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  1. Liz Windsor

    Lenire — User Experiences and Reviews

    Reply to a Lenire user requesting a brief update from me... Well, I'm still using Lenire as I find it weirdly restful listening to something different from my ever-present drill. Sometimes I think it's doing something, not enough to categorically claim an improvement but somehow feel a bit...
  2. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I completely get that.. About three years ago I had some silence for the first time in three or so years following a Beach Boys outdoor concert of all things! It only lasted a couple of hours but was completely, incredibly overwhelmingly unbelievable!! I can still remember how astonished I felt...
  3. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi again Laura... well, Neuromod's view is to continue with the treatment. I can call or contact or visit them again in Dublin at any time in the future should I wish. They stressed I am still their 'patient' in that even though I haven't responded as quickly as some this doesn't mean I won't...
  4. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi Laura. Well, I'm a patient person and didn't expect quick results. I've put my most recent impressions on the Lenire Users Experiences thread. No big change since then but I will always update it if I have anything definite to report. Thanks for asking though. I've actually been using Lenire...
  5. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Good luck. A long journey to make. I hope it helps.
  6. Liz Windsor

    Announcement Merry Christmas and a Happy New Year 2020!

    I would just like to wish everyone on Tinnitus Talk a very Happy Christmas and the possibility of a more peaceful 2020. We may not always see things from the same perspective, but ultimately we're all looking for the same thing. We are such a diverse, random, global group aren't we? I...
  7. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Ok, Dave from Chicago! The reason I haven't updated the Lenire User Experiences & Reviews thread is because unless and until I can say, with absolute, definite, concrete, quantifiable certainty, that I have an improvement using Lenire and what, and how much, that improvement consists of, I am...
  8. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi there. Yes I am still using it as recommended. 12 weeks isn't the end of the treatment, just the length of time they ran the trial. I'm at about 16 weeks now. I do feel there are subtle improvements.. I'm certainly no worse and no longer wear hearing aids for tinnitus as felt they were...
  9. Liz Windsor

    Lenire — User Experiences and Reviews

    Just to let you know the canteen isn't just for staff. Anyone can use it. I've had several cups of coffee there as I always arrive about two hours before my appointment. EDIT: That sounded a bit pompous and abrupt, sorry! I did put a smiley face on but it didn't appear!
  10. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I do agree with you. Neuroplasticity I believe is a long term aim, not a quick fix. If you've had tinnitus a long time it stands to reason it's likely to take longer to make a difference.
  11. Liz Windsor

    Lenire — User Experiences and Reviews

    Hello. I just wanted to post my twelve-week update for Lenire, as promised. I went back to Neuromod on Tuesday 12th November, for my fourth, and final appointment. As with the previous times I filled out a questionnaire regarding my tinnitus in the reception area prior to meeting with Ciara...
  12. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi there. Just a quick reply. I only got back very late on Tuesday from my Dublin appointment, and haven't had any time to respond yet. However, my tinnitus is not worse. I am still optimistic that Lenire will help me as there have been subtle changes. I will put a more comprehensive post on...
  13. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I can understand you wanting a yes or no. If you were a friend I would say it's still early days... not even through the 12 week treatment period but I am optimistic for improvements in the future. I think my hearing aid situation may have complicated my particular experience. However, I have...
  14. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hello. I do understand that some members on Tinnitus Talk are interested in any benefits, or otherwise, Lenire users have had whilst using Lenire and possibly think we are not being very helpful in giving more information. Probably I would feel the same myself. I just want to say that as and...
  15. Liz Windsor

    Lenire — User Experiences and Reviews

    Hello, this is my five/six-week update since using Lenire. I went to Dublin on Tuesday 1st October, for my first ‘review’ appointment. I had previously sent an email to the team at Neuromod requesting a new hearing test at this appointment as I was convinced that my hearing had become more...
  16. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I appreciate that the Lenire User thread is of interest to anyone thinking of trying Lenire. As a recent (almost 4 weeks in) user there would be no benefit, in my view, of a weekly update. I don't think the changes, well not in my case, are that distinct and rapid. I will post an update every...
  17. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi. This is the email I received from the Hermitage re the Dublin Airport shuttle bus. I've used it on my previous two visits and booked a return ticket online. Was getting on at Lucan town though which is more complicated and unnecessary. I think the return stop from the Hermitage is the same...
  18. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    No need to apologise. I just wanted to make sure no-one misinterpreted my comment about sounds being louder. It hasn't worsened the hyperacusis which, as you say, is horrible and adds another level of difficulty to the tinnitus. Fingers crossed we get some help with that as well in the near...
  19. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Just to clarify. Lenire has NOT given me hyperacusis. I already have hyperacusis in respect of certain sounds. Motorbikes, crockery, sirens, dogs barking, babies crying etc which is unchanged. The 'loudness' I hear is just that. Everyday speech etc just sounds 'louder' but not painful. I just...
  20. Liz Windsor

