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  1. Piper the great

    Six and a Half Weeks Now

    When I went to to my first ENT, he said most clinics don't test in the high end, but he does....so I am taking what he was telling me.. I saw mine, really high end, totally deaf, but I hear speech and most other normal noises.... I heard about it from an interview with William Shatner, (Star...
  2. Piper the great

    Six and a Half Weeks Now

    I think we all have some hearing loss, mine is in the ultra high frequencies, some audiologist don't go super high when testing b/c hearing aids are useless in that range. You are still early and it could still go away... if it persist for more than 6 months, it could be a keeper... the...
  3. Piper the great

    Newbie :)

    WOW.. there seems to be an endless, senseless reasons to start the T, some similar, some not so much, but there must be some thing that is common, but that is the great mystery and probably why the cure/treatment is so hard to find. Hope yours goes away soon, I had the slight migraines, they...
  4. Piper the great

    I'm New Here — Any Advice Appreciated

    Since I got the T, (maybe had it forever who knows) but the people I met all said the same thing, in time you forget about it.... how can we forget about it, if we constantly remind ourselves we have it..... I stayed off website for a year to let me forget about it... lurking on these sites can...
  5. Piper the great

    How to Reduce Your Tinnitus

    It changed mine from 3 different types of perceived sound (hiss, ring, flutter/hiss) to one lower ring... Tinnitus is a brain issue, not an ear issue... the issue with the ear often cause the T, but my T isn't being perceived as a sound by my outer ear .. and sent to my auditory system its at...
  6. Piper the great

    I'm New Here — Any Advice Appreciated

    I think T is different to everyone, and what ever makes YOU feel better is a good thing... no Sleep and T goes nuts..... do what ever it takes to get a good night sleep, and also do anything to stop focusing on the T, it will fall back in your brain in time, habituation is different to...
  7. Piper the great

    How to Reduce Your Tinnitus

    There is no volume in Tinnitus.... just perception, and I agree Neuromonics is a business, but so are all the hospitals I have even been to, I really don't think anyone is willing to spend any of there hard earned money finding a treatment they don't need when you won't spend any money on the...
  8. Piper the great

    How to Reduce Your Tinnitus

    I think you can drop all of the thing you ingest, and stick with Neuromonics, (Sound Therapy) ... I did it, and my reaction change, since we don't hear a sound, I don't believe to say the volume dropped is accurate, but to say my reaction to the sound has changed is a better descriptor..... IMO
  9. Piper the great

    Just Another Day in Hawaii

    Get up to Alaska too....
  10. Piper the great

    Tinnitus Masking: In-Ear Maskers

    I read an interview with William Shatner, (Captain Kirk from Star Trek) he said he wore a white noise ear generator for 3 years, night and day to help habituate his T. He said in and interview with David Letterman, his T was very bad at first, now he don't notice it. Even David Letterman...
  11. Piper the great

    I Am Profoundly Cured

    Spontaneous habituation.... :)...
  12. Piper the great

    MDMA (a Component of Ecstacy) Potential for the Treatment of Tinnitus

    I think if the substance is prescribed and has been proven to provide some medical benefit, I think it would be allowed. My girl friend takes Morphine, Oxycodone, and a few others that have scrips monitored by the DEA, for pain. In short it would have to be proven to provide some medical...
  13. Piper the great

    Neuromonics

    I did the same thing and totally agree with you. We hope there will be a cure, but as I recall, when I started to lose my hair some 30 years ago, there was a CURE only 5 years away. Well now its a dead issue to me because I don't care, I guess I habituated to my hair loss..:)... but there are...
  14. Piper the great

    New to Tinnitus... And Going Crazy :(

    I don't think T has volume, in the same sense of a normal percussion wave our ears detect and turn into a sound, but I really think when we begin to habituate, our brain pays less attention to it, and is no longer afraid of it, and the volume, in a sense lowers, that is why I say, don't fret...
  15. Piper the great

    Nearly 2 Weeks In and Struggling

    In the beginning we are all wired to the point of exploding....mainly anxiety and lack of sleep, first order of business do what ever it takes to sleep, even get Xanax, its a psych drug....but it shuts the brain down at night and you sleep really good. All of your stress and anxiety feeds the...
  16. Piper the great

    This Is My Nightmare

    Mine uses ear plugs now, and likes them... wears them even when I am not home.. just an idea....:)
  17. Piper the great

    Curing Tinnitus ...

    Agreed, why be rude, it has no place here, when all we are trying to do is help ourselves and others. I waited a while before posting anything, but I know how hard the first few months/weeks were. :)
  18. Piper the great

    This Is My Nightmare

    Well, you know for SURE, you will live thru this one, but only you can decide is how well.....:)
  19. Piper the great

    Curing Tinnitus ...

