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2000 people.

Thank you all. Neuromod says that I am the only one to have symptoms of trigeminal neuralgia of the 2,000 people who have used Lenire to date. The medical chief doesn't understand why I have this. I don't know what happened to me. Surely a bad combination of circumstances between my infection...

Antiepileptic (Gabapantin)... very strong med with a lot of side effects. And does not help everyone. I don't want to take it at all. My neuralgia is new. I want to cure myself by natural way (Auricular therapy, acupuncture, Chinese herbs...) Besides all this, I have not followed the latest...

Trigeminal neuralgia is 100% worse than tinnitus... After my 6 days of Lenire, It felt like my tinnitus was less intrusive... I think Lenire can provide good results for my tinnitus... so frustrating to have my device in front of me without being able to use it for the moment.

No I didn't have any dental work on that side... What happened is a mystery... I have the symptoms on the 3 branches of the trigeminal nerve. That means that it is the source of the ganglion that is overexcited... according to me, by the tongue stimulation (most people with trigeminal neuralgia...

When I returned to France after my stay in Dublin where I picked up Lenire, I got a very bad cold / sinusitis. I used Lenirefor 6 days while I started to catch this cold... I was so happy to begin Lenire! Then my terrible symptoms of trigeminal neuralgia started. Caroline of Neuromod told me...

Hello everyone, @Kam75 talks about me. I had to stop Lenire after using it for 6 days. I am so sad. I really don't know what happened to me... After 6 days of using Lenire in December, I triggered a sharp pain in the external pavilion of my left ear and gradually the pain spread throughout...

Does anyone know about the side effects of using Lenire? Could you send me the list please?

I have had a huge cold for 3 days... (probably due to the storm that there was on the day of my appointment in Ireland ...) It is bad with my start of Lenire treatment! I still continue my sessions normally in the morning and evening, I am 5 days in and I hope it works anyway... Someone here...

Hello everyone! I'm back home with my Lenire device. Months and months of waiting and I’m finally able to start the treatment! I did three one-hour sessions in a row these last 3 days but tomorrow I will do 30 minutes in the morning and 30 minutes in the evening at the same time each day...

I’m in Dublin Center, O’Connell street. Holiday Inn Express 110 euros/night. Very nice and comfortable room. Then I’ll take bus to the Hermitage Clinic (25 minutes from the center).

Hi from Dublin... I pick up my device tomorrow... Hope it will give results!

Yes, 13 months and no hearing loss. But he will explain himself later.

I’m actually talking to a person who Lenire works very very very well for. No more tinnitus at all after 7 weeks of tretment. He probably will provide his feedback here on Tinnitus Talk later on. Lenire really can work. The first real available treatment in tinnitus history... Let’s keep up...

My appointment to pick up Lenire has been advanced to next Thursday! Initially it was the 20th of December and now the 10th!

If you are sensitive, use earplugs made for plane flights to equalize pressure. I was anxious too because I’ve always been sensitive during flights and since my acoustic shock I hadn’t flown on a plane... I wore the special earplugs and the flight was still very painful for my left ear...

I’m also scared but I want to try Lenire. If you want to cancel your appointment, can you please tell Grace to give it to me because your date is earlier? Mine is the 20th of December to pick up the device... so long :(

If patients have good results in the first 6 weeks, why does Neuromod change the program?

It’s a supplement with: Vitamin C Niacine Vitamin E Vitamines B6, B1, B2 Folic acid Vitamin A Biotine (Vitamin B5) Vitamin D3 Zinc Chromium Fish oil EPA DHA Magnesium

In preparation before Lenire, taking supplements to boost neuroplasticity... If I don't have positive results from the treatment with that... :(

I’m sure you will have improvements continuing the treatment. When you say that your tinnitus spikes and ear spasms stopped, what does is it mean really? Before Lenire, you had your tinnitus spiking to some external noises? And how were your ear spasms exactly? On the eardrum? All the time...

Hello Eric, Ah ok, I don’t know this method. Concerning Lenire, yes there is electric stimulation via the tongue tip to the trigeminal nerve using a certain timing and this is combined with a sound therapy via headphones. The purpose is not to drive habituation but to reduce the overactive...

Hello Eric, I’m French too. Is it the same thing as TMS (Transcranial Magnetic Stimulation)? I think Lenire has nothing to do with this program you talk about. Lenire is based on bimodal neuromodulation to calm the over-excited auditory system.

I think it was measured by minimum masking level.

Caroline insisted on the fact that Lenire has nothing to do with TRT, it’s not a unimodal therapy like TRT. The goal with bimodal stimulation is to calm the overexcited areas in the brain to reduce/suppress tinnitus. It's not a habituation device.

Hi @Cojackb, No worries, I understand! I really hope that your tinnitus will improve in the coming weeks. Keep faith, Caroline told me that we can start responding well even after the 12 weeks have passed. Perhaps you can try to do relaxation techniques to help in combination with Lenire...

When I was at the Neuromod clinic for my first appointment, I talked to a patient. She had been using Lenire for 12 weeks. She told me that after the first 6 weeks, her tinnitus had decreased by about 10 dB. Then, they changed her settings for the next 6 weeks, and after that she felt that her...

