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  1. lcj

    Introducing Tinnitus Quest

    She is the ex-wife of Google founder Sergey Brin and recently ran for Vice President alongside Bobby Kennedy on a platform focused on solving chronic disease. She is very passionate about this topic and is well-connected with individuals in the health, tech, and alternative health sectors. I...
  2. lcj

    Introducing Tinnitus Quest

    @Hazel, you might consider reaching out to Nicole Shanahan. According to Dr. Kruse’s podcast, she recently invested a significant amount of money into research for a computer that doesn’t emit blue light. She is interested in funding early-stage projects related to health and well-being that...
  3. lcj

    Nicotinic Acetylcholine Receptors as Therapeutic Tinnitus Targets

    Chantix (varenicline) is widely available as a smoking cessation drug by prescription. Anyone want to try it and report back?
  4. lcj

    Choice of Stem Cells

    You might be interested to look into a person by the name of John Miller who really pushed Dream Body Clinic. This clinic was his top recommendation in a list of international clinics. If you google him, he’s also written some books on stem cell treatments. He was also treated at this clinic two...
  5. lcj

    Clonazepam (Klonopin, Rivotril)

    Have you considered trying Carbamazepine (indicated for typewriter tinnitus but anecdotally has worked on other types of tinnitus as well), or Sumatriptan? Both have been discussed on this forum with mostly either reports of good result or no result and the side effects seem minimal. If you...
  6. lcj

    Stem Cell Clinics for Treating Tinnitus?

    I wanted to get you this file that I received from Robert Potts (super knowledgeable guy who himself received stem cell therapy for epilepsy) at Celltex from a while back. This was taken from their database a few years back of everyone who had the symptom 'tinnitus' who received stem cell...
  7. lcj

    Stem Cell Clinics for Treating Tinnitus?

    Hi Vincent, yes that is what I'm saying. The cells offered at US clinics for treatment of non-cancerous diseases are either autologous, for instance spun down from the patient's own fat or bone marrow and administered same day, or they are a frozen prepared product made from a third party lab...
  8. lcj

    Stem Cell Clinics for Treating Tinnitus?

    I agree StemCells21 seems the most legit and most experienced by a lot. When I have time this weekend I will upload some data that Robert Potts from Celltex sent me regarding their experience with treating tinnitus. Btw apparently StemCells21 is going to expand to open a second location in Ho...
  9. lcj

    Stem Cell Clinics for Treating Tinnitus?

    Just want to say yup that’s correct, the US stem cell clinics can only offer frozen dead non-expanded cell products, or cells extracted from your own body and spun down and administered same day (neither of which are that potent), or exosomes which is a bit of a crapshoot - the FDA does not...
  10. lcj

    Can Wuling (Wu Ling Shen) Help Tinnitus? Here's a Promising Study

    Hi @JPGL, I’ve taken a photo of all the supplements I use (I find it’s most effective to alternate them). They are all available on US Amazon. Let me know if you try any how it works for you! I have no doubt it would help your insomnia btw because I’ve gone through a lot of trial and error to...
  11. lcj

    Can Wuling (Wu Ling Shen) Help Tinnitus? Here's a Promising Study

    Hi, I wanted to add my 2 cents. I’ve been taking the Wulinshen from Amazon for almost 3 weeks now and I can say I really like it, just bought my second bottle. It’s hard to say how much it has helped my tinnitus objectively, but I would say it’s not zero percent. There were a few days I woke up...
  12. lcj

    Tinnitus for a Decade: Tried Countless Natural Remedies — Is There Anything Out There That Helps?

    Hi, sorry for the delay. Her tinnitus was from acoustic trauma and she had good results with Botox and magnesium supplements as well initially but the effects wore off. The combination of cranial occipital therapy, Carbamazepine and supplements including Kava were what she told me gave her silence.
  13. lcj

    Best Non-Ototoxic Drug / Supplement to Help with Sleep — A Tinnitus Sufferer's Dilemma

    You’re welcome! Do you live outside of the US? Is that why the Amazon links don’t work for you? The AdrenaCalm works through a blend of vitamins and phospholipids. When I first started using it I was using the SE type (one without any essential oils) and it worked just as well. Like I said I...
  14. lcj

    Best Non-Ototoxic Drug / Supplement to Help with Sleep — A Tinnitus Sufferer's Dilemma

