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  • Users: Layla23
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  1. L

    Is It True Some Members Cured Their Reactive Tinnitus with Keppra or Other Seizure Medications?

    Is it true some members here cured their reactive tinnitus and hyperacusis with Keppra and/or other seizure medications? My neurologist prescribed it to me but I don’t have insurance. So it’s $800 for one bottle. I don’t have that kind of money at all. I’m hesitant to sell my possessions for...
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    Zoe Cartwright — Reactive Tinnitus

    My reactive tinnitus is spot on to this video (except for the underwater scene... I’ve never heard a sound like that). Supposedly Zoe Cartwright has had very loud reactive tinnitus like this for 10 years. And has thrived :) But does anyone know how she is now? I can’t find her social media...
  3. L

    CRITICAL to Recovery — B12 Deficiency

    Update: I was finally able to leave my house to go to a neurologist. Turns out I have a B12 deficiency. Please look up “Could it be B12?” on Google and educate yourselves on all of the life long neurological ramifications from not having enough B12. Tinnitus, visual snow, and nerve pain are...
  4. L

    I Can't Go to the Doctor Because I Can't Leave My Home

    I’m 23 and I have been struggling leaving my home to go see doctors. If I’m around 70+ decibels (which is everything) especially if it’s a low sound like an engine sound or motorcycle or certain vacuum cleaners... I can still hear it in my brain clear as day even when I’m not near that sound...
  5. L

    Leaving My House Today for 1st Time

    I need to go to the ER today for some medical stuff but I haven’t left my home in 3 months because of reactive tinnitus, noise induced brain zaps, hyperacusis, and visual snow/floaters/after images. Just needing some positivity today. The ER is far and downtown Chicago is one of the loudest...
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    Tinnitus from Acoustic Trauma Is Brain Damage... What Are You Doing to Treat It?

    Hey everyone. I had tinnitus for a year and then suddenly 3 months ago I developed reactive tinnitus, hyperacusis, brain zaps, exploding head syndrome, eye floaters, visual snow, seeing flashing white lights while waking up, among other symptoms. I thought I was the only one and it turns out...
  7. L

    Jobs from Home When You Are Recovering from Severe Tinnitus and Hyperacusis?

    I am on a treatment plan to recover from my severe tinnitus and hyperacusis but right now working outside of my home is just not an option. Does anyone have any jobs they’d recommend working from home? I have a college degree. I’m trying to teach myself how to code but this comes with a whole...
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    I’m Signed Up for Stem Cells

    I was thinking of getting surgery for my hyperacusis and reactive tinnitus until a prominent hyperacusis researcher brought it to my attention that I actually mainly have reactive tinnitus (and that it is SEPARATE from hyperacusis). People keep telling me to habituate but recently I’ve...
  9. L

    New Symptoms Every Single Day (Seeing Black Spots Move)

    I’ve been battling reactive tinnitus and hyperacusis for theee months. My tinnitus and hyperacusis changes everyday. Today i stepped outside and my vision went black. I could not see ANYTHING. ANYTHING at all. Then my black spots started to move. Are these black eye floaters?!?! What the hell...
  10. L

    Reactive Tinnitus Tone Migrating to Other Side of Head/Ear

    Reactive tinnitus tone from left ear is migrating to my right side. I’ve heard this happening to many people even without any new noise (or otherwise) damages. Should I take steps to intervene or is this normal? I’m worried only because this exact tinnitus tone in my left ear is what preceded...
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    Researcher Told Me Reactive Tinnitus Is Not Hyperacusis

    Hey everyone! I thought I’d share this information since there seems to be A LOT of debate about this. I have several consistent generic tinnitus tones, reactive tinnitus, and hyperacusis. I’ve been doing a lot of research (reaching out to journalists and authors of research journals and such)...
  12. L

    Pulsatile Tinnitus in Right Ear from Pillow Suction

    I posted a thread a few days ago about how I had my right ear on my pillow and when I turned my head... some suction I guess between my ear and pillow were formed and my ear popped and started to ring immediately (but went away after a second or two). Fast forward, now I hear pulsatile tinnitus...
  13. L

    No Debate — Reactive Tinnitus — I Need Help Please

    I’m begging all of you please do not make this a thread about “is reactive tinnitus” even real? If you have to ask that...this thread does not apply to you. Please do not prevent me from getting the help that I need from the people that will understand. I am 23 and I am at my wit’s end. I...
  14. L

    Pillow Popped My Ear? Help?

    Hey everyone. Sorry that I’ve been posting a lot lately but my tinnitus and hyperacusis are at catastrophic levels so I’m trying my best to not make it worse. This morning, I had my head on my pillow and it somehow created pressure between my ear and the pillow. It almost made a vacuum...so...
  15. L

    Am Gonna Try Surgery for Hyperacusis

    Hey everyone, I came across a surgery for hyperacusis. It’s a semi permanent (super expensive) ear plug that completely blocks high frequency sounds. Supposedly if I change my mind I can have surgery again and have them removed. My hyperacusis gets worse with high frequency sounds so I feel...
  16. L

    Please Help Me Find User “Sen”

    I am 23 years old. I’ve had tinnitus for a year. I recently developed H and “reactive tinnitus”. My symptoms are EXACTLY the same to how Sen described. Literally everything —even the exact sound of my reactive T was the same (wind in a hollow cave that changes pitch). Sen posted that eventually...