Search results for query: Myoclonus

@Backpacker, yes, it was gone after an ENT gave me Nasonex. I had eustachian tube dysfunction. However, this April I developed palatal myoclonus, which causes clicking in my ears. So that's why I have problems with tinnitus again.

...improved and finally went away. Now I am even able to listen to the music on headphones without feeling any discomfort. What caused your myoclonus? In my case it was an acoustic shock, I think so. My interlocutor screamed very loud into my ear during our mobile phone conversation and since...

I had e-consultation with Dr. Bance. He is very kind, patient, good listener. Even if your myoclonus or TTTS thumping is not evident by diagnostic measures (otoscope, objectively listening, or tympanogram)-- If the symptoms match -- he would be comfortable operating. He's had 12 surgeries and...

@Danny Boy i don't know if trobalt can help it and there are many causes for pulsatile tinnitus mine is objective caused by middle ear myoclonus.

Because he's trying to make sure it's not pulsatile tinnitus or middle ear myoclonus, which isn't technically real tinnitus.

So I have to take Haloperidol along with Tizanidine for palatal myoclonus. But having past experiences with antipsychotics, I'm afraid to take the Haldol (active ingredient Haloperidol). Has anyone here taken Haloperidol, and does it cause spike in your tinnitus? Thank you. :)

So I have been prescribed Oxcarbazepine for my palatal myoclonus, and I'd like to know if it's ototoxic. Google search doesn't suggest so, but I was wondering if anyone here has taken Trileptal and if it has affected their tinnitus. Thank you.

I've been on clonazepam for 23 yrs to treat generalized myoclonus. While it allows me to function daily without constant movement I can attest that it does nothing for my tinnitus.

Hello. I have middle ear myoclonus and live between London and Sydney. Has anyone had a tenotomy of the tensor tympani and/or stapedius muscles in either city and can please mention the surgeon? Thank you!

@Street Spirit i have middle ear myoclonus and is not induced by noise, it drives me nuts spasming away for hours sometimes days. Have you tried any treatments?

I was in another clinical trial. Just go to this page and call or email them. That's how I contacted mine and did a phone interview first. Go here to the bottom of the page for the phone numbers and email: https://clinicaltrials.gov/ct2/show/NCT03511807

Middle Ear Myoclonus are symptoms presumably caused by the dysfunctional movement of either of the two muscles that insert in the middle ear: tensor tympani and stapedius.

Yes, it can.

I did not know this; this is helpful/comforting.

May I ask what you hear? Is it bilateral or unilateral? Have you been examined for MEM/palatal myoclonus? They mainly cause clicking, popping, thudding, but maybe your on and off sound could be atypical MEM? I'm asking because if it's actually MEM, you could try muscle relaxants, Botox and...

Have you tried muscle relaxers?? It will go away... give it some time.

It didn't. I went to a different neurologist and she prescribed Etifoxine. I hope it helps. Thank you for asking @annV. Hope you are well. :)

I have stapedial myoclonus and it feels like a bug is in my ear and then my ear feels warm and wet. The sound it makes it's more like a tick sound.

I have one, yeah; I recently started using it again. I don't know if my myoclonus problem is in the brain or some peripheral nerve, so we'll see if I get any results.

...symptoms. But I also have a very strong feeling of pressure in ears which I suspect is some kind of pathology in muscles as well, probably myoclonus itself. The feeling of pressure I have 24/7 and it's stronger in one ear than another, and it travels between the ears in response to the noise...

How I can know if I have palatal myoclonus or stapedium myocloni. I haven't the palatal myocloni of this vídeo (youtubbe). I feel a mosquito=fly=butterfly. Which doctor know about it? thanks

Three possibilities that I know of and none are about arteries / pulsatile tinnitus. 1. Middle Ear Myoclonus (MEM). The thump or heartbeat is sound reverberating. 2. Mastoid bone acts like an air cushion and provides ventilation to the ear. Need to have a middle ear infection slowing...

I have middle ear myoclonus and it feels like thumping in the ear but doesn't go with the heartbeat. The only way I stop mine is by putting my finger in my ear.

You don't have recruitment from the info you have supplied Differential diagnosis likely to be Eustachian tube dysfunction or middle ear myoclonus where the stapedial or tensor tympani muscles are twitching - most likely the stapedial given the rumble

As a follow up, my sound is more like a "click" or "pop" sometimes it's associated with an ear pop. Am I correct that myoclonus presents as more of a "thump" than a click?

I have palatal myoclonus among so many other oral problems caused from one dental visit. I can't use clonazepam as it interferes with other health conditions. I read all your links @Lane above before and I can remember each picture so clearly.

Hi, as someone going through something similar (suspected Stapedial Myoclonus), may I know how you got TTTS? How long has it been, and how have you been coping?

Search for my posts in the Pulsatile Tinnitus category and you will find lots of information on my MEM experience.

...hear some vibration in the roof of my mouth and back of throat. When this happens I will get some ear vibration. This is probably palatial myoclonus. Sometimes I also can hear my thyroid vibrate, but no feeling of irregular blood flow within my vertebral artery and jugular vein which was...

...The stapedius muscle when overactive, causes a high-pitched "tick" sound. See the tinnitus page for more detail about stapedius muscle myoclonus. Sounds that the auditory nerve can make is a thump, typewriter sound and Morse code. Blocking the ear canal with plugs usually will not stop...

Seems to me that the definition of hyperacusis alternates between outright loudness and searing frequency shifts, sometimes with blending of the two. I think that physical pain occurs when myoclonus comes along for the ride.

...my both ears, and it can last from a few minutes to several hours. It's painful and worsens my hyperacusis. I've been told it's middle ear myoclonus but they don't know any good treatment for it in Finland. Muscle relaxant are usually ineffective. My ENT mentioned something about Botox...