    :) o_O Natural stuff I use that works (and I’ve tried TONS of stuff but this is the best): Gaia Sleep & Relax tea Premier-ND Liquid Melatonin (if your issue isn’t falling asleep but staying asleep, then use the sustained release Melatonin - this is the best brand for that: Pure Encapsulations...
  15. lcj

    Cyclobenzaprine/Flexeril

    Just FYI, cold showers are known to help with tinnitus as they supposedly help calm the nervous system. So it might be unrelated to the medication change. You might test this theory by taking a cold shower while on Flexeril.
  16. lcj

    A Condition Worse Than Tinnitus: Interstitial Cystitis

    You’ll never know until you give it a try and in any case your clothes will be cleaner and whites whiter!
  17. lcj

    Tinnitus Much Worse After a Total Hysterectomy

    I would also ask your surgeon what anesthesia drugs they gave you during surgery, many like Propofol have been known to irritate or make tinnitus worse. If you search for Propofol tinnitus for instance you’ll find a lot of anecdotal stories.
  18. lcj

    Tinnitus for a Decade: Tried Countless Natural Remedies — Is There Anything Out There That Helps?

    My friend experienced a big reduction in her distortions and complete cessation of her tinnitus by taking a combination of the natural supplement Kava Kava (standard process brand) and the anti-epileptic drug Carbamazepine.
  19. lcj

    Natural Antibiotic Alternatives for UTI?

    Adding a cup of hydrogen peroxide to my laundry when I washed my underwear helped me get rid of chronic UTI. You can try it, in any case it won’t cause any harm (and is a color booster). I also recommend Monolaurin (the supplement) as a natural anti-viral and antibiotic. I use the Lauricidin...
  20. lcj

    A Condition Worse Than Tinnitus: Interstitial Cystitis

    Have you tried adding a cup of hydrogen peroxide to your wash every time you wash your underwear and towels? It sounds ridiculous but it costs next to nothing to try. Laundry machines breed E. coli and all kinds of germs which irritate that area. A long time ago I used to have chronic UTIs and...
  21. lcj

    Neurotrophin 3 Regenerates Cochlear Synapses

    Hi Lane, The brands I tried were UK-Peptides, Peptide Sciences, and Limitless Life Nootropics. I would recommend UK-Peptides or Peptide Sciences (UK-Peptides is significantly cheaper). I actually didn’t notice any improvement of my tinnitus during the time that I was taking the peptides...
  22. lcj

    Neurotrophin 3 Regenerates Cochlear Synapses

    No, I only tried BPC-157.
  23. lcj

    BPC-157 Peptide for Treating Tinnitus

    Hi Lulu, I used BPC-157 subcutaneously and intranasally for a period of about 2 months, with a two week pause and had no adverse reaction to it. I can't say whether it calmed my tinnitus (it might have but not to any large degree), but I did feel happier on it and it had a noticeable effect on...
  24. lcj

    Choice of Stem Cells

    Yea definitely a pretty big start imo. The stem cell generated liver had working ducts and produced bile. I think this is the furthest scientists have come to creating a liver from scratch. There used to be this company in San Diego called Organovo that wanted to do this exact same thing using...
  25. lcj

    Choice of Stem Cells

    Hey guys, pretty unrelated to tinnitus or hearing but I thought I’d post this here because it’s pretty cool and shows the potential of IPSCs. https://blog.cirm.ca.gov/2020/06/03/mini-human-liver-made-of-stem-cells-successfully-transplanted-in-rats/ Full article...
  26. lcj

    Choice of Stem Cells

    Regarding cancer, I have seen nothing in the literature or heard anything anecdotally to suggest that injection of umbilical or autologous Mesenchymal stem cells increases the risk of cancer. I believe that the only reports of increased cancer risk came from using embryonic stem cells (stem...
  27. lcj

    Choice of Stem Cells

    I'm not sure as to the current policy, but as far as when I had corresponded with them in 2019 and through the stem cells Facebook group, they do offer intratympanic injection but only in severe cases and if the customer pushes for it. I think they offered it to a child who was very hard of...
  28. lcj

    Choice of Stem Cells

    Hi guys, Just a quick note. All the prices quoted so far are for P1 (passage 1) cells. Passaging refers to how many times the cells are expanded. One passage is usually about 4-10 cell doublings and means the cells have reached 100% confluence (covered the bottom) of the flask they have been...
  29. lcj

