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Hey, same as usual, hanging in there, I’m still around. I don’t go to forums much; I keep distracted by Xbox all day.

Dude, will you just stop with the gaslighting? I have many people message me, furious with what you are always saying. Saying you know best, Pawel Jastreboff knows best, saying noxacusis is not a condition, reactive tinnitus is not real. Nobody asked you. Sound therapy is so outdated it’s...

I did not have the surgery. I ended up getting so bad that the drive isn’t even an option. The noise from the surgery and all the beeping machines would kill me. Just sticking it out in a soundproof room.

Give it time. Noxacusis can take a long time to heal. Hang in there. Keep doing what you are doing, and protect your ears.

Okay, nobody should harm another person due to their medical conditions but you come off horribly arrogant. “A bit of ringing in the ear.” Never once have I ever thought about hurting another person because of my severe tinnitus and catastrophic noxacusis, but you come on the wrong place to...

I have to make sure I’m in a quiet room and no noise in the house at all, take my hearing protection off, use a manual toothbrush and brush as long as I can. Twice a day I floss at night before bed. Once a week I use a plaque scraper and gently pick off any hardening tarter. So far so good. On...

Well good for you!

You’re a much nicer person than I am. I would have gladly fought him. I’m sorry that happened to you. People suck. If there’s anything I have learned with having severe noxacusis, it’s you must stay away from people. It’s the only way to deal with this if you got it bad, or else you will keep...

Feeling better? Nice. It’s comforting to read realistic stories, not those TRT, positive thinking, retrain your brain crap lol. Glad you got some normalcy back. I would avoid all loud places in general and just have earplugs in my pocket just in case. It seems most people who get better test...

If the pain can be described specifically and doesn’t linger, it’s probably not noxacusis. I wouldn’t classify tingling as noxacusis. It’s probably just another crazy side effect of hearing damage. Just do your best to set it off as little as possible and you should be fine.

That’s temporary; in no way can overprotection make tinnitus permanently worse. Temporarily louder, sure. And why did you tag me and my comment? I was talking about hyperacusis. Painful muscle spasms is middle ear related. Relaxation and not being anxious can help the middle ear relax. So...

Good for you. Nobody is trying to be doom and gloom; some people want reality. The majority seem to want false hope and to be coddled and lied to. This a different story but the reason I am so bad is because I listened to mild loudness hyperacusis patients who recommended to do sound therapy...

I had them over every sound yes, different for different frequencies. The voice ones were the first to go away. I never got tested but I probably had COVID-19 like a few months before all of this so who knows. It definitely didn’t help.

I have a bad case of distortions. I’m about 3 years in. The first 6 months I had beeping over every sound, not just my voice - it was horrible. I could no longer mask my tinnitus because every sound sounded horrible. It seems like the meds might have caused some issues with your ears and made...

Thanks. I hope you start feeling better too. This is not fun at all. Try Mack’s Ultra Comfort earplugs, the skin colored ones, they protect way more than Loop earplugs. It depends how bad you are but Loop is OK if you’re a mild case and just need a slight filter. The Mack’s Ultra Comfort...

Well said! I was looking back at this and it was funny how you said people feel better when doctors tell them no physical damage has been done. Of course there’s physical damage lol. If you feel like there’s knives going into your ears, there’s damage lol, that’s how the human body works. If...

I might eventually try those CGRP drugs people keep telling me about. I can modulate a couple of my tinnitus tones with my jaw but the other 6 ones I can’t. It doesn’t affect my ear pain though. There’s definitely some horrible damaged nerves in my left ear, the thing just doesn’t want to heal.

I have heard of noxacusis sufferers having Eustachian tube issues. It wasn’t their main issue but it can’t hurt to try and figure that out - maybe it will help. I definitely think you got a good chance of recovery. When I had moderate tinnitus and loudness hyperacusis, I didn’t believe noxacusis...

My advice is to avoid sounds that trigger lingering pain. I’ve dealt with every level of hyperacusis and noxacusis. I’ve never experienced worsening from noises that caused discomfort or pain that only lasted a second. Every worsening I’ve had is from lingering pain. There’s no way to gauge by...

