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Mate it was a joke. Of course that’s not why they employed him.

I would imagine almost all of people who have this constant and severe. It’s almost a given. Before tinnitus I never had a bad night’s sleep in my life. I could sleep standing up. Now I wake up ten times a night. Everyday I feel like a zombie and it’s getting worse. A few months ago I was just...

Hopefully a load of insight from Minnesota. More likely just the fact that he’s American rather than Irish and they can send him on stage at these conferences and people can actually understand what he’s saying.

I concur. I suspect that they will not risk releasing this on the U.K. and Ireland market before release in America in case it garners a glut of negative reviews on all the tinnitus forums and puts off potentially millions of buyers in America. If this is the case it raises a serious red flag...

I think it’s just very hard for those of us really struggling to think that a device exists that may save us and it’s out of reach. It’s almost agonising and has definitely increased my suicidal ideation. I just wish they had said look it’s going to be 2020 and so mentally we didn’t get our...

Don’t take that shit ever again Al. Start exercising and eating well. Take advantage of being one step ahead of this motherf***er and stamp on its bloody head now.

Shit bud. It’s a tough slog huh? Living in constant broken sleep and trying to keep positive every day to make it to......another day of the same. Does it get tougher than this? I really don’t think it does. You’ve done so well to keep upbeat. The depression of this is dragging me to the floor...

Yeah I’ve exhausted my Guantinnitus bay creation and I’ve noticed other users coining it so I’ve got to keep ahead of the game creatively!

I agree. I need to try and get back to this. I’m addicted to jungle sounds. I just cannot bear the silence of the bedroom without them. But they’re definitely digging my hole deeper.

Something tells me that Allan is enjoying work and his T has gone. He’s left us all behind and who can bloody blame him. Congrats Allan. You’ve escaped from Tinnitraz.

I have had a few nights in the past where I fell asleep with the BBC world service on and didn’t switch on the masking. But my T has been worsening the last few months with increased intensity and another sound in my better ear, and now I have no choice but to use loud cicada sounds to drop off...

Not a chance. They are a money making enterprise who will do everything in their power to line their and their audiologist partners pockets. Helping our tinnitus is secondary to that. ....That said I personally believe they’re overstressing the importance of your hearing profile and it’s worth...

That’s not a given for all of us I’m afraid. My family have completely given up on me and I lost my partner of over a decade after just a few months of this. Friends pretty much all gone too. Just me and the dog now. I understand. I’ve been altered irrevocably by this. I’m not the person they...

And you can’t blame them. Not in a million years did I think this would happen to me. I felt almost invincible before I woke up with this and now I feel like I’m flirting with death every single day. As you quite rightly said it’s like we’re sloshing around in a pile of inescapable shit staring...

I believe it’s an angry feminists way of calling out a man who is merely trying to explain something to her....I may be wrong in which case I would happily have a nice woman womansplain it to me. How’s your tinnitus today Al?

Jesus Vic. That’s hardcore! I kind of understand the thinking. When I wear plugs on my motorbike it’s like being assaulted by noise. I wore crash helmets a lot in my life from age 6. I used to feel so secure and happy when I pulled one on. Now it’s torture with the plugs in but I try and think...

All we can do is pray and keep pleading for a crumb of comfort from ‘NeuroGod’

Oh great. Better to live in so much suffering that you want to kill yourself, than actually going through with it and killing yourself... Glad we cleared that up doc.

Allan you don’t know that. It could be over for you. You might just have won the lottery x 100000000! Amazing news. Like Markku I’ve never had a second since this started even approaching silence. I would weep tears of joy for just one blissful day of no screaming noise.

Jesus. That’s all we bloody need. This condition is so shit it’s not even true. It’s like being a paraplegic with everyone badgering you day and night to just get off your lazy ass and walk already.

I’m so sorry my friend. If it makes it any easier im right in the fire with you and if I can keep myself afloat to try Neuromod, it failing to help will almost certainly result in me taking my own life. I cannot live like this. All the joy is gone. To live for many years like this seems to me...

Yeah I mean I don’t ‘mask’ as such. Like you Ed I just have another high pitched screechy sound that I can sort of mentally blend the head noise in to and pretend they’re one and the same. I guess now it’s kind of an addiction or a pacifier, like a kids dummy or thumb.

