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  1. Rachel1018

    Weather Worsens Pulsatile Tinnitus?

    I had a middle fossa craniotomy because the millions of scans/images I had done all showed that I was missing a bone structure between my left ear and brain. They also found a hole in the outer layer of my brain during surgery causing a CSF leak so they patched that too (they said it was the...
  2. Rachel1018

    Weather Worsens Pulsatile Tinnitus?

    I had major surgery in December 2015 to resolve my pulsatile tinnitus and migraines. It worked for the most part, but the past week or so I have been hearing loud pulsations throughout the days. The last couple of days I have also had a constant headache. The weather here in Wisconsin has...
  3. Rachel1018

    Tired of Being a Mystery

    I agree, but doctors are always comparing results against numbers. I appear to be healthy with no concerns, yet I still have pulsatile tinnitus. Luckily, I only have to drive 2 hours to see my neurologist and ENT. But it seems like such a waste of money to keep having these appointments and...
  4. Rachel1018

    Tired of Being a Mystery

    I've also noticed that it seems worse after drinking alcohol or exercising, like when my heart rate is up or blood pressure is raised. But I've had all the testing done and they didn't find anything abnormal with the blood vessels near my ear
  5. Rachel1018

    Tired of Being a Mystery

    I've had it both ways. There are days when I can't seem to escape it and then there are days where I only hear it when I'm laying a certain way or change positions.
  6. Rachel1018

    Tired of Being a Mystery

    They will be monitoring it. If I start having bad headaches they will do more testing to make sure it's still at a normal level.
  7. Rachel1018

    Tired of Being a Mystery

    Yes, they did test me for that. I actually had a CSF leak that they fixed during my surgery. But my pressure level was normal when they did the lumbar puncture.
  8. Rachel1018

    Tired of Being a Mystery

    Hi, I am currently 24 years old. When I was 22 I started having pulsatile tinnitus in my left ear. I have seen 2 different ENTs and 4 neurologists in the last year and a half. I had an MRI, an MRA, an angiogram, 2 CT scans, and a lumbar puncture since all of this started. The first CT scan I had...