Maybe there’s a couple, but most people didn’t have noxacusis. I have read some bad stories about all 3 drugs; that’s why I’m still trying to stick to LDN.

:dohanimation: only 5 more years

No, I’m not going to try it, I haven’t really seen any noxacusis cases improve from it, more loudness hyperacusis. If anything, I’ll get on Lyrica or Gabapentin. That stuff definitely helps nerve pain. Maybe worth a try.

How long have you had hyperacusis? If you have had it less than 6 months, 99% of the time it’s not because you didn’t protect from sound; it’s natural recovery, trust me. Starfield is fun too! I’ve been playing that a lot.

You are a new case. Rest your ears, get silence and don’t take meds. Whatever you do, just don’t do TRT, lol. Things will most definitely calm down but you do need to be patient. Wish I had done this earlier but I kept making my noxacusis worse. Sorry, that’s a crappy way to get noxacusis...

I’m 3 years in to noxacusis and my days vary too. They’re usually all bad and I’m always in pain but it’s definitely more manageable if I’m in silence for long periods of time. You’re only 6 weeks in and if you’re seeing improvement like that, it’s a very good sign you will recover and be out of...

Well hang in there. I hope for better days for the both of us. Nobody should be dealing with this stuff it’s horrible.

Yeah, I remember reading his posts when I had just got tinnitus and loudness hyperacusis. It shook me to the bone. Hopefully he’s doing ok. It seems a lot of catastrophic cases end up having to move and find a super quiet place, they see minimal improvement, only enough to survive and just live...

Thanks! And try My Social Security -- that’s where you apply.

It’s definitely possible. I know quite a few people who are on long-term disability because of noxacusis, including myself. You need to be diagnosed by multiple doctors and who understand that this condition can be disabling. You need good doctor reports, records, and testing. Then getting a...

Yeah, I’ve cut all of it out for about a year. My ears were improving a little in other frequencies but I still can’t do it or I get bad pain. I don’t really get my tolerance back but my ears feel better overall. Very tricky condition. Maybe anything is possible with our crappy ears. It’s...

Try to use subtitles if they offer it. Zoom has it I think. I have very severe noxacusis and I’ve learned my ears just cannot do artificial audio. The longer I listen, the more severe my pain gets and the worse my tolerance gets. I can talk to people now in person for short periods of time but...

She is? It seemed like when she was asked about it, nope, and that’s it.

Dr. Shore really didn’t care about hyperacusis and noxacusis, did she lol.

Not sure who knows. They haven’t posted any more information about their delivery method. Maybe it will work. The Hough Ear Institute guy seemed pretty dedicated to helping fix hearing loss. Only way is to wait and find out. Then they will ask for more money to renew the patent lol. Wonder how...

Yeah, they would definitely sue without a doubt. This company has been holding onto this drug for over a decade and won’t do anything about it. They won’t let anyone work with it and it’s just collecting dust.

Wow, I hate these people LOL. Let’s do a study on one person. If they did me and a few others like they were supposed to, they would actually have good data. LOL. Morons. Paul Fuchs suggested you could also get hyperacusis from synapse damage. So on theory it would help. All I can say is...

Every time I see new posts on this thread, I’m like oh no, lol.

I’m still on Naltrexone, yes. It helps the pain like 10%. I’m also on CBD, have go ice my ear twice a day and stick garlic oil in it. Double protection on my bad ear 24/7. Nah, mine doesn’t really improve, it only gets worse. I’ve been in silence for about 6 months and I can now tap a fork with...

No, noxacusis is definitely not in the brain. The lingering nerve pain is most definitely middle or inner ear related. I’m sure some degree, and cases of loudness hyperacusis, is in the brain, but the way some of us noxacusis people get neuralgia and an open wound feeling In our ear or deep...

You are literally putting words in my mouth. If you have a setback, don’t read success stories about TRT, lmao. Go read posts of people improving from supplements, medications, or the passage of time. I don’t know how reading about someone doing TRT, gaslighting everyone, helps you, lol. And...

They won’t ever understand. Why do we even try to convince them? No, we’re negative and horrible because people don’t want to hear the truth and want to live in a fairyland. Ridiculous. They can’t understand we’re not trying to crap on their success and positivity, it’s the way they’re wording...