    My own personal thoughts, is people with varying degrees, of depression, anxiety, and tolerance to change, don't handle T very well.... we seem to lock onto it, commiserate over it, and make it define us. When we realize, its just a simple thing, we can let go of it, and move on with our lives...
  20. Piper the great

    This Is My Nightmare

    O'h...P.S..... to my above post, the lady from work, we are both retiring and getting married.... so the T introduced me to her, in a sense..... funny huh, but when handed lemons, we have to do something with them...:)...
  21. Piper the great

    This Is My Nightmare

    All of us seem to have a similar story, with the exact same ending. I grew up thinking only women cry, until I sat on a couch crying and trying to determine which direction to blew my head off. I wasn't going to let this T ruin my life, but thank GOD I decided to go to bed with the TV on, a...
  22. Piper the great

    Several years now

    I hate to say it but it is always "5 years away"...:).... no matter how many years pass. the target date seems to be endless..not trying to be a downer.... just always seems to be right around the corner.. by then we should habituate.. I know I still have it but am starting to forget about it on...
  23. Piper the great

    Freaking Out... Tinnitus Changed Sound in Left Ear

    That happens, and no one is sure why, when mine started I had 3 different noises, pitches levels ect... now its kinds on weeeeeeessssshhhhaaaabeebbeeb..over and over and over, but I think our brain starts to diminish the sound or ignores it over time.. but don't freak.. it feeds it.. once and a...
  24. Piper the great

    I Don't Know Where to Begin...

    If you get your hearing tested, make sure they test the High End... most don't go that high, mine was normal.. but I found a ENT that went into the high end, and that is where I had hearing loss... and after an ear infection, I got the T... if you look for an ENT, try to find one that also...
  25. Piper the great

    MicroTransponder: Latest News and Research

    I think that is the way its going to be, the company Boston Scientific who has the implant for the pain said its good for 15 to 29 years... but its close to the skin if it needs to come out.. can't gain or loose to much weight....
  26. Piper the great

    MicroTransponder: Latest News and Research

    When did they ever say that..?.. maybe in the trials... there not even sure if they process is permanent.... it could only last for weeks or months......or be on going indefinitely.....
  27. Piper the great

    MicroTransponder: Latest News and Research

    My girl friend is getting a neuromodulation device put on her back for pain reasons... at first it hurt like hell.. but over the trial period it really helped... next they bury it in her back... it has its pros and cons... and the device is the size of an Oreo cookie... battery charges inside...
  28. Piper the great

    The Twilight Zone

    When I first got the T, I had to go to work and sit in meetings that were usually pretty quiet, well to everyone else, I had to sit there wringing my hands out, listening to the scream in my ear.. it took everything I had not to show the emotion going on in my head, I had to become the little...
  29. Piper the great

    The Twilight Zone

    Ya.. I think T is a journey... it changes you for sure... just hope it ends up making us stronger... there is always something waiting around the next corner, we just never know when...:)
  30. Piper the great

    The Twilight Zone

    So I am trying to get some sleep, the usual, two fans a blazing while I listen to my T scream me a serenade to sleep.... and I started to try to get a grip on my T and I remember as a child I use to watch Twilight Zone .. and I realized I had an episode of my own, this is what I came up with...
  31. Piper the great

    Habituate...

    I really think the key to habituation is just getting on with your life, and not giving the T any attention, its is there and will NEVER go away, but that's O.K..... because we won't let it ruin our lives..... as soon as we develop that conclusion, habituation is half way there... its funny we...
  32. Piper the great

    New to Tinnitus... And Going Crazy :(

    Hate to say it, but I developed mine in similar circumstance and felt the exact same way.... keep your hearing busy with soft music to just barely cover the T.... and get busy with living, do anything that make you happy... I mean anything.. and get some time between today and a year from now...
  33. Piper the great

    Hello

    Everyone has there own T journey..... and we all must take it on our own, but you can get help from friends and family, and us... so take it one day at a time and try to move on.... at first it will be the only thing you can think of, over time it seems to fade..... or you attention to it drops...
  34. Piper the great

    Hello

    I too was going through a stressful time, and I think after listening to a lot of people, and reading some post along with some T studies, I think stress can influence T in starting, but it needs a catalyst, like ear infection and so on....
  35. Piper the great

    Hi everyone

    Does it sound like you are hearing it.. or is it inside your brain...?.. like my sounds like its coming from my right ear...
  36. Piper the great

    Acoustic CR® Neuromodulation: a New Treatment for Tinnitus

    I did Neuromonics, and I think all of these devices do is get us to move closer to habituation.. but we can't do it if all we do is think about the T, stop thinking about it, it starts to fall back in your brain... I used the thing sooooo much they ask me to stop and move to normal sound.. but I...
  37. Piper the great

    SoundCure Serenade Tinnitus Treatment System

    Mine was the same thing.. but no flu, just blocked ear..(one)... and I got the T.. same thing w/the hearing, a slight dip... at the high end..... but I too worked factories, ect.... it happens.... I also had pulsating T.... OMG...OMG... and a Flutter..... when its all said and done, thank GOD I...
  38. Piper the great

    SoundCure Serenade Tinnitus Treatment System

    I fine certain high frequencies excite mine (T).... its like to is reacting to the noise.. the brain can still hear it at some level I guess and also starts firing more neuron's.... but there are times I have to walk away so it settles down.. maybe this is what you are experiencing... most of...
  39. Piper the great

    Will Working Out Lifting Weights Worsen Tinnitus?

