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My audiologist's opinion is that ENTs should refrain from trying to treat tinnitus as much as possible. Since messing about with your ears may just make things worse.

I have been reading up on this thread https://www.tinnitustalk.com/threads/acoustic-cr%C2%AE-neuromodulation-do-it-yourself-guide.1469/page-9 and thought I would test it. However, I'm having trouble pinpointing my tinnitus frequency. How do you know when you hit the right one? Is it when the...

This may sound cynical but the fact is that we live too long these days. We have access to good health care and many diseases that used to be deadly are now cured. All good things of course, but it also means that we may be alive longer than our bodies are really capable to. In hospitals people...

I'm really, really surprised that so many of you seem to think that this shouldn't have been posted here at all. I come here for information, a chance to talk about my tinnitus with people who understand it and yes, support. If information that is uncomfortable were to be excluded, what would...

I don't think that this is the rule at all. I think it is much more common that it gets better and stays that way. We must remember that most people use forums like these when their symptom is bad, when it gets better they usually won't stick around. They have better things to do. So it's only...

I asked about a muscle relaxant, but the ENT didn't think they'd help. I'm very naughty right now, I have some very old Norflex in my cupboard, and I've started taking them. The expiry date is long past, but there must be some strength left in them. Worth trying anyway.

This is a good question but difficult to answer. I think it depends. When I first got tinnitus all the feedback I got was that it will get better. If I had the slightest idea that it could get as bad as it is now, would I have wanted to know that? I don't think that would have been helpful...

Yes, please tell! If it's good I might want to go there myself. Norway is not so far after all.

I doubt whether they would even let me into the emergency room if I tell them I have tinnitus.

The ENT I'm seeing is a private specialist, but we have a kind of mixed system here so she works under contract with the national health system. We used to have a great medical system in Sweden, but politics and economics have changed that. The money seems to go to administrators, consultants...

It's very hard to get to see a specialist here in Sweden, most don't accept new patients. The ear clinic at my local hospital has a waiting time of 1 year, if you can get a referral at all. There used to be a tinnitus team there, with access to medical expertise, audiologists and therapists...

I know my eardrum is supposed to be healing from having a ventilation tube removed. But that was 2 weeks ago and the symptoms are just getting worse and worse. It feels like my eardrum is turning into a tight, numb, vibrating lump. It's so tense and the tinnitus sound is getting louder and...

It's a shame the posting of this article has generated more of a discussion of whether/where it should have been posted instead of the more profound issues it raises. I see the point about the Support forum, but it doesn't really fit in one of the other sub forums either. I absolutely think it...

Since many people on this board like me suffer from a feeling of pressure, fullness in the ear, as well as tinnitus, I thought some of you might be interested in my experience of having a ventilation tube in my ear to try and alleviate this condition. This is only my personal experience...

Sometimes my tinnitus would get louder right after the massage, but after about half an hour or so it would calm down to a slighter lower volume. I think it mainly helped in easing tensions round the neck and face which also eased the tinnitus slightly.

I used to go to somebody who specialised in tinnitus massage. She basically concentrated on neck, shoulders, face and head, as well as the back. She was good, and can you find someone who has experience in treating tinnitus patients that's a good idea. I don't think you need to look for...

It's my belief that apart from the appx 4-5% of tinnitus cases where an underlying cause can be definitely diagnosed and treated, all other suggested causes are theories. Damaged hair cells is one of them which has been widely accepted since hearing loss and tinnitus often appear together. It's...

Huge fan of the books and very annoyed with the TV series. Even so, I will faithfully watch each episode, and then rant on about everything that's wrong with it. I have heard that true to form, in the new season the script writers have continued to set important scenes in brothels to satisfy the...

I've also downloaded a couple of things like that, self-hypnosis, meditations etc. They usually make me fall asleep, which I suppose is not bad. If they give you the creeps, perhaps you should skip them for the moment at least. It may be too early for you. How about seeing a therapist? My...

