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It's that time of year again. The time when we try to make noise about tinnitus, and no one listens. Just joking of course, but it does feel like that at times. This year for Tinnitus Week, we hope to be the bearers of good news and interesting updates. Here's what we gathered up for you :)...

Too many people are left alone to suffer in ‘silence’ with their tinnitus. You all know this, of course, but the trouble is convincing the rest of the world that tinnitus is a serious problem that deserves serious attention and funding, a problem that requires more than just behavioral...

TRI Conference Background The Tinnitus Research Initiative conference is back, and this time it's in Vancouver, Canada, from 10-12 June. As some of you will know, TRI is the biggest tinnitus research conference. You can find the conference website and program here. What's New This Time? To be...

In the past year, three of our volunteers – @Hazel, @TuxedoCat, and @gillme – have attended the Tinnitus Research Initiative (TRI) and Association for Research in Otolaryngology (ARO) conferences. You may wonder: What’s it like being the only patient at a research conference? Are researchers...

ARO 2024 MidWinter Meeting This year we plan to attend, for the second time, the biggest hearing research conference: the Association for Research in Otolaryngology (ARO) 2024 MidWinter Meeting. When and Where? Anaheim California, from 3-7 February. What is Happening? More information about...

TRI Conference Background While we're still processing and editing all the footage and notes from the ARO (Association for Research in Otolaryngology) conference that I attended in February in Florida — more about that here — we're already getting ready for the next one. The Tinnitus Research...

We need your input for the Tinnitus Talk Podcast! We're preparing for an episode on sound therapy. That's a broad subject obviously, because there are many formal and informal treatments out there that include some element of sound. So we're really referring to any of those, from just playing...

Where does tinnitus come from? Most of you might know that the triggers for tinnitus lie in both the ear and the brain, and that hearing loss is one of the causes. But what are the exact mechanisms at play? Well, there's no one answer to that question, but we will try to give you the lay of the...

Okay, this will be the last voting round for 2021, so please take the opportunity to vote (once again) now! [NB: You need to be logged in to vote. Don't have an account? Signing up is easy, click here.] You can also still vote for January, February, March, April and May — we will keep all of...

We always feel humbled when people decide to donate to us. It’s so awesome to know that there are people out there who value our work enough to want to support us financially! We want to take this opportunity to put the limelight on our wonderful donors. Any donation size, big or small, carries...

It's that time again! You get to vote on the best research paper of the past month. Simply: 1) Read the summaries below — especially created for you to help you digest these papers easily; and 2) select your favourite paper in the poll. A big shout out once again to @Frédéric and @Aaron91 for...

We want to hear from you again! As per usual, we rounded up all the tinnitus related research papers from the previous month (April 2021) for you to vote on the "best" one. What does that mean? Well, just pick the one paper that you feel — from your personal perspective — adds the most value to...

It's that time again! You can help us influence the course of tinnitus research by voting on your favourite academic paper about tinnitus from the previous month. We have again made an attempt to provide easily digestible summaries of the papers, which you can find below, as well as in the...

Vote once again on the 'best' paper of the month! Select ONE research paper from the list above. The list represents all tinnitus-related academic papers published last month. Vote on whichever paper YOU believe is most valuable to those with tinnitus or just whichever one you personally find...

We’re back with another round of research voting! You get to have your say again and select ONE research paper from the total list tinnitus-related academic papers published last month. What should you do? Review the attached PDF. It contains the titles of all tinnitus related papers...

What are we really doing here? Running a tinnitus support forum is – for us – a labor of love. We spend many hours of our free time keeping this show on the road because we believe and hope that it might benefit people. Yet, it can also be dispiriting. We have to settle arguments when emotions...

Hey everyone! Tinnitus Week is coming up again in the first week of February. In connecting with the British Tinnitus Association an idea came up: Organising a webinar where tinnitus organizations can present on their past, current and future involvement in research. So, we've been working for...

What is this about? Many of you are not satisfied with tinnitus research, or the lack thereof. Many of you also feel that current research efforts do not meet your needs – and rightly so. We want to change that. Tinnitus Hub, the non-profit behind Tinnitus Talk, has been spending many hundreds...

Hi there! We've all been there. You develop tinnitus and it turns your world upside down. Surely, your doctor should be able to help? Apparently not... How about a specialist then, like an ENT or audiologist? Unfortunately, even those often turn out to know next to nothing about tinnitus...

What are the neurological mechanisms behind tinnitus? Do you want to learn more about the origins of tinnitus? Dearest Tinnitus Talk members, As part of our 2020-2022 Strategic Plan, we are planning to expand the Tinnitus Talk website to be more than just a forum. We want to provide the...

Hi everyone, Our research contacts from UCL have asked us to share a survey with you. Raj Shekhawat and his PhD student Tori Kok are working on a new tinnitus treatment, based on transcranial Direct Current Stimulation (tDCS). Before they start clinical trials for the new treatment — which at...

We are going to Vancouver for the TRI 2020 conference, and we want you to join us there! The conference will be held from 21-23 May, with a pre-conference workshop on 20 May. More information on the conference, including the program, can be found here. Last year, in Taipei, we managed to bring...

Biobanks have been a hot topic of discussion recently. The BTA’s recent political lobbying efforts called for the creation of a new tinnitus biobank. The just launched UNITI research consortium aims (amongst others) to aggregate data from existing biobanks. All of the above is much needed, but...

Many of you are not satisfied with tinnitus research, or the lack thereof. Many of you also feel that the research conducted doesn’t meet your needs – and rightly so. We want to change that. Tinnitus Hub, the non-profit behind Tinnitus Talk, has been spending many hundreds of hours over the...