    Hypnotherapy / Hypnosis for Tinnitus

    His name is Allan Elder. He operates under his own business now under Sage Life Institute. I believe they have acupuncturists and other types of treatment as well. Although I have only consulted with him over the phone and on zoom. Email is aelder@sagelifeinstitute.com...
  30. lcj

    Coronavirus (SARS-CoV-2 / COVID-19) and Tinnitus

    I don't care to debate with you because you wear people down, not because you are right. But since you asked, I will address a few points that you made: 1) It's not a good idea (for your own credibility) to use outliers to try to prove your point "Hinderliter spent 58 days in the ICU"...
  31. lcj

    Coronavirus (SARS-CoV-2 / COVID-19) and Tinnitus

    I don’t have time to debate all your mostly invalid points, except that posting news articles instead of data doesn’t help your case. If you care so much in displaying statistics, then get the facts of the percentage of ppl that need ICU stays based on the seasonal flu, the average and median...
  32. lcj

    Coronavirus (SARS-CoV-2 / COVID-19) and Tinnitus

    The problem with this view is that short of a massive amount of people dying, nothing will prove to you that this disease is in fact both more deadly and more highly infectious than the ordinary flu. If the number of deaths doesn't go up very much in a few months, you will say "see I told you...
  33. lcj

    Let's Increase Tinnitus Research Funding in the US — Our Input for NIDCD's Strategic Plan

    Submitted! Chris and I are also going to post the link to the tinnitus Facebook groups.
  34. lcj

    Letter to the FDA (Dr. Janet Woodcock)

    I think you said the reverse of what you meant to say. In oncology, median survival time/overall survival is the most critical endpoint that the FDA considers - other analysis are usually surrogate endpoints for survival. Sometimes survival can be expressed in a compound primary endpoint like...
  35. lcj

    Tinnitus Research Initiative (TRI) 2019 Conference

    I think that would be a great idea.
  36. lcj

    Hough Ear Institute's Hair Cell Regeneration Project

    I think that cost estimate is a very high for a phase II trial. You would only really see that with drugs that have a high payoff (for instance some of the more novel oncology compounds that can be $100,000+ per dose), otherwise you would never recoup those costs back and you basically won't...
  37. lcj

    Realism About Progress: The Pitch of My Tinnitus Is the Issue

    I don’t necessarily agree with this statement. It may be true for acute trauma care, but I don’t think it’s true for chronic conditions. And I think it’s a draw for conditions like cancer where we do develop the most cutting edge treatments but that doesn’t translate to US citizens having better...
  38. lcj

    Realism About Progress: The Pitch of My Tinnitus Is the Issue

    I have to respectfully disagree with this. There are some published studies, not on a large scale, but still peer reviewed studies. It is definitely experimental, but that doesn't mean it's necessarily unsafe. Susan Shore's device is experimental and to my knowledge it hasn't 'hurt' anyone...
  39. lcj

    Quieten — App by Julian Cowan Hill — Scam? Reviews?

    I feel like I have to step in and say something here, as I am probably the only person in this thread so far that has interacted with Julian. He is many things, but not a scammer. Julian has two degrees/certifications. He has a Master's degree in psychotherapy and is trained also as a cranial...
  40. lcj

    Is There a Way to Alleviate Somatic Elements of Tinnitus?

    @pinklights98 You may want to go see a TMJ specialist and get fitted for a nightguard. Recently I talked to a neuroscientist through Facebook who had just developed tinnitus from acoustic trauma himself (loud concert). He said that his t got so much better after he was fitted for nightguard...
  41. lcj

    Hypnotherapy / Hypnosis for Tinnitus

    I’m based in the US but not in the same state as one of my hypnotherapists. I find it doesn’t matter too much as they all do Zoom or phone sessions and record the mp3 for me to listen to for the rest of the week. What is far more important is that your hypnotherapist has training and experience...
  42. lcj

    Hypnotherapy / Hypnosis for Tinnitus

    I have tried hypnotherapy for tinnitus specifically with two different practitioners (in fact I am still working with them both). I can't say enough good things about it. It almost completely eliminated my anxiety and increased the amount of time I go between noticing the sound (and I'm not...
  43. lcj

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I have a question. Were the pre-market trials (MuteButton) conducted using Bluetooth wireless headphones, or a wired device? Was the tongue tip similar in shape and with the same number of electrodes (that may not be the correct term but you get the gist)? If the device was different...
  44. lcj

    Stem Cell Clinics for Treating Tinnitus?

