Search results for query: Myoclonus

...seeing a neurologist next week and getting a second opinion from an ENT specialist by the end of the year. My impression is that I may have myoclonus. If it’s in a constant state of spasm, it could be difficult to identify during an examination, so it might not always present objectively...

Yep, sounds like middle ear myoclonus. I also had pulsatile tinnitus for many ears, but developed constant ringing in my ears 2 months ago, and myoclonus. When searching the internet, I have noticed that many people who have pulsatile tinnitus, seem to develop ear myoclonus! There might be a...

...of the clicking processing while I'm asleep, along with other mussel spasms I have, make it unlikely that I have essential palatal myoclonus Over the next month, I'm getting tested for spinal tumors, Wilson's disease, and M.S.. So that's a bit of a downer, and I was wondering in anyone was...

Sounds like Middle Ear Myoclonus.

This is called myoclonus.

Yes I experience a humming/vibration almost generator like sound/feeling. I also feel something spasming in both ears at times (it's not the ear drum fluttering). Has anyone connected this feeling to tensor tympani myoclonus or stapedius myoclonus?

Hi, yes, it is called Middle Ear Myoclonus. There is a lot of detail on my surgery in the Pulsatile Tinnitus category here: Pulsatile Tinnitus Gone After Tenotomy of Middle Ear Muscles

I'm not sure, because this does not sound exactly like that, but middle ear myoclonus/TTTS present itself tipically in intermittent sounds, but more like thumping or clicking.

@japongus There's a new thread about Stapedius myoclonus surgery up at chat-H. Don't know if you're still banned from there though, but I thought of you when I saw it. http://www.chat-hyperacusis.net/post/stapedius-myoclonus-surgery-8394482

...removal. I noticed a pulsing in my ear started around the time I got noxacusis, so that could be a strong indication of middle ear myoclonus which might even be related to or a contributor to my noxacsis. Either way, it seems all of these surgeries are very low risk, with little to no side...

...write about this devastating news. Padraigh and I had many discussions about our tinnitus journey. He and I had surgery for middle ear myoclonus with the same surgeon within days of each other (almost exactly a year ago). We supported each other on the rollercoaster recovery and had hope...

...of the stapedius tendon. Mentions that while MEM/TTTS is usually audible as a click, stapedius spasm is often heard as a buzz or thump. https://cdn-links.lww.com/permalink/mao/a/mao_00_00_2020_04_05_corrales_on-18-434_sdc1.mp4 Study: Diagnosis of Stapedial Myoclonus Using Endoscopic...

...accounts and threads, emailed a few of them too, and I've looked it up on google and libgen.io/scimag, with search terms like ''middle ear myoclonus'' or ''middle myoclonus'' and so on, and you get a few that talk fairly ambiguously of things like subjective hyperacusis when they're looking...

Hey, I just started using Floradix magnesium to try and resolve Middle Ear Myoclonus - which it did mostly. However, it also seems to have coincided with a new tinnitus tone which also includes constant slight crackling too for 3 days now, although I'm not sure if that's from the magnesium or...

@Chelles - yes, I know that we don't have the typical palatal myoclonus which produces a clicking sound while contracting rhythmically, but I'm wondering if the palatal myoclonus could be so subtle that no doctor can see the movement of palate but we sufferer can feel it in the area of our...

Best of luck mate, let us know how it goes.

Well after doing a test of eating more and more carbs gradually over a few days the tinnitus is heavier louder and the myoclonus began again. So I'm going to go back to keto/high fat low carb diet and will see how long (and if at all) it can help with the myoclonus and tinnitus. Both of these...

https://www.tinnitustalk.com/threads/myoclonus-of-the-middle-ear-stapedius-muscle-and-tensor-tympani-surgery.3924/ https://www.tinnitustalk.com/threads/eardrum-vibration-tensor-tympani-myoclonus.1198/#post-37090...

...used this web page, to determine the frequency. It's only 76 Hz (cycles per sec). I'm trying to determine if it's tinnitus or stapedial myoclonus. If the latter, I'm going to opt for surgery. But can tinnitus occur at such a low level? It almost always occurs when I'm in a quiet or...

Hi Hichem, The twitching may be middle ear myoclonus. Check out tensor tympanic, stapedial, and palatal myoclonus. Middle ear muscle spasms that can be very disturbing. Often brought on from stress/anxiety or other neuro disorder. A good ENT will be able to confirm. Hope you feel better.

You have tinnitus and hyperacusis. That'll be $275 please...

Palatal Myoclonus is notorious for not responding to one specific med. Multiple have to be tried. Unfortunately sometimes it is stuff like Klonopin that works. Do you know if it happens while you are sleeping?

Hello I have hyperacusis and stapedius myoclonus from 2010. Someone have visited this clinic? I don't know is be worth the effort travel there. I need to know if I need a surgery or botox or... for my stapedius myoclonus. http://www.clinique-causse.com/ thanks and a hug

...side experiencing ringing, is protruding. I read online that it could be caused by a middle ear infection. I am suspected to have Stapedial Myoclonus, though I don't know if that is a middle ear infection. At this point, I don't even know if it is mastoiditis. Basically, my right ear rings...

I'm sorry to hear that you are struggling with tinnitus. It can be frustrating, especially when it affects your sleep. Have you tried any relaxation exercises? I know it's hard to get motivated with only three hours of sleep, but try avoiding medication and watching your sodium intake. Stay...