Dr. Will Sedley wants to work with this community to shape his research plans. We are thrilled to bring you this first-of-its kind, and hopefully groundbreaking, opportunity to give input directly to a tinnitus researcher on their research plans. Typically, in academic health-related research...

I’m in Athens, Greece, right now, having just attended a 3-day kick-off meeting of a new tinnitus research consortium called UNITI. It’s another EU-funded tinnitus program, just like TINNET, ESIT, and TIN-ACT – all of which we were/are formal partners of. Having seen various such tinnitus...

Organised by the British Tinnitus Association (BTA) together with Sir John Hayes, member of the UK parliament, this event brought together tinnitus patients, researchers, policy makers and members of parliament. The aim of the event was to lobby the UK government and get more allocated funding...

Hi all, Earlier in 2019, we connected with the Hearing Health Foundation (HHF), an organisation that we follow with great interest, and discussed various means of collaborating with them. To start off with, they invited us to write an article for their magazine, which just got published! You...

Dearest Tinnitus Talk members and visitors, Six months ago, we asked you, the community, how you would like to be involved in tinnitus research. We conducted a poll, and the results indicated that a majority of you want to be involved in helping IDENTIFY RESEARCH PRIORITIES. Perhaps the...

Hey there, this is just an idea at the moment that @TuxedoCat, @Markku and I came up with, but we'd like to see whether we can pull it off. We want to explore whether we as patients can meaningfully improve tinnitus healthcare by affecting regulatory change. Examples of what we could do are: 1)...

This is the million dollar question isn't it? The reason many of you are here every day asking for help, venting your frustrations, and bonding over this affliction is that we don't have a cure. And what's worse we don't yet seem close to it either. This article provides a comprehensive overview...

Tinnitus patients often ask what they can do to move research forward. One way you can help is by volunteering for ongoing studies. This is possible for instance through the EU funded TIN-ACT programme. (But only if you're based in the EU near one of their study centres). TIN-ACT is a research...

Hi all, We were just wondering whether anyone in or near New York City is able to attend this event?: https://hearinghealthfoundation.org/blogs/hhf-scientists-to-speak-at-new-york-academy-of-sciences-symposium It sounds like it could provide a nice overview of what's going on in hearing...

Dearest members, As you may know, Tinnitus Talk contributes to tinnitus research through collecting patient data and sharing it freely with researchers. This has already led to a number of academic publications co-authored by us. Just last month a paper was published based our data about...

Considering how many people have tinnitus, and how many are severely bothered by it, it’s surprising to learn how few tinnitus related events, workshops, conferences there are. As a tinnitus patient, there’s hardly anything on offer. In most countries that is, because if you live in the UK (or...

Dear all, As some of you know, Tinnitus Hub (the managing entity of this forum) is actively involved in tinnitus research. Our main contribution to research is gathering patient data through surveys. We have conducted several major surveys by now, all of which got several thousands of...

Dear members, You are reading the Success Stories section of this site, probably because you are looking for hope or inspiration from others, or because you are thinking of posting your own success story. When I joined this forum 1.5 years ago, just a week after I developed tinnitus, and in a...

UPDATE on September 20th, 2019: A draft of the new NICE guidelines for tinnitus has been published. Tinnitus Talk staff kindly requests you to read and become familiar with the guideline. Afterwards, please submit your feedback and comments on the guidelines in this thread. In your message...

Hey there, Tinnitus Talk members! We recently started this thread to keep you posted on our work 'behind the scenes.' Some of you made nice comments in response (thanks!), but we decided to create this thread instead for any feedback or input you may have on our work. That way, our monthly...

Hi there, all you Tinnitus Talk members and visitors! We thought it might be nice to show you guys a bit more about what goes on here behind the scenes. And when I say 'here' I actually mean at Tinnitus Hub, which is the managing entity of the Tinnitus Talk support forum. Managing the Forum...

At the end of March, I will be attending an ESIT (European School on Interdisciplinary Tinnitus Research) meeting in Milan. Tinnitus Hub is part of ESIT’s supervisory board. You can find more information about ESIT here. ESIT management has asked me to give a presentation during the meeting...

We're so pleased to announce that a beneficiary has been picked for the Daniel Ballinger Memorial Fund. The fund donors - all tinnitus patients - assigned the GBP 5,000 grant to Ms. Elouise Koops (PhD) of Groningen University. At Tinnitus Hub (the managing entity of Tinnitus Talk) we feel very...

Hey all, As you might know, Tinnitus Week 2019 is coming up. It’s scheduled for 4-10 February. Partner organisations are us (i.e. Tinnitus Hub), The British and American Tinnitus Associations, and the Tinnitus Research Initiative. Each organisation will have its own campaign around Tinnitus...

It began over a year ago today. An uninvited guest that turned my world upside down. But I’m still standing, and in some ways doing better than before. This is my story of how I got better – may it help at least one person out there. Having spent a fair bit of time on this forum, I feel the...

Some of you may be familiar with the story of Gaby Olthuis. She struggled with severe tinnitus for many years, until she ended her life through euthanasia. For those of you unfamiliar with her story, please see this documentary (in Dutch, with English subtitles). We have recently been in touch...

Hi there, one of the things that surprised me in reading many of your experiences is that a lot of you seem to experience great fluctuations in your tinnitus, with changes in volume/type/pitch on a daily/weekly/monthly basis. I've had tinnitus for three months now and so far it's been stable...

Hi there, I've had tinnitus for nearly 4 weeks now. Mine is a high pitched ringing in my right ear only. Not very loud I suppose (although it doesn't always feel that way). As many of you have experienced, I went through extreme anxiety, sleeplessness etc. I seem to be getting a bit better now...