    Lenire — User Experiences and Reviews

    Well, as promised, here is my three week update. Everything I wrote in my previous post is still the case so I won't repeat myself. There is, however, definitely a difference in the volume and tone of my tinnitus. I try to do each session at approximately the same times each day - around 8am and...
  21. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi again... Sorry, events overtook me. I shall report back as soon as I get chance. Thanks. Liz.
  22. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi there. I've had tinnitus for almost seven years (next month). I'm planning on putting an update on the Lenire User Experiences and Reviews thread later today as I'm now three weeks into using the device. It's definitely having an effect.
  23. Liz Windsor

    Lenire — User Experiences and Reviews

    I collected my device last Tuesday, 27th August and have used it nine times to date. I won't repeat all the instructions given by other users above which they have described very accurately. What I will say is that the device is really easy to use. I'm not at all technically savvy but you don't...
  24. Liz Windsor

    Episode 6: Clinical Guidelines for Tinnitus — Status Quo or Way Forward?

    Happy to be of assistance! It's nice to know the transcripts are being read out there in Tinnitus World.
  25. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I'm going to do my TM* (Hoping it might enhance the effect of the device).. *Transcendental Meditation
  26. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi there. In my experience I only get a reduction in the tinnitus whilst I'm actually wearing the hearing aids. As soon as I take them out the volume of the tinnitus increases hugely. I only don't wear them in the shower, or when I'm trying to sleep (and I've even tried sleeping with them but...
  27. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi Eve, So nice to hear from you. I'm down in the West Country as well. Not as far down as you though... I was so sorry to hear you can't go forward with the device but we don't know what will happen further down the line. Fingers crossed it can maybe help you in the future, or something else...
  28. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    In response to the poster enquiring about my hearing test at Neuromod (the post has been moved from the Lenire User Thread - sorry can't remember who was asking)! I am attaching a copy of a hearing test from 2013 done at Nottingham University: I applied to go on the ACRN trial up in...
  29. Liz Windsor

    Lenire — User Experiences and Reviews

    I had intended to give details of my experience of my trip to Dublin (from England) and my initial assessment at Neuromod, but as @Redknight has provided such a fantastic overview of his experience, which was completely consistent with my experience on the day (apart from the fact that he asked...
  30. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    This is an incredibly accurate summary of the process I experienced at my appointment. Thank you for taking the time and going to the trouble of explaining it so well. I would definitely have struggled to remember everything you have mentioned. I'm not referring to your individual questions or...
  31. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I would just like to say after my initial assessment yesterday, that I found all the Neuromod staff I met to be very professional, understanding and they absolutely seemed focussed on a good outcome for me. No pressure was applied to purchase the device. They said I could contact them at any...
  32. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Please don't let some people's posts make you feel like you're not doing the right thing. I'm a bit fed up seeing them to be honest. You feel like you want to give it a try - good for you... so do I. We can only give ourselves the opportunity to see if it helps without having unrealistic...
  33. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I remember reading your posts when I first joined Tinnitus Talk in 2013. They were very helpful and made sense to me... everyone's experience is, of course, very different. Hopefully if Lenire helps the majority of people who are trying it, maybe it's something for you in the future. Kind...
  34. Liz Windsor

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I just want to add my name to the list of people with an appointment at Neuromod. I received an email from them on Wednesday last week (14th day...) offering me a date and time, which I accepted immediately in case they changed their mind! It's on Tuesday 16th July at 3pm - anyone else from...
  35. Liz Windsor

    Episode 2: A World Without Tinnitus — David Stockdale (British Tinnitus Association)

    I just wanted to say (having seen Markku's post above) that if anyone out there is thinking of volunteering in any way to assist Tinnitus Talk but isn't sure if they have anything useful to offer, just go for it! I'm so pleased I have been involved with the Podcast transcriptions as I feel as...
  36. Liz Windsor

    Always crying

    Dear Neenie, I do understand exactly what you are saying. It sums up exactly how I felt for the first few months and I honestly didn't think I would be able to deal with it. I would take sleeping pills every night just to escape the noise and dreaded the start of each new day. Now 15 months...
  37. Liz Windsor

    MicroTransponder: Latest News and Research

    Hello Hudson, I hadn't heard anything from Microtransponder so a while ago I tried to add my name again to the email listing. I received a reply saying I was already registered, however, I did receive the above email so maybe try and register again? Maybe it jogs the memory or something!
  38. Liz Windsor

    Hearing Aids

    hello everyone on TT - I joined some months ago near the onset of tinnitus in October 2012, I haven't posted anything before as I didn't know if I had anything useful to add to the comments but have felt very supported in reading everyone's posts. I just thought I'd mention my experience with...
  39. Liz Windsor

    Hello

    I found this site a while ago and it's been a real help knowing there are lots of us out there with bad enough tinnitus to want to write to others in the same situation. My tinnitus started in October 2012 for no apparent reason and hasn't stopped for a second, and is VERY loud. I've tried...