Sounds like Tensor Tympani Syndrome and/or Stapedius Myoclonus.

How long has that been going on for?

A very slight popping sound in my right ear. Consistent but intermittent. Can't find a trigger. It's really quiet. Like a light pop or a click but it doesn't seem like myoclonus. Almost like something is wet in there. Driving me nuts particularly at night.

Do you think Lenire could also treat symptoms of vibrations/myoclonus of the eardrum? (Caused by muscles...)

@mermaid from my research palatal myoclonus is more common also if you research it (the ones I've found) are visible and it makes a clicking sound. That's very different from what I hear and feel. This is an example of palatal myoclonus Sent from my iPhone

I may be a bit late, but I recently read that stapedious myoclonus can cause clock-ticking like tinnitus. Maybe you want to read more about it?

There seems to be some neural communication both afferent and efferent between the brain and the organs in the ear. I think this explains why people like me also suffer from myoclonus in the middle ear muscles.

Im loocking for a middle ear myoclonus specialist

Feel sadness yes - but no responsibility. Your suggestions were kindly meant and could have had no influence on this tragic outcome.

...one ear, and hyperacusis in both ears. I have come to realize that imo, I never had loud standard subjective tinnitus; I have only had the myoclonus/objective tinnitus. I did get a distant helicopter rumbling as the myoclonus caused the eardrum to rumble. My hyperacusis comes back in tadem...

It could be some sort of middle ear myoclonus if you have hyperacusis.

...also takes time, so patience is key. I would advise against reading too much online about tinnitus, especially conditions like middle ear myoclonus (MEM) or tonic tensor tympani syndrome (TTTS), which you may not have. Self-diagnosis can lead to unnecessary stress, as I mentioned earlier...

Well, there's not much info about it. Neither patients or doctors knows much about hyperacusis, TTS etc at the moment. There is this thread about Botox for middle ear myoclonus: https://www.tinnitustalk.com/threads/middle-ear-myoclonus-a-treatable-cause-of-objective-tinnitus.4096/

Apparently there is a study showing that Levetiracetam has been used to treat people suffering from middle ear myoclonus. It makes sense to me that it eliminated my TTTS... this is my 3rd day or so with absolutely no spasms.

Do you think that Palatal Myoclonus should be able to be treated? It doesn't make sense that nothing in the world can stop this from moving. Please keep us updated on your results.

What do you guys think about this being good for middle ear myoclonus issues? I have involuntarily rumbling of middle ear muscles from sounds, some internal sound autophony (not SCDS), TMJ nerve pain, single-sided facial nerve twitches around my ear and temple, and ear fullness. It's as if the...

It is completely random. And it is ever so quiet. Just a very soft click almost. No trigger than I can tell but my ear has been "popping" more than usual. It doesn't seem to fit the bill of myoclonus and feels more like a tube issue. It's terribly annoying.

anybody find anything that has helped the myoclonus? It's driving me nuts and I can barely do life.

hi are you moshe mitrani, the user in the middle ear myoclonus thread?

i have this too, it s from sounds, it much more at the mornings whene i weak up. i sure this is not myoclonus

Yes maybe I have stapedial myoclonus and not TTS then. But I think I have mild TTS also, it's the sound that resembles a flapping flag.

Mike I have the same generator noise and vibration through the whole head:( Is yours constant and how do you cope?

So I have been put on Clonazepam for the palatal myoclonus that started last month. The tinnitus is not spiking (knock wood).

...setting and the voice being directed towards the ear, or else there is no fluttering. It's really distressing and feels like the ear is gonna burst or something. My guess is that this is TTTS (not Middle Ear Myoclonus). I can plug this very ear to stop that fluttering, not the other one, though.

Definitely sounds like Tonic Tensor Tympani Syndrome/myoclonus. I agree with @Cal18

Please see this thread: This is middle ear myoclonus and I experience the exact same symptoms after burping. Although it sounds like you just get a thump and it doesn't turn into a series of thumps every few seconds the way some of us do...

I got full on middle ear myoclonus two hours after the first Amoxicillin pill. I am going insane, why is this happening?

Hello! I hope someone is still active here. I might have Stapedial Myoclonus. I have a few links below, and I hope that someone can read them in detail and tell me if it is indeed Stapedial Myoclonus...

@ridgew how long have you had myoclonus? Is yours 24/7?

Happy new year everyone. :) Two days ago I had an MRI scan because of my palatal myoclonus. The machine was Magnetom Skyra 3T which SAYS it has the Quiet Suite feature, but I didn't feel it at all. Now I'm feeling needle like pain in my ear and I'm trying to not freak out. My tinnitus hasn't...

...of tinnitus. But of course has a completely different etiology than the "eeeeeeeeee" T. I heard that clicking can be cause by ETD (Eustachian tubes dysfunction), tympanic myoclonus, as well as soft palate myoclonus, which are other neurological problems than neurons hyperactivity, of course.

Middle ear myoclonus is clicking tho isnt it? The videos I saw of that are not even close to low humming.

@felinefine - do you experience fluttering of your eardrum or middle ear myoclonus?

It might be your stapedius (over)contracting, which is a type of middle ear myoclonus. The role of the stapedius is to dampen loud sounds via contraction (tympanic reflex). For some reason yet to be understood the loudness threshold is lowered in some people, and this causes the stapedius to...