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I'd be willing to bet that any reported long term effects of COVID-19 will also find an influx of research, and luckily (for us) tinnitus is one of them. The New York Times hasn't published an article related to tinnitus since 2015, however with the numerous reports of COVID-19 related tinnitus...

I'd really like to get vaccinated, but there are too many anecdotal reports that all three vaccines have caused T in people. Lovely.

Been a while, TT. Little update, the T is still here and it still fluctuates wildly. I attribute it to inflammation, but who knows.

Exactly. The audiogram was never put together to diagnose or treat. It was designed as measure by which audiologists can determine how much hearing aids they’re able to sell.

I have full faith that research is going to find a cure for us within this decade, starting with Frequency Therapeutics. 95% of my time on this forum is now spent in the research section with the majority of it keeping updated on FX-322. Thank you for kind words above.

Even though I've been posting status updates as of late, I've been hesitant to post a full update regarding my progress on this thread due to some superstition that before tinnitus, I never even believed in. However, I found out some conclusive information earlier today on how all of this may...

Another very mild (comparatively) day yesterday, and for the first time, for the entire day. Annoying again today but so far not hell level.

Insurance companies are generally more inclined and willing to cover drugs over devices. Once FX-322 comes to market and is scooped up by big pharma in the US, negotiated rates will follow almost in tandem.

Mild day yesterday, worse day today. One thing that has changed over the last 10 months is the frequency of good vs. bad days.

How concerned should we really be over this? Are we thinking that his tone of response inferred bad news on the tinnitus front, or did he realize that he had to keep his mouth shut on this topic prior to the release dates in March/May?

100%.

I got the same standard response today addressed to my name. At least our actions are being noticed. Let's see if anything they say in their email actually happens.

Evening of 1/14/21 was the closest I've been to silence in 10 months with my worst tone basically gone. Today, the T was back to hell level.

Email sent. This is what I put together in my message. Not sure how good it is, but anyone who would like to use it please feel free. Hello, There are so many people (and the number is growing quickly due to the unanimous use of earbud headphones, etc.) that are truly suffering from severe...

All of the announcements, events, purchase movement of shares, etc. really shows some signs that Frequency Therapeutics knows they have something. I see all of this as excellent news and really makes me think that FX-322 might be better than what we already hope it to be.

Coffee always makes my T better which goes against what most people experience. The last three days were hell but today it's getting better.

I’d take the risk as it stands right now and get multiple injections of FX-322 in both ears today if I could. As someone with super high frequency tinnitus, the drug is worth its weight in gold considering it repairs the higher frequencies first.

The last month provided more tolerable and maskable T, but it has come back with a vengeance the last couple of days. Hopefully temporary.

Went for a walk around Central Park today. Felt good to be back home in NYC, but even better, didn't hear my T at all while in the park.

Indeed. Looks like Frequency Therapeutics is making moves to position itself for launch. Too many decisions and too much additional financing for a company who doesn't have some sort of positive knowledge about what the future product will hold. Great, great news.

Definitely seeing all of this as positive moment on Frequency Therapeutics' part. I can't imagine all of this funding being pumped their way if negative results were coming in at any capacity.

There will absolutely be a cure for this nonsense during most of our lifetimes. The only question is when?

But no dice for plain old NIHL?

Late to the party on this one so I apologize if I'm asking a redundant question on this thread, but considering OTIVIDEX is in the Phase 3 trials and has a potentially better prospect of being released sooner than other drugs such as FX-322, any idea if this drug may prove useful for people...

I thought mine was due to stress when I first got it back in March. Looking back, I really don't see how stress in and of itself can be a cause. However, being under severe stress and suffering an acoustic trauma can definitely trigger tinnitus. I'm now under the belief that "stress induced"...

After a series of somewhat decent days, T is back to a screaming hell. Amazing how biologically unnecessary T is.

I've read that even for the infusion's main purpose of treating severe depression, a few to a handful of infusions may be necessary. Each person is different, so I can only assume it's the same for their alleged tinnitus treatment. The AZ clinic is very affordable compared to the one I have...

Lately I've had some good days. T is still there but I get days where it isn't as severe. After 8 months maybe a little bit of progress?

Believe me, I understand the fear you're experiencing but the next possible trial you could enter in for FX-322 would be Phase 3. Even if you only received one injection during that trial, the hope is that approval will be the next "phase" and thus you'll be able to receive subsequent injections...

I agree with @FGG on this; anecdotal and unverified claims of results should be taken with a grain of salt. Naturally, I understand the excitement of this individual over their results and their inherent desire to broadcast them to the world, but I personally find it difficult to trust the...

