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Hi DeanD, Have you found a speakerphone that works for you?

Has anyone had their physician request compassionate use for BHV-7000? I assume only people in the US can do this.

Unfortunately, I cannot contribute with any suggestions. After doing some research on the supplements listed in the document, I have a few questions. 800 mg dose of CoQ10 sounds like a lot. The usual seems to be around 100-300 mg a day. Is it really safe with such a high dose? Do you have a...

Nice work. I still haven't tried any supplements/medications for my noxacusis. I am very skeptical about using medications because of possible negative effects on tinnitus. Do you think any of these have helped you?

Probably. I don't know how to avoid it.

Hi, Thanks for checking in. So sorry to hear you also suffer from TTTS and hyperacusis. 157 dB sounds incredibly loud. Unfortunately, my condition has not improved. I live quietly and wear earmuffs most of my waking hours. but I also don't live alone, so it's not possible to avoid all noise. I...

So glad to hear about your great improvement with this condition. Sounds almost too good to be true. Thanks for sharing your success!

Glad to hear that CBT is helping you. That gives me some hope. Could you please elaborate on how you think CBT has helped you? Less anxiety? Easier to handle the pain? Or has the pain even gotten better as a result of CBT? I'm curious.

I appreciate your reply. Congratulations on finding a way to live with this horrible condition. The thing is, in the beginning with this condition, I had this approach. I told myself that noise is not harmful and what you can read on the internet about hyperacusis is that you should expose...

Yes. I have delayed pain. I agree with everything you said. I think it's impossible for a normal person to imagine what it's like to live with this condition. It really is hell on earth. I haven't ruled out that sound therapy can help, but when you even feel pain in silence, I doubt it helps...

How many of you with moderate/severe noxacusis have TTTS? I have noticed that when my TTTS is worse, I experience more of one type of pain (I have 3-4 different types of pain). The pain could simply be because I was exposed to too loud noise (in the sense that TTTS has nothing to do with the...

I'm so sorry to hear it's worse again. I think we have to accept that there will be a lot of ups and downs with this condition and some days will mean more pain than others :( I would also be worried if I were to move in a loud area. Hopefully, your family can help you with most of the work...

I am glad to hear that your condition has improved. That gives me some hope. I will take your advice and listen to my body.

Could not say it better myself. We know far too little about this condition.

I am glad to hear that your condition has improved. Well, I don't know about your situation but I'm sure that my pain is caused by noise because I can feel the stabbing pain in my ear as I hear noise, and then there's a delayed burning pain. I've had severe noxacusis since January. I tried to...

Update after my ENT visit: It went as expected. This is what the ENT told me: My hearing test showed no hearing loss. There is no drug that can help with my pain. Everyday sounds are no more harmful to me than a normal person. Using hearing protection will only make my condition worse. I will...

So sorry to hear about the morse code. I hope it gets better with time. I've also got a tone back that I haven't had for a long time. Sounds like a good idea to add one thing at a time. Then you hopefully know what works and what doesn't. Glad to hear the pain hasn't gotten worse for you...

@yeezysqueezy, how are you doing? Any improvements with the supplements you've been taking?

How much ginger are we talking about?

Hi @Brian Newman, I asked if it is possible to skip the hearing test, but according to the ENTs, it is necessary for me to perform a hearing test. How much do you think a hearing test could hurt me in this situation?

Thanks for your reply. Feels good to know I'm not alone with this condition. I really hope for an improvement over time. I would be happy if I can just leave the house with earplugs without pain and to be able to talk without pain. When I have my earmuffs on, I slide on the floor rather than...

@Brian Newman, thanks for your reply. I'm sorry to hear about your situation. I agree with you, this is one of the worst conditions you could ever get. I've been thinking about trying to avoid the hearing test, but can a visit to the ENT really be that dangerous? I have lived in the hope that...

I'm in a similar situation as you. I suffer with you. Hoping for a miracle.

Hi, I recently developed severe noxacusis. Looking for support and advice. Here is my story: For about 10 years, I have had problems with crackling in my ears when I swallow or yawn. Every time I swallow or yawn, my ears crackle. In November 2018, I woke up one day with tinnitus after...

How long does it take for you before it goes away? If it does. I have seen a slight improvement now, but it took about 3 years for it to go away completely last time...

I have also read something about that. But it really is the last way out.

Hi, I have had tinnitus and hyperacusis for 4 years. During the first year of tinnitus I also developed problems with my eardrums vibrating when I heard sounds. Especially certain sounds (e.g., paper crumpling, running water in the sink/shower). If I were in a quiet room I could only hear the...

I suffer with you. If you ever find anything that might help please send me a message.

@Contrast Maybe I should have been a little clearer. He also inspected my ear and saw that the ear was infected and I got antibiotics. I've heard of hidden hearing loss but not the thing you mentioned with amplification. Do you think it's possible for my ear to recover to the level of...

Hello. I'm been sneaking around on this forum for some time but this will be my first post. I'm not a native English speaker to begin with. So I've been suffering from tinnitus and mild hyperacusis for about 8 1/2 months now. I've also had crackling ears when swallowing and yawning for maybe...