    All I can say is it feeds on fear..... like that Star Trek creature that fed on salt...:).. Don't Fear the Reaper (or the T)... laugh have fun, I indulged my self in all the silliness I could.... figured what the hell right..:)
  40. Piper the great

    Will Working Out Lifting Weights Worsen Tinnitus?

    I did, and I swore it went away while I was doing it... but the mind was looking away and didn't care about the T.....
  41. Piper the great

    Hey all

    I seen a few doctors and they all seemed to think a year is the time we seem to keep it, until it habituates.... get you hearing tested, I have some high frequency hearing loss, and didn't even know it, they were reluctant to even give me a hearing aid, but I got one that plays fractal music to...
  42. Piper the great

    Will Working Out Lifting Weights Worsen Tinnitus?

    I would do, and did, get any break from the T you can.. a few minutes, seconds hours, days... it all starts to fall in place...
  43. Piper the great

    How Long Have Researchers Known That Tinnitus Might Be Caused by the Brain?

    We got 1 million vets who need treatment, and our VA pays out almost 1 billion a year.. this is where the money and research is going to come from.
  44. Piper the great

    How Long Have Researchers Known That Tinnitus Might Be Caused by the Brain?

    Habituation is the only cure.. maybe some day there will a treatment, and I hope there will be, but it always seems to be just 5 years away..?.. :)....
  45. Piper the great

    Tinnitus Retraining Therapy

    I think these forums have people who have yet comes to terms with their T. B/C there are millions and millions of people world wide who have, and don't feel a need to come to these forums.. just a thought of mine..:)
  46. Piper the great

    Time and Hope

    That is where we are heading, free substandard health care for ALL....
  47. Piper the great

    Time and Hope

    Ya.. we are trying to do the same thing here... everyone thinks your health care is the greatest thing... I think they will regret it later...
  48. Piper the great

    SoundCure Serenade Tinnitus Treatment System

    Well I think it is difficult to measure a fake noise... which can be exaggerated by lack of sleep, anxiety and so on.. at best we can give an approximation.... to another real sound... I can make my left ear ring by extending my jaw.... and it always rings at the same level, I use that as a base...
  49. Piper the great

    Time and Hope

    Can't you determine what Dr. you get to see..?
  50. Piper the great

    Donkey Milk

    Pass on the Giraffe Piss... shaken not stirred....:)
  51. Piper the great

    Tinnitus. The new silence.

    I listen to mine like I use to the fan at night..... it is harder to hear certain sounds, usually low ones, but what else can we do.. if you don't come to terms with it, you will just live a long an miserable life.... I guess everyone has to carry some unwanted load..... this maybe ours..?...
  52. Piper the great

    New to Tinnitus

    The Hearing Aid I have plays fractal tones all the time , low level so you never sit in silence...
  53. Piper the great

    New to Tinnitus

    Definitely get your hearing tested, the more sound you can introduce to your T the better, I too loved my quiet times, but now the T just lets me know I am still alive..... but I too am in a better spot, TIME heals all wounds...:)..
  54. Piper the great

    me too ;-(

    A lot of us have had the same thoughts, even if it was for only a few seconds, and usually after we hear its incurable, but it is so common we learn to adjust and our brains seems to filter it out.. just takes a lot of time. I would suggest having your hearing tested and go from there, and use...
  55. Piper the great

    Hi

    Mine came on after an ear infection, but I had my hearing tested and I have a big dip in the High Frequency end. The ear infection kinda activated the T in the bad ear.... I would bet if you had a audiologist test the very high end you may have a drop, or loss.... it seems very common to have...
  56. Piper the great

    Orchestrating Silence for Patients with Pulsatile Tinnitus

    When my T started I had PT, a RING, two hisses, and a Flutter..... OMG.. it was hell. it finally went to a low hiss and ring, but I am telling you, PT and the Flutter was the worst.... I am only saying this to separate the PT and flutter from the rest, it comes back once and a while, and I PRAY...
  57. Piper the great

    Neuromonics

    I paid the money and did the treatment, its not only the device you pay for but the audiologist time and time in the booth.. the device is 3500 dollars anything else goes to the clinic. I got benefit out of it, I tried other sound devices and didn't like it. I think it speeds habituation...
  58. Piper the great

    Collective Mass Suicide

    Oh, O.K... but ya... we seem to forget how lucky we really are.. maybe it helps get on with life after we grieve a death... all I know T was a wake up call for me...:)
  59. Piper the great

    Collective Mass Suicide

    I am 48, and just retired ... so I will pay some taxes but the system is designed to go after the wealth or working middle class..:).... but I agree in human nature two weeks after silence and we will forget, well I think I will always remember, the time I was so close to ending it all... it...
  60. Piper the great

    Collective Mass Suicide

    Thanks I thought I was past middle age...:).. here in Texas we climb bell towers with high power rifles to get the worlds attention, but I know that isn't the answer.... and T will definitely make you a stronger person, all I want to know is what will we all do when its silenced..?.. will we...