All I know is that if FX-322 is truly able to rid us of tinnitus and hyperacusis, there isn't a chance that I'll ever attend a loud(ish) event, etc. without the use of hearing protection. The lesson has been well learned and if the time comes in a few years when my hearing is restored, I'll...

I'll preface this by saying I would never wish tinnitus on anyone else, but I think within the next handful of years the world is going to see an exponential increase in tinnitus related complaints due to the sheer number of people, youthful especially, who consistently use AirPods, earbuds...

If I decide to give it a try I'll definitely be updating everyone here. I may give the clinic here in New York a call to see if they can speak with the Arizona clinic regarding their tinnitus treatment or see if they already have something of a similar nature.

This is truly wonderful and I'm very happy you've had such great results! I really hope you're enjoying your silence! Been thinking about reaching out to the local ketamine infusion clinic soon to see if I can start a treatment. Reading your story gives me a bit of hope as I also have that...

Might give the clinic in Lower Manhattan and or Long Island a call next week and see what they have to say. I've also struggled with some severe anxiety earlier in the year, which did get much better, and depression that's been up and down all year long, so it might be a worthwhile shot. I just...

I was a bit rash in responding to my earlier post when I asked about alternatives... forgot about these Ketamine infusion therapies. There is a place out in Arizona that actually lists tinnitus as one of their treatments and each of their infusions is $375, and they have package deals for...

What are the alternatives? I'm not about to run to the streets to get my hands on something I know nothing about. Plus, there's the upside of being part of a study which may have the potential to help others.

This study was introduced to me by a colleague of mine who has suffered with intrusive tinnitus since 2014. I searched around on the forum and have not come across any details or awareness of this particular study so I thought I'd share it. If this has been discussed before, my apologies and...

They are conducting a tinnitus assessment during this phase. Is there anything that would lead us to believe they won't be disclosing a part of that information in March/May?

Trying not to overthink it either but it's definitely a confident and notable statement. His statement is only as it applies to hearing loss results, not tinnitus. Really hoping that the 90 day results in March include more substantial information regarding effects on tinnitus. There I go...

To quote Chris Loose in the video, "we're taking this forth through phase 2 and we've been getting very encouraging early clinical results." I'm not sure if he's referencing what was discovered in phase 1, or if this is referencing a little sneak peak of data trickling in from phase 2 and he's...

Right, the brain doesn't just change in one "direction" or the other. It adapts via all the ways you stated. But... it takes a very, very long time to do it especially when it comes to tinnitus. However I do believe if whatever damage caused the tinnitus in the first place can be repaired, the...

I agree. Tinnitus is tricky. Even when you get the anxiety and depression under control, I still think it takes months and months and even a couple of years before the tinnitus begins to get better in this situation.

I'm at eight months exactly today. Lately I've been having some better days. It's still always there but on the "good" days it isn't has harsh, but it's very up and down. I try and take the fluctuation as a good sign. I'm sorry you can hear it in the shower, this is an incredibly difficult...

I'd say that a majority of people on this forum have tinnitus just as severe. I'm in the same boat as you; I hear it over everything except for a shower.

Speaking for US patients only, for those who have moderate to severe and traditionally measurable hearing loss via the standard audiogram, it may be fully or partially covered by some insurance plans to start. I'd venture a guess to say that mild hearing loss would not fall within insurance...

Agreed. I'm guilty of perpetuating some of the hopeful and speculative conversation on this thread, but I do think we need to be cautiously optimistic as we don't have any true trial data as it relates to FX-322's efficacy on tinnitus yet. Indeed, FX-322 does have data that, on the surface, is...

I used to stare at the sky, enjoy the brilliant silence surrounding me, and find comfort in the future. Now the future terrifies me.

Each time I have a "good" day I keep hoping that the trend will shift to having more good days in a row. Eight months in and so far I haven't had any more than two good days in a row, and it usually isn't even that long. Maybe after two years it'll get better. There's no rhyme or reason to this...

In the time I've been a member of this forum, I've really tried to avoid this thread let alone post on it. But after eight months of a screaming, piercing hell, I'm exhausted. Lately I've noticed that I have been experiencing relatively better days more frequently. Yesterday, I had about four...

I like your positivity and really, really hope you're right.

I classify it as moderate as everything sounds muffled. This is most likely due to "hidden" hearing loss and damage in the frequencies above 8 kHz that don't normally get measured. If I've learned anything from this forum, it's that the perception of hearing loss is very subjective among...