" but so hard, I got a white noise ear piece from audiology it helps when its unbearable, I haven't worked since it started, tried antidepressants but they scare the crap out of me, I...
  23. Piper

    New to forums

    Panic attacks are stopping me doing the things I used to love.
  24. Piper

    Going to Concerts with Tinnitus?

    I am or should I say was a musician before this tinnitus, I got ear plugs yesterday that musicians wear, they hang round your neck when you want to take them out but haven't tried them yet, I have stayed away from bands for 6 months but miss it terribly.
  25. Piper

    Antidepressants (SSRIs, SNRIs, MAOs, TCAs, TeCAs)

    I d the same with sertraline, so nauseous and panic attacks were worse, they want me to try mirtzaline today but really scared of them now. My sleep was worse on them.
  26. Piper

    Hello, I'm new here and let me introduce myself

    Hi Ziv we are all in the same boat, all we can all do is raise awrenwss and money for charity to try and get a cure,there are days when you think you cant go on believe me I am there at times, but I am trying to focus on the days when its bearable. Today mine is through the roof but I am trying...
  27. Piper

    Extreme tinnitus spike and ear pain

    I insisted on one, and found a benign tumour leaning against a nerve causing it, but wont know if they can do anything till next Wednesday. Insist one one. I don't have any hearing loss either, I think that's why they say get to learn to live with it, yea right they don't bloody have it.Been up...
  28. Piper

    Extreme tinnitus spike and ear pain

    I know what you mean it drives us mad,I have had 5 months of it and tried every treatment possible, now it looks like antidepressants for the depression, have you had an MRI scan?
  29. Piper

    New to forums

    Has anyone tried the white noise ear piece from audiology?
  30. Piper

    New to forums

    been up since 4 with noises going nuts today
  31. Piper

    I think we are all in the same boat, I tried antidepressants but made me sick so stopped them,I...

    I think we are all in the same boat, I tried antidepressants but made me sick so stopped them,I haven't worked for 5 months due to the stress of it, lets hope they find a cure for it.
  32. Piper

    Bizarre Tinnitus Experience

    Yea I cant go near fridges in supermarkets its sets off really bad, and funny enough hot food too, lying down as well, I just don't understand the whole thing.
  33. Piper

    Ginkgo Biloba

    Has anyone tried ginkgo biloba? http://www.amazon.com/Life-Extension-Ginkgo-Biloba-Capsules/dp/B000KEO85E/
  34. Piper

    New here

    Hi David, I an a musician too, Or was before this started its a horrible tinnitus started, I think we are all in the same boat, I have tried everything , cost a fortune in private session with hypnotherapy etc, today I am going to try antidepressants, I miss playing but terrified in case it...
  35. Piper

    New to the forum, hello!

    I know exactly what you mean , its driving me nuts too,I have tried everything , today I am going to try antidepressants, there is no escape from it, I wish it was a terrible pain instead so I could at least take pain killers. I wish you well
  36. Piper

    Worried and Going Nuts

    Its impossible to not get stressed with this, I am just waiting the mental health team to come round and try me on antidepressants
  37. Piper

    New to forums

    I have an ear device but not sure I like it, This forum has been helpful just knowing your not alone. I just want to get back playing again, I miss the band but not up to it yet.
  38. Piper

    Hello, Musician with Tinnitus

    What a valve amp?
  39. Piper

    Do You Have Any Phobias?

    My phobia is this tinnitus. quote John Lennon" mamma told me they'd be days like these, most peculiar mamma"
  40. Piper

    New to forums

    Tried playing my pipes the other day and that made it worse, tell you Robert this tinnitus really needs more funding
  41. Piper

    New to forums

    Looking to start a different antidepressant but they terrify me
  42. Piper

    New to forums

    No of I sleep during the day I wake up with the noises worse
  43. Piper

    New to forums

    Sleeping tablets only
  44. Piper

    New to forums

    Hi Robert, Got sleeping pills now, although I am only taking half. Trying to eat but not really got much appetite, no still not really going out, well not on my own , not really getting involved in activities, due to my mood. Who would believe 6 months ago I was a grade 6 driving instructor and...
  45. Piper

    Hello, Musician with Tinnitus

    I too am suffering from loud music,not sure if I will ever play again due to this tinnitus,but live in hope. Its nice to see people being positive and still playing.
  46. Piper

    New to forums

    I wanted to join a self help group but there is nothing near me, so I was thinking if anyone lives in the Essex area maybe we could have a get together and meet at my house, coffee, tea, etc, and make friends with people that are all in the same boat. Any suggestions?
  47. Piper

    New to forums

    It's a white noise devise but it's made it worse I am so depressed can't get out of it
  48. Piper

    New to forums

    Going nuts with this today
  49. Piper

    New to forums

    Off to audiology for some tinnitus training.
  50. Piper

    New to forums

    Hi Robert, it got me so bad that the depression stopped me going out,just had a doze and woke up with it screamingI have diazapam
  51. Piper

    Worst Time of the Day?

    That's exactly how I am
  52. Piper

    New to forums

    I cant even think about going out at the moment, just hope these antidepressants kick in soon
  53. Piper

    New to forums

    The price I am paying for being a musician, too many loud amps
  54. Piper

    Worst Time of the Day?

    It drives me crazy during the night, it wakes me up,I think I am paying for being a musician and surrounded by loud amps, Haven't even been out since this started.
  55. Piper

    New to forums

    The tumour is small so reluctant to operate, and the neurologist isn't sure its causing the tinnitus even though the ENT seem to think it is
  56. Piper

    Worst Time of the Day?

    Hi, I'm new to forums and am trying to get used to how they work. I was wondering if it's usual to have a 'worst' time of the day for tinnitus? Mine is when I wake up. Whether it's in the morning or if I have fallen asleep in the day. Today I also had nausea and disorientation, but I have...
  57. Piper

    New to forums

    Thanks for your support, started antidepressants a few days ago but feel like crap today
  58. Piper

    New to forums

    Hi my name is Avril, I have been suffering with now for 5 months, I was told to learn to live with it, but went private and had MRI scan which showed the reason, a benign tumour pushing against a nerve. Its been the most horrible time in my life, and now getting treatment for depression. This...