...of your struggles because I deal with the same problem or at least similar. I had surgery at OHSU in Portland Oregon for middle ear myoclonus on my left side in November of 2018, just 4 months after having my second daughter. I had been dealing with the myoclonus on a limited basis for a...

I also have ear myoclonus and I find it way more annoying than my high pitched T.. probably because the muscle spasms are so rapid and hurt my ears, and worsen my hyperacusis. At first they didn't last more than an hour or so, but now I have them almost all the time.. I've had pulsatile tinnitus...

...opinion is this low drone, at least for some, and particularly for those that can stop it by plugging their ear, is that this is middle ear myoclonus - i.e. the tensor tympani or the stapedius muscle in spasm. Particularly if it stops and starts. More so if there is a feeling as well as a...

Tinnitus caused by otosclerosis, or by middle ear myoclonus, just to name 2 of the middle ear conditions that can cause T.

Yes, Nasonex helped me. It doesn't matter now, since my GP fucked it all up by causing me palatal myoclonus (from Amoxicillin).

The study (66) Liu HB, Fan JP, LIN SZ, Zhao SW, Lin Z. Botox transient treatment of tinnitus due to stapedius myoclonus: case report. Clin Neurol Neurosurg 2011;113:57-8

Some type of myoclonus? Probably stapedial? You can look it up how it sounds and maybe you have something similar.

So sorry to hear you are going through all this. Apart from the hearing loss, which it sounds like they are attributing to the COVID-19 booster, what is causing the other issues (myoclonus, ETD, retracted ear drums) and are you being treated?

...He also apparently checks for an excessively mobile stapes according to recent reports on facebook. The nervous system can be peripheral. Myoclonus can be from damage to the peripheral system. It can be from otitis, it can be because the eustachian tube is injured, it can be because the jaw...

Hello everyone, hope you are doing well. So it's been a tough year for me. A few months after my tinnitus was gone, I got palatal myoclonus (in April), presumably because of amoxicillin, but it is still unclear and it hasn't stopped. The thing is, when my palate moves of course the ears spasm...

So today I don't have tinnitus problems, but I am worried that the myoclonus is not slowed down by the medication. Maybe it's too soon to see the effects.

No idea. I guess it couldn't hurt though.

I know how you feel. I'm struggling too, a lot. My ear myoclonus is so severe today. :( Don't give up!!!!

My ear aches from time to time with the (suspected) Middle Ear Myoclonus that I have. Sometimes it feels like the ear canal, sometimes it feels like something past the eardrum (Eustachian Tube, Stapedius, etc. I'm not even sure). Is there anything that this could point to?

Yes. TTS and/or stapedius myoclonus, hyperacusis, tinnitus etc can all be symptoms of ASD (Acoustic Shock Disorder). http://www.hyperacusis.net/other-factors/acoustic-shock-disorder/

@mermaid I wish I knew the answer to this as I feel like I can also control the movement of the muscles in my middle ear. I never had this before until the myoclonus started.

What is going on with your hearing? I know how you feel because I've felt that too. It is no fun feeling hopeless. My myoclonus came back a little bit last night and I started feeling hopeless. Luckily my heart at least kept beating right. I always try to look on the bright side.

@walkthroughwalls are you still having this problem? I have stapedial myoclonus and I tried one muscle relaxant flexeril and it didn't help. I am currently taking magnesium and that seems to help a little bit.

I haven’t had the surgery but Gerald Brookes is a London based surgeon with the relevant expertise. If you Google his name together with ‘myoclonus’, you should find some links. In my case, low doses of rivotril combined with stress reduction eventually resolved the issue.

Hey so update. I'm getting botox at the end of the month, and then I'm getting an MRI because the Dr I saw is worried my myoclonus is caused by brain tumors. I don't have any new information about working treatments, I'm just scared. I've been scratching the base of my skull until it bleeds...

Well, I can say that being cardioverted doesn't affect stapedial myoclonus. At least not within the first 6 hours after. My tinnitus in the left ear, where I have had the myoclonus, is a little bit worse. Once again I had to go to the ER and get defibrillated to get my heart back in rhythm. I...

I've been diagnosed with middle ear myoclonus, but I suspect I have Eustachian tube issues as well. This has been going on for roughly 6 months. The ENT who diagnosed me with it never even scoped me, and while they did a tympanogram that came back normal you can still have Eustachian Tube...

...message meant to say ''In addition there are recent reports of sound sensitivity cured through tenotomy by Sismanis before he retired WITHOUT the classical myoclonus proof on the eardrum or a tympanogram'' On and thanks a lot for introducing grommets and for your very interesting website ''

The clicking and popping sound you describe @Clerkp is sometimes linked to noise induced tinnitus. I am saying sometimes not definitely. If it is associated with noise trauma it will eventually go away. I know it can be annoying. Continue using low level sound enrichment. Michael

@Ornitoring how long have you had the myoclonus? Mine is going on 9 months and it's finally getting a little better....I wouldn't do the surgery just yet do your research for me the risk aren't worth it.

Wether it cures tinnitus or not I don't know, however magnesium was the only thing that helped (a little bit) with my middle ear myoclonus, so I wouldn't write it off completely not to mention is a mineral that we need.

@Lucy B i feel a twitch which makes a click sound that when I put my finger in my ear it goes away. I was diagnosed with stapedial myoclonus. Was your tapping 24/7? Mine comes and goes.

...implies both things. Supersmooth doesn't seem to talk so much about sensibility but about sound-independent thumps. The biggest study on myoclonus is made by a bunch of south koreans, and they seem to possibly be treating both kinds. And I'm quite sure Lib and JoeM had both kinds. And I...