    I wonder how much of that is partially an attempt to upsell. When I first contacted SC 21, they only emailed the prices using their most expensive (passage 1) cells. It’s not until I looked in the brochure that I saw the cheaper prices of the passage 3 cells and even cheaper still adipose cells...
  45. lcj

    Stem Cell Clinics for Treating Tinnitus?

    Sure! Let me know if you are considering it as there are some questions I had that clinic never answered. Also, take a look at the following study: https://www.ejao.org/m/journal/view.php?doi=10.7874/jao.2018.00115 Summarized here...
  46. lcj

    Stem Cell Clinics for Treating Tinnitus?

    If money and location are no issue for you I do believe that StemCells21 is your best bet. It is the clinic that 4 Tinnitus Talk members have gone to including ATEOS. They have to date treated over 50 people for tinnitus and hearing loss. And are the only clinic I know of that combines the...
  47. lcj

    Neurotrophin 3 Regenerates Cochlear Synapses

    I don’t know. I can only speculate that because most of these peptides have good BBB penetration they may be able to at least partially cross the BLB as well? Something I found interesting in regards to dihexa: https://patents.google.com/patent/US20150337024A1/en
  48. lcj

    Solsaem Clinic (Dr. Minbo Shim) Experience

    Yes, and there is also some evidence it helps in healing injured nerves.
  49. lcj

    Solsaem Clinic (Dr. Minbo Shim) Experience

    Someone posted on Reddit today about bpc-157 and tinnitus.
  50. lcj

    Hough Ear Institute's Hair Cell Regeneration Project

    What is the difference between D and L methionine? From what I’m reading it looks like the D form is converted into the L form? https://www.novusint.com/Portals/0/Documents/Methionine/Comparison%20of%20Methionine%20Sources_Full%20Article.pdf?timestamp=1443715076894 DL-methionine can be...
  51. lcj

    Neurotrophin 3 Regenerates Cochlear Synapses

    Hi, I do not know but I know one guy who purchased cerebrolysin from a Russian pharmacy for tinnitus who has not yet received it yet. This one. Here are some links. Supposedly dihexa is 7 orders of magnitude better potency than BDNF but works as a variant of HGF on C-Met. Both are available...
  52. lcj

    Neurotrophin 3 Regenerates Cochlear Synapses

    The peptides cerebrolysin and dihexa both increase BDNF and NGF if I am not mistaken. I hope to make a new thread about peptides soon with links to papers.
  53. lcj

    Scalp Acupuncture

    Great! Any idea which points were used, especially points on the face/scalp?
  54. lcj

    Ha! Pun intended

    Ha! Pun intended
  55. lcj

    Centrophenoxine (Meclofenoxate) for Tinnitus?

    I saw that post too! The company that makes this supplement also makes a uridine supplement that seemed interesting because it helps generate synaptic connections and a nicotinamide mononucleotide supplement. I think I’ll give it a try. Adding this here. Link to the drug/supplement info...
  56. lcj

    Do Adipose Stem Cells Work and Are They Safe?

    I believe that in terms of carcinogenicity, adipose MSCs are very safe. But since they’ve only been in use for so long, there aren’t long term follow up studies. You can check out the first paper in this link for data from a five year period in which no additional increases in incidence of...
  57. lcj

    Feeling Great After 15 Clinical Low-Level Laser Treatments (LLLT)!

    Not to discourage anyone from attending the clinic in Sarasota as I don’t think this story has any bearing on the quality or efficacy of the laser treatments, but someone sent me this article about an incident that took place at this clinic a few years ago that I thought I’d share...
  58. lcj

    Natural Supplements for Anxiety?

    Not sure if these are strong enough, but you can look into a natural vitamin and herb cream called Adrenacalm-SE that my naturopathic doctor recommended. I’ve found it helpful for sleep. Also progesterone cream could give a similar calming effect if your anxiety is from imbalances of cortisol or...
  59. lcj

    Can Acupuncture Help Tinnitus?

    Thanks so much for taking the time to write this and identify the points used! I really appreciate it and hope it helps others as well. I’m surprised at the volume of tinnitus clients your acupuncturist receives. Would you mind leaving their info or PMing it to me? Perhaps my acupuncturist...