Oh yeah, I’m soooo toxic. LMAO, funny when people post things that can actually help. I’m pretty supportive. Go post this garbage elsewhere with all the other positive thinking mild sufferers.

Hyperacusis can be cochlear, middle ear, or brain related. It depends on the person and the case. Each theory has articles and information behind all of them. Hyperacusis and tinnitus are extremely complex conditions. If you have labyrinthitis, I would assume it is cochlear from all the...

No, absolutely not. You’re arrogant and it’s all in your reptile brain that hyperacusis can be cured with TRT, $6,000 sound generators and CBT. You sound exactly like @Michael Leigh and a TRT salesperson. If only you had said “this worked for me, you should try it!” But you didn’t, you said it’s...

Thanks for the kind words. I hope something helps the rest of us; we really need it. You’re really humble and I respect your opinions.

The thing is that we don’t deny your experience, we know gradual sound exposure works for some. We get angry and upset when people who are TRT advocates say it’s all in your brain, positive thinking helps, silence makes it worse, and minimizes our suffering, treating it as a complete joke...

You sound like you work for Jastreboff, lol. I’m glad it helped you but hyperacusis is usually from hearing damage, sometimes it’s in the brain, other times in the inner or middle ear. You’re very lucky TRT worked for you because it doesn’t seem to work for many of us. If only it was as simple...

I'm glad they tested people who had had tinnitus for 5-10 years. I've never seen a good trial that has allowed new sufferers in, which definitely causes issues with the placebo. Most people I would say tend to panic for a while when they realize they could never hear silence again. I have mad...

This is such good news. My noxacusis is what’s killing me but I’ve had tinnitus way longer, almost 8 years now. I can’t imagine the people who have had it for decades. This is the first good news we have seen this entire time. 65% reduction is more than what I thought it would reduce. If my...

I agree. I just think it’s time we end hyperacusis and tinnitus gaslighting and search for things that actually help hearing damage, not retraining the brain, TRT, or positive thinking, we all need actual treatments that treat hearing damage and lower tinnitus volume, and improve the pain in our...

Yeah, just be careful, do your best to get quiet for a while and let everything rest, then test the waters when you’re ready. It’s too bad ear protection doesn’t block all noise, this would be so much easier.

You were smart for wearing earmuffs. In my case, airbags turned moderate loudness hyperacusis into the worst case of noxacusis ever. I'm surprised you got fined but that is better than making your ears worse.

Well, thanks for not gaslighting severe people, we all appreciate it. If this works for you, great. It can definitely help a lot of mild/moderate people. You are right it is incredibly rare to have this ear stuff at true severe levels and most will never get there as long as they don’t keep...

There’s no convincing these people bro. Thanks for commenting though.

Remember that ears hurting from the slightest sound is not deep ear burning, stabbing, razor wire pain, aching and neuralgia. You seem to be very mixed up between loudness hyperacusis and noxacusis. If the person does not describe the pain as lingering stabbing, burning, aching, razor wire, it’s...

Thank you, I try to stay off forums because of all the gaslighting but I gotta say something because some people are just so wrong, they could hurt other people and end up like me because of that advice. Drives me nuts.

Michael, you give some people good advice but you don’t have noxacusis and you have never had noxacusis. Stop telling people false information about these conditions. If you have what I have, you’re not exposing to sound or doing TRT - I’m sorry to say it. The hyperacusis community is plagued...

LDN spiked my tinnitus in the beginning. I had to start on a small dose at 0.5 mg and work it up every week. Once I got to 1.5 mg, it stopped spiking. If you’re taking it for tinnitus, apparently normal dosage is better, low dose is more for chronic pain so if noxacusis is your problem, try it...

Overprotecting does not make hyperacusis worse. Not sure why people still say that even in 2023. Yeah, you might notice sounds are a little louder than usual, but then your brain adjusts. It’s never permanent. Not sure why so many people say wearing hearing protection is going to make you...

Yeah, it helps a little with the pain, but nothing makes it so I can leave my room. Lowering the pain in silence is nice.