Hi @BigNick I hope all is going well for you. I know you are in the midst of treatment and it's too early to conclude the efficacy of Lenire on your tinnitus. I would like to know how are your spasms? Always better? Before Lenire, did you have TTTS (ear spasms and contractions of the middle...

They are my thresholds of tolerance to sounds (in France they measure it to diagnose hyperacusis).

I just ask myself this question. We all know people who have hearing loss, even important and do NOT have tinnitus. So, this theory about damaged nerve fibers creating dysfunctions in the auditory system does not apply to everyone?

@Mentos Lol! I think A New Born Baby can also hear high frequencies :) Attached is my previous audiogram dated from April... Low frequencies were not so good. Caroline told me that audiograms can fluctuate a bit according to middle ear at the moment of the test (ear plugged, pressure...

@Rafalek73 She didn’t tell me the exact value. She just said my tinnitus was « easily » maskable. In my mind it was around 30-35 dB.

@Mentos Yes, Caroline also measured my minimum masking level. She also told me that many people have reported their hyperacusis improving after using Lenire. But it hasn’t been officially tested during clinical trials. She told me that she has worked for Neuromod since the beginning and she...

Hello, I had my first appointment at Neuromod yesterday. A little stress shot just before my appointment... The alarm from the clinic went off while I was in the waiting room! I was then received by Caroline, and I felt immediately confident. I found her extremely professional and expert in...

@Cojackb I will probably arrive at the clinic at 2:00 pm. If you are at the clinic at that time, keep me updated.

@Cojackb I also have my appointment on Friday at 2:30 pm. Will you be there?

Any updates from users approaching the end of Lenire treatment?

@BigNick How are your ear spasms now? Still better since using Lenire than before?

@Mentos Did you hear any other information about Lenire’s efficacy?

@acute, I think @Clare B had tinnitus in only one ear. It appeared one day with no apparent reason...

Everyone defends their own device... Dr. Shore wouldn’t say that Lenire is the same as her device...

@BigNick Did they say why the treatment will last 18 weeks? Is it the same for all patients? Did they have new information about the efficacy of the treatment on other patients?

So happy for you @BigNick. Thank you for this message of hope! Keep us updated! Fingers crossed!

@BigNick Is it still improving day after day for you, you don’t have myoclonus anymore? And how is your tinnitus now after 6 weeks of treatment?

Do you think Lenire could also treat symptoms of vibrations/myoclonus of the eardrum? (Caused by muscles...)

@jmasterj I think they will do another audiogram anyway at the appointment because results can be different between 2 audiogram devices...

@jmasterj, I received the email as well... My appointment is mid-October. I think it's also about them being able to exclude people with too much hearing loss so they don't go to Dublin for nothing, don't you think so too?

@Krolo, Why is your pickup date of the device so late? (2 months after!) They first said it would be 2 weeks after the 1st appointment...

@kelpiemsp Did your sensitivity to sounds go away AFTER your treatment, or did it progressively fade step-by-step during each treatment session?

@EDDTEKK Interesting link... But is Lenire also based on this same multimodal synchronization as the University of Minnesota's device? (Is the bimodal stimulation the same process?)

I was talking with a researcher specialized in TTTS and hyperacusis in CNRS (Marseille, France): He thinks that Lenire really can help TTTS, by its action on the trigeminal nerve ganglion, normalizing the inputs. That's probably why @Clare B and @kelpiemsp saw their sensitivity to sudden noises...

@Kam75 What is the cause of @BigNick's tinnitus?

@Allan1967 That’s the reason why the treatment takes so much time... 12 weeks! It’s not easy but don’t give up and keep a positive mindset. This device really can HELP you. It’s too early to conclude. Your results at mid-treatment don’t mean your results at the end. Some people even...

@BigNick Great news if you responded so quickly to the treatment! Before Lenire, how was your tinnitus? Did you experience such quiet time in the past?

#optimism Another post from @Clare B: « Nearing the end of the time period of using the device I had some fluctuation in my tinnitus that I hadn't had before, some higher pitch sounds, some louder days. It wasn't until shortly after the end of the trial that I noticed the tinnitus quietening...

Guys, remember what @Clare B said: « It was near the end of the treatment I noticed the improvement. The tinnitus was quieter. It continued to improve until I had my first quiet day and then came and went for a few weeks. The quiet days became more frequent and then it was completely gone! The...

@Paulmanlike, Please let’s hope and think of the healed people who testified... It’s our only possible cure today.

I think Lenire is not able to raise sound tolerance thresholds, only a good sound therapy used for several months can do it. On the other hand, using Lenire, there can certainly be a positive effect on the tensor tympani muscle which is overexcited by calming the global auditory system related...

@Simon Czt It's the same for me... My tinnitus is also reactive to some sounds, on some days. My tinnitus is very much fluctuating, depending on days or moments... I think Lenire needs to be adjusted based on our tinnitus being the worst. No? (« Qui peut le plus peut le moins » as we say in...

Hello everyone, I suffer from the tensor syndrome of the tympanic muscle with 2 ears (especially the right). I have very painful contractions to sharp and sudden noises as if it suddenly hit my eardrum ... it hurts a lot. I also have neuralgia in the face and neck. I also have the sensation of...