It’s tough. I tried again last night to do ‘silence’ but by 3am I gave up and whacked on the ‘tropical nights’ app. Then I fell asleep, but im concerned this constant chirping and sqwarking really isn’t healthy for the auditory system. As @DaveFromChicago points out we are really between a rock...

And yet we still have doctors even visiting this forum talking about tinnitus won’t kill you. One day many years from now when a cure is available, the world will look back on this affliction and feel genuine pity for our terrible plight. Trapped for our entire lives in a cage of screaming...

Man one thing I can 100% promise every single one of you is that I’m being totally honest about everything I post here. Jazzer knows me. I’m a straight talker and no bullshitter. Ya’ll know I’m really struggling with wanting to kill my self but I’m not anxious about noise and all that. I don’t...

Yeah this is what i’ll be doing from now on. Set the timer for a couple of hours and then go for silence....well silence with high pitched screeching.......Ah the endless joys of this wonderful affliction.

I think this thread truly shows that although we’re all dealing with bitch of a noise in our heads we all got it in different ways and are all thus affected by different things. Which only underlines how tricky it is to pin down in terms of causality and effectively treat......Tinnitus is a...

Yeah hold on. This is not Shore’s device and she has point blank refused to be coaxed on whether or not she thinks tongue stimulation works as well as neck.

I agree. I have no idea if my T would have improved by being ultra cautious around noise but the reality is I don’t want to live like that. So I avoid really loud noise environments and wear fitted plugs on my motorbike etc but other than that I live as normally as I can and I accept the...

Good move I think Al. You’re always in my thoughts mate. We’re both hanging in there by the skin of our teeth but we’re still here. The joy drain of severe tinnitus is almost inconceivably horrible. It’s like the darkest cloud ever sitting on top of your head. I understand you in a way that very...

Bud don’t feel bad for me. It is what it is. I think I just need to try and wean my self off masking as it’s definitely slightly better when I don’t mask at night particularly. I worked this out because I was pissed and fell asleep a few times without masking and bingo it was quieter in the...

I think most of us would be delighted with 50% decrease in volume in the hope that overtime the brain starts to enjoy chilling out a bit more and sorts the rest out for us. Or Shore comes over the hill with the big guns. Or some really clever person just juices our ears and sorts this out once...

I have awful tinnitus. I have just had my second MRI in a month after the first images were apparently blurry. It was noisy as hell both times but because I’ve basically accepted this as a death sentence anyway it’s made me somewhat nonchalant to worsening. But I digress. I’m offering hope to...

I’ve come to realise - through my speaker and phone batteries dying on me at 3 am - that masking particularly at night - 100% aggravates and inflames my tinnitus which is already severe all the time. But no masking is nigh on impossible as the noise is f***ing awful and I can’t bear silence...

In my mind - I ain’t no scientist given - that makes zero sense Jack. If it can reduce severe to mild, the same mechanism of action you would hope, can reduce it from mild to essentially gone. If it’s doing its job of breaking up misfiring neurons and you keep using it, why would it suddenly...

That cannot be true. The statistics are hyper inflated by ‘disco tinnitus’ that lasts a few days. If the 30% was a true stat for chronic tinnitus that doesn’t go away ever, the whole working world come to a grinding halt as people struggled to sleep and function. Big pharma realise that the...

Lest we forget that doctors, with the exception of those who have been roughed up by this, treat this condition as almost a trifling joke so instead of treating tinnitus as the patient wearing a badly wired suicide vest, they treat us like we have a headache and a bad attitude to go with it.

Dave until Dr’s like Ancill accept that this is the reality we are constantly fighting an uphill battle to have our condition recognised as life destroying. This thread is basically my worst fears confirmed once again. Another Dr telling me it’s my depression and mental state that is the problem...

And that’s the problem I guess. Which is why my death will be chalked up to depression and the frustration of every other sufferer around the world is exacerbated still further. Because the ‘research’ says we shouldn’t be in the least bit bothered by this. So how come I got through 37 years of...

I beg to differ. I had and still have in many respects a wonderful life before severe tinnitus. Now I’m giving very serious consideration to killing myself because I feel absolutely tortured by noise 24/7. I have zero other problems in my life that I cannot foresee being able to overcome so on...