Hi @Nick the Swede, fellow Swede here! First of all, judging by your description I believe the chances that your tinnitus will get considerably better are really good. I find exercising really helpful, for my mental health. Yoga is the best, but maybe that's not for you? My T doesn't spike after...

Since we are all different, and experience our tinnitus differently, I think you just need to try and see how it works. I have had a Widex Zen for a couple of weeks now, as a hearing/masking aid. I wouldn't normally need a hearing aid, but because of the tinnitus my audiologist thinks amplifying...

@MattK , funnily enough I too am now seeing an audiologist who is really good. Specialized in hearing loss and tinnitus, and he's explained more about my ear than my ENT. Just the fact that we can sit down for more than an hour and talk things through means a lot.

That is really quite funny. I especially like the "murmur of a thousand forgotten souls quietly lamenting past sorrows" bit. :LOL:

When I first got tinnitus, I thought that if I could just describe the sound and the feeling correctly to a specialist, they would say: Oh, that's .... And treat it. It took a while before I understood that nobody cares about your specific symptoms. "It's tinnitus, you could try a bit of this or...

I did read somewhere that in the USA tinnitus is more often diagnosed in white people, but there may be several reasons for that. I think the general view is that the prevalence worldwide is basically the same, Dr Jastreboff actually estimates that 17% of the world's population suffer from it...

Well, I don't know about the Chinese, but having spent some time in Japan I can tell you they sell quite a few over the counter "remedies" for tinnitus there. My daughter bought me something called Naripitan, which did nothing for my tinnitus but made me very drowsy. From what I understand the...

@Eric N , that track is perfect for me too, I think that's the first time I've come across somebody with the same kind of very low pitched sound. I use the sound of a jet engine, low, on a loop: https://ccrma.stanford.edu/~dattorro/Tin/tin.html. I have always tried to explain my tinnitus sound...

I would say that the sound in the sleepphones is better than in the in ear type ear phones, but not as good as proper ear phones. At least for me, I have trouble with in ear phones anyway, they never fit properly. And these are more comfortable.

I've got the Zen for a couple of weeks now. It doesn't work so well for me, the sounds are calming but too subtle for my tinnitus. My brain seems to turn down the zen sounds and turn up the tinnitus sound. I need a much deeper and lower pitched masking sound, it took me a while to find the noise...

Have you tried lymphatic massage? It's something you can easily do yourself, there are some good videos on Youtube. I found these quite helpful: It's easy and it's free, so well worth a try!

I had a tube put in about 5 weeks ago. I did not have fluid behind my ear drum, but a feeling of fullness, blocked ear and difficulty equalizing pressure. My ENT said the tube might help. Well, it hasn't, instead the feeling of pressure has increased and so has the sound of my tinnitus. My ears...

The general rule is not to cut short an antibiotics treatment, unless you react adversely to it. I wouldn't stop without talking to the ENT about it first.

I think keeping the nasal cavities as clear as possible is a good thing, so using a saline spray can't be bad. However, I think you should be careful not to overdo it and force water in the back of your nose. If you get water into the eustachian tubes it may go in your middle ear and make...

My husband gets that it's difficult for me, but since he has always worked in a noisy environment, at home he wants quiet. I can't stand quiet and want the radio, music or other sounds around me. I turn the TV sound up and he turns it down. Sometimes I turn on the fan in the oven while I'm in...

While I wouldn't discourage anyone to try something, I would be careful with ear candling. The general view is that it is at best useless, at worst dangerous. Institutions like Health Canada and the FDA in the USA are discouraging the use and have issued warnings. Sometimes they are said to be...

What if they made a movie where the main character had tinnitus and the movie was shot from his/her perspective and during the whole movie you would hear the sound he/she heard. Trouble is, the audience would most likely leave before the end!

That reminds me, when I first got tinnitus, at night I used to listen to the sound of waves rolling on a beach, including some sea gulls. I had the idea of a thriller about somebody with tinnitus who listened to these kind of sounds and suddenly thought she could hear other weird things, like...

citigirl13: It definitely sounds to me as if your T is mainly caused by your cold and the pressure in your ears. It is very likely it will go away when the pressure eases. It may take time before that happens, if you still feel the pressure after a couple of weeks I should go back to the doctor...

Since I'm feeling a bit better today, I thought I would be positive and post some things I've found helpful in dealing with my tinnitus. Sorry, no cures, I don't know any of those, just things that make me feel better. 1. Working out. I try to do a training program most days. I'm no health...

Kenji, it seems to me that's a rather sweeping and inaccurate article. This for instance: "You can consult your doctor and he will tell you the exact cause of tinnitus". I have been told by my ENT that my tinnitus is idiomathic, that is: "a disease or condition the cause of which is not known...

Is it worth trying? I see you can get it from iHerb, though it doesn't say for tinnitus. Can also be used to make mochi, I love mochi!:)

I feel for you amm12, it is so hard when you suddenly find this weird sound in your ears. I see that you are having anxiety issues and that is definitely a factor. You don't need to be terrified, it will get better. I am not in the USA so I don't know about hot lines, but you could try to find a...

Good job Nina, with the meds. But yeah, you need to go careful with the cutting down so probably a good idea to go slow. As for the breathing thing, it's usually due to when you're anxious (you might not even notice that you are) you tense up, your shoulders tense and your breathing gets shallow...

Oh Nina, I really feel for you! I can tell you that my tinnitus did get better after about a year, not just through habituation. I don't know why, whether it was regular massages, acupuncture or perhaps that I had like a gun shot go off in my ear when I took a long haul flight which might have...

The first I heard of it I think was in the 1980's when a woman here in Sweden who called herself Tinnitussan wrote about her tinnitus and there was quite a bit about it in the papers. She used to hang big balls of wrapped up paper on her ears to try and mask it. Guess there weren't so many other...

I have a lot of problems with blockages and pressure in my ears, but I find that when I exercise I often can pop my ears open a bit. I did think that had something to do with increased circulation. What you say, Glen, about the lymphatic system is interesting. I do lympathic massage of my ears...

Thanks for your support! It really means a lot. :thankyousign:

Been feeling better for a few days, fairly low T and the hyperacusis almost gone. I was actually starting to feel hopeful that this would be a turning point. But no, here it goes again. My ears close up, the tinnitus sound and my anxiety go through the roof. I spend so much time on my ears...

Thanks for this post, video and link. I would definitely recommend yoga, it's good for both body and soul. Haven't done plough in a while, but will now. Lately I've also started doing yoga breathing, it's rather boring but I think it's worthwhile. Though the bhramari pranayama breathing (where...

Neenie, you are not going to die. You are having panic attacks that affect your breathing, just as you yourself know. Have you tried breathing into a paper bag? Or try square breathing: Breathe in for 3 seconds. Hold your breath for 3 seconds. Breathe out for 3 seconds. Hold your breath for 3...

Neenie, I can't tell you how much I empathise with you and your feelings. My first thought in the morning and my last at night are about my ears. Their state occupy my thoughts at least 95% of the time, it seems whatever I do a part of my mind is constantly observing and listening to what goes...

Thanks Carlos, for kind words and for the link. And you're right, anxiety is the worst enemy.

I know many of you like me suffer from pressure, blockage in the ear/ears along with the tinnitus. Possibly due to eustachian tube dysfunction. I don't have a diagnosis, but I'm having a lot of trouble lately with my bad ear blocking up and I feel a constant increasing pressure in it. And that...

Hello everyone! As somebody else here has said, writing this is a lot for your own sake, you need to talk about your affliction, but it is hard for others to understand how this condition can rule your life, and I don't want to burden my family too much with worries over me. So here is my story...