I actually meant people were topping themselves left right and centre because of depression or easily surmountable life problems. Whereas we have a really nasty problem that we cannot fix or aleviate. I cannot for a second believe that study. How on earth could that be possible? The military...

The real problem is that there are people claiming to have tinnitus who also promote mindset as a perfectly adequate substitute for a cure. We see it on this forum all the bloody time. How on earth are we going to see a cure if half the people supposedly suffering from the affliction we want...

As you said yourself you are a hypochondriac. Do you not think your mind made a big deal out of a noise that probably wasn’t there in the first place? I suspect this is far more likely than your miraculous acceptance after just 3 weeks.

The only way anybody is not going to flip their shit when they get this, is if a cure is found and offered by doctors from the get go. Until then it’s going to be a harrowing and terrifying experience for anyone being hit with this out of the blue.That’s the unfortunate truth. And telling...

Nearly as dangerous as nail clippers @Eric N

Very hard this though let’s be honest. If I could travel back in time I would have filled myself with anti anxiety drugs. I mean bucket loads of the stuff and prayed my brain just unhitched the sound before it buried itself in deep.

Agreed. I saw a shrink who charged me £300 for a consultation where we talked about a load of shit unrelated to my actual problem of screaming ears. He wanted to give me rTMS at £200 a session. He also wanted to start me on low dose Olanzapine. To which my response was why if the rTMS is going...

Great. Shit. We need help so bad. People are topping themselves left right and centre because of ‘feeling sad’ and we have to try and live with this shit. I’m sure you as a psychiatrist understand how royally fucked we are. Thanks for taking an interest.

Are we not closer to this now? Is the theory of overactive neurons in the DCN not agreed upon? Otherwise what the hell are these American universities and our little Neuromod friends over in the Emerald Isle wasting their time for?......And frankly Dr why am I still alive and burning in this...

Really the only way to promote how bad this is in the way that Gaby Olthuis did. She didn’t kill her self, she managed to convince doctors to kill her....based on tinnitus. And then she made a documentary where she eloquently explained why. That’s a major thing and although very sad and tragic...

It’s horrifying that so many of us are literally left to suffer years of excruciating noise torture and the attitude of the world is to simply shrug......it can’t be that bad. And sadly by struggling on with incredible strength we are actually propagating the myth of if being a condition you...

Allan I’m so jaded by this awful crap but i’m really glad you’re having a moment of positivity. I too have glimpses of being free of this cruel nightmare and managing to get my life back on track, and it’s these moments that help me slave on. God I seriously hope you’re right and help is on...

I wonder if these www.microtransponder.com guys have quit the game on the basis of Neuromod etc helping us without cutting us open and implanting a box in our chest cavity? http://www.microtransponder.com/en-gb/tinnitus/physicians/how-it-works Any contact with them @Markku??

Hey @dfl I agree on this front. I pissed away a fortune on really expensive scammers so even if he is one, at least he’s a cheap date. In that respect I genuinely don’t think there’s any harm in it but I have to say I would be curious to see if it actually reduces your tinnitus. Keep us posted...

I like your salient points @Paulmanlike. But it doesn’t solve the testimonials problem. That said let’s imagine for the time being that the people with better results just didn’t want to be filmed and jinx their incredible good fortune in being cured for free in a clinical trial. Also from...

Once it’s released the madness on here will really begin. Neuromod are playing with fire, releasing a device that works for some and not for others is unleashing a divisive demon of epic proportions. They are basically selling carnage. And I suspect that has perhaps dawned on Ross and the team...

Jack if we take out the hostility this forum ceases to exist dude! In fact I read earlier that Tinnitus Talk has led scientists to believe that rabies and tinnitus are linked.

For what it’s worth I’m not confused by it. I cannot imagine a better reason on earth to be seething with anger than having a fucking non stop noise in your own head that will only stop when you’re dead.

Yeah it’s no biggie. It was a shot in the dark and I was surprised she even responded. More than anything I was hoping to just impress on her that we could do with her getting a shuffle on and actually turn all this research into a lifesaving product.

Maybe she reads this forum